Wishing the ROW4MND team all the best as they take on the next leg of their journey to raise £57 million to help find a cure for MND. Setting off at 8pm tonight from Port Logan, this time they’ll be rowing the choppy waters off the Scottish coastline, through the western islands 🌊🚣 www.row4mnd.com

A huge congratulations to the 12 members of Team Doddie who took on the London Marathon for us this year, racing through the heat and raising over £30,000 for vital MND research 💙💛

“If it gets painful, I’ll think about Scott and what he went through. It puts everything into perspective.” Tomorrow, Jonathan Beaton runs London Marathon in memory of his friend Scott Stewart, who died from MND in 2024. He’s already raised £10k+ to honour Scott’s legacy 💙💛

We are incredibly proud and grateful that Lewis Moody has chosen to partner with us 💙💛❤️ Click here to support his epic 500-mile cycle challenge, taking place this June: uk.emma-live.com/LewisMoodyCy...

You won't have been able to go online or open a paper today without seeing the news that Lewis Moody has chosen to partner with My Name'5 Doddie Foundation to tackle MND. Lewis is a legend of a man, on and off the pitch and we could not be prouder.

📢 Calling all researchers! Applications open on 8 May for our 2026 Advancing Treatments Award, which will support the early-stage development of new treatments designed to slow, stop or reverse the progression of MND. See here for more details & how to apply: www.myname5doddie.co.uk/for-research...

Over £2 million has been raised for MND research through Doddie Aid 2026 and Doddie’s Triple Crown cycle! 👏 We can’t thank you enough for your support and efforts. You’re all still turning up, still giving, still pushing - and that means everything 💙💛 Same time, same place next year? 👀

After four gruelling days, pedalling over 700 miles, this is the emotional moment our cyclists finally crossed the finish line at Blackrock RFC in Dublin last night. They’ve persevered through brutal weather conditions all to raise over £1.3 million and counting for MND research.

They've made it 🏁🚴‍♂️ Yesterday’s finish line might have changed, but our finish line hasn't: a world free of MND. Make those final miles and the journey to get here all the more worthwhile. Keep supporting, donate to Doddie’s Triple Crown now: www.justgiving.com/campaign/tri...

What Rob said. “We’ve set ourselves a task, and I’m not talking about riding to Dublin, I’m talking about finding a solution to MND.” Kathy, Rob and the 40+ teams of cyclists need your support more than ever. Donate to Kathy’s fundraising page here: www.justgiving.com/page/fivehea...

This is why we do it. So incredible to be joined by Lewis Moody, Ed Slater and our patron Jill Douglas this morning as the cyclists departed Gloucester. The weather is not on our side today. Show the cyclists your support by donating now: www.justgiving.com/campaign/tri...

“We can’t give them much to look forward to but we can give them hope. We are pedalling hope.” This is why these rides are so important. When you donate to Doddie’s Triple Crown, you’re helping fund vital MND research. Show your support and donate now: www.justgiving.com/campaign/tri...

In case you missed it, Raya Therapeutic Inc.'s drug smilagenin (RT1999) has been selected for the EXPERTS-ALS trial platform. Here, Professor Chris McDermott, co-lead for the EXPERTS-ALS trial, tells us more about why EXPERTS-ALS and this news is so novel and important.

A huge thank you to PureGym Leeds for opening their doors and giving our cyclists a place to rest for the night - even turning the gym floor into a bed for the teams after a long first day A class act and brilliant partner🤝 Day 2 - let's go! Donate here: www.justgiving.com/campaign/tri...

About yesterday...what a day! 180 miles covered and £1 million already raised for MND research - but there’s still a long way to go 🚴 Your support means everything this week as the teams make their way to Dublin 💙💛 Donate now: www.justgiving.com/campaign/tri...

Here we go! Four days, 750 miles, one mission: a world free of MND. Doddie's Triple Crown has officially kicked off. Donate now: www.justgiving.com/campaign/tri...

There’s continued discussion about a perceived link between rugby and MND, but some commentary can miss key points from existing studies & data. MND research is complex & this is no exception. That's why we’re resharing this article to provide more clarity: www.myname5doddie.co.uk/whats-on/art...

MND‑SMART have confirmed amantadine is being removed from the trial as interim analysis shows it doesn't slow MND progression. Whilst disappointing, this allows MND-SMART to move on to test other treatments. Recruitment for tacrolimus continues Details here: www.myname5doddie.co.uk/whats-on/art...

It’s great to see positive news for potential new MND treatments, this week the US biotech QurAlis have provided an interim update from their early-stage clinical trial of a gene therapy. More details here: www.myname5doddie.co.uk/whats-on/art...

We’ve been looking urgently into how we can help improve access to tofersen for people living with SOD1-MND across the UK. Too many are still prevented from accessing this life-extending treatment, and that must change. Read what we’re doing to help fix this: www.myname5doddie.co.uk/whats-on/art...

Our Translational Research Review Committee is essential in ensuring we fund the very best MND research, and we’re excited to introduce you to our new Chair of the Committee, Professor Paul Matthews. More details here 👇 www.myname5doddie.co.uk/whats-on/art...

He’s done it! Davy Żyw has made history as the first person with MND to compete in snowsports at the Winter Paralympics! 🏂 Huge congratulations from all of us here, Davy – you're a legend! 🔥

We spoke to scientifyRESEARCH recently about our Catalyst Awards and why they're so important. If you're thinking of applying, make sure to get your application in by Friday 27 February at midday. Application details here: www.myname5doddie.co.uk/research/fun...

“Now is a time to step up and try and help keep the awareness out there, and hopefully raise a lot of money to help research.” Yesterday Kathy Weir spoke to BBC Reporting Scotland about her involvement in ‘Doddie’s Triple Crown’ - a 750-mile cycle to raise funds for MND research.

Rob Wainwright is back, leading hundreds of cyclists on a 750-mile ride for us, and this year he’s joined by Kathy Weir 💙💛 Kathy says it’s the first time since Doddie’s death that she’s felt mentally ready for a challenge of this scale. Donate now 👉 www.justgiving.com/campaign/tri...

🚨There's only 2 weeks left to submit your application for our Catalyst Award! We want to help MND researchers bring bold, innovative and early-stage ideas to life. Applications close 27 February at midday. More details here 👉 www.myname5doddie.co.uk/whats-on/art...

📣 Featured funding of the week! 💡 Catalyst Award (motor neuron disease | UK) by @mndoddie5.bsky.social 🗓️ Deadline: Feb 27, 2026 🌍 Location: United Kingdom 💰 Amount: 100,000 GBP per one year   🔗 Learn more: www.scientifyresearch.org/grant/cataly...   #UKResearch #ResearchFunding #NeuronResearch

It is completely unacceptable that the drug, tofersen, is only being given to some of those who are eligible to receive it. Read our statement to find out more. www.myname5doddie.co.uk/whats-on/art...

As proud funders of the UK MND Research Institute, it's great to see all they have accomplished in their first three years 👏

Nigel, who is living with MND, is now one of the world’s leading disabled snooker players. He’s taking part in Doddie Aid to raise money for MND research and show that movement - in any form - counts 💙💛 Read about Nigel’s story on our website here 👇 www.myname5doddie.co.uk/whats-on/art...

🚨 Our Catalyst Award is OPEN for applications! We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground. 🔵 Awards are a maximum of £100k for up to 1 year 🟡 Applications close 27 February For more details and to apply 👇 www.myname5doddie.co.uk/whats-on/art...

A special edition beer, crafted in honour of the legendary rugby player Doddie Weir, has launched across Aldi stores in Scotland beertoday.co.uk/2026/01/13/c... #beer #beernews @mndoddie5.bsky.social

Doddie Beir is now available across all Aldi Scotland stores, cheers to that! 🍻 Every can purchased helps takes us closer to our goal: a world free of MND. We’re hugely grateful for all the support from Aldi and Cold Town Beer.

There's been plenty of snow and ice this week, thankfully 'My Name'5 Doddie Foundation' the gritter is on the case! ❄️

Whilst many will be clocking up miles for Doddie Aid around their local park or in the gym, Davy, who was diagnosed with MND in 2018, will be logging his on a snowboard - as he is aiming to reach the Milan-Cortina 2026 Winter Paralympics 🏂

As part of our commitment to invest in innovative new approaches to MND research, our Catalyst Award is opening for applications on 13 January. We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground. More details here: www.myname5doddie.co.uk/research/fun...

We’ve just published a report to tell you all about what we’ve been up to in the second year of our research strategy ‘Catalysing a Cure’ - here are the highlights 🔬 For more details and to read the report in full, click below 👇 www.myname5doddie.co.uk/whats-on/art...

Today, we’re sharing the latest update on tofersen. NICE has confirmed the next steps in its assessment for the SOD1 form of MND. Read all about it here 👇 www.myname5doddie.co.uk/whats-on/art...

It’s been two weeks since Kevin Sinfield’s epic 7 in 7 Challenge for the MND community 💪 We still can’t get over how fantastic the support was when we were in Dundee for the 6th day - everywhere Kev went, there was a sea of blue and yellow tartan cheering him on 💙💛

Doddie said “love, fun & hope” should be one of our key pillars. That still guides us today💗💙💛 At our Discovery Network Showcase, researchers, people living with and affected by MND, and industry partners shared what inspires them (love), makes them smile (fun) & gives them hope in MND research

Each year we recognise a number of our supporters who go the extra mile in helping us work towards our vision of a world free of MND - they are our Doddie Champions and they reflect the very best of our community💙💛 Read all about this year’s Champions here: www.myname5doddie.co.uk/whats-on/art...

Sign up for Doddie Aid 2026 now‼️ doddieaid.com

We urgently need new treatments for MND and this analysis from the Longitude Prize on ALS demonstrates there's an economic model for developing them. We hope this helps to boost the number of companies globally working towards a world free of MND 💙💛

'This feels like my time to step up, not just as Doddie’s son, but as someone who wants to carry on what he started' www.heraldscotland.com/news... IMAGES: 𝘛𝘩𝘦 𝘏𝘦𝘳𝘢𝘭𝘥 𝘗𝘪𝘤𝘵𝘶𝘳𝘦 𝘈𝘨𝘦𝘯𝘤𝘺 @mndoddie5.bsky.social

On the third anniversary of Doddie's death, we’re officially launching sign ups for Doddie Aid 2026 with the announcement that Hamish Weir is captaining Team Scotland - keeping his Dad’s legacy alive and pushing for a cure for MND. Get signed up now 👉 app.doddieaid.com

We have invested almost £3m to help MND clinical trial centres recruit the staff they need. When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇 www.myname5doddie.co.uk/whats-on/art...

Developing new treatments is essential for MND, but the process is lengthy and people with MND don’t have time to wait. Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible. Read more👇

Thank you so much for coming! 💙💛

It was great to visit @patrickalfrynlewis.bsky.social's lab with Nick, who lives with MND, and hear about the work that's been done with funding through our Catalyst Award. Thank you to everyone helping us support MND research 💙💛 Read the full story here 👇 www.myname5doddie.co.uk/whats-on/art...

As Scottish Rugby celebrates 100 years of Murrayfield, they’re asking fans to choose the defining moment in the stadium’s history! For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation. Vote here 👉 scottishrugby.org/murrayfieldm...