The Rise of Scoping Reviews in Nursing Science: Trends, Merits, and Responsible Use www.mdpi.com/2039-4403/15...

Boy with rare condition amazes doctors after world-first gene therapy www.bbc.co.uk/news/article...

Don't blindly trust what AI tells you, says Google's Sundar Pichai www.bbc.co.uk/news/article...

We’re very pleased to help move forward the plans set out in the England Rare Disease Action Plan to improve the experience of diagnosis and access to services for people with a #raredisease.

Join us for #OnlyConnect25 celebrating the power of #intergenerational and inclusive practice/research - hosted at Newlyn Art Gallery, with an expedition to Potager Garden for a magical evening meal. Get ready to connect, make, talk, wonder and look beyond the horizon to what is possible.

👋 Meet Mick Arber, Senior Information Specialist at YHEC. With 25+ years in health information and evidence synthesis, Mick brings expertise in robust, high-quality literature searching. Read more: sites.google.com/york.ac.uk/y... #EvidenceBasedMedicine #MedLibs

In this paper we aim to show how undertaking a #systematicreview in collaboration with a policymaker can be framed as a hermeneutic process, improving relevance for policy and challenging the conventional rule following account of #systematicreviews (1/2): journals.sagepub.com/doi/10.1177/...

Menstruation & Menopause as Reproductive Justice Issues: Feminist Reflections on Activism, Research, & Policy from the Global Movement's Scottish Hub Bettina Bildhauer & Marcy Karin papers.ssrn.com/sol3/papers....

Our latest paper: Evidence of #inequities experienced by the #raredisease community with respect to receipt of a diagnosis and access to services: a scoping review of UK and international evidence link.springer.com/article/10.1...

Interesting Campbell protocol - What works to increase the use of evidence for policy decision-making: A systematic review onlinelibrary.wiley.com/doi/10.1002/...

“When I started my period at 15, I passed out, threw up, was petrified about what was happening and was told it was normal.”

When world's collide - spotted in the @hayfestival.bsky.social bookshop Naga Munchetty's important book on the women's health crisis cites our recent #systematicreview of #primarycare clinicians’ perspectives on interacting with patients with #gynaecological conditions bjgpopen.org/content/8/1/...

Interesting blog post by Aaron Tay on the reproducibility and interpretability of academic Ai search engines musingsaboutlibrarianship.blogspot.com/2025/04/the-...

In this blog post we summarise our recent paper which uses hermeneutics to explore expert judgement in systematic reviews for policy, and explore what this means for using AI in systematic reviews. We hope you find it considered and thought-provoking! planeterfexeter.wordpress.com/2025/04/30/e...

'Bluesky has overtaken its flailing rival X in hosting posts related to new academic research, indicating the platform is fast becoming the go-to place for scholars to share their work.'

Excited to see our paper "Framing #systematicreviews commissioned by policymakers as a hermeneutic process" published in Methodological Innovations -- a methodological commentary which uses hermeneutics to understand how reviewers and policy teams work together journals.sagepub.com/doi/full/10....

It's Rare Disease Day. Over 350 million people live with a rare condition globally. But rare disease is poorly taught about in medical education leaving doctors unable to support their patients. So we are raising awareness amongst healthcare professionals #ShowYourStripes

The England Rare Diseases Action Plan 2025 is published today and includes an annex with a summary of our scoping review of inequities relating to diagnosis and access to services for people with a rare disease (1/2) #RareDiseaseDay2025 www.gov.uk/government/p...

🌍 Today is #RareDiseaseDay 2025! We stand with the 300 million people worldwide living with rare diseases. By coming together, we can raise awareness, drive change, and work toward a more inclusive and equitable future! 🔗 Read more: metab.ern-net.eu/rare-disease... #RareDiseaseDay2025

TODAY is #RareDiseaseDay! 💙💚💜 Across the world, our #raredisease community is sharing our colors and demanding equity for the 300 million people living with a rare disease. But what’s the difference between equality and equity?

Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay. A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone. 📷 | @oxfordpaediatrics.bsky.social

Twitter (X) and the Commercial Determinants of Health: Characterizing the Most Amplified, Influential, and Connected Voices Driving Twitter Discourse About Tobacco Regulatory Policy From September 2019 to July 2021 journals.sagepub.com/doi/10.1177/...

Our commentary on commercial influences on patient & public involvement is out today @healthpromint.bsky.social as part of special issue on the #CDoH. We hope to stimulate discussion & debate (& hopefully meaningful action) in this area academic.oup.com/heapro/artic... @jameslarkin13.bsky.social

Another example of sex differences in quality of care - women less likely to receive guideline-recommended care during surgery www.sciencedirect.com/science/arti...

For those not working in academia, how do you access peer reviewed research, if at all? How would you like to? How can academics get better at sharing findings?

📢 Web users! We found an issue in today's update that would cause some community moderation not to apply. Please refresh the website to get the fixed version.

What thing I've learned from working in academia for the last 23 years is that we're given a special gift of trying to make the world a better place, on a micro and macro level. That we're able to do that by improving ourselves but it should never come at the expense of others.

Very much enjoyed my colleague Ruth Garside's inaugural lecture last night: "Whose stories count: an accidental #academic" Along the way to professor many interesting stories and research including this #PhD #thesis on #qualitative methods for #systematicreviews: hdl.handle.net/10036/116289

Our latest paper: Consideration of health inequity in systematic reviews and primary studies on risk factors for hearing loss onlinelibrary.wiley.com/doi/10.1002/...

Improving mental health and psychosocial wellbeing in humanitarian settings: reflections on research funded through R2HC conflictandhealth.biomedcentral.com/articles/10....

Errors to avoid when searching for studies for systematic reviews onlinelibrary.wiley.com/doi/10.1111/...

Our systematic review on primary care clinicians' perspectives on interacting with patients with gynaecological conditions was recently accepted for publication in BJGPOpen: bjgpopen.org/content/earl...

Take a read of the Exeter PRP Evidence Review Facility's latest blog post: "Eight things we want to share with you – lessons from the Cochrane Colloquium 2023" planeterfexeter.wordpress.com/2023/10/30/e...

My first full-length research article in JMLA was published yesterday. I interviewed 12 information specialists about the databases they search for systematic review projects, and boy, did they have a lot to say! jmla.pitt.edu/ojs/jmla/art...