There's been plenty of snow and ice this week, thankfully 'My Name'5 Doddie Foundation' the gritter is on the case! ❄️

Whilst many will be clocking up miles for Doddie Aid around their local park or in the gym, Davy, who was diagnosed with MND in 2018, will be logging his on a snowboard - as he is aiming to reach the Milan-Cortina 2026 Winter Paralympics 🏂

As part of our commitment to invest in innovative new approaches to MND research, our Catalyst Award is opening for applications on 13 January. We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground. More details here: www.myname5doddie.co.uk/research/fun...

We’ve just published a report to tell you all about what we’ve been up to in the second year of our research strategy ‘Catalysing a Cure’ - here are the highlights 🔬 For more details and to read the report in full, click below 👇 www.myname5doddie.co.uk/whats-on/art...

Today, we’re sharing the latest update on tofersen. NICE has confirmed the next steps in its assessment for the SOD1 form of MND. Read all about it here 👇 www.myname5doddie.co.uk/whats-on/art...

It’s been two weeks since Kevin Sinfield’s epic 7 in 7 Challenge for the MND community 💪 We still can’t get over how fantastic the support was when we were in Dundee for the 6th day - everywhere Kev went, there was a sea of blue and yellow tartan cheering him on 💙💛

Doddie said “love, fun & hope” should be one of our key pillars. That still guides us today💗💙💛 At our Discovery Network Showcase, researchers, people living with and affected by MND, and industry partners shared what inspires them (love), makes them smile (fun) & gives them hope in MND research

Each year we recognise a number of our supporters who go the extra mile in helping us work towards our vision of a world free of MND - they are our Doddie Champions and they reflect the very best of our community💙💛 Read all about this year’s Champions here: www.myname5doddie.co.uk/whats-on/art...

Sign up for Doddie Aid 2026 now‼️ doddieaid.com

We urgently need new treatments for MND and this analysis from the Longitude Prize on ALS demonstrates there's an economic model for developing them. We hope this helps to boost the number of companies globally working towards a world free of MND 💙💛

'This feels like my time to step up, not just as Doddie’s son, but as someone who wants to carry on what he started' www.heraldscotland.com/news... IMAGES: 𝘛𝘩𝘦 𝘏𝘦𝘳𝘢𝘭𝘥 𝘗𝘪𝘤𝘵𝘶𝘳𝘦 𝘈𝘨𝘦𝘯𝘤𝘺 @mndoddie5.bsky.social

On the third anniversary of Doddie's death, we’re officially launching sign ups for Doddie Aid 2026 with the announcement that Hamish Weir is captaining Team Scotland - keeping his Dad’s legacy alive and pushing for a cure for MND. Get signed up now 👉 app.doddieaid.com

We have invested almost £3m to help MND clinical trial centres recruit the staff they need. When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇 www.myname5doddie.co.uk/whats-on/art...

Developing new treatments is essential for MND, but the process is lengthy and people with MND don’t have time to wait. Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible. Read more👇

Thank you so much for coming! 💙💛

It was great to visit @patrickalfrynlewis.bsky.social's lab with Nick, who lives with MND, and hear about the work that's been done with funding through our Catalyst Award. Thank you to everyone helping us support MND research 💙💛 Read the full story here 👇 www.myname5doddie.co.uk/whats-on/art...

As Scottish Rugby celebrates 100 years of Murrayfield, they’re asking fans to choose the defining moment in the stadium’s history! For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation. Vote here 👉 scottishrugby.org/murrayfieldm...

“It’s a great example of how a relatively small and short grant has the potential to lead to significant changes in the MND field.” Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠

We’ve spent £2 million on nine new MND research projects through our Advancing Treatments and Catalyst Awards, which all aim to accelerate the search for effective treatments 🔬 Find out more about the projects here 👇 www.myname5doddie.co.uk/whats-on/art...

Taking My Name’5 Doddie to new heights⛰️ Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids Read their story below👇 www.myname5doddie.co.uk/whats-on/art...

Hall of Fame status for two true legends! 👏 We want to say a huge congratulations to our friends Rob Wainwright and Scott Hastings on being inducted into Scottish Rugby’s Hall of Fame 🏉 We’re all raising a glass to this well-deserved recognition of sportsmanship 🍾

Is it too early to start thinking about Christmas? 🤔🎄 We don’t think so! And our Christmas cards are now available to buy to help you spread some festive cheer. What’s more, each purchase will help support MND research 🔬 Click below to get yours 👇 www.myname5doddie.co.uk/christmas-ca...

What Rob said - this is why we do it 👊 Be a part of Doddie’s Triple Crown. Raise vital funds for MND research. Give hope to those living with MND. More details below 👇 www.myname5doddie.co.uk/whats-on/eve...

Kevin Sinfield is once again lacing up his trainers this December to raise funds for the MND community. He’ll be running 7 ultra marathons in 7 days, across 7 different regions in the UK 💪 To learn more and see how you can support the challenge, click here: www.myname5doddie.co.uk/whats-on/art...

Over the last few days questions have been raised about a link between rugby and MND. Some articles published may have caused alarm, but have missed out key points regarding existing studies and data. Our article provides more clarity on the subject: www.myname5doddie.co.uk/whats-on/art...

We are shocked and saddened to learn of Lewis Moody’s diagnosis with motor neuron disease (MND). Everyone at My Name’5 Doddie Foundation sends their full support to Lewis. Full statement: www.myname5doddie.co.uk/whats-on/art...

Great for the Foundation to sponsor & attend the UCL Queen Square MND Centre’s sixth ALS/MND Symposium last week, in partnership with @ukmndri.bsky.social Inspiring to see the growth of the UK's MND research community & the breadth of research we’re proud to fund!🔬 @uclqsneuromuscular.bsky.social

A candidate drug has been selected for testing within EXPERTS-ALS - a platform that aims to speed up identification of promising new treatments for MND. More details below 👇 www.myname5doddie.co.uk/whats-on/art...

Want to be part of the adventure that is Rob’s ride in 2026?🚴 We’re calling on teams to join Rob Wainwright for Doddie’s Triple Crown - an epic 800-mile cycling challenge from Melrose to Dublin from 10-13 March, raising funds for MND research 📷: Dave Zaple, Craig Watson, Richard Ellis, Les Snowdon

In March, @patrickalfrynlewis.bsky.social, My Name’5 Doddie Foundation-funded researcher and Professor of Neuroscience at the Royal Veterinary College, ran the Reading Half Marathon for us. Half marathon, full commitment to MND research 👊 Find out more 👇 www.myname5doddie.co.uk/whats-on/art...

Specific genetic types of MND are very rare, meaning that those who could benefit from certain specialised drugs, e.g. Tofersen for SOD1-MND, could face the same challenges of drug access as those with 'rare diseases’. Have your voice heard through @rdrukhub.bsky.social's survey below 👇

The MHRA has granted marketing authorisation for tofersen, a new drug for the treatment of SOD1 MND Alongside @mndassoc.bsky.social & @mndscotland.bsky.social, we welcome the approval of the first treatment for MND in the UK in over 30 years Full statement👇 www.myname5doddie.co.uk/whats-on/art...

We're proud to partner with @mndoddie5.bsky.social, a driving force in the fight against #MND & #ALS. As a funder of the #LongitudePrizeOnALS, they're supporting bold new ideas to transform #DrugDiscovery for one of medicine's toughest challenges. 🔗Learn more: bit.ly/457a8zo

We’re proud to feature in the AMRC's new report on translating research for our jointly funded work with Motor Neurone Disease Association and LifeArc 🤝 @amrc-uk.bsky.social @mndassoc.bsky.social @lifearc.bsky.social You can view the full report here 👇 bit.ly/4lTL049

Here, Dr Ruxandra Dafinca who is funded by the Foundation through our 2024 Catalyst Award, gives an insight on her research and its potential impact for identifying new therapeutic targets for MND 🔬 @ruxandradaf.bsky.social @mndoxford.bsky.social @ox.ac.uk

Today would have been Doddie's 55th birthday and the community he built is still as strong as ever 💪

Friday 4 July would have been Doddie’s 55th birthday and we want to use the day to celebrate the big man and raise awareness of MND by encouraging everyone to wear a little (or a lot) of tartan 💙💛 Get your friends and family involved and don’t forget to snap a pic, share it and tag us! 📸

At the end of May, Howard and fellow members of the MotorOn Cymru team cycled 900+ miles across France for the Foundation, and in memory of their friend Bob Gledhill. We spoke to Howard to hear more about the ride & what it meant to him. Click below to read👇 www.myname5doddie.co.uk/whats-on/art...

Billy is currently taking on a mountainous challenge of climbing 90 Munros in 90 days ⛰️ He’s doing it to raise funds for My Name’5 Doddie Foundation and in memory of his school friend Malcolm, who died of MND in 2016. Read more of Billy’s story below 👇 www.myname5doddie.co.uk/whats-on/art...

We are proud to be a member of the Association of Medical Research Charities (AMRC) 🤝 Take a look below at their annual infographic - highlighting how the work of medical charities is helping to drive research in the UK 🔬

🧠 The #LongitudePrizeOnALS is now live! This £7.5M global challenge invites innovators across #biotech, #AI, #data science & beyond to help accelerate #ALS treatment discovery. Join us in bringing AI to the fight against ALS. Learn more: bit.ly/4kD3tSh #LPALS #MND

We’re proud to be funding the #LongitudePrizeOnALS, a £7.5m challenge prize to drive AI-led innovation to discover new drug treatments for ALS. Find out how you can get involved here 👉 bit.ly/4dNo8QT @mndassoc.bsky.social @challengeworks.bsky.social @longitudeprize.bsky.social

Tacrolimus added as the fourth investigational arm in MND-SMART MND-SMART uses an innovative #MAMS design to evaluate several potential treatments simultaneously, speeding up the time to identify effective therapies Read more about this milestone here 👉 edin.ac/4jWf0uM #GlobalMNDAwarenessDay #ALS

Today is Global MND Awareness Day. This year we're taking the opportunity to thank everyone affected by MND who has shared their story with us. You are defining the narrative of this disease.

On Sunday Kenny Logan set off on his latest challenge, joined by some familiar faces! The team will travel 555 miles across Ireland, delivering the match ball ahead of the 1888 Cup on Friday. We hope the stunning scenery helps distract from those brutal hills! 😱

Great to have some of our research team at #ENCALS last week 🔬 The event presents a unique opportunity for collaboration and networking amongst researchers and funders, allowing them to share knowledge, ideas and advancements in their fields. More details 👇 www.myname5doddie.co.uk/whats-on/art...

“Do what I can and don’t dwell on what I can’t” Nick, who is living with MND, is determined to not let his diagnosis stop him from doing what he can, all whilst generously raising funds and awareness for MND charities at the same time 💙💛

The International Alliance of ALS/MND Associations has announced a training program to tackle one of the most urgent challenges for those living with ALS/MND - delayed diagnosis. The initiative is sponsored by My Name'5 Doddie Foundation. More details here 👇 www.myname5doddie.co.uk/whats-on/art...

What a fantastic YPI final at Lasswade High School! Congrats to the winning group who secured the £3000 grant for @mndoddie5.bsky.social ⭐️

Scottish rugby legend and good friend of the Foundation Scott Hastings is lacing up his trainers for us and taking part in Blast Running’s 10k this Sunday at Silverknowes in Edinburgh 🏃 Best of luck Scott, and to everyone else running on the day! 💙💛