To mark this year’s Global MND Awareness Day we’re proud to share Ben Lighting’s story - a powerful and honest account of living with motor neuron disease, and focusing on what matters most. Earlier this week Ben went along to meet Lewis Moody on Day 6 of Lewis' epic 500 mile cycle challenge 🚲

Lewis and the team have made it to Twickenham 🏁🚴 What an epic week. The commitment from everyone involved in the 500 miles to get here will help make a real impact as we work towards a world free of MND. It’s not incurable, it’s just underfunded. Keep supporting: lewismoodyxv-cyclechallenge.com

Yesterday's highlights ✨ It's the final push today - 25 miles to go and the team will reach the finish line. We're so proud 🏁💙💛 Back Lewis and the team and donate now: lewismoodyxv-cyclechallenge.com

“We need to do more to make this world free of MND.” A special and poignant moment at Kingsholm today. So great to be joined by Ed Slater and spend some time with the community here ❤️ The team are starting to tire now - if you can, please donate to support them: lewismoodyxv-cyclechallenge.com

“We now have that torch and we’re going to take it, we’re going to take it a long way, and hopefully to the finish line.” What Lewis said - please continue with us on this journey. You know what to do, donate now: lewismoodyxv-cyclechallenge.com

The Lewis Moody XV Cycle Challenge began yesterday, and is Lewis’ biggest physical challenge to date. The team are cycling 500 miles, going from Newcastle to the Allianz Stadium ahead of the Gallagher PREM Final. We can’t wait to see what this incredible group achieves over the next seven days.

“I’m not a good runner but everyone seems to think I must be to be doing all this stuff. No, it’s just the cause means a lot to me. I said I was going to do it, so I’m going to do it.” In a few days' time, Ali will set off to run the North Coast 500 in just seven days, all to raise funds for us.

🚨 Calling all researchers! There's only 1 week left to submit your application for our Advancing Treatments Award. We want to fund projects that will further the early-stage development of new treatments to slow, stop or reverse MND progression Details here: www.myname5doddie.co.uk/for-research...

“This disease affects families everywhere and we need people to rally behind the MND community in the same way rugby people always rally behind each other" The full route & rider line-up for the Lewis Moody XV Ride sponsored by Gallagher is live. Learn more: www.myname5doddie.co.uk/news-and-sto...

100+ Team Doddie runners took part in the Edinburgh Marathon Festival last weekend! Through sweltering heat, every runner had to dig deep. Some have shared their stories with us - what drove them to the start line, and carried them to the finish 💙💛 Read here: www.myname5doddie.co.uk/news-and-sto...

We are so sad to hear of the death of Neale Daniher, our thoughts are with all his family, loved ones & our friends at FightMND during this difficult time. Neale was a true inspiration - a tireless advocate who changed the landscape of MND in Australia, seeing millions invested into research & care

We're helping to improve access to tofersen for people living with SOD1-MND in Scotland. Too many are being prevented from accessing this treatment and that must change. We’re partnering with the MND Association to support people who are having to travel out of their area to receive tofersen.

"When our great friend Doddie was diagnosed with MND, Scott immediately stepped forward to help and played a vital role in establishing the charity. He was always on hand with ideas, providing wise counsel and using his boundless energy to enable us to grow into the charity we have become today."

Andy, who is living with MND, is taking on the Jurassic Coast Ultra this weekend - a continuous 100km walk along the Dorset coastline. In an extraordinary show of support and friendship, 106 others are taking part with him - they are ‘Andy’s Army’ 💙💛

📢 Calling all researchers! If you’re thinking of applying for our Advancing Treatments Award, then join our webinar on 15 May at 12pm This is your chance to hear more details about the award & gain insights on how to produce a strong application Register👇 events.teams.microsoft.com/event/bbc20d...

🚨 Our Advancing Treatments Award is OPEN for applications! We’re looking to fund projects that will further the early-stage development of new treatments designed to slow, stop or reverse MND progression. For more details and how to apply, click below 👇 www.myname5doddie.co.uk/for-research...

The #LongitudePrizeOnALS has awarded £2 million across 20 teams who'll use AI to identify & validate new drug targets for the treatment of ALS/MND We’re proud to be a funder of the Prize, alongside other key organisations Details: bit.ly/4tCWpcH @mndassoc.bsky.social @challengeworks.bsky.social

Wishing the ROW4MND team all the best as they take on the next leg of their journey to raise £57 million to help find a cure for MND. Setting off at 8pm tonight from Port Logan, this time they’ll be rowing the choppy waters off the Scottish coastline, through the western islands 🌊🚣 www.row4mnd.com

A huge congratulations to the 12 members of Team Doddie who took on the London Marathon for us this year, racing through the heat and raising over £30,000 for vital MND research 💙💛

“If it gets painful, I’ll think about Scott and what he went through. It puts everything into perspective.” Tomorrow, Jonathan Beaton runs London Marathon in memory of his friend Scott Stewart, who died from MND in 2024. He’s already raised £10k+ to honour Scott’s legacy 💙💛

We are incredibly proud and grateful that Lewis Moody has chosen to partner with us 💙💛❤️ Click here to support his epic 500-mile cycle challenge, taking place this June: uk.emma-live.com/LewisMoodyCy...

You won't have been able to go online or open a paper today without seeing the news that Lewis Moody has chosen to partner with My Name'5 Doddie Foundation to tackle MND. Lewis is a legend of a man, on and off the pitch and we could not be prouder.

📢 Calling all researchers! Applications open on 8 May for our 2026 Advancing Treatments Award, which will support the early-stage development of new treatments designed to slow, stop or reverse the progression of MND. See here for more details & how to apply: www.myname5doddie.co.uk/for-research...

Over £2 million has been raised for MND research through Doddie Aid 2026 and Doddie’s Triple Crown cycle! 👏 We can’t thank you enough for your support and efforts. You’re all still turning up, still giving, still pushing - and that means everything 💙💛 Same time, same place next year? 👀

After four gruelling days, pedalling over 700 miles, this is the emotional moment our cyclists finally crossed the finish line at Blackrock RFC in Dublin last night. They’ve persevered through brutal weather conditions all to raise over £1.3 million and counting for MND research.

They've made it 🏁🚴‍♂️ Yesterday’s finish line might have changed, but our finish line hasn't: a world free of MND. Make those final miles and the journey to get here all the more worthwhile. Keep supporting, donate to Doddie’s Triple Crown now: www.justgiving.com/campaign/tri...

What Rob said. “We’ve set ourselves a task, and I’m not talking about riding to Dublin, I’m talking about finding a solution to MND.” Kathy, Rob and the 40+ teams of cyclists need your support more than ever. Donate to Kathy’s fundraising page here: www.justgiving.com/page/fivehea...

This is why we do it. So incredible to be joined by Lewis Moody, Ed Slater and our patron Jill Douglas this morning as the cyclists departed Gloucester. The weather is not on our side today. Show the cyclists your support by donating now: www.justgiving.com/campaign/tri...

“We can’t give them much to look forward to but we can give them hope. We are pedalling hope.” This is why these rides are so important. When you donate to Doddie’s Triple Crown, you’re helping fund vital MND research. Show your support and donate now: www.justgiving.com/campaign/tri...

In case you missed it, Raya Therapeutic Inc.'s drug smilagenin (RT1999) has been selected for the EXPERTS-ALS trial platform. Here, Professor Chris McDermott, co-lead for the EXPERTS-ALS trial, tells us more about why EXPERTS-ALS and this news is so novel and important.

A huge thank you to PureGym Leeds for opening their doors and giving our cyclists a place to rest for the night - even turning the gym floor into a bed for the teams after a long first day A class act and brilliant partner🤝 Day 2 - let's go! Donate here: www.justgiving.com/campaign/tri...

About yesterday...what a day! 180 miles covered and £1 million already raised for MND research - but there’s still a long way to go 🚴 Your support means everything this week as the teams make their way to Dublin 💙💛 Donate now: www.justgiving.com/campaign/tri...

Here we go! Four days, 750 miles, one mission: a world free of MND. Doddie's Triple Crown has officially kicked off. Donate now: www.justgiving.com/campaign/tri...

There’s continued discussion about a perceived link between rugby and MND, but some commentary can miss key points from existing studies & data. MND research is complex & this is no exception. That's why we’re resharing this article to provide more clarity: www.myname5doddie.co.uk/whats-on/art...

MND‑SMART have confirmed amantadine is being removed from the trial as interim analysis shows it doesn't slow MND progression. Whilst disappointing, this allows MND-SMART to move on to test other treatments. Recruitment for tacrolimus continues Details here: www.myname5doddie.co.uk/whats-on/art...

It’s great to see positive news for potential new MND treatments, this week the US biotech QurAlis have provided an interim update from their early-stage clinical trial of a gene therapy. More details here: www.myname5doddie.co.uk/whats-on/art...

We’ve been looking urgently into how we can help improve access to tofersen for people living with SOD1-MND across the UK. Too many are still prevented from accessing this life-extending treatment, and that must change. Read what we’re doing to help fix this: www.myname5doddie.co.uk/whats-on/art...

Our Translational Research Review Committee is essential in ensuring we fund the very best MND research, and we’re excited to introduce you to our new Chair of the Committee, Professor Paul Matthews. More details here 👇 www.myname5doddie.co.uk/whats-on/art...

He’s done it! Davy Żyw has made history as the first person with MND to compete in snowsports at the Winter Paralympics! 🏂 Huge congratulations from all of us here, Davy – you're a legend! 🔥

We spoke to scientifyRESEARCH recently about our Catalyst Awards and why they're so important. If you're thinking of applying, make sure to get your application in by Friday 27 February at midday. Application details here: www.myname5doddie.co.uk/research/fun...

“Now is a time to step up and try and help keep the awareness out there, and hopefully raise a lot of money to help research.” Yesterday Kathy Weir spoke to BBC Reporting Scotland about her involvement in ‘Doddie’s Triple Crown’ - a 750-mile cycle to raise funds for MND research.

Rob Wainwright is back, leading hundreds of cyclists on a 750-mile ride for us, and this year he’s joined by Kathy Weir 💙💛 Kathy says it’s the first time since Doddie’s death that she’s felt mentally ready for a challenge of this scale. Donate now 👉 www.justgiving.com/campaign/tri...

🚨There's only 2 weeks left to submit your application for our Catalyst Award! We want to help MND researchers bring bold, innovative and early-stage ideas to life. Applications close 27 February at midday. More details here 👉 www.myname5doddie.co.uk/whats-on/art...

📣 Featured funding of the week! 💡 Catalyst Award (motor neuron disease | UK) by @mndoddie5.bsky.social 🗓️ Deadline: Feb 27, 2026 🌍 Location: United Kingdom 💰 Amount: 100,000 GBP per one year   🔗 Learn more: www.scientifyresearch.org/grant/cataly...   #UKResearch #ResearchFunding #NeuronResearch

It is completely unacceptable that the drug, tofersen, is only being given to some of those who are eligible to receive it. Read our statement to find out more. www.myname5doddie.co.uk/whats-on/art...

As proud funders of the UK MND Research Institute, it's great to see all they have accomplished in their first three years 👏

Nigel, who is living with MND, is now one of the world’s leading disabled snooker players. He’s taking part in Doddie Aid to raise money for MND research and show that movement - in any form - counts 💙💛 Read about Nigel’s story on our website here 👇 www.myname5doddie.co.uk/whats-on/art...

🚨 Our Catalyst Award is OPEN for applications! We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground. 🔵 Awards are a maximum of £100k for up to 1 year 🟡 Applications close 27 February For more details and to apply 👇 www.myname5doddie.co.uk/whats-on/art...

A special edition beer, crafted in honour of the legendary rugby player Doddie Weir, has launched across Aldi stores in Scotland beertoday.co.uk/2026/01/13/c... #beer #beernews @mndoddie5.bsky.social

Doddie Beir is now available across all Aldi Scotland stores, cheers to that! 🍻 Every can purchased helps takes us closer to our goal: a world free of MND. We’re hugely grateful for all the support from Aldi and Cold Town Beer.