Happy holidays from all of us at PEPR! We are so grateful for all of the connections we've made across our growing network and for all of the progress we made together in 2025. Wishing you and yours a great holiday season. See you in 2026 🥂

We're pleased to share our December newsletter! 2025 has been a productive year for the #PEPRPartnership. We’ve added new team members and made important progress on projects and initiatives. Please have a look, and connect with us if you have questions or ideas about our research.

Get to know PEPR 🫑 To learn more about #PeprPartnership, visit www.pepr-partnership.org

🎙️Episode 2, Part 2: Why Do We Need an EDID Lens in Pain Research? Inclusive Language, Structural Violence, and the Power of Community Check it out and subscribe to #LivingProofPodcast on your favourite platform: 🔗YOUTUBE: shorturl.at/TnwVC 🔗SPOTIFY: shorturl.at/ovpHX 🔗APPLE: shorturl.at/S0P8v

🎙️PODCAST PREVIEW Living Proof: Experience as Evidence in Pain Research Part 2 of Episode 2 - Why Do We Need an EDID Lens in Pain Research? Our language around pain overlooks the collective impact of colonization. Stay tuned for the latest episode of #LivingProofPodcast from #PeprPartnership.

If we aim to truly #PriortizePain, all experiences and communities must be engaged. At PEPR, we’re developing a culturally responsive framework for engaging Indigenous patients that bridges academic methodologies with Indigenous healing practices and knowledge systems. #NPAW2025 #PeprPartnership

This #NPAW2025, be mindful of the guidelines and frameworks that shape #patientengagement. #PEPRPartnership is conducting an interpretive synthesis to identify the assumptions underpinning PE frameworks in order to re-imagine what it might look like in ways that promote equity and decolonization.

Have you seen the latest episode of #LivingProofPodcast? Meaningful engagement is a call to recognized lived experience AS evidence. Thank you Jenny Lorca, for this perspective. 🔗YOUTUBE: youtu.be/bbGmm952tGY 🔗SPOTIFY: tinyurl.com/43z746tb 🔗APPLE: tinyurl.com/4m2mbcmx #PeprPartnership #NPAW2025

This #NPAW2025, PEPR would like to emphasize how we’re identifying institutional interests that underpin #pain #research in Canada and exploring the social relations that organize the experiences of #PWLE of #ChronicPain. #PrioritizePain #PeprPartnership

#PeprPartnership aims to #PrioritizePain through our Brokered Dialogue project that aims to understand how #PatientEngagement is characterized & understood by those holding a range of relevant #ChronicPain perspectives. Learn about the project: www.pepr-partnership.org/projects/bro... #NPAW2025

🎙️Episode 2 of LIVING PROOF: Experience as Evidence is here! 🔗YOUTUBE: youtu.be/bbGmm952tGY 🔗SPOTIFY: open.spotify.com/episode/568n... 🔗APPLE: podcasts.apple.com/ca/podcast/p... Please subscribe, and stay tuned for part 2! #PeprPartnership #NPAW2025

PEPR Partnership supports meaningful engagement in #ChronicPain research in ways that move beyond the individual towards communities. Through community consultations, we’re learning collaboratively & carefully how, when & where to engage #PWLE of #pain & marginalization. #NPAW2025 #PeprPartnership

🎙️PODCAST PREVIEW Living Proof: Experience as Evidence in Pain Research Episode 2: Why Do We Need an EDID Lens in Pain Research? We can't wait to share the latest episode of #LivingProofPodcast with you tomorrow. Stay tuned! #PeprPartnership #NPAW2025

PEPR is proud to support the Putting the Pieces Together Conference. Tune in now, and throughout the week. You can find more information here: www.paincanada.ca/events/putti...

It's National Pain Awareness Week! Our systems of care can be improved to help the 8M Canadians with pain to live better. This #NPAW2025, look at how far we've come in the implementation of the Action Plan for Pain in Canada has come & how far we still need to go. PainCanada.ca/actionplan

"The Unforgotten" is a film that explores systemic racism, the impacts of colonialism and the ongoing trauma experienced by Indigenous peoples in the Canadian health care system. You can view the film here: theunforgotten.cma.ca

Today we observe National Day for Truth and Reconciliation. We reflect on and acknowledge the historical and current lived experiences of Canada's Indigenous Peoples and strengthen PEPR's ongoing commitment to decolonization in our research, engagement, and knowledge mobilization practices.

🎙️Episode 1 of LIVING PROOF: Experience as Evidence is here! 🔗YOUTUBE: youtu.be/Xtw3AET8y5k 🔗SPOTIFY: open.spotify.com/show/6lrG3BV... 🔗APPLE: podcasts.apple.com/ca/podcast/l... We invite you to listen, subscribe to #LivingProofPodcast, and share your feedback with us at #PeprPartnership.

Here's a clip from our debut #LivingProofPodcast episode, dropping on Monday! Stay tuned on all of our #PeprPartnership channels for our premiere.

Our colleagues at @kidsinpain.bsky.social are hiring 👇

We're pleased to share a sneak preview of our new podcast, Living Proof: Experience as Evidence, launching in one week! What topics or questions would you like us to explore in future episodes of #LivingProofPodcast? Follow us here on Bluesky, and stay tuned for our premiere. #PeprPartnership

PEPR's podcast LIVING PROOF: Experience as Evidence in Pain Research premieres Sep 22 during #PainAwarenessMonth. #LivingProofPodcast brings together researchers and people with lived experience to ask: What counts as evidence, and how do we share it? Follow #PeprPartnership for updates!

Canadian Journal of Pain special issue: "Social and health inequities in chronic pain across the lifespan." Members of our partnership, including @fionawebster1.bsky.social, are co-editors. Check out the collection, including their insightful editorial, here: www.tandfonline.com/toc/ucjp20/8/2

Dr. Laura Connoy is a critical sociologist whose research interests center on chronic pain, trauma, and social injustice. She is the Research Manager for the #PEPRPartnership and Postdoctoral Associate. She is involved in various projects that focus on #patientengagement in #chronicpainresearch.

Kathleen (Kate) Rice is the Co-Director - Academic for the #PeprPartnership. Kate is Assistant Professor and Research Director in the Department of Family Medicine at McGill University, where she holds the Tier II Canada Research Chair in the Medical Anthropology of Primary Care.

We are thrilled to announce PEPR’s new partnership with the Saskatchewan Pain Society aka SaskPain! You can learn about SaskPain at their website saskpain.ca

We're on LinkedIn! Connect with us www.linkedin.com/company/pepr-partnership #PeprPartnership

Desmond Williams is the Co-Director - Person With Lived Experience for the #PeprPartnership. He also helps people to manage #chronicpain through movement and mindfulness. In his advocacy work, Desmond aims to amplify the voices of marginalized communities. #PainResearch #PatientEngagement

Professor Fiona Webster @fionawebster1.bsky.social is PEPR's Director and Principal Investigator. PEPR was founded in 2022 as a result of receiving a $2.4 million SSHRC Partnership grant, entitled Toward Democratization of Health: A Sociological Exploration of #PatientEngagement in #PainResearch.

www.youtube.com/watch?v=Ow21... 🎧 Living Proof: Experience as Evidence in Pain Research. This is the trailer for PEPR's new podcast exploring connections and opportunities to integrate #livedexperience in #chronicpainresearch. 👉 Please subscribe to our channel to hear about our first episode!

We're so pleased to share our Summer 2025 newsletter! Take a look at what we've been working on so far this year. We've also welcomed several new people to the partnership. Wishing you a fabulous summer ☀️ #PeprPartnership

The Canadian Journal of Pain is accepting submissions for an article collection: "Improving Pain Research Through Knowledge Mobilization and Implementation Science." More information can be found here: think.taylorandfrancis.com/article_coll...

We had a great time at this year’s @canadianpain.bsky.social annual meeting in Toronto. Congrats to the organizing committee! We are so grateful for all of your support. #CanadianPain25 #PeprPartnership

Happening now in Emmanuel College room 119. Our symposium explores #criticalscholarship in #painresearch and how we can use it to understand issues of equity. #CriticalPainScholarship #PeprPartnership #CanadianPain25

Our last session of the day is a fireside chat where we ask the question, “How do we establish a new field?” This chat is lead by Dr. Joan Eakin and Dr. Annalise Weckesser. #CriticalPainScholarship #PeprPartnership #CanadianPain25

Next up we have a book presentation: Dr. Joanna Kempner shares “Outlaws, Outcasts, and Iconoclasts: Rethinking Pain Medicine Through Patient-Led Innovation.”

Our first session of the afternoon is a panel: The (in) commensurability of pain: Measurements / visuals / graphics. See abstracts below. #CriticalPainScholarship #PeprPartnership #CanadianPain25

Our third session today is a panel: “Thinking, and talking, about patients and the clinical trials encounter.” See abstracts below #CriticalPainScholarship #PeprPartnership #CanadianPain25

Our second session of the day. See abstracts below #criticalpainscholarship #peprpartnership #canadianpain25

Our first session of the day. See abstracts below #criticalpainsholarship #peprpartnership #canadianpain25

We are ready for a day of connecting, learning and sharing #criticalpainscholarship at the CASPR conference at #CanadianPain25. We are in Emmanuel College rm 119. #PeprPartnership

It’s going to be a great conference! #CanadianPain25

Check out the agenda for this Friday's CASPR (Critical Approaches to Scholarship in Pain Research) conference at the Canadian Pain Society ASM. If you're attending CPS, we hope you'll join us. Register here: tinyurl.com/34xe8cb2 #CriticalPainScholarship #PeprPartnership #CanadianPain25

Excited for #CanadianPain25! Please join us for “Critical approaches to pain research: What is it and how might it be useful to understand issues of equity?” with Desmond Williams, @fionawebster1.bsky.social, Laura Connoy, and Gail Teachman. May 4, 2:00-3:15, Emmanuel College 119 #PeprPartnership

The Master of Clinical Science in Advanced Health Care Practice (Interprofessional Pain Management) program at @westernu.bsky.social delivers advanced, interprofessional training in pain management and a strong focus on pain scholarship and leadership in science. 👉Check out uwo.ca/fhs/programs...

Most Canadians say our health care system isn't meeting the needs of the 1 in 5 people dealing with #ChronicPain. People with pain need the support and leadership of all candidates this #Canadianelection. Check out Pain Canada's toolkit: www.paincanada.ca/media-kits/e... #cdnpoli #canadavotes

Our #PeprPartnership Director @fionawebster1.bsky.social will be participating in a Pain Catastrophizing Debate at @efic.bsky.social #EFIC2025 in Lyon, France next week! Fiona's presentation, "Pain Catastrophizing: Language Matters” draws on this paper www.sciencedirect.com/science/arti...

Review the agenda for the upcoming CASPR (Critical Approaches to Scholarship in Pain Research) conference HERE: www.pepr-partnership.org/events/caspr... If you're attending Canadian Pain Society's ASM, we invite you to join us on May 2. #PeprPartnership #CriticalPainScholarship #CanadianPain25

For research teams that include patient partners in co-writing papers, here are some tips for: 👉patient partners reviewing manuscripts - pxphub.org/patient-part... 👉others on the research team in asking for patient partner input and some guidance - pxphub.org/research-tea... #PatientEngagement

"Lived Expertise Consultant" - I like the sound of that! #Patientengagement Evaluation of the Patient Innovation Partner Role: Perceived Benefits, Structures, Supports, and Recommendations for Lived Experience Engagement in Healthcare Innovation Teams - PMC pmc.ncbi.nlm.nih.gov/articles/PMC...