No Patient Left Behind
@nplb.bsky.social
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We're a non-profit dedicated to making innovative medications affordable for everyone in America.
📢NEW: Check out our new
#GCEA
calculator. It is an exciting free tool to help identify key value drivers of innovative medicines. Whether you are an investor, innovator, patient advocate, or policy wonk, check it, test it, and please share your feedback!
www.nopatientleftbehind.org/gcea-calcula...
7 months ago
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It is awful that Independence BCBS (IBX) health plan thinks its ok to force patients to wait 18 months after
@fda.gov
accelerated approval to cover a treatment. 📝Please sign the Little Hercules Foundation letter urging IBX to reverse policy
docs.google.com/forms/d/e/1F...
@govmurphy.bsky.social
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Community Sign On Letter - IBX policy excluding coverage for rare disease products approved through Accelerated Approval
As organizations representing the rare disease community, we are very concerned about Independence Blue Cross Blue Shield’s (IBX) policy (08.02.35) that excludes coverage for FDA-approved rare disease...
https://docs.google.com/forms/d/e/1FAIpQLSdSdvjSPeLNbN-oHOgPdQkdgioVHP-dA-RpYOHXTDp-sKMSUQ/viewform
7 months ago
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#IRA’s
small molecule penalty disproportionately harms early-stage drug development and has far greater harmful impact on innovation & patients than previously recognized.
#CBO
should incorporate real-world insights from specialist investors into its models.
link.springer.com/article/10.1...
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The Impact of the Inflation Reduction Act on Investment in Innovative Medicines: A Project-Level Analysis - Therapeutic Innovation & Regulatory Science
The impact of Medicare’s price negotiation on long-term pharmaceutical innovation and patient welfare remains one of the most widely debated topics across stakeholder groups. Existing policy simulatio...
https://link.springer.com/article/10.1007/s43441-025-00768-0
7 months ago
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We released new research with Charles River Associates that highlights a growing concern among
#Medicare
beneficiaries—many want lower out-of-pocket prescription costs but fear that new policies under the IRA will make it harder to get the medicines they need. 🧵 (1/4)
8 months ago
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Autoimmune diseases afflict 45 million Americans—and it requires a collective community effort to change that. Our new Community Quest video shows how investors, innovators, regulators, patients, insurers—and you—make new treatments possible, accessible, and affordable.
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Our Quest to Beat Autoimmune Disorders — No Patient Left Behind
Biomedical innovators are developing new autoimmune therapeutics - insurance reform will ensure new treatments and cures are accessible and affordable.
https://www.nopatientleftbehind.org/our-quest-to-beat-autoimmune-disorders-2
8 months ago
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What does the FDA's expertise and regulatory transparency mean for you? Shehnaaz Suliman, Gunnar Esiason, and
@peterkolchinsky.bsky.social
share how the FDA helps bring new medicines to US patients. Thanks for their work supporting American innovation!
www.nopatientleftbehind.org/open-letter-...
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Open letter regarding proposed FDA budget cuts — No Patient Left Behind
https://www.nopatientleftbehind.org/open-letter-fda-budget-cuts
9 months ago
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At
#JPM25
, biopharma investors and innovators sounded the alarm: America drives global medical innovation, but we need other countries to step up to keep medicine affordable. Watch the video and read the transcript here:
www.nopatientleftbehind.org/protect-amer...
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Protect American Innovation — No Patient Left Behind
https://www.nopatientleftbehind.org/protect-american-innovation
9 months ago
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The US is the undisputed global leader in biopharmaceutical innovation thanks in no small part to the
@fda.gov
scientific expertise and regulatory transparency.😍 Please add your name in support of our nation's innovation ecosystem and competitive advantage
www.nopatientleftbehind.org/open-letter-...
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Open letter regarding proposed FDA budget cuts — No Patient Left Behind
https://www.nopatientleftbehind.org/open-letter-fda-budget-cuts
9 months ago
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Nuts. @wsjwernau.bsky.social “Health plans process more than 5 billion claims annually.
@kff.org
says ~850M are denied. Less than 1% of patients appeal.” Still time for CMS to fix prior auth rules to better protect patients in time for ‘26 plan year.
www.wsj.com/health/healt...
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Health Insurers Deny 850 Million Claims a Year. The Few Who Appeal Often Win.
Patients who contest denials face a daunting process, but many are successful. “This appeal saved my life.”
https://www.wsj.com/health/healthcare/health-insurance-denials-fight-back-70a1328e?mod=hp_lead_pos7
9 months ago
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We are still accepting applications for this spring's NPLB Biotech Fellowship program! What can fellows expect? What will you learn? Watch this video from NPLB's founder
@peterkolchinsky.bsky.social
to find out 👇🏻 Apply at
nopatientleftbehind.org/fellowship
. The deadline to apply is February 15.
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9 months ago
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**NEW LETTER** Please add your name in support of properly funding FDA's scientific expertise and regulatory transparency. 🔬FDA experts work on important, breakthrough science. Americans should not have to wait longer for new treatments. Read and click:
www.nopatientleftbehind.org/open-letter-...
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Open letter regarding proposed FDA budget cuts — No Patient Left Behind
https://www.nopatientleftbehind.org/open-letter-fda-budget-cuts
9 months ago
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[email protected]
Thank you for highlighting!! Please consider adding your name in support of merit-based, government-supported basic research. U.S. biomedical research leadership thrives on stability, transparency and long-term commitment.
nopatientleftbehind.org/defending-th...
add a skeleton here at some point
9 months ago
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Please add your name in support of the US biotech ecosystem. Stand up for merit-based, government-supported basic research that fuels US leadership in biomedical progress. 👏 Scientific research thrives on stability, transparency and long-term commitment.
www.nopatientleftbehind.org/defending-th...
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Defending the NIH, the NSF and the foundation of American science — No Patient Left Behind
https://www.nopatientleftbehind.org/defending-the-foundation-of-american-science
9 months ago
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Thank you
@biocentury.bsky.social
for publishing luke evnin,
@peterkolchinsky.bsky.social
, &
@peterlrubin.bsky.social
call to action in support of biomedical research critical to our nation's health and economic strength. Join our call to action here:
www.nopatientleftbehind.org/defending-th...
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Defending the NIH, the NSF and the foundation of American science — No Patient Left Behind
https://www.nopatientleftbehind.org/defending-the-foundation-of-american-science
9 months ago
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Health economists, patient advocates, and industry leaders at
#ISPOREurope
met to enjoy tapas and discuss the latest research at an NPLB networking reception. It was great to connect with conference attendees and demonstrate an early version of our upcoming GCEA calculator.
12 months ago
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