I just ate the worst ceasar salad of my life. How the fuck do one fuck that up that bad. Chunks of bacon fat, nearly cooked chicken and the fat from the pan had probably been dumped into the salad as it tasted only from the grill. The salad was obviously not fresh. Too much dressing. 23$ of yuck!

I went on an adventure today. First in months and it felt so good. 15 minutes out at the beach with my dog who went absolutely crazy sniffing all the smells. I needed that and I’m going to try to do that more often.

I won the lottery today! Crazy feeling seeing number after number coming up. 6 out of 7! Still, it was ”only“ 375$, but maaaan do I need it. Fridge empty, 0 in my bank accounts. If I had one number more it would’ve been either 10.000$ or 32.000$, but I’m not complaining. I’m so happy!

I’m so hungry, but I’m too fatigued to make anything. I see no other way out than to order food. If I do order now, then I’ve spent 80$ on food for two days. I can’t get ahead financially because I have to spend so much money on takeout. I’m so sad. This illness is ruining my life and my wallet.

Excuse me, but which one of you fuckheads ordered me PEM? Send it back NOW. Anyways.. I managed to draw a little today. Not impressed, nor disappointed.

Some asshole posted a picture of a severed dog paw on Facebook looking for it’s owner since ”it must be from a missing dog.“ Who in their right mind would post something like that? I would be DEVASTATED if that was my dog and I saw that picture. Tbh I’m still devastated. Wtf is wrong with people!?

I really hope I get to experience a boring timeline again at some point in my life. It can’t continue being this chaotic forever. It just can’t.

When the new people in the healthcare are trying to figure out the riddle that is my veins for a blood test and I end up with as many new holes as I have already. I swear my veins are acrobatic, so at least some part of me is doing some sort of workout.

Trump has completely lost his marbles! I think he is capable to send a nuke on Iran tonight. Then we have Russia answering and it’s all turned to shit. Excuse me, but I WANT OFF THIS PLANET

So, the US, I’ve heard you’re finally trying to remove Trump? Can you please speed things along? - Sincerely, the rest of the world.

Makes sense. I occasionally wonder which of the evil psychopaths that I have crossed paths with in my past has a voodoo doll of me.

I haven’t said everything on here that’s been happening in my life, obviously. But I’ve had the worst weeks, months and years. It’s been one battle after another and I’m starting to wonder if someone is playing sims with me and is a tiny bit psychotic?

I got word yesterday that my car needs repairs for 6300$ and I was gutted. Then a capable family friend said he would fix it for free if he could borrow the car for a few months and me paying for the insurance. I would’ve lost my car and now I’ll be able to keep it. It won’t cost me a penny 😭

I wonder why there hasn’t been a movie made were white people were slaves and brown/black people were the ones being masters. I think it could be an eye-opener for sure. At least make people think.

I won 26$ at the lottery and I bought lottery tickets for the week. There was 3$ leftover and I thought ”eh, might as well get scratch cards.“ First, I win 60$. Then I buy another one and I win 12$ and then again 12$ after that. With this luck I might as well spend it all on lottery, so I did 🤷🏻‍♀️

”Detective Hole" on Netflix was actually pretty good. 10/10 for surprise! You never know how’s doing what and I love that. Suspense, humor and just the right amount of crazy. I can’t wait for season 2!

I hope that one day soon people will realize how bad they have treated us ME patients and that they were all wrong. The science is there.. if they just read it.

I just saw the new teaser for the Harry Potter series and I had a reaction I didn’t expect. I cried. I cried of pure joy and that has never happened before..? 😂

Kolbjørn won the court of appeal 😭♥️ The ME patient fighting a principal court case in Norway WON!!! 🥳🥳 You can change the language to English at the top right corner 🔥

Covid has led to an increase in #MECFS. In Germany, numbers have gone from ~250,000 to over 600,000 since the start of the pandemic. It’s been around for decades, yet many patients still aren’t believed and are given harmful advice by doctors, as one patient reports.

What our primeminister said: «outlanders (aka tourists/not residents) may now get sent out of the country if we suspect they are going to break the law.» What conservatives think he said: «Every human thats not white that recides in this country and may do a crime will be deported.» Idiots.

This is my ME, except from seizures and rashes. I wouldn’t know Meningitis if it shaked my hand.

No, cause this is going on my bucket list.

I tried making caramels last night. In PEM. That didn’t work well at all. I cried while standing cause I was so tired I thought I’d die. I’m not feeling better today, that’s for sure. Do I listen to my own body? Heck naw, I vacuumed the stairs. Now I really feel like dying. Why am I like this.

About 70% of the U.S. economy runs on consumer spending. But as wealth concentrates at the top, the richest 10% can’t spend enough to sustain it — while everyone else can’t afford to. Reminder that trickle-down economics simply doesn’t make sense. It’s a hoax.

My friend: ”Open house this Saturday. The doors open at 16.00!“ Me: ”Thank you so much for the invite. Another time maybe. I really appreciate you inviting me all the time, even though I never show up ♥️“ Her: ”OFC, and I’m 100% understanding of your situation. I’ll keep inviting you, always ♥️“ 😭

I’m so tired today. The tiredness is located in my eyes and I’ve tried everything. I’ve drank two cups of coffee and washed my face in cold water. No relief. This is because I had to set an alarm for my appointment today and I didn’t get enough sleep (only 9h). I couldn’t drive cause I feel drunk.

This is a Norwegian ”go fund me“ for a very severe ME patient that’s going through a principal court case regarding permanent welfare. This case will make or break it for ME patients in Norway in the future. It’s in Norwegian, but look at how much support and traction it’s getting! 10 nok = 1$.

No more illusions: people everywhere are waking up to the harsh reality of what Israel really is.....👏👏👏👏👏

Epstein files. Palestine. Torture. Human rights ignored. Human lives murdered. Trump. Ice. Children in detention camps. Minnesota. No one is illegal on stolen land. Diana. Michael Jackson. I think they knew. Racists. Pedophiles. Cannibals. Royalty, politicians and celebrities. It’s them all.

The irony in today is that I woke up in a GREAT mood. Nothing could ruin my day…. Except looking at my own finances. I’ve felt the entire spectrum of feelings today. I’ve smiled, laughed, been angry, cried my heart out and stressed tf out.

I’ve started playing Medieval Dinasty on ps5 and it’s so much fun. I think this must be the game I’ve tolerated best so far. Rarely gets my pulse up and it’s so relaxing chopping wood and collecting mushrooms! #MEfriendlygaming

If I continue receiving bible tiktoks in my inbox on tiktok I might just start replying with Islam videos just to mix it up.

Gratinated fish casserole ”Fiskegrateng“, an old Norwegian dish. It’s creamy white sauce, macaroni, white fish and breadcrumbs on top. Made from scratch and honestly it’s delish and so filling! This is one of those dishes you can make huge portions of and just heat up later and it’s always good.

My racist christian family member: Muslims are a terrible people. Me: Christians are a terrible people. *silence*

Usually I’ve been able to eat two meals a day. Now I’m down to one. This is noooot good.

Bought two mangos at the shop. Opened one and it smelled funky. Tasted it, was mushy. Threw the whole thing away. Opened the second one and it had that same smell. Threw it away. Why is eating fruit so god damn hard.

I’m so tired of war and it hasn’t even come here yet.

I just need a device I can lay down in, push a button and have it shampoo my hair, lather my body in soap and wash my butt crack.

I’ve never been so exhausted that I threw up before. There’s a first for everything, I guess. I can’t eat today. No solids. This is happening more and more often for me. I feel like I’m in a downward spiral.

I miss having a best friend. I haven’t had that in years and I really miss it.

I have sent a formal response to the Norwegian Directorate of Health regarding their draft guidelines on ME/CFS. In my response, I addressed some of my concerns and what I’m deeply worried about. This letter is for the process of the Norwegian NICE guidelines for ME patients in progress. 1/5

The amount of pressure from the right side of ME/CFS is really building in Norway right now. There’s a high-profile case regarding welfare for ME patients, New Guidelines in the work and a lot of people are rallying with what little energy they got. I smell CHANGE in the atmosphere!!

I have sent a formal response to the Norwegian Directorate of Health regarding their draft guidelines on ME/CFS. In my response, I addressed some of my concerns and what I’m deeply worried about. This letter is for the process of the Norwegian NICE guidelines for ME patients in progress. 1/5

3 hours of sleep and no more in sight. Being out of sleeping meds is going to be the end of me and I won’t get more until Monday. The idiot that decided that Norway should stop producing it’s own meds and rely on import needs a lynching.

I’m watching the debate about the new ME guidelines on national TV and I’m FUMING. ”People can say anything is PEM and people who wake up and call it a bad day won’t report PEM.“ ”There is no scientific proof for the amount of symptoms ME patients say they experience.“ These people are EVIL.

I’m trying my hardest to digg my family members out of far right propaganda and let me tell you, those things sting their claws in deep. Fucking hell.

Repairing old wash clothes and making new ones of old towels ♻️ This is going to take me days, but oh my the money I’m saving!

Pringles annoy me. Why make them so large that I have to bite it twice to eat it? #MEthings

I found a pool of water beside my chair and I can’t for the life of me figure out where it came from. I even looked up and it’s not from my ceiling. Today’s mystery.