URGENT!🚨 This situation is growing more dire and the crowdfunding has slowed to a halt. People urgently needed to push the hell out of this. Can vouch for Rich and his situation. I don’t know what the current terms/hashtags/etc. are to use here these days. But please share.

Critical. Time sensitive. Life or death. This needs people dedicated to sharing it frequently and consistently. ME community and allies, please show up for this. If you can share on other platforms that helps too. gofund.me/d59d7aabc

I know I’m not really here much (I check messages/notifications though), but I wanted to share the gofundme of someone in the ME community. This is urgent life or death. I don’t have much energy to promote this, but I hope you all will take up the cause: gofund.me/8da0ebb46

Critical. Time sensitive. Life or death. This needs people dedicated to sharing it frequently and consistently. ME community and allies, please show up for this. If you can share on other platforms that helps too. gofund.me/d59d7aabc

I know I’m not really here much (I check messages/notifications though), but I wanted to share the gofundme of someone in the ME community. This is urgent life or death. I don’t have much energy to promote this, but I hope you all will take up the cause: gofund.me/8da0ebb46

Called. I'd appreciate your help in preventing the government from blasting my favorite place in the world to hell.

We NEED non-disabled people to care about this. The government clearly doesn’t care what disabled people need or want. We need the rest of you to raise hell and get them to back off. This is literally life and death.

The GoA has disincentivized the transition back to AISH in December 2027 by requiring that they provide a new disability assistance medical report. Those with "exceptional cases" will not have to do this. Here is the link to the public survey open until Sept 12 www.alberta.ca/alberta-disa...

We can’t keep jumping through all their hoops. This is killing us. Please fill out the survey. Please call your MLA. Get everyone you know to. Please. We can’t keep doing this.

We can’t keep jumping through all their hoops. This is killing us. Please fill out the survey. Please call your MLA. Get everyone you know to. Please. We can’t keep doing this.

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. - Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s

(2/2)

(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more. These findings reflect the lived experience of thousands of #pwME. Thanks to all our participants & supporters who made this possible! Read a summary of our results: shorturl.at/pgsjk

💔 I don’t have words for what Andrea meant.

Since no one’s posting about it here, AISH recipients all got letters today saying we have no choice but to apply for the disability tax credit as a requirement to apply for the Canada disability benefit when applications open up. And they WILL be clawing back the entirety of the CDB.

Quit looking for reasons why you don't have to care. Equally, quit looking for things there's "nothing we can do about". Focus on your privileges + positions and what they can provide for others in your life who don't have them. Make caring sexy, make it desirable and don't stop doing what you *can*

Without the carbon tax rebate, many of us with low income -especially those of us on disability and below the poverty line- will have yet another gap in our budgets. Par for the course, I guess.

Tinu was an absolute legend for the disability community on Twitter. She helped so many people. I miss her presence

Sigh. Once again in the position where I'd lock my account if I could, but I can't so I won't be able to post a lot of things here for the foreseeable future. As usual I'm still on Twitter, and my DMs are open. I'll still be here. Just not as fully as I wish I could be.

PSA for the era of the news firehose: try to wait for more than one source to corroborate significant news before sharing it

Fun fact: if your revolution doesn’t make space for and actively include disabled/immunocompromised people then you’re not as anti-bigotry as you think you are. Mask up! Do it now! 😷😷😷😷😷😷

Generally we think of alt-text as the domain of those with accessibility needs. However alt-text is useful for many reasons, which benefit your viewers, as well as you, the creator!

If you are serious about supporting your neighbors and the vulnerable members of your community, you will need to ask them about their unmet needs and take them seriously when they tell you what they are. You will need to learn not to say sentences starting with "Well can't you just...?"

If you are serious about supporting your neighbors and the vulnerable members of your community, you will also need to go out of your way to address inconvenient needs that have pushed those people out of community in the past. This includes requiring masking and air cleaners.

If you are serious about supporting your neighbors and the vulnerable members of your community, this absolutely and by definition means intentionally acknowledging and addressing some basic inclinations, like the one that says to abandon people who aren't always able to be there when you want them.

This is not something that can be put on the people who have been abandoned and isolated to correct. It cannot be made their responsibility to connect or re-connect with those who previously decided it was, for one reason or another, easier not to try.

So when it comes to "grow community locally" stuff, here's something non-Disabled folks especially have to figure out how to counter. There is a long-standing pattern where chronically ill people, even those who previously had extensive support networks and community, are abandoned and isolated.

I am a climate scientist and this is correct ⬇️

There will be calls to leave behind people more vulnerable than you this year. Many people will. You won’t.

[TW: Pet Death] . . Finally sharing. Cheerio’s health really took a downturn over the holidays & after consulting with the vet, I made the hardest decision I’ve ever had to make and opted for at home euthanasia. As of this morning, my best friend of 17.5 years is gone.

If you become disabled, the system will do everything in its power to try and not help you. Disabled people have been telling you this for decades. We can't just get all of our needs met. Most barely get enough to survive. The system is designed to fail us.

Please help me secure a wheelchair and much needed dental work. I have been trying to reach this goal for years now. I am so grateful for making it this far but I would love to be able to finish this. To be able to take a little break. Here’s one of my old graphics. Thank you. gofund.me/5a8e07a5

It’s been hard to have enough energy to post any personal updates, and it’s also felt like there isn’t much new other than the continuing saga of health awfulness and never ending crashes. But I’m still here. And Cheerio is keeping me company.

If you're seeing encouragement/demands to do alt text and you're overwhelmed or confused about how to do it and you're worried you're going to do it wrong... this thread is for you. First: prompt questions to get you started.

So many disabled people have been sounding the alarm on MAID for years, and no one has been listening. Both the state and society, facilitated by physicians and politicians and journalists, are using MAID as a pressure release valve to preserve resources, not lives. So dangerous.

Here's a pretty easy way to know if you're doing brain-based ableism (e.g. sanism, intellectual ableism) with your words: Do your words imply that someone's bad behavior or opinion is because of a brain-based illness or deficiency (as opposed to being a choice or value)? That's probably ableism.