M.E./C.F.S. and Long Covid share symptoms, and support needs. Stripy Lightbulb CIC’s e-learning helps #healthcare, #education & #employers provide informed care and support. Let’s stop the struggle. Start learning. 🌟 #CPD

Stripy Lightbulb CIC stands with those left behind. No treatment, no support, no recognition. M.E./C.F.S. patients deserve better. Let’s fight stigma with education. 💡 #CPD

M.E./C.F.S. patients feel abandoned. No treatment, little support, suicide risk is much higher than national average. NICE guidelines exist, but NHS adherence is minimal. We must do better. #MEcfs #Healthcare

The economic impact of M.E./C.F.S. is huge, but ignored. People are dropping out of work & school, wrongly denied benefits, and left to struggle. Education on the illness isn’t optional, it’s survival. #Disability

Students with M.E./C.F.S. are dropping out. Why? Educators don’t know how to support them. It’s not ‘just tiredness’, it’s a disabling condition. #InclusiveEducation

Professionals with a duty of care, learn how to support those with M.E./C.F.S.(and Long Covid). Stripy Lightbulb CIC’s e-learning gives you the tools to do better. Improved knowledge saves energy. Literally. 💡 #ELearning #Training #CPD

Many with ‘mild’ M.E./C.F.S. could work, if workplaces were flexible. Instead, they’re forced out, denied disability support & left in financial crisis. #Disability #WorkplaceInclusion

Teachers: understanding M.E./C.F.S. isn’t optional, it’s essential. One of your students may be silently battling this condition. Your improved knowledgebase = empathy, support & better outcomes. Let’s make classrooms inclusive for all 💡 #Education #Learning

Behind every M.E./C.F.S. diagnosis is a person fighting to be believed. Stigma isolates. Education empowers. Join Stripy Lightbulb CIC in changing the narrative. 💬 #MEcfs #EndTheStigma #CPD stripylightbulb.com

Get posting #pwME. 👀 youtube.com/shorts/ERPYv... Copious amounts of private emails/letters are not working. Constructive responses from DWP and/or DHSC would be very welcome. Blog with info - stripylightbulb.com/2025/07/21/c... FYI @georgemonbiot.bsky.social #pwME #MEcfs #Politics

Teachers, employers, HR leaders - ME/CFS affects your people too. Stripy Lightbulb CIC’s training isn’t just for doctors. It’s for anyone with a duty of care. 💡 Learn how to adapt, support, and lead with empathy. 🔗 stripylightbulb.com #Learn #Training

Healthcare professionals: Would you treat a heart condition without training? Then why guess with ME/CFS? Stripy Lightbulb CIC offers a CPD-accredited course designed to help you support patients with dignity and honesty. 💬 Sign up. Make a difference. 📲 stripylightbulb.com

We are very happy to have signed this letter and fully support this Chronic Living Therapy campaign. chroniclivingtherapy.com/open-letter-... #pwME

ME/CFS is NOT “just tiredness.” It’s a global health crisis, a neurological condition, and one of the most misunderstood illnesses in healthcare. Stripy Lightbulb CIC’s training helps professionals get it right. 🎓 Learn. Understand. Support. 🔗 stripylightbulb.com

Stripy Lightbulb CIC is campaigning for people living with ME/CFS who are too often ignored. 🛏️ #BEDforSevereME highlights the 25% who are bedbound. 📢 #DWPCampaigns fight for fairer support. Be part of the change: stripylightbulb.com #MEcfs #DisabilityRights #InvisibleIllness

Professionals: Are you equipped to support people with ME/CFS? There is a knowledge gap. Stripy Lightbulb CIC’s CPD-accredited course fills that gap, with real insight, practical solutions, and compassion. 👉 Sign up today and earn your badge of understanding: stripylightbulb.com

ME/CFS patients deserve better. Better understanding. Better care. Better outcomes. Stripy Lightbulb CIC’s training empowers professionals to be part of that change. 💪 Be the ally patients need. 🎓 Enroll now: stripylightbulb.com

Healthwatch is being scrapped. For the M.E. community, that means one less way to be heard. “In house” solutions won’t work unless the NHS becomes truly patient-centred, before the closure Don’t silence the patient voice. 📢 localdemocracyandhealth.com/2025/09/14/d... #Healthwatch #PatientVoice #PwME

'Stripy Lightbulb CIC exists to educate, advocate, and innovate. If we were in Government, we’d lead with compassion, science, and pragmatism. Because investing in health is investing in the future.' www.stripylightbulb.com/2025/09/09/c... #Politics #UK

M.E./C.F.S. is the no.1 health cause for long-term school absence in the #UK. Are you equipped to support your students? Our CPD-accredited course gives you the tools to help them thrive. Enrol today. #MECFS #CPD #EdChat #InclusiveEducation www.stripylightbulb.com/training/edu...

Confronting the cost of chronic illness is key to rebuilding a healthier, fairer UK. The nation's crisis is a symptom of systemic failure post-COVID. www.stripylightbulb.com/2025/09/09/c... #Politics #Economics #PublicHealth

We posted an update on our WCA / DWP work on Friday. In case you missed it, the whole video can be found here - www.youtube.com/live/g7CoGRU... #PwME #MEcfs #Politics #DWP

We are launching a 'Pro Bono Knowledge Bank'! Read all about it here - www.stripylightbulb.com/2025/09/08/b... Email [email protected] if interested. #SocialEnterprise #ProBono #Volunteer

🛏️ Wear Pyjamas to Work: In Support of BED for Severe M.E. On Wednesday 29th October, join us in raising awareness for Severe M.E., a condition that leaves many bedbound and medically unsupported. 👚 Swap workwear for sleepwear 💷 Donate £2 per participant 1/2 #Business

📢 We've been waiting since 18 July for a response to our urgent letter/covering email @wesstreeting . The DWP's ME/CFS WCA training contradicts NICE NG206 and is causing harm. This demands immediate cross-departmental action. Lives are being impacted. #MEcfs 1/3

“When you get ME, you kind of realise that all of your skills, your knowledge, your qualifications don’t mean anything, because you can’t put them towards a full-time job anymore, your career’s gone.” (severity dependent)" serenichron.com/articles/whe... #pwME #SocEnt

Our article on @linkedin.com - 'Why Employers Must Step Up: Supporting ME/CFS in the Workplace Isn’t Just Ethical - It’s Essential' linkedin.com/posts/stripy... #HR #Employment #Training

🚨 Nearly £2M stolen by DWP staff in benefit fraud, while disabled people face stigma and scrutiny just to access support. The real fraud? It’s inside the system. Time to shift the narrative from blame to accountability. #Disability #pwME #WelfareSystem www.stripylightbulb.com/2025/07/23/d...

The M.E Delivery Plan was published yesterday. We haven't read it yet because our expectations were/have always been low. We were founded nearly 7 years ago, after a year of talking to #pwME about our plans, doing teacher training, and crowdfunding. So, we identified 1/

Watch the full video here - www.youtube.com/live/tyR6Ny7... #pwME #MEcfs #Welfare

Sat in on the APPG on Disability's session on the welfare system. Knowing what we now know about WCA training for assessors... We have a whole new perspective. #MEcfs

Our blog on the #DWP WCA training. 'This situation creates a damaging policy conflict where one government department (the DWP) is actively undermining the expert clinical guidance championed by the Department of Health and Social Care (DHSC).' www.stripylightbulb.com/2025/07/21/c... #PwME

This is as a result of a series of FOI requests sent to DWP by us. Wes Streeting was told last week. APPG for Disability has been emailed with concerns. DWP not being guided by up to date clinical guidelines. Using out of date harmful BPS methods in training. #UK #MEcfs #TakingThePIP

Abhorrent Dangerous Inhumane #TakingThePIP #ME/CFS #SevereME #LongCovid #HumanRightsViolation

Excellent article from Hannah Sharland and @thecanaryuk.bsky.social We were shocked and angry, though not surprised, to see the contents of the FOI documents. Page 15 is particularly bad...... (link to doc is on article). #pwME #MEcfs #Politics #TakingThePIP #WelfareCuts

Three of four concerns raised by Stripy Lightbulb CIC about the Universal Credit Bill will be voiced in the Lords on Tuesday. But as a Money Bill, no debate or amendments are allowed. Read more on what this means www.stripylightbulb.com/2025/07/20/u... #pwME #TakingThePIP #Disability

As of next Friday, we are on holiday for the first time since Stripy Lightbulb CIC was founded in 2018! We will be stepping away completely for 2 whole weeks 😬 Don't worry, answers to 'commonly asked questions' about accessing training will be on our out of office reply 😊 #SocEnt

You know the old story of knowing you've got flu because a £50 note could be near you and you are too ill to move and pick it up? There is no incentive big enough to get most people with M.E/C.F.S (75%) back into employment A job with £1m salary wouldn't be possible, we are too ill! #DWP

💡 Switch on the light for M.E.! We provide accredited training for #healthcare, education pros and #employers to smash stigma & improve support. 50% of our surplus funds research. Founded by a person with M.E, we get it. Be the change. Sign up - www.stripylightbulb.com #MECFS #CPD #Education

Dear @[Tag YOUR MP in comments], a 'better day' for someone with a chronic illness isn't a cure. It's a temporary reprieve. Don't vote to cut their support based on a misunderstanding of their reality. Fluctuations are not recovery. #LCWRA #UC #WelfareBill #pwME #MEcfs #LongCOVID

We published this open letter (link in 4/4) on 1st June 2025. This section is particularly pertinent this week - '...we urge you to delve deeper into the complexities of Universal Credit (UC) and its various components, including the element of Limited Capability for Work and 1/

Take a look at our M.E. Assessment Framework! Created in collaboration with the M.E. community. www.stripylightbulb.com/reform-of-th... #Politics #Health #Disability #WelfareBill

MPs need to know 'fluctuating' does not mean recovery. www.stripylightbulb.com/2025/07/04/t... #WelfareBill #Disability #MEcfs

See our briefing and advocacy toolkit in this NEW blog! www.stripylightbulb.com/2025/07/04/t... #pwME #WelfareBill

Writing a DWP briefing paper. It's taken all day (small chunks of time #Pacing). But it's nearly ready. We'll be sending it to DWP but it may also be useful to be shared more widely. It'll be added to our website (probably tomorrow). #MECFS #PwME #WelfareBill

Thank you for publishing our article @thecanaryuk.bsky.social THIS is an issue that has not been addressed widely in the #UK #media or by politicians in discussions about #WelfareBill. We told them this would happen, they didn't listen. Tag YOUR MP #pwME www.thecanary.co/uk/analysis/...

The DWP claim to use official sources to create policy and training (not charities or VCSE due to 'bias'). However, in the UK, where M.E. is concerned this is HUGELY problematic. 'Official' sources have caused extensive stigma and harm for decades. This is particularly concerning with 1/ #pwME

🚨 Statement on #WelfareBill vote After 9 months of advocacy, disabled people were sidelined again. Clause 5 was dropped abruptly, not because of the harm, but for party politics. Statement - stripylightbulb.com/2025/07/02/s... #WelfareReform #TakingThePIP

We just watched a farce. We are amazed only 44 Labour MPs saw sense. What did the others think they were voting for? So many concessions were made, what was left? #pwME #WelfareCuts

@Equity- 'The Government’s #welfarereform would breach international human rights law, says new expert legal opinion commissioned by Equity Time to drop this morally & economically indefensible bill that attacks the rights & living standards of disabled people' www.equity.org.uk/news/2025/we...