Its been a busy summer but I'm looking forward to nice little rest in a few weeks a little trip no parents amd no Amber. Love the loads but looking forward to the rest and a trip with no caring involved!

Took amber and her friend to London 💜

Did the flower show in southport with my mum for a little break 💐☀️☀️

We visted Scotland this summer 🏴󠁧󠁢󠁳󠁣󠁴󠁿

Popped on here for a change

Great event

Massive thanks to @dugganjr.bsky.social for organising yesterday’s event on social murder and the government’s proposed reforms of the benefit system. @sarasiobhan.bsky.social’s forthcoming book is going to be so important and it was great to speak alongside such a brilliant scholar & activist.

Being 40 is cool feeling really thankful. It's a privilege enjoy every moment and cherish life 💜

Would you like one of the best jobs in employment law? We're hiring a Principal Legal Officer to run the FRU employment law service. Transfer your #EmpLaw expertise to the next generation of lawyers. www.thefru.org.uk/vacancies Salary £51,622, permanent, full time. Closing date 10 March.

Lancashire fails its Area SEND Inspection - “unacceptably long waits” for everything and still generally bad… files.ofsted.gov.uk/v1/file/...

Kim leadbeater suggesting there's an army of social workers to safe guard people with assisted dying... Mean while back in the real world Amber's care agency not been able to support is is not an emergency & hopefully we will hear from social worker in 28 days...

Lack of accessible homes is a huge issue home

NEW: Just 3% of new homes granted planning approval in London last year are suitable for older or disabled people to live in Less than 1% of newly approved homes are designed so wheelchair users can live in them By me, for the Observer: www.theguardian.com/society/2025...

Last year Steph was finally rehoused in a permanent, accessible newbuild council flat - which then proved to be riddled with faults, including the only lift regularly breaking down. She's now had to be moved into a hotel. More here: www.theguardian.com/society/2025...

Great start to the week with a super review of Steve Broach KC and Tor Butler-Cole KC's book 'Making Lawful Decisions' in the @lawsocietygazette. READ THE REVIEW: www.lawgazette.co.uk/reviews/maki.... GET YOUR COPY OF THE BOOK: www.lag.org.uk/shop/book-ti... #accesstojustice

My little trip to Spain 🇪🇸 was fun!

The cathedral in Malaga from my visit last week.

My girl has new Pajamas and a Christmas deady bear 🐻 she settled in bed 💜 feeling greatful she's pretty well ✨️ and happy 😊 #caring #parenting #disability Christmas always reminds me how far we've come.

@legalclaret.bsky.social Amber said I needed to wish the cats 🐈 a happy Christmas 🎄

Me, mum & Amber Christmas 🎄 meal out!

Christmas day out with Amber over the weekend brunch and a visit to the pug cafe 💜

Christmas baking with Amber this morning 😊🎄💜

I was pretty brutally honest at today's event. Parent carers aren't supported. We aren't even seen as individuals, we can't look after our own health and well-being. The awful reality around parent carer suicide, transitions been non existent for our children or us. Services constantly failing us.

Off to Parliament this morning to talk about all things transitions to adult services (or lack of) and how we support parents carers. Or in reality how we don't support them properly or enough. #carersrightsdsy

Found a dress for Thursday now for lunch and swim 🏊‍♀️ with Amber 💜 ##MondayMotivation

Going to find a dress to wear to Parliament on Thursday #shopping

Being feeling a tad under the weather this weekend but thankfully starting to feel better busy week ahead.

Lovely carer came this morning and so Amber's off to a swim I'm in uni working on a policy briefing around the care Act, which feels slightly ironic...and then planning stuff for next week around a whole number of issues that affect disabled children, young people and their families..

The bloody paper around caring is mind boggling... drowning in the stuff

BREAKING: The assisted dying bill, proposed by Kim Leadbeater MP, has just been published in full. It would apply to adults with a terminal illness and less than 6 months to live. They'd need 2 doctors and judge to approve. Full details here: www.itv.com/news/2024-11...

In other news I've been invited to an event for Carers Rights day. I'm not a fan of #carersRightsDay but these feels like a good opportunity to ensure parent carers have a voice. Will share more nearer the time.

Thankfully they fixed the heating, there coming to sort the bathroom floor out tomorrow. I'm exhausted 😩 to be honest. Stuff needs doing for Amber and I can't face it.

Heating not working today at home hoping they turn up to fix it today🥶

Saturday we went to the Trafford Centre to get some last bits for our holiday and had cake a drinks in E & L cafe Manchester.

As its Monday here's what we got up to over the weekend An excellent The Last Dinner Party gig at 02 victoria warehouse on Friday night, access ♿️ was really good, staff extremely helpful too.

My girl and her friend ready to watch Pale Waves in Liverpool last night. 💜

Went for a walk in the rain today on the wizard trail made me feel much better, followed by coffee and cake. Found being outside calming good, followed by a nice Sunday lunch with family. My beautiful girl, she's all the that matters and if she says I've done good that's enough for me 💜

Amber's new plushy 💜

Think I'm going to post over here more can't cope with X

Totally odd weather almost hail stoning and the sun is shining

This isn't a man who "understands risk." It's a man who inherited enough money that he's never faced risk in his life.

How I spent Wednesday.

Hiding out on here the other place is awful and full of people who thing they understand my girl as a disabled woman better than I do.. She has a trans friend and is immensely upset by some of the rubbish been posted.

We went shopping 🛍 today in Manchester and then came home made food and I had a nice glass of wine it's been a good day. Love my girl 💜

Got really snippy with the physio today re Amber the list of equipment the NHS can supply her with zero... I just said it's fine we will sort it we have for years. Wheelchair charity funded, bed crowd funded, she could do with a comfy chair to support posture. Much cheaper than spinal braces etc

Honestly people know nothing about caring the state of carers allowance and how we're invisible in the system and in general 😕

Thanks to @seanjones.org for this excellent public service - starter packs of brilliant and interesting people to follow in the legal world on BlueSky...

Anyone on here had really shocked experience with booking.com they've been really crap about a running situation with a property and are now blaming us not wanting to stranded miles away from home with out a bed and Amber was with us too.