I’ve started playing Medieval Dinasty on ps5 and it’s so much fun. I think this must be the game I’ve tolerated best so far. Rarely gets my pulse up and it’s so relaxing chopping wood and collecting mushrooms! #MEfriendlygaming

If I continue receiving bible tiktoks in my inbox on tiktok I might just start replying with Islam videos just to mix it up.

Gratinated fish casserole ”Fiskegrateng“, an old Norwegian dish. It’s creamy white sauce, macaroni, white fish and breadcrumbs on top. Made from scratch and honestly it’s delish and so filling! This is one of those dishes you can make huge portions of and just heat up later and it’s always good.

My racist christian family member: Muslims are a terrible people. Me: Christians are a terrible people. *silence*

Usually I’ve been able to eat two meals a day. Now I’m down to one. This is noooot good.

Bought two mangos at the shop. Opened one and it smelled funky. Tasted it, was mushy. Threw the whole thing away. Opened the second one and it had that same smell. Threw it away. Why is eating fruit so god damn hard.

I’m so tired of war and it hasn’t even come here yet.

I just need a device I can lay down in, push a button and have it shampoo my hair, lather my body in soap and wash my butt crack.

I’ve never been so exhausted that I threw up before. There’s a first for everything, I guess. I can’t eat today. No solids. This is happening more and more often for me. I feel like I’m in a downward spiral.

I miss having a best friend. I haven’t had that in years and I really miss it.

I have sent a formal response to the Norwegian Directorate of Health regarding their draft guidelines on ME/CFS. In my response, I addressed some of my concerns and what I’m deeply worried about. This letter is for the process of the Norwegian NICE guidelines for ME patients in progress. 1/5

The amount of pressure from the right side of ME/CFS is really building in Norway right now. There’s a high-profile case regarding welfare for ME patients, New Guidelines in the work and a lot of people are rallying with what little energy they got. I smell CHANGE in the atmosphere!!

I have sent a formal response to the Norwegian Directorate of Health regarding their draft guidelines on ME/CFS. In my response, I addressed some of my concerns and what I’m deeply worried about. This letter is for the process of the Norwegian NICE guidelines for ME patients in progress. 1/5

3 hours of sleep and no more in sight. Being out of sleeping meds is going to be the end of me and I won’t get more until Monday. The idiot that decided that Norway should stop producing it’s own meds and rely on import needs a lynching.

I’m watching the debate about the new ME guidelines on national TV and I’m FUMING. ”People can say anything is PEM and people who wake up and call it a bad day won’t report PEM.“ ”There is no scientific proof for the amount of symptoms ME patients say they experience.“ These people are EVIL.

I’m trying my hardest to digg my family members out of far right propaganda and let me tell you, those things sting their claws in deep. Fucking hell.

Repairing old wash clothes and making new ones of old towels ♻️ This is going to take me days, but oh my the money I’m saving!

Pringles annoy me. Why make them so large that I have to bite it twice to eat it? #MEthings

I found a pool of water beside my chair and I can’t for the life of me figure out where it came from. I even looked up and it’s not from my ceiling. Today’s mystery.

I am following a precedent-setting court case concerning ME and disability benefits here in Norway and reading the statement from the Norwegian ME Foundation made me sick to my core. They gave a complete summary and it’s been so hard to read. They really do think we’re just lacking motivation.

I just spilled a cup of instant spaghetties (bolognese) all over my newly washed hair, the carpet, the ceiling, my clothes, my hand knitted alpakka socks, oven and all the cupboards. Everything is fine except from the ecru colored carped which is now orange. This picture is AFTER the cleanup crew.

Following the Epstein files has made me physically ill. I won’t repeat on here the worst thing I’ve read, cause it gave me mental issues and I won’t pass that on to others, but BABIES!?!! These people need to be put in a pillory in the town square and stoned. Sick motherfuckers!!

YES,WE ALL NEED TO SEE THE PEDO PERP WALKS........

A Norwegian joke translated to English and it’s still funny.

I didn’t fall asleep until 13.30 yesterday. Then at 17.30 I was awakened by the fire alarm, then at 23.30 cause my dog suddenly got diarrhea. I gave up. I’m feeling drunk and like I’m on a boat with influenza. All I want is my own apartment soundproofed someday to be able to sleep whenever I need.

Trump is now saying he’ll send a Hospital boat to Greenland cause Denmark is neglecting the people. Neglecting them with free healthcare? What are they going to do with the boat? This is beyond madness.

I gave my GP a nudge with this message today/how to politely say fuck you: I haven’t received a reply to all the e-consultations I have sent you. One goes as far back as 27/12 regarding arthritis. I have been too unwell to follow up on this, and strictly speaking, it shouldn’t be necessary either.

The Norwegian national newspaper VG wrote about a woman with ME: ”Before she herself became mentally ill“ and I’M FUMING. ME is NOT a mental illness @vgtv.no, SHAME ON YOU. Do better. You owe Pernille a public apology, as well as ME patients everywhere.

One hobby I don’t have now, but would have if I was a billionaire; Typing in random phone numbers in money transfer apps and/or bank accounts and sending them huge amounts of money just because.

I’ve done way too much lately. Again. #PEM

I’m struggling so bad with eating. I feel hunger, but I’m totally uninterested in food and I hate it. I WANT to want to eat and I don’t want to feel this way. I think I need to buy nutrition drinks to just be able to drink my meals sometimes when needed. I’m too tired to make anything or chew.

I had no other choice yesterday than to carry 5 bags of 15kg firewood. There was no way my grandma could because of her heart and my mom can’t carry heavy things atm without severe pain, so I’m the only one left. It was the lesser evil. It feels evil today though.

My mother went to the pharmacy to buy my sleeping meds (I cannot sleep without them) and they are out. In every pharmacy. It’s production problems and it would take two weeks to get it. If I ration my meds it can hold 10 days. 6 days if I take the normal dosage. I don’t know what I’m going to do.

KVEITHAU - pronounced k-vayt-how A north-Norwegian swear word for someone when they are being an absolute idiot. Directly translated it means ”Halibut head.“ This is perfectly ok to call your friends and random people. As long as it’s deserving. Even to police can be ok. They’d laugh it off.

I’m this 🤏🏻 close to opening a go fund me and collecting money until I have enough to take the god damn welfare system to court. I’m soon at my wits end.

I’m in a research project that’s put in place to makes changes to the welfare program in Norway. I wrote them everything that’s happened so far and they told me it was sad to read and that they sincerely hope to change the system. I feel blessed to have been a part of that. Translated edition:

”It’s not enough that you yourself are saying that you’re not depressed or have anxiety.“ - From my rejection letter a few days ago. They want a psychiatrist to come to my home and evaluate me for depression and anxiety. Yeah no, thanks. I’m good.

I just got a canker sore in the back of THE ROOF OF MY MOUTH WTH

I ordered candy an hour ago. Now I’m ordering subway. No regrats.

My go to food these days are raw carrots. So easy. I eat probably 2-3 carrots a day just because I’m too tired to make anything else.

The welfare office rejected my claim again and accused me of lying about my previous job and they said ”We think you did well in your last job." I almost got fired for oversleeping and this was on mild ME. So now I’ve had to reach out to two co-workers and expose myself to get proof. This is dumb.

Almost every time I touch my sink in the kitchen I get zapped. It’s like a russian roulette going for a glass of water. Love that for me.

Going for a check up at Specsavers when you’re in PEM is not fun. Worst idea I’ve had in a long while. I haven’t been there in well over two years so it was overdue. Still, I could’ve timed it better. Cudos to the eye chick lady tho for recognizing ME and telling me that’s why my eyes are tired.

I’m watching ”In the eye of the storm“ on HBO and I can’t believe the horrors the US has to face when it comes to tornadoes and storms. A north Norwegian storm is nothing in comparison. I appreciate the safety I get to live in and I’m so thankful. No tornadoes, no snakes and no venomous animals.

I just ate the juiciest, perfectly ripe and delicious mango. I’m never going to experience this high again. It was so good.

I’m watching videos on TikTok from the start of and during the first time of the pandemic and I’m in tears. I can’t believe that happened to us all.

The more I learn about politics and progressive or conservative thinking is that we all want the same, we just respond differently to how things are said. The left is bad at marketing in the conservatives has mastered propaganda and uses it cause it works.

I’m really not feeling well. I have violent hiccups that won’t go away. I broke my favorite expensive underwear because my nail went through and made a hole. I have been awake for 20 hours. The skin on my hands are cracking. I’m hormonal. Fuck this day.

Why is it always the thing I want the most that’s ”out of stock“ when I’m shopping groceries in the app?? What curse is this..? 😭