Join Dr. Loren Yavelberg & Dr. Harleen Kaur for an expert-led webinar on nutrition, exercise, and wellness strategies for sarcoma patients and survivors. bit.ly/Nutrition-Ex... #Sarcoma #CancerCare #Nutrition #ExerciseOncology

Understand #ClinicalTrials and how they can shape treatment options - hear both expert and patient insights. bit.ly/ClinicalTria... #ClinicalTrialsDay #Sarcoma #GISTAwareness

Is my data safe? Yes, patient registries use secure systems and privacy protections to safeguard personal information while helping researchers advance better treatments and care. #PrivacyMatters Learn more: bit.ly/PatientRegis...

A #GIST diagnosis changs everything. At Life Fest 2026, learn why understanding your rare disease matters. bit.ly/LifeFest2026... #LifeFest2026 #PatientEducation #GISTCommunity #ThrivingTogether

An inside look at how #ClinicalTrials work, who they’re for, and what to expect, with expert insight and a patient experience. bit.ly/ClinicalTria... #GISTcancer #ThrivingTogether

These are a few of the ongoing & new GIST clinical trials & programs currently enrolling. If you have questions or need help navigating a #ClinicalTrial, contact: Simran, [email protected] #KQB198 #PEMIGIST #Pemigatinib #StrateGIST3 #ExpandedAccessProgram #Bezuclastinib

Life Fest is more than an event, it’s a chance to learn, connect, and feel supported. Apply for the Life Fest Scholarship today for the opportunity to join us in Nashville. bit.ly/ScholarshipL... #GISTSupport #PatientCommunity #NashvilleEvents #ThrivingTogether

Join Life Raft Group Canada on May 30 for an updated GIST 101 with Dr. David Josephy and learn more about the role of clinical trials #GISTCommunity bit.ly/CT-LRGCanada #GIST #ClinicalTrials #PatientEducation

What kind of data is collected in a #PatientRegistry ? From diagnosis and mutations to treatments, side effects, and quality of life, each data point helps drive research and improve rare disease care. Learn more: bit.ly/PatientRegis... #PatientReportedData #GIST #MoveTowardACure #GISTcancer

Program Coordinator Tara Ruggiero heads out to Sweden to attend the 16th Annual SPAGN meeting to represent the US GIST & liposarcoma patient communities. She’ll be presenting the Global Advocate Academy Course we created in partnership with @sarcomapatients.bsky.social #patientadvocacy #patientvoice

Phase 2 PEMIGIST trial enrolling adults with advanced SDH-deficient GIST. Studying #pemigatinib for progressive, measurable disease not eligible for surgery. Questions/info: [email protected] #clinicaltrials #SDHdeficientGIST #GISTeducation

Your chance to experience #LifeFest starts here. The Life Fest Scholarship can help patients and caregivers attend this inspiring event. Apply now: bit.ly/ScholarshipL... #GISTSupport #PatientCommunity #NashvilleEvents #ThrivingTogether

Join Dr. Rashmi Chugh & GIST Advocate Dirk Niggemeyer for a conversation about what patients can expect when considering a #ClinicalTrial. Register: bit.ly/ClinicalTria... #GISTeducation #GISTcancer #ThrivingTogether

The right information makes all the difference. Join us at Life Fest 2026 to connect, learn, and be empowered. REGISTER: bit.ly/LifeFest2026... #LifeFest2026 #PatientEducation #GISTCommunity #ThrivingTogether

Join Triage Cancer for a simple guide to understanding Medicare for first-time enrollees. Register: bit.ly/Triage-Medic... #Medicare #PatientEducation #CancerSupport #TriageCancer

Listen to 'Advice from Long-Term GIST Survivors' - Panelists shared honest insights & experiences on living long-term with #GIST. Watch: bit.ly/SurvivorsWeb... #CancerSurvivors #PatientSupport #ThrivingTogether #GISTCommunity

Every story shared in the LRG Patient Registry brings researchers closer to answers that can improve care and move us toward a cure. Learn more: bit.ly/PatientRegis... #GIST #PatientRegistry #MoveTowardACure #GISTcancer

Inspired by the strength of the #GISTcommunity, Toni is running as an LRG athlete to bring hope and support to patients and families. bit.ly/Toni-Maratho... #ThrivingTogether #LRGathletes #JerseyCityMarathon #RunForACause

Our Caregiver of the Month, Gentry, shares her journey supporting her husband Anthony through #GIST, facing recurrence, recovery, and finding strength in community every step of the way. bit.ly/COMApril2026 #caregiverofthemonth #CaregiverStrong #ThrivingTogether #GISTCommunity

Toni is turning her marathon journey into a mission, running to uplift and support the GIST community every step of the way. bit.ly/Toni-Kudo-JC... #ThrivingTogether #LRGathletes #GISTcommunity #JerseyCityMarathon #RunForACause

Starting in 1 hour! Join long-term GIST survivors as they share real stories & advice for patients and caregivers. Join here: bit.ly/LT-Survivors #GISTCommunity #SurvivorStories #ThrivingTogether #PatientSupport

A patient registry brings patient voices together for rare diseases, turning real experiences into insights that guide treatments & improve care. bit.ly/PatientRegis... #GIST #PatientRegistry #MoveTowardACure #GISTcancer

Antoinette Pauwels is heading to Miami for the Precision Medicine Symposium on April 11, hosted by Sylvester Comprehensive Cancer Center. She’ll join a powerful panel, Thriving Beyond Cancer Risk or Diagnosis. bit.ly/PrecisionMed...

Session recordings from the March's GIST Summit at MD Anderson are now available on our YouTube Channel. bit.ly/GISTSummit-G... #GISTeducation #GISTSummit #GDOLTexas #GISTcancer @mdanderson.bsky.social

A new clinical trial is testing #KQB198 with imatinib in first-line advanced GIST. Explore if this could be an option for you. Contact: [email protected] #clinicaltrials #metastaticGIST #GISTeducation

Gain valuable insights from long-term #GISTsurvivors as they reflect on their journeys and share practical advice to help others navigate life with GIST. Save your spot: bit.ly/LT-Survivors #GISTCommunity #PatientVoices #LongTermSurvivors

Patient Symposium on precision medicine in sarcoma in Miami April 11. bit.ly/PrecisionMed... #PrecisionMedicine #CancerSupport #Survivorship #PatientAdvocacy #ClinicalTrials #CancerAwareness #ThrivingTogether

Training with dedication for the Jersey City Marathon, staying committed to every mile in support of the #GISTcommunity. Support Toni: bit.ly/Toni-Kudo-JC... #ThrivingTogether #LRGathletes

Hear from those who’ve been there, long-term #GISTsurvivors will share the lessons, strength, and perspective they wish they had from the start. Register: bit.ly/LT-Survivors #GISTCommunity #PatientVoices #LongTermSurvivors

Toni is taking on a marathon to honor the strength of the #GISTcommunity that inspires her every day. bit.ly/Toni-Kudo-JC... #ThrivingTogether #LRGathletes

Let's get ready for the #ClevelandMarathon weekend! Sign up today & choose The Life Raft Group as your designated charity. LRG Athletes bring more meaning to every mile! Register: bit.ly/ClevelandMar... #ClevelandRunners #CLErunning #RunCleveland

Join us for real talk from long-term survivors on what actually matters, what they would have done differently, and what they want you to know now. bit.ly/LT-Survivors #ThrivingTogether #PatientSupport #CancerSurvival

A patient registry turns individual stories into shared insight. For a rare disease every data point matters. Your experience helps complete the picture and move research forward. For more info: bit.ly/PatientRegis... #GIST #PatientRegistry #MoveTowardACure

Barney, our Patient of the Month, faced a life-changing GIST diagnosis overnight, but his story is one of resilience, family, and hope. Read more: bit.ly/POMMarch2026 #PatientOfTheMonth #PatientStory #ThrivingTogether

Don’t miss this upcoming webinar from Triage Cancer on navigating insurance hurdles. Learn practical tips to better understand coverage, appeals, and how to overcome common barriers when accessing care. bit.ly/Triage-Insur... #TriageCancer #HealthInsurance #InsuranceHurdles

Our Patient Registry has reached 3,000 participants. Today we honor patients, caregivers, & researchers who made this possible. Your participation helps drive progress in #GISTresearch and fuels progress. Learn about our registry: bit.ly/PatientRegis... #PatientRegisty #3000

Register today to join the GIST community in Nashville for a weekend in July (10th-12th) for education from the experts & connection with other GISTers. bit.ly/LifeFest2026... #GISTeducation #ThrivingTogether #LifeFest

Curious about histotripsy? Dr. Jiping Wang breaks down the basics, then an esteemed panel of sarcoma experts, led by Dr. Elizabeth Lilley, discuss what patients need to know about this treatment’s potential in sarcoma. Watch now: bit.ly/HistotripsyLRG #histotripsy #sarcoma #GISTeducation

Curious about histotripsy? Dr. Jiping Wang breaks down the basics, then an esteemed panel of sarcoma experts, led by Dr. Elizabeth Lilley, discuss what patients need to know about this treatment’s potential in sarcoma. Watch now: bit.ly/HistotripsyLRG #histotripsy #sarcoma #GISTeducation

Starting in 1 hour! Don’t miss this webinar exploring the potential role of #histotripsy in liposarcoma care, led by sarcoma experts. Join us soon. bit.ly/Histotripsy-... #Sarcoma #CancerEducation #Liposarcoma

Happening tomorrow! Join our webinar to learn how #histotripsy may offer new possibilities for people affected by GIST. Hear directly from sarcoma experts and get informed. Register today. bit.ly/Histotripsy-... #Sarcoma #CancerEducation #GIST

Caregivers wear many hats throughout a cancer journey with their loved one. Today we honor them and remind them that they are not alone. Support is available for ALL those living with #GIST. Read more: bit.ly/CaregiverDay... #NationalCaregiversDay #CaregiverSupport #sarcoma

#LifeFest is all about YOU! Connection, education, and a #GISTcommunity that understands and supports you. Register: bit.ly/LifeFest2026... #LifeFest2026 #Nashville #GIST

Join Triage for a webinar on navigating work, leave, disability, and retirement during a cancer diagnosis: bit.ly/Triage-WorkDecisions #CancerAndWork #TriageCancer #PatientSupport

In our Valentine’s edition, meet Carolyn and Mark, a love story rooted in resilience, partnership, and choosing joy through life’s ups and downs. Read full story: bit.ly/POMFeb2026 #patientofthemonth #caregiverofthemonth #patientstory #ThrivingTogether

Learn about histotripsy, an emerging noninvasive treatment using focused ultrasound, in this educational webinar featuring leading sarcoma specialists. bit.ly/Histotripsy-... #Sarcoma #CancerEducation #GIST @danafarber.bsky.social @unevadareno.bsky.social @mdanderson.bsky.social

GISTers! #LifeFest is this July, and we’d love to see you there 💙 It’s a weekend to connect, learn, share stories, and just be with people who get it. Come for the experts. Connect with your community. REGISTER: bit.ly/LifeFest2026... #Nashville #patientsupport #GISTeducation #ThrivingTogether

Behind every cancer diagnosis is a unique human story, stories of resilience, grief, hope, and healing. People-centered care means seeing the whole person and meeting their unique needs with compassion and empathy. Read Rashi’s story here: bit.ly/WCD-2026 #WorldCancerDay #UnitedByUnique

Join the LRG team for this expert talk on #histotripsy. Learn the truths & misconceptions about the procedure as it relates to sarcoma & bring your questions! bit.ly/Histotripsy-... #Sarcoma #CancerEducation #GIST @danafarber.bsky.social @unevadareno.bsky.social @mdanderson.bsky.social

Houston GIST patients and caregivers: The 2nd Texas GIST Summit/GDOL is happening with @LifeRaftGroup, GIST Support International & @MDAndersonNews. Expert insights, in-person connection, and deep dive Q&As. Register: bit.ly/SummitGDOL-T... @jtrent.bsky.social