Family members of people with autoimmune diseases are at increased risk of developing these disorders, but there are things they can do to lower their chances. Give your family members a copy of my recommendations: www.lupusencyclopedia.com/how-to-preve...

There is a strong link between poor sleep and lupus. If you have an autoimmune disease like #SLE, #lupus, or #Sjogrens, getting enough good-quality sleep is really important. Learn more here: www.youtube.com/watch?v=4uP0... Thanks to KALEIDOSCOPE FIGHTING LUPUS

🔥Our goal in treating #SLE #lupus is complete remission from active lupus inflammation and completely OFF steroids! However, that is not possible in many patients. In that case, we low disease activity is second best. www.youtube.com/watch?v=ZFeJ...

😡 Almost all the labs we rely on to diagnose and follow disease activity in #SLE, #lupus, #Sjogrens are over 55 years old! www.youtube.com/watch?v=JWit... This leads to delayed diagnoses, mistakes in diagnosis, and mistakes in properly identifying disease activity and response to medications.

Link to our PDF article on how to dose hydroxychloroquine. Link to the pdf article: 1drv.ms/b/c/37bf2c37... Online Link: acrjournals.onlinelibrary.wiley.com/doi/epdf/10.... Article published in Arthritis, Care, and Research has not gone through copy editing. This is a "Full Access" article.

If you have #Sjogrens, come join us at the 2026 yearly Sjogrens Foundation National Patient Conference. Register at Sjogrens.org/get-involved/national-patient-conference

Do you have #Sjogrens? Come join us at our yearly virtual National Patient Conference, where you will learn a ton about Sjogren's, what it is, how it is treated, and go away with a ton of practical advice you can put to use immediately in your own life: sjogrens.org/get-involved...

😍 Know someone newly diagnosed with #SLE #lupus? Or someone who is unsure how to take the best care of their lupus? Share the link to my article on this topic, which gives practical advice on what to do and I explain in simple terms "What is Lupus" www.lupusencyclopedia.com/how-to-succe...

🔥 #SLE #lupus and #Sjogrens often occur together. The @SjogrensOrg just posted a very nice summary, patient-education piece on this topic: sjogrens.org/understandin...

😍 I can't believe it is almost Valentines Day! www.morethanlupus.com/post/decodin... From More Than Lupus

⚡️Most #SLE patients will have cutaneous #lupus where it attacks their skin. CLICK: www.lupusencyclopedia.com/types-of-ras... I recommend that most lupus patients with cutaneous lupus also see a "medical dermatologist" regularly and especially see them for any unusual, new rash.

😍New AAO recommendations for HCQ screening 👉CLICK: www.aaojournal.org/article/S016... Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice. NEW RECOMMENDATION: OCT plus a wide-pattern fundus autofluorescence (FAF)

😍New AAO recommendations for HCQ screening 👉CLICK: www.aaojournal.org/article/S016... Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice. NEW RECOMMENDATION: OCT plus a wide-pattern fundus autofluorescence (FAF)

👉 I've known for years that chromatin antibodies fluctuate predictably with #SLE #lupus disease activity in some of my patients. Now a study confirms this: lupus.bmj.com/content/13/1...

💊Study shows adding quinacrine (mepacrine and Atabrine) to hydroxychloroquine, immunosuppressants, steroids improves disease activity and was safe in #SLE #lupus. Link to "How to Prescribe Quinacrine: www.lupusencyclopedia.com/quinacrine/ Link to the study: lupus.bmj.com/content/12/2...

❤️‍🔥 #SLE #lupus: lupus.bmj.com/content/12/2... Moderate disease activity fullfills at least 1 of the following Clinical SLEDAI: score between 4 and 8, excluding C3, C4, dsDNA. ​ Physician Global Assessment: > 1 and up to 2 on a 0–3 scale. ​ + NO Severe SLEDAI and non-SLEDAI manifestations. ​

👁️ It is Winter time when dry eyes in #Sjogrens #SLE #lupus can worsen. There are many easy tricks to help your dry eyes. If those fail, ask your doctor about the products in the image. See my post here: www.lupusencyclopedia.com/dry-eyes-and...

👉 Winter is the time of year when the air is typically very dry, leading to dry, itchy skin: a common problem for #SLE #lupus #Sjogrens. There are easy tricks to help dry, itchy skin: www.lupusencyclopedia.com/dry-skin-in-...

Blog #SLE #lupus

UCTD explained in easy to understand language: www.lupusencyclopedia.com/uctd/

A New Years blog post by @LupusMore www.morethanlupus.com/post/looking...

The Lupus Encyclopedia: A Comprehensive Guide for Patients and Health Care Providers, edition 2 ⚕️ RHEUMATOLOGISTS & PATIENTS: Learn practical tips and tricks for managing #SLE #lupus and understanding this disease. tinyurl.com/2u5nddcu

🩸Be proactive when you have #lupus #SLE #Sjogrens. After lab draws, go online to look at results. Look up each abnormal lab to learn more about how they may relate to your situation. ALWAYS ask your doctor as well. "How do these pertain to my situation?": www.lupusencyclopedia.com/lupus-lab-te...

❄️ It is that time of the year! Dry, itchy skin! #SLE #lupus and #Sjogrens patients are especially affected. I updated my dry skin care blog with tips from a dermatologist specializing in dry skin. I updated the recommended soaps: www.lupusencyclopedia.com/dry-skin-in-...

👁️ Many #SLE #lupus patients have dry eyes that worsen during Winter. Often, it is due to also having #Sjogrens (occurs in one fourth of SLE patients and most are undiagnosed). I updated my dry eye care post and included newer and better therapies: www.lupusencyclopedia.com/dry-eyes-and...

Lowest in NE Highest in South #SLE #lupus journals.sagepub.com/doi/10.1191/... pubmed.ncbi.nlm.nih.gov/39936240/ acrjournals.onlinelibrary.wiley.com/doi/10.1002/... journals.sagepub.com/doi/10.1191/... pubmed.ncbi.nlm.nih.gov/39936240/ acrjournals.onlinelibrary.wiley.com/doi/10.1002/...

😍A study shows that structured exercise and dietary changes improved energy and quality of life in #SLE #lupus . journals.sagepub.com/doi/epub/10.... - three 40-minute home-based regimens per week - exercises aimed at large muscles - Mindful eating - Eat unprocessed or minimally processed foods

🔥 Knowing what to do for peripheral nervous system involvement in systemic autoimmune diseases like #Sjogrens #SLE #lupus is challenging. We now have evidence based guidelines that will help health care providers take better care of patients! acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...

Dooren surprisingly showed that anti-Smith and RNP were reduced in tandem with antidsDNA. The fluctuations were not statistically significant, but numerically, they fluctuated with disease activity. I just checked a patient: her Smith DID as well. acrjournals.onlinelibrary.wiley.com/doi/epdf/10....

My Aunt’s cat, Molly, is a fan of my book but I don’t think she realizes it is upside down

This is my Aunt Nikki who I dedicated my 2nd edition of The Lupus Encyclopedia. She means a lot to me and I love her very much. Of course she is spoiling me with delicious food. Where would we be without those who love and believing us?

Highly recommended: Michelle Miranda, Life Coach. Living well with chronic illness is about much more than taking medicines and seeing doctors: www.michellemirandalpc.com

🔥 Knowing what to do for peripheral nervous system involvement in systemic autoimmune diseases like #Sjogrens #SLE #lupus is challenging. We now have evidence based guidelines that will help health care providers take better care of patients! acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...

Boy! I cannot believe it has been 33 years of continuous rheumatology board certification! ABIM Foundation just sent me this. I think I might know what I am doing by now :-)

My kitty

rheumnow.com/news/acr-app... Thanks to lawmakers at least for our Medicare patients! Let's HOPE the wealthy insurance company lobbyists don't pay off lawmakers to have this fail. Then if it passes... we need this for ALL insurance companies and NOT just CMS (Medicare/Medicaid)

😍 I LOVE the @EULAR guidelines for 1st-line therapy for LN! If everyone did this IMMEDIATELY (include a CNI, obinutuzumab, or belimumab) instead of just mycophenolate or CYC with steroids, greater numbers of patients would go into renal remission & fewer to end stage renal disease! #SLE #lupus

Thanks Republicans and those Democrats who caved. This is the reality. You do not know what it is like to live pay check to pay check. You are hurting my patients!! These are posts on the lupus subreddit

😍 I LOVE the @EULAR guidelines for 1st-line therapy for LN! If everyone did this IMMEDIATELY (include a CNI, obinutuzumab, or belimumab) instead of just mycophenolate or CYC with steroids, greater numbers of patients would go into renal remission & fewer to end stage renal disease! #SLE #lupus

I just got a 22 page, 108 question drug prior auth for patient from @expressscripts.bsky.social @bluecrosspa.bsky.social for patient's adalimumab: she has been on for years. We proved she needed this many times in the past. My notes very clearly show how she failed so many and doing great on this.

😍😍Click on "2025 Systemic Lupus Erythematosus Guidelines" here: rheumatology.org/lupus-guidel... @ACRheum @ACR_Journals

😍😍Click on "2025 Systemic Lupus Erythematosus Guidelines" here: rheumatology.org/lupus-guidel... @ACRheum @ACR_Journals

Meeting with like-minded people to improve lives of patients at @ACRheum #ACR25 is wonderful #Sjogrens #lupus #SLE

A wonderful awards and opening session at #ACR25 by the ⁦‪@ACRheum‬⁩ …. Celebrating better care for our patients…. Dedicated professionals who love our profession and giving to society

Private practice rheumatologists: PLEASE: If you do not belong to the ACR, please do. If you do, please volunteer for committees when the time opens up in a few months. I just joined the Board of Directors and learned that only 10% of applicants are private practice! rheumatology.org

😍 A cellular therapy that only attacks pathologic B cells in #SLE #lupus and not healthy cells; unlike most CAR-T therapies that target healthy B -cells. www.biorxiv.org/content/10.1... Hope for other B-cell driven diseases like #Sjogrens ? 👉Thanks to Maximilian F. Konig and collaborators!

⚡️Consider loading your patients initially with higher dose HCQ: ✅It works faster ✅✅It is safe ✅✅✅Warn them if they get GI side effects immediately go down to 5 mg/kg/d

🔥One of my favorite parts of the 2025 ACR SLE Management Guidelines! I have been doing this for over 20 years as a "loading dose": HCQ works faster. This is another steroid-sparing tactic to use in SLE patients. I do this for 1-3 months initially.

FDA approved #obinutuzumab #Gazyva for the treatment of #SLE #lupus nephritis when used with other standard therapies! Complete renal responses: higher than standard therapies. Studies show deep tissue B-cell depletion.