Developing new treatments is essential for MND, but the process is lengthy and people with MND don’t have time to wait. Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible. Read more👇

Thank you so much for coming! 💙💛

It was great to visit @patrickalfrynlewis.bsky.social's lab with Nick, who lives with MND, and hear about the work that's been done with funding through our Catalyst Award. Thank you to everyone helping us support MND research 💙💛 Read the full story here 👇 www.myname5doddie.co.uk/whats-on/art...

As Scottish Rugby celebrates 100 years of Murrayfield, they’re asking fans to choose the defining moment in the stadium’s history! For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation. Vote here 👉 scottishrugby.org/murrayfieldm...

“It’s a great example of how a relatively small and short grant has the potential to lead to significant changes in the MND field.” Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠

We’ve spent £2 million on nine new MND research projects through our Advancing Treatments and Catalyst Awards, which all aim to accelerate the search for effective treatments 🔬 Find out more about the projects here 👇 www.myname5doddie.co.uk/whats-on/art...

Taking My Name’5 Doddie to new heights⛰️ Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids Read their story below👇 www.myname5doddie.co.uk/whats-on/art...

Hall of Fame status for two true legends! 👏 We want to say a huge congratulations to our friends Rob Wainwright and Scott Hastings on being inducted into Scottish Rugby’s Hall of Fame 🏉 We’re all raising a glass to this well-deserved recognition of sportsmanship 🍾

Is it too early to start thinking about Christmas? 🤔🎄 We don’t think so! And our Christmas cards are now available to buy to help you spread some festive cheer. What’s more, each purchase will help support MND research 🔬 Click below to get yours 👇 www.myname5doddie.co.uk/christmas-ca...

What Rob said - this is why we do it 👊 Be a part of Doddie’s Triple Crown. Raise vital funds for MND research. Give hope to those living with MND. More details below 👇 www.myname5doddie.co.uk/whats-on/eve...

Kevin Sinfield is once again lacing up his trainers this December to raise funds for the MND community. He’ll be running 7 ultra marathons in 7 days, across 7 different regions in the UK 💪 To learn more and see how you can support the challenge, click here: www.myname5doddie.co.uk/whats-on/art...

Over the last few days questions have been raised about a link between rugby and MND. Some articles published may have caused alarm, but have missed out key points regarding existing studies and data. Our article provides more clarity on the subject: www.myname5doddie.co.uk/whats-on/art...

We are shocked and saddened to learn of Lewis Moody’s diagnosis with motor neuron disease (MND). Everyone at My Name’5 Doddie Foundation sends their full support to Lewis. Full statement: www.myname5doddie.co.uk/whats-on/art...

Great for the Foundation to sponsor & attend the UCL Queen Square MND Centre’s sixth ALS/MND Symposium last week, in partnership with @ukmndri.bsky.social Inspiring to see the growth of the UK's MND research community & the breadth of research we’re proud to fund!🔬 @uclqsneuromuscular.bsky.social

A candidate drug has been selected for testing within EXPERTS-ALS - a platform that aims to speed up identification of promising new treatments for MND. More details below 👇 www.myname5doddie.co.uk/whats-on/art...

Want to be part of the adventure that is Rob’s ride in 2026?🚴 We’re calling on teams to join Rob Wainwright for Doddie’s Triple Crown - an epic 800-mile cycling challenge from Melrose to Dublin from 10-13 March, raising funds for MND research 📷: Dave Zaple, Craig Watson, Richard Ellis, Les Snowdon

In March, @patrickalfrynlewis.bsky.social, My Name’5 Doddie Foundation-funded researcher and Professor of Neuroscience at the Royal Veterinary College, ran the Reading Half Marathon for us. Half marathon, full commitment to MND research 👊 Find out more 👇 www.myname5doddie.co.uk/whats-on/art...

Specific genetic types of MND are very rare, meaning that those who could benefit from certain specialised drugs, e.g. Tofersen for SOD1-MND, could face the same challenges of drug access as those with 'rare diseases’. Have your voice heard through @rdrukhub.bsky.social's survey below 👇

The MHRA has granted marketing authorisation for tofersen, a new drug for the treatment of SOD1 MND Alongside @mndassoc.bsky.social & @mndscotland.bsky.social, we welcome the approval of the first treatment for MND in the UK in over 30 years Full statement👇 www.myname5doddie.co.uk/whats-on/art...

We're proud to partner with @mndoddie5.bsky.social, a driving force in the fight against #MND & #ALS. As a funder of the #LongitudePrizeOnALS, they're supporting bold new ideas to transform #DrugDiscovery for one of medicine's toughest challenges. 🔗Learn more: bit.ly/457a8zo

We’re proud to feature in the AMRC's new report on translating research for our jointly funded work with Motor Neurone Disease Association and LifeArc 🤝 @amrc-uk.bsky.social @mndassoc.bsky.social @lifearc.bsky.social You can view the full report here 👇 bit.ly/4lTL049

Here, Dr Ruxandra Dafinca who is funded by the Foundation through our 2024 Catalyst Award, gives an insight on her research and its potential impact for identifying new therapeutic targets for MND 🔬 @ruxandradaf.bsky.social @mndoxford.bsky.social @ox.ac.uk

Today would have been Doddie's 55th birthday and the community he built is still as strong as ever 💪

Friday 4 July would have been Doddie’s 55th birthday and we want to use the day to celebrate the big man and raise awareness of MND by encouraging everyone to wear a little (or a lot) of tartan 💙💛 Get your friends and family involved and don’t forget to snap a pic, share it and tag us! 📸

At the end of May, Howard and fellow members of the MotorOn Cymru team cycled 900+ miles across France for the Foundation, and in memory of their friend Bob Gledhill. We spoke to Howard to hear more about the ride & what it meant to him. Click below to read👇 www.myname5doddie.co.uk/whats-on/art...

Billy is currently taking on a mountainous challenge of climbing 90 Munros in 90 days ⛰️ He’s doing it to raise funds for My Name’5 Doddie Foundation and in memory of his school friend Malcolm, who died of MND in 2016. Read more of Billy’s story below 👇 www.myname5doddie.co.uk/whats-on/art...

We are proud to be a member of the Association of Medical Research Charities (AMRC) 🤝 Take a look below at their annual infographic - highlighting how the work of medical charities is helping to drive research in the UK 🔬

🧠 The #LongitudePrizeOnALS is now live! This £7.5M global challenge invites innovators across #biotech, #AI, #data science & beyond to help accelerate #ALS treatment discovery. Join us in bringing AI to the fight against ALS. Learn more: bit.ly/4kD3tSh #LPALS #MND

We’re proud to be funding the #LongitudePrizeOnALS, a £7.5m challenge prize to drive AI-led innovation to discover new drug treatments for ALS. Find out how you can get involved here 👉 bit.ly/4dNo8QT @mndassoc.bsky.social @challengeworks.bsky.social @longitudeprize.bsky.social

Tacrolimus added as the fourth investigational arm in MND-SMART MND-SMART uses an innovative #MAMS design to evaluate several potential treatments simultaneously, speeding up the time to identify effective therapies Read more about this milestone here 👉 edin.ac/4jWf0uM #GlobalMNDAwarenessDay #ALS

Today is Global MND Awareness Day. This year we're taking the opportunity to thank everyone affected by MND who has shared their story with us. You are defining the narrative of this disease.

On Sunday Kenny Logan set off on his latest challenge, joined by some familiar faces! The team will travel 555 miles across Ireland, delivering the match ball ahead of the 1888 Cup on Friday. We hope the stunning scenery helps distract from those brutal hills! 😱

Great to have some of our research team at #ENCALS last week 🔬 The event presents a unique opportunity for collaboration and networking amongst researchers and funders, allowing them to share knowledge, ideas and advancements in their fields. More details 👇 www.myname5doddie.co.uk/whats-on/art...

“Do what I can and don’t dwell on what I can’t” Nick, who is living with MND, is determined to not let his diagnosis stop him from doing what he can, all whilst generously raising funds and awareness for MND charities at the same time 💙💛

The International Alliance of ALS/MND Associations has announced a training program to tackle one of the most urgent challenges for those living with ALS/MND - delayed diagnosis. The initiative is sponsored by My Name'5 Doddie Foundation. More details here 👇 www.myname5doddie.co.uk/whats-on/art...

What a fantastic YPI final at Lasswade High School! Congrats to the winning group who secured the £3000 grant for @mndoddie5.bsky.social ⭐️

Scottish rugby legend and good friend of the Foundation Scott Hastings is lacing up his trainers for us and taking part in Blast Running’s 10k this Sunday at Silverknowes in Edinburgh 🏃 Best of luck Scott, and to everyone else running on the day! 💙💛

“I wanted to continue to be part of a community that’s working so hard to create hope and change for people living with MND” Charlotte became a volunteer last year & since then has helped at several events as well as travelled to speak about the Foundation & meet our fundraisers 💙💛 #VolunteersWeek

Highly collaborative project at the interface of molecular modelling, biophysics, biochemistry and stem cell biology funded by My Name'5 Doddie Foundation. @mndoddie5.bsky.social‬ Please repost and share widely!

Join the Hallegger Lab in Oxford! A post-doc position available to develop neuronal cell models to characterise how TDP-43 aggregation leads to its dysfunction in MND. Highly collaborative project funded by My Name'5 Doddie Foundation @MNDoddie5 Please repost and share widely!

See here for more details and to apply 👇 my.corehr.com/pls/uoxrecru...

“I became a volunteer to give something back to the MND community for all the support I received when my husband was diagnosed” Kirsty joined us as a volunteer last year. Since then she's thrown herself into as much as possible & is looking to join our speaker volunteer programme too #VolunteersWeek

This #VolunteersWeek we want to shine a spotlight on some of our volunteers - we couldn't do what we do without you 💙💛 First up is Alisdair, who started as a speaker volunteer then also became a Doddie Aid digital volunteer. Click below for the full story 👇 www.myname5doddie.co.uk/whats-on/art...

An un-fore-gettable challenge for MND research 🏌️ Graeme Smeaton, founder of golf wear brand Royal & Awesome, is gearing up to play 5 rounds of golf every day for 5 consecutive days next week, to raise money for the Foundation 💙💛 Find out more here 👇 www.myname5doddie.co.uk/whats-on/art...

We are pleased to hear that Dr Jill Richardson, the Vice-Chair of our Research Review Committee, and one of our funded researchers, Professor Rickie Patani, were recently elected as Fellows of The Academy of Medical Sciences due to their remarkable contributions to medical research.

Are you living with MND or an informal caregiver for someone who is? Researchers at @sheffielduni.bsky.social would like your input for the iDeliver MND project, which aims to improve the delivery of psychological care in MND services. Click below to take part in the survey 👇 bit.ly/iDeliver-survey

Miles and smiles in abundance at the Edinburgh Marathon Festival - what an effort from all of our fantastic runners! It was great to meet so many of you at the finish line. Thank you to everyone who took part 💙💛 Thank you to Calum Huntington for the cracking photos from the day 📷

We’ve got over 70 people running for Team Doddie at the Edinburgh Marathon Festival this weekend…very best of luck to you all, we’ll see you at the finish line to celebrate! 🎉

Another productive day on Monday at our Scientific Advisory Meeting🔬 These meetings bring together some of the UK’s top MND researchers, as well as people living with MND, to encourage knowledge sharing, enable critical assessment of the latest trends & help us keep pace with advances in research🤝

The Doddie Discofest returns to the Isle of Coll on 12-13 September! 🪩 Organised by Rob Wainwright and friends, the two day live music event raises funds to support the Foundation and local charities. Click below for more info & tickets 👇 www.doddiediscofest.co.uk