#SYNTHEMA joined the i~HD Annual Conference, with Elisabetta Mezzalira (University of Padova) representing the project. The event featured the presentation of the #HealthData4EU white paper “Building Trust in Synthetic Health Data”. #SyntheticHealthData

How similar is synthetic tabular data to the real thing? This new approach uses KL and JS divergences to evaluate full joint distributions — not just feature by feature. A more reliable way to validate synthetic datasets in practice. 👉 synthema.eu/publications/ #SyntheticData #DataValidation #AI

Over 450 haematological diseases affect blood cells, the lymphatic system & coagulation, posing major challenges to public #HealthSystems. #SYNTHEMA is developing a secure platform for synthetic #ClinicalData to enable GDPR-compliant research in rare #HaematologicalDiseases. 👉 synthema.eu

Can synthetic tabular data be more accurate? This new model by researchers at Universidad Politécnica de Madrid combines a Variational Autoencoder with a Gaussian Mixture Model. Results outperform #CTGAN and #TVAE, especially on medical datasets. 👉 synthema.eu/publications/ #SYNTHEMA

The paper “Distributing trust: A P2P SMPC protocol for secure federated learning” by Petros Demetrakopoulos, Themistoklis Anagnostopoulos and Sofia Tsekeridou (Netcompany RID, #SYNTHEMA partner) will be presented at #FLLM2025 on 27 Nov at 15:30. synthema.eu

#HealthData4EU Cluster is at #EBDVF25 this week. SYNTHEMA isn’t on site, but we’re glad to support tomorrow’s session in Copenhagen. If you're there on 14 Nov, join “Ecosystems of Innovation in Healthcare” from 09:00–10:30, Room 2.B — a chance to hear how our partners advance ethical health data use

How well does synthetic data generation work when spread across multiple hospitals? This study on #AML shows that federated learning protects privacy, though fidelity takes a hit. A key step in real-world AI for rare diseases. 👉 synthema.eu/publications @vicomtech.bsky.social #SYNTHEMA

Two productive days in San Sebastian for the #SYNTHEMA consortium have come to an end. Lively discussions, clear goals for the final year: a recap publication on synthetic data in haematology, joint training with @erneurobloodnet.bsky.social, new papers, and the SYNTHEMA platform launch synthema.eu

The SYNTHEMA consortium is meeting in San Sebastian, Spain, to mark the project’s third anniversary and kick off discussions for the final year ahead. Together, we’re committed to delivering results in secure, AI-powered health data for rare hematological diseases. 👉 synthema.eu

What can generative models reveal about the real data they learn from? This study by @upm.es researchers explores membership inference attacks in generative models, introducing new theory and showing how differential privacy fits in. A critical read for privacy-aware AI: synthema.eu/publications/

Pushing the boundaries of AI-based research in rare haematological diseases. #SYNTHEMA develops privacy-preserving AI and synthetic data to create virtual patients that improve diagnosis and treatment in rare diseases. 👉 synthema.eu #AIinHealthcare #HorizonEurope

The #HealthData4EU Cluster, which SYNTHEMA forms part of, will host the session “Ecosystems of Innovation in Healthcare: Ensuring Trust, Quality & Ethics in Data Use” at #EBDVF2025 in Copenhagen on 12–14 Nov Event: european-big-data-value-forum.eu/2025-edition... Cluster: synthema.eu/healthdata4eu/

Most synthetic data models assume data abundance. This study shows how transfer learning and meta-learning improve synthetic data generation for cancer research in low-data scenarios, where real clinical constraints apply. 👉 synthema.eu/publications/ #SYNTHEMA #SyntheticData #AI

Our partner i~HD is hosting a special 10th anniversary edition of its Annual Conference: “A Decade of Joining the Dots – Towards Bridging Data Spaces” 📍 3–4 Dec 2025 | Ghent, Belgium Topics: EHDS, AI in healthcare, data quality, privacy & governance. 👉 www.i-hd.eu/ac2025

Most synthetic data models assume data abundance. This study shows how transfer learning and meta-learning improve synthetic data generation for cancer research in low-data scenarios, where real clinical constraints apply. 👉 synthema.eu/publications/ #SYNTHEMA #CancerResearch

In #SYNTHEMA, data collection is central to building GDPR-compliant, AI-ready datasets for Sickle Cell Disease and Acute Myeloid Leukaemia. Harmonised across countries, the data supports synthetic generation, federated learning, and future rare disease research. 👉 synthema.eu/2025/09/23/d...

Data scarcity and fragmentation limit synthetic data in healthcare. This study introduces Synthetic Data Sharing, a federated learning method that improves representativeness and reduces disparities between data-rich and data-poor institutions. 👉 synthema.eu/publications/ #SYNTHEMA

Good data is not just collected, it is built with care. In #SYNTHEMA, clinical teams across Europe are creating high-quality, privacy-compliant datasets to power synthetic data and AI research in rare blood disorders. 👉Read more: synthema.eu/2025/09/23/d...

Cyber-physical systems need smarter tools for risk assessment. This study introduces an automated, simulation-based method aligned with ISO 27005. Validated through a real attack case and implemented in Spyderisk. Read more 👉 synthema.eu/publications/

📰 The #BDVA Healthcare Task Force has published its white paper on Synthetic Data in Healthcare. Proud to contribute alongside AISym4Med & SECURED, our sister projects in the #HEALTHDATA4EU cluster. Read more 👉 bdva.eu/news/synthet... #SyntheticData #SYNTHEMA

#SYNTHEMA is featured in The Innovation Platform (Issue 23), with an article on how synthetic data and federated AI are transforming research in rare blood disorders while keeping patient privacy at the core: www.innovationnewsnetwork.com/publication/... #SyntheticData #RareDiseases

The #SYNTHEMA platform enables synthetic health data without moving sensitive patient info. ✔️ Data stays local ✔️ Federated learning across centres ✔️ FAIR-based quality & compliance Tested in #SCD & #AML use cases. More info: synthema.eu

#SYNTHEMA is building the foundations for a future where synthetic, privacy-preserving data supports progress in rare diseases. Beyond its two use cases, its flexible design can benefit other rare and underrepresented conditions. More 👉 synthema.eu

Estimating treatment effects in healthcare is complex when data is decentralized and privacy is critical. This study applies federated learning to generative causal models for privacy-preserving ITE estimation across fragmented datasets. 👉 synthema.eu/publications/ #SYNTHEMA

Local data stays safe. Global research moves forward. With SYNTHEMA’s federated learning, hospitals never share patient data, but together they unlock new possibilities for rare disease research. 👉 synthema.eu

Sickle Cell Disease is a rare, life-threatening blood disorder with limited treatment options. In #SYNTHEMA’s Use Case 2, AI creates synthetic data from 1,000+ patients to study genetic factors & predict brain vascular events, while protecting privacy. 👉 synthema.eu/use-cases/

#AML is the most common acute leukemia in adults—fast-progressing but treatable. In SYNTHEMA’s Use Case 1, AI creates synthetic data from 2,500+ AML patients to predict survival & treatment responses, while protecting privacy. Learn more about us: synthema.eu

Rare cancers make up over 20% of all cases but often lack tailored prognostic tools. The MOSAIC framework changes that, offering an AI-driven, privacy-preserving model for patient stratification and personalised risk assessment in myelodysplastic syndrome. Read the article: synthema.eu/publications

✅ Secure Multi-Party Computation enables joint analysis without sharing private data. At #SYNTHEMA, it is key to building privacy-preserving health data solutions for rare hematological disease research, enabling collaboration without compromise. 👉 synthema.eu

What does it really mean for synthetic data to be private? This systematic review digs into 105 studies to map how privacy in SDG is defined, evaluated & applied, spotlighting differential privacy, GANs & healthcare use. 👉Read more: synthema.eu/publications/ #SYNTHEMA

As you might know, #SYNTHEMA is part of the HEALTHDATA4EU Cluster, 7 EU projects advancing secure, ethical health data use. Our joint white paper is coming soon, highlighting synthetic data, federated learning & cross-border collaboration. 👉 Learn more about our work: synthema.eu

Interested in synthetic data, rare diseases, or AI-powered breakthroughs in hematology? Visit SYNTHEMA’s publications section to explore work on data privacy, federated learning, AI in rare blood diseases, clinical decision-making for HSCT, and more. 👉Start reading: synthema-project.eu/publications

Differential Privacy (DP) adds smart noise to data, making it impossible to trace info back to individuals, without losing research value. At #SYNTHEMA, DP helps protect rare disease data while generating realistic, privacy-safe synthetic patients. 👉 synthema.eu

Last month, #SYNTHEMA and #GenoMed4All joined #EHA2025 in Milan to present our work on AI-powered federated platforms for data anonymisation & synthetic data. We also shared new insights on hydroxyurea treatment in SCD. Read the recap: synthema.eu/2025/06/17/s... #AIforHealth

Sickle Cell Disease is rare in the EU (fewer than 5 in 10,000 people), but its prevalence is rising across Europe due to migration and shifting demographics. #SYNTHEMA uses privacy-preserving AI and synthetic data to advance diagnosis, research & treatment. 👉 synthema.eu

At #EHA2025, Sigrid van der Veen (UMC Utrecht) presented a #SYNTHEMA-linked poster on hydroxyurea therapy in SCD. Key findings on metabolites & personalised treatment 👉 library.ehaweb.org/eha/2025/eha... #SickleCell #Genomed4All

We’re at #EHA2025! Visit us in Hall 4 and meet the #SYNTHEMA & #GenoMed4All teams. 📢 Don’t miss the Clinical and Data-Driven Research session by @erneurobloodnet.bsky.social tomorrow, 13:00–14:30, with our project experts! 👉 Agenda: lnkd.in/ejt_znV5

How can AI help protect privacy and advance rare disease research? Join #SYNTHEMA & #GenoMed4All at #EHA2025 for the Clinical & Data-Driven Research session by @erneurobloodnet.bsky.social. 🗓️ June 13 | 13:00–14:30 📍 Milan 👉 synthema.eu #AIinHematolog

#SYNTHEMA collaborates with #RADeep, the EU-wide platform gathering data on rare anaemia disorders. With 200+ healthcare providers in 13+ countries, RADeep—under the @erneurobloodnet.bsky.social umbrella—bolsters our efforts to improve research and care. 👉Learn more about SYNTHEMA: synthema.eu

From registries to federated AI platforms, innovation in rare hematology takes the stage at #EHA2025. Catch #SYNTHEMA & GENOMED4ALL on June 13 at the @erneurobloodnet.bsky.social Clinical and Data-Driven Research session in Milan.

SYNTHEMA uses smart AI to help scientists study diseases like leukaemia and sickle cell without using real patient data. These models learn from medical records and create new, realistic examples — like lab results or scans — while keeping privacy fully protected. 👉 synthema.eu

#SYNTHEMA & GENOMED4ALL will be at #EHA2025 in Milan! Join us on June 13 for the Clinical & Data-Driven Research session by @erneurobloodnet.bsky.social, where partners will share insights on AI, data anonymisation & synthetic data for rare blood diseases. 👉Agenda: bit.ly/4dEGoMm

At #SYNTHEMA we use AI to fill data gaps & improve care for rare blood disorders. Focusing on Sickle Cell Disease & Acute Myeloid Leukaemia, we integrate clinical, genetic & imaging data for improved patient outcomes. 👉 synthema.eu #RareDiseases #Haematology

It’s not enough for synthetic data to look real — it must be clinically useful. #SYNTHEMA tests if it can predict outcomes, reveal genetic risks & support real diagnoses. Synthetic data, real impact. That’s how we move healthcare forward while protecting privacy: synthema.eu

Just wrapped our 2-day #SYNTHEMA meeting—48 h of results, intense discussions & planning to validate AI-driven anonymisation & synthetic data for rare haematological diseases. Thanks to the European Institute for Innovation Through Health Data & Nathan Lea! synthema.eu #HealthData #AI

#SYNTHEMA enters month 30 with a two-day consortium meeting in Ghent. Work package leaders are sharing milestones, next objectives, and aligning workflows for full collaboration between clinical and technical teams.

This #EuropeDay, we’re proud to support the EU’s vision for a healthier, more connected continent. With funding from the European Commission, #SYNTHEMA pioneers AI-powered synthetic data to improve diagnosis and treatment of rare haematological diseases across Europe. 👉 synthema.eu

In diseases like #leukemia or sickle cell, rare events can mean everything — but most #AI misses them because they focus on the “average” patient. #SYNTHEMA goes deeper: our synthetic data captures those rare but life-saving patterns. Because in medicine, rare can save lives. 👉 synthema.eu

How is the EU addressing the challenges of Sickle Cell Disease? This paper co-authored by #SYNTHEMA partners explores the role of ERN-EuroBloodNet in advancing care, collaboration & research for rare haematological diseases. 📄 Read more: bit.ly/44CHlSP #RareDiseases #SickleCell #Hematology

#SYNTHEMA links 16 partners in 10 countries to advance synthetic data for rare haematological diseases. Supported by ERN-EuroBloodNet and key EU data platforms such as ENROL, EU RD Platform, and RADeep, the project focuses on secure, AI-based clinical data sharing. 👉Learn more about us: synthema.eu