Dynamic neuropathophysiological changes in Charles Bonnet Syndrome: change in alpha power at the onset of a reported hallucination vision2025florence.com/abstracts/ by @jkjolly.bsky.social (in abstract book); EEG changes associated with hallucinations caused by #CBS; #neuroscience #vision2025

Great start to @arvoinfo.bsky.social 2025 meeting with the #ISCEV meeting followed by a catch up with my #unimelb colleagues. Come to my presentation on Thursday for #ClinicalTrial results.

Very excited to announce the launch of @nadsn.bsky.social white paper. Towards a fully inclusive environment for disabled people in STEMM. Please join us 31st March www.eventbrite.co.uk/e/nadsn-whit... #NADSNWhitePaper #DisabledInSTEMM Without inclusion the workforce is weak and science suffers

Did you know that lifestyle and genetics can influence our chances of developing age-related macular degeneration (AMD)? Start the new year by answering five simple questions and we'll estimate your risk of AMD. Take our risk checker: https://buff.ly/3P9EKqz

In the UK disabled women are nearly twice as likely to experience sexual violence than non disabled women. This is why I’m asking men to be aware of how they approach a situation where a disabled woman may need assistance. Be the aware safe nice helpful dude in your approach, actions & words.

If you are a man & need to offer assistance to a blind woman just think about how you can make the situation as safe as possible. Introduce yourself & give an immediately explanation. “Hi I’m Mike, there is a car blocking the way how can I best assist you?” Never touch without asking.

Discover how brainlife.io is revolutionising neuroimaging research by enhancing FAIR data practices. With tools for standardisation, visualisation, and reproducibility, this platform empowers scientists to tackle complex data pipelines with ease. Read more: www.nature.com/articles/s41...

I am really excited to share with you our new paper! In this review we compare Charles Bonnet Syndrome to phantom limb and tinnitus syndrome, we noticed that the commonality between these conditions is a lack of sensory input. t.co/qGkMxSZXGh

I am thrilled to share our recent publication! We examined the test–retest variability of microperimetry in patients with retinitis pigmentosa. Our study finds volume sensitivity provides spatial insights and potential as a robust endpoint. onlinelibrary.wiley.com/doi/10.1111/...

Understanding long-term progression in inherited retinal diseases is vital for successful clinical trials. Our 10-year study of rod-cone dystrophies investigated changes in retinal structure and function. Read more about our key findings here: www.sciencedirect.com/science/arti...

Our study of 432 participants provides a robust normative dataset for MAIA microperimetry and we were able to compare hill-of-vision models. Full discussion and results are available here: iovs.arvojournals.org/article.aspx...

We have developed a novel nanopore sequencing approach to measure X-inactivation skew, linking it to disease severity in X-linked retinal disorders. Read all about it in our paper here: genome.cshlp.org/content/34/1...

In this recent paper, we used MRI scanning to measure how the chemistry in the visual brain differs in people with Charles Bonnet syndrome and those who have sight loss but no hallucinations. See our surprising results here: journals.sagepub.com/doi/10.1177/...

Our longitudinal study revealed progressive retinal degeneration in female choroideremia carriers, emphasising the need for detailed multimodal imaging & functional testing in addition to retinal severity classification when assessing disease progression. bjo.bmj.com/content/earl...

Scotopic microperimetry reveals reduced rod & cone sensitivity in early choroideremia. Could this tool be key in tracking progression in clinical trials? Read our full article here: tvst.arvojournals.org/article.aspx...

Female carriers of X-linked inherited retinal diseases can show highly variable disease progression. We are the first to investigate vascular reactivity as a potential disease biomarker. Functional OCT-A is a useful tool to assess dynamic retinal microvascular changes.

Female carriers of choroideremia with severe phenotypes face reduced visual function and retinal thinning. Learn how multimodal imaging and microperimetry can be used to aid detection. www.sciencedirect.com/science/arti...

Standard VA tests may overestimate difficulties in choroideremia. In our recent paper, we highlight the need for alternatives like single-letter optotypes. onlinelibrary.wiley.com/doi/10.1111/...

96% of glaucoma patients reported comfort, and 93% rated community clinics as comparable to hospitals. A promising model, with room for enhanced patient education. Read more in our article here: bmjopen.bmj.com/content/14/1...

Understanding inherited retinal diseases in kids is vital for early treatment success. This review delves into #OCT findings across 8 key conditions. www.tandfonline.com/doi/full/10....

A new study highlights the cognitive toll of managing identity after vision loss. Balancing past identities, disability visibility, & self-presentation choices creates a hidden cognitive burden. Read more here: www.sciencedirect.com/science/arti...

It was an honour to be part of the team that was asked to create the new ISCEV and IPS guidelines for Full-Field Stimulus Testing (FST). These will promote consistency of testing and reporting, and harmonising the protocols used. See the full details here: link.springer.com/article/10.1...

Recently, I have left a toxic academic work environment and I am looking to rebuild a supportive community and my own sense of self-worth. I will be sharing some of the papers I have published in 2024.

It was amazing to go to the rest coast of England and see baby seal pups learning to fend for themselves. They only get mothered for 3 weeks!