To develop the next generation of disability-policy scholars, the Lurie Institute for Disability Policy established the Student Fellowship in Disability Policy. Meet our 2025/26 fellows: zurl.co/yMnm9 #DisabilityCommunity #Accessibility #DisabilityAccess #DisabilityResearch

Join us in welcoming Carolyn Faith Hoffman as a postdoctoral research fellow at the Lurie Institute for Disability Policy! Learn more about Carolyn on our website: zurl.co/A4237 #DisabilityResearch #DisabilityPolicy

We honor the Inaugural Deaf and Hard-of-Hearing Breastfeeding Week, which is the first ever that specifically calls attention to the needs of Deaf and Hard of Hearing parents who breastfeed, by centering the lived experiences of Deaf and Hard of Hearing parents who breastfeed: zurl.co/N5Cnf

The Interested Parties Advisory Group (IPAG) requirement, established under the Medicaid Access Rule, instructs states to establish a workgroup to advise on the adequacy of rates for direct care workers who provide HCBS for people with disabilities. Read more: heller.brandeis.edu/community-li...

Our new Resources & Publications page on the website helps parents, researchers, and others easily find the information they're looking for: zurl.co/mNVuV #ParentsWithDisabilities #DisabledParents #DisabledParenting #DisabledParent #DisabilityResearch

In this video, Estefani Arevalo from 'That Deaf Family' discusses the joys and challenges of motherhood, and practical breastfeeding tips and insights. Watch here: zurl.co/FzIsj

This week is the inaugural National Deaf & Hard of Hearing Breastfeeding Week! In this webinar, we discuss how to support new parents with a variety of disabilities in lactation and breastfeeding their child. Watch online: zurl.co/VEIcF #DisabilityPregnancy #DisabledPregnancy #PregnancyResearch

The AUCD Policy Team, a partner in community living policy progress efforts, is hosting a webinar on Education Policy and the Individuals with Disabilities Education Act (IDEA) on September 30 at 3:00 PM ET. Register here to join the conversation and learn more: zurl.co/nioJc

September is Sexual Health Month, a time to promote sexual health education and encourage open conversations about sexual well-being. Yet, disabled people continue to face significant barriers, with limited access to sexual health education and healthcare.

People with disabilities are often left out of conversations on emergency preparedness, including parents who must ensure both their own safety and their children’s during a disaster. We’ve compiled extended Frequently Asked Questions (FAQs) from our recent Disaster Preparedness Webinar,

Did you miss any videos or past webinars from the Community Living Policy Center? Do you want to dive deeper into a specific topic? Catch all our past webinars in this Youtube playlist on our channel: zurl.co/zbInL

People with disabilities are often excluded from conversations about emergency preparedness. This includes parents with disabilities who need to keep themselves and their children safe during a disaster. Watch to learn about preparedness best practices: zurl.co/svPoX

August News from the Lurie Institute! Read the full newsletter here: zurl.co/trf3T Want to get newsletters from the Lurie Institute or our various research Centers in the future? Sign up today: zurl.co/yz03r

This new study analyzes data from the National Survey of Family Growth (2011–2019) to explore how disability status and type are associated with sexual and reproductive health (SRH) service receipt among young males in the United States. Learn more: zurl.co/eJGSc

New Publication: Aging with a Disability: A Call for Research, Policy, and Practice by Monika Mitra and Margaret Turk. zurl.co/h799n

The "Lactation and Breastfeeding with a Disability" webinar recording is now available! Watch the recording: zurl.co/5OXyv FAQ & Resource Guide coming soon! #DisabilityPregnancy #DisabledPregnancy #PregnancyResearch #Lactation #IBCLC

In September 2024, the Community Living Policy Center (CLPC) launched a five-year partnership with the University of Illinois Chicago’s Institute on Disability and Human Development’s Family Support Research and Training Center (FSRTC). Learn more: zurl.co/392n0

Happy Women’s Equality Day! Today we celebrate the amendment that secured voting rights regardless of sex. As we reflect on this milestone, it’s equally important to spotlight the experiences and demographics of women with disabilities, who continue to face unique barriers to equality.

Happy Women’s Equality Day! Today we celebrate the amendment that secured voting rights regardless of sex. As we reflect on this milestone, it’s equally important to spotlight the experiences and demographics of women with disabilities, who continue to face unique barriers to equality.

Did you miss any of the past webinars or videos from the National Research Center for Parents with Disabilities? Do you want to dive deeper into a specific topic? Catch all our past webinars in this Youtube playlist on our channel: zurl.co/5lwyn

"Taking on an additional mothering role with limited childcare support from overseas family members means I have limited time and energy to balance my other responsibilities as a disabled organizer, a working professional, and an immigrant." Read blog: zurl.co/PDgch

Explore expert research, lived experience, and clinical insights on the perinatal mental health of disabled people, along with recommended strategies to improve outcomes, in the second session of the 4-part webinar series: Delving into Maternal Mental Health. Learn more: zurl.co/VZPcp

The Community Living Equity Center Disability Data Dashboards are valuable, time-saving tools that can support disability policy advocates across the United States.

🎥 The Portraits & Portals trailer is here! qrco.de/P-Ptrailer A glimpse into the creativity + resilience of disabled artists and disaster survivors of color. Premiere: Aug 27, 2PM ET Register: tinyurl.com/portraitspor... Event includes ASL, Spanish & French interpretation #PortraitsAndPortals 💜

NIDILRR funds disability research across the U.S., including many IHDPS projects! Learn more about NIDILRR through @lurieinstitute.bsky.social 's explainer series: tinyurl.com/bdh5jsj7 #NIDILRR #DisabilityResearch

In recent years, state and federal programs have promoted person-centered approaches in healthcare and long-term services and supports (LTSS) systems. However, the extent to which person-centered planning is happening and the quality of the process depend on many factors. Learn more: zurl.co/G5PPP

Disabled parents hold the same hopes and dreams for their children as any other caregiver. Yet for decades, they have faced persistent barriers. In this video, Dr. Elizabeth Lightfoot introduces social service providers to effective ways of supporting disabled parents. Watch here: zurl.co/Giqj4

Did you miss any of the past webinars from the National Center for Disability and Pregnancy Research? Do you want to dive deeper into a specific topic? Catch all our past webinars in this Youtube playlist on our channel: zurl.co/5lwyn

Jennifer Lee-Rhambarose, Senior Project Manager at the Lurie Institute and a Fellow of the American Society on Aging’s (ASA) Rise program, recently authored a blog for ASA: zurl.co/DmBUD Applications for Cohort 5 of the ASA RISE Program are also now open. Learn more: zurl.co/s6ldw

The Parenting Disability Data Dashboards are valuable, time-saving tools that can support disability policy advocates across the United States.

The National Museum of American History will honor the life and legacy of Stacey Park Milbern, a queer disabled woman of color and activist at 6:00 p.m. EDT today. Learn more: www.aapd.com/in-her-own-w...

Did you miss any of our past webinars? Do you want to dive deeper into a specific topic? Catch all our past webinars in this Youtube playlist on our channel: zurl.co/5lwyn #DisabilityCommunity #Accessibility #DisabilityAccess #DisabilityResearch

We've received great questions about our Disability Data Dashboards, such as: What data did you use? 📊 How does this apply to my state? 📍 Are the dashboards accessible for different disabilities? ♿️ We've got answers! Visit our Extended Disability Data Dashboard FAQs to learn more: zurl.co/koKvm

As we celebrate the International Day of the World’s Indigenous Peoples, discover some important data we know about Long-Term Services and Support for Native American Adults.

As we celebrate the International Day of the World’s Indigenous Peoples, discover some important data we know about Native American Parents with Disabilities.

The Community Living Equity Center Disability Data Dashboards are valuable, time-saving tools that can support disability policy advocates across the United States.

Join us in welcoming A. H. Monjurul Kabir as an Honorary Visiting Scholar/Visiting Research Scientist at the Lurie Institute for Disability Policy! Learn more about Dr. Kabir on our website: heller.brandeis.edu/lurie/about/... #DisabilityResearch #DisabilityPolicy @mkabir2030.bsky.social

In this video, Kristie Lewis, a disabled parent, describes a horrifying experience she had with her baby's care team, where she was asked to get on the floor and demonstrate how she parents her child. Watch the full webinar here: zurl.co/pVrVg

Our Disability Data Dashboards offer crucial information in easy-to-understand and accessible ways. In this video, Nicole Lomerson, Research Associate at the Lurie Institute, highlights key data insights about disabled parents revealed by the dashboard.   Watch the full webinar here: zurl.co/TDCqI

We’re excited to share our new one-pager! With a single glance, you’ll get a clear and comprehensive overview of the Lurie Institute for Disability Policy. View the accessible PDF: zurl.co/I7vV9 #DisabilityCommunity #Accessibility #DisabilityAccess #DisabilityResearch

It's officially August, which is National Breastfeeding Month, and today is the beginning of World Breastfeeding Week! Sign up for our webinar happening on next week all about lactation and breastfeeding with a disability: zurl.co/UMvAl #WorldBreastfeedingWeek #NationalBreastfeedingMonth

This newly released article discusses the healthcare challenges faced by Black and disabled mothers, and the urgent need for policies that confront bias, expand access, and ensure accountability within healthcare systems. Read here: zurl.co/Psgs4

The recording of the webinar “Using the Disability Data Dashboards to Advance Policy and Advocacy” is now available! Watch the recording: zurl.co/w3d0b Access the accessible PowerPoint slides: zurl.co/NRVId FAQs from our attendees will be shared on our website soon: zurl.co/lCfX4

The July edition of our monthly newsletter is out! Find important announcements about our Carrie Buck Fellow, special new publications, disability pride highlights, and much more: zurl.co/DW3Dj Sign up to get newsletters in the future: zurl.co/yz03r

Though T-MSIS is the most comprehensive data on Medicaid beneficiaries that is available, there are known concerns regarding the completeness and quality of T-MSIS data. Given the race-ethnicity data quality concerns in T-MSIS, researchers using the T-MSIS data to look at race

The available research on retribution exacted on nursing home residents who speak out against mistreatment, illustrates similarities between nursing homes and prisons.

"What piece of disability history or identity would you like more people to know about?" David Cahn shares: “Until 1974, there existed unsightly beggar ordinances, or 'ugly laws' that were enforced to keep disabled people out of the public eye.” Learn more: zurl.co/mhMr0

"What does the 2025 theme 'We Belong Here, and We’re Here to Stay' mean to you?", Lurie Institute Research Associate Ruby Siegel shares: “The disabled community will persist and survive despite our identities questioned, devalued, or despised.” Visit our website to learn more: zurl.co/mhMr0

In 2023, the Community Living Equity Center hosted a webinar on Disability Identity and Pride in Research, centering the voices of members of the CLEC Community Advisory Committee. Watch the full webinar here: zurl.co/B4acP #DisabilityPolicy #CommunityLivingPolicy #CommunityLiving

On Wednesday, the Lurie Institute joined the Boston Center for Independent Living together with the Boston Commission for Persons with Disabilities, and more than 1,400 attendees at Boston City Hall Plaza to commemorate this historic ADA35 milestone with a rally and march.