We are ALS TDI: a nonprofit biotech forging a path to deliver the multiple treatments that will end ALS for every person affected. 🔬🧪 Watch, share, and see how you can help at als.net.

✨ Less than one month to go! ✨ The 14th Annual White Coat Affair is just 1 month away—October 18, 2025. Join us in Boston for a night that matters, celebrating progress and fueling ALS research. 💜 Reserve your spot today: fundraise.als.net/wca

🌧️💜 Rain didn’t stop us! The 2025 ALS Walk for Research raised $78K+ as we walked 3 miles and smiled through every drop. Huge thanks to all who joined, donated & volunteered. Still time to give: alswalkforresearch.als.net 📸 Photos: photos.app.goo.gl/85GLe2UF5RJ7...

Just about 1 month until the 2025 ALS TDI Summit in Boston! ✨ Join us free—online or in person for the latest breakthroughs in ALS research with guest speakers from Challenge Works, LifeArc, UPenn & Eikonizo. ➡️ Register now: fundraise.als.net/alssummit

The ALS TDI Leadership Awards honor those nominated by our community for their leadership in the fight against ALS. We’re proud to share our 2025 recipients! 🌟 Meet them all here: www.als.net/news/2025-al... (1/2)

Gwen Petersen & Atileana Gipson from Her ALS Story share what it’s really like navigating an ALS diagnosis—and why self-advocacy matters. Watch the 3-part ALS Town Hall series, Your Story. Our Science, now on YouTube: youtube.com/watch?v=ireM...

ALS TDI’s CEO/CSO, Fernando Vieira, M.D., will join a panel at the C-Path Global Impact Conference on 9/11 to discuss the growing role of patient advocacy in driving research & innovation. 🔗 Learn more: web.cvent.com/event/4d9e49... #CGIC2025

On this special Endpoints podcast, we dive into how BCIs could transform communication for people living with ALS, and what the future of this groundbreaking technology might hold. 🎧 Listen to the full episode: als.net/endpoints/50...

⏰ Less than 2 weeks left to register for the ALS Walk for Research! Don’t miss your chance to join us on September 7th in Waban, MA, as we walk together to accelerate ALS research. 💜 Every step counts—secure your spot today: alswalkforresearch.als.net

⏰ 1 week left! Nominate a leader in the fight to End ALS for ALS TDI’s 2025 Leadership Awards. Send nominations to [email protected] by Aug 31!

ALS TDI is launching Champion Insights with Answer ALS & Augie's Quest to uncover why elite athletes & military members face higher ALS risk — and how this can lead to better treatments. Former NFL player Steve Gleason will be participant #1. Learn more: als.net/news/united-...

Think you know clinical trials? 🤔 Our Trial Navigator is here to bust myths & share facts so you can make informed choices. 🧠 als.net/als-trial-na... (1/2)

🏆 Nominations are open for the 2025 ALS TDI Leadership Awards! Help us honor outstanding advocates, innovators & fighters in the ALS community. Submit by Aug 31 to [email protected]. Awards will be presented at the ALS TDI Summit Oct 17. Learn more: als.net/news/als-tdi...

11 years ago, the #IceBucketChallenge made history—raising $220M for ALS research & awareness, including $4M for ALS TDI. 💧 Read how Anthony Carbajal helped spark this global movement & its lasting impact: als.net/news/anthony...

We're proud to share that Swetha Gurumurthy's (Associate Scientist II) image of iPSC-derived motor neurons was shortlisted for display at #mmc2025 by the Royal Microscopical Society! 🔬 Out of 230+ global entries, only 38 were selected. See the shortlist: rms.org.uk/resource/202...

🧬 Ever wondered what a natural history study is and why it matters in ALS research? These studies help researchers better understand how ALS progresses and bring us closer to effective treatments. Read more 👉 als.net/news/what-is...

At ALS TDI, transparency matters. 💡 You can tour our lab online 24/7 to see the machines + tools your donations power—driving ALS research forward every day. 🔬 Take the tour: als.net/als-research...

What is BCI and how can it impact ALS care and research? 🧠 Join us July 29 at 1PM EST for our next ALS TDI Town Hall featuring Dr. Daniel Rubin of Mass General + Harvard Medical. Register today: als.net/als-town-hall/

You're invited to Leadership Weekend at ALS TDI! 🎉 Join us Oct 16–18 for lab tours, research updates, and the White Coat Affair gala. A weekend to connect, learn, and honor those impacted by ALS. Register: fundraise.als.net/leadershipwe...

"This is a major step forward for ALS research." iPSC-derived cells from ARC are now available through Axol—broadening global access to ALS research tools. Read more on our blog: www.als.net/news/als-tdi...

📍 We have ARC participants in 49 states; Wyoming, we need you! If you’re living with ALS or are an asymptomatic gene carrier, your voice matters. Join the ARC Study from home and help advance critical ALS research—without ever leaving the state. 💜 Learn more: als.net/arc/

New blog post alert! 🚨 Learn why we need reliable biomarkers for ALS to improve care and speed up trials. Discover how ALS TDI and partners in the ALS Research Collaborative (ARC) are driving breakthrough biomarker research. Check it out now: als.net/news/biomark...

Meet the Chip Fanelli Fan Club 💙—a team walking strong for ALS research. What began as a close circle is now a powerful community united to #EndALS. Read their story: als.net/news/chip-fa...

The 2025 Tri-State Trek was unforgettable 💜 Over 300 riders joined us in NH (plus many virtually!) to support ALS TDI. We’ve raised $655K so far — but we're aiming for $700k! Fundraising continues through October. Let’s #EndALS together! 👉 Donate: tst.als.net/donate/

🧠 Did you know? Every 90 minutes, someone is diagnosed with ALS. Learn more about how ALS is diagnosed and what comes next by visiting our website: www.als.net/what-is-als/...

New blog post from ALS TDI: We've validated a new profilin1 mouse model of ALS—offering key features like TDP-43 pathology not seen in older models. A powerful new tool in the fight to #EndALS. Read more: www.als.net/news/profili...

Join us for ALS TDI’s Leadership Weekend this October! Tour the lab, attend our free ALS research Summit, and celebrate at the White Coat Affair. Let’s connect, learn & fight to #EndALS together: fundraise.als.net/leadershipwe...

Don't miss the final ALS Town Hall in our "Your Story. Our Science." series! 📅 July 10 at 3PM EST Topic: How Can We Improve ALS Diagnosis? Presented by @ALSTDI + @HerALSStory 🔗 Register: als.net/als-town-hall/register/500439/

Welcome to the ALS Trial Navigator – your comprehensive resource for making decisions about ALS clinical trials. Use our tools to understand your clinical trial options and have informed discussions with your care team. Learn more or search trials here: als.net/als-trial-na...

The Longitude Prize on ALS is now open! Powered by Challenge Works, this global challenge uses AI to speed up ALS drug discovery. ALS TDI is proud to share 11+ years of ARC Study data to help participants uncover new insights into the disease. Read more here: als.net/news/longitu...

The ARC Study is an at-home observational study that invites people with ALS to share personal data, from work and family history to movement tracking and more, to help researchers identify new ALS risk factors and treatment pathways. 🔗 Join now at als.net/arc/

ALS TDI is proud to partner with Axol Bioscience to make stem cells derived from people with ALS available to researchers worldwide. Read more here: als.net/news/als-tdi...

Two cities. One mission. A night that matters. Mark your calendars for October 18th: a night of impact, inspiration, and purpose. Join Hop On A Cure in Atlanta at Harmony for Hope or attend the White Coat Affair with @ALSTDI in Boston.

At ALS TDI, we test thousands of potential ALS treatments to find the few that show real promise—and we do it using some of the most advanced tools in ALS research. None of this is possible without the ALS community. Learn more at als.net/news/active-...

New Town Hall Recording Available! Presented by ALS TDI and @HerALSStory, this important conversation brings attention to under-recognized symptoms directly impacting those living with ALS. Watch now at: als.net/als-town-hall

We’re just 11 days away from the Tri-State Trek and there’s still time to make an impact! 💪 🔔 Dedicate a Cowbell in honor of a loved one 💲 Donate to a Fundraiser 🎉 Come cheer on the riders and be part of the energy Head to tst.als.net for all the details. Let’s ride toward a future without ALS!

Our latest study, published on June 3, 2025 in Neurobiology of Disease helps to validate the profilin1 (hPFN1G118V) mouse model, which mirrors key features of ALS, including motor neuron loss and TDP-43 pathology. You can read the full publication at www.sciencedirect.com/science/arti...

If you're living with ALS and have experienced symptoms that aren't commonly discussed, this Town Hall is for you! Join us TODAY to hear directly from members of Her ALS Story as they share their unique journeys with nuanced symptoms. Register now: als.net/als-town-hal...

Birthdays hit different when you’re terminally ill. To celebrate still being here for my 47th, I’m fundraising to support the @alstdi.bsky.social in their work to cure ALS: fundraise.als.net/nate

Dr. Kyle Denton on ALS TDI's ARC Data Commons. To learn more or to request access, visit here: als.net/arc/data-com...

What is Vital Capacity, and Why is it So Important in ALS Care and Research? Learn more in our latest blog post here: als.net/news/what-is...

Before ALS took away his ability to play, Lou Gehrig was one of baseball’s greatest players. Today, and every day, we honor Lou Gehrig’s legacy by working tirelessly toward a future without ALS. #LouGehrigDay #LGD4ALS You can read more about Lou here: www.als.net/news/lou-geh...

Lou Gehrig continues to be an important part of baseball history. In 2021, a group of ALS activists worked with the MLB to create Lou Gehrig Day, an annual celebration of his legacy on June 2nd—the anniversary of both his first game as a Yankee and his passing. Read more: www.als.net/news/lou-geh...

Interested in learning more about active ALS TDI research programs, the ALS TDI ARC study, or Advancing Promising ALS Therapies? Subscribe to our newsletter for updates on the above, and so much more! Become a member of our community here: als.net/subscribe/?g=/

Join us TODAY for a panel discussion on 'Still Alice' at the 4th Annual Fight ALS Film Fest, featuring panelists John Driskell Hopkins and Lisa Genova! Learn more and register here: als.net/alsfilmfest

"ALS forces a confrontation with mortality. While others shy away, we face it daily. Yet, amidst this reality, I cherish the 35 years of life I've had.” - Brandon Conley, Living with ALS since 2020

"This disease is so unpredictable – we need the research to understand why I’m still here while so many of my friends have died. We need treatments that fight each individual’s unique form of ALS” - Andrea Lytle Peet, Living with ALS Since 2014

May is ALS Awareness Month. Stay tuned throughout the month for quotes from our ALS community about their ALS journey and why we must continue to push ALS research forward for everyone with ALS! als.net/may #EndALS #ALSAwareness

The lifetime incidence of ALS is estimated to be 1 in 400, and it can impact anyone. Help spread awareness of how differently ALS impacts individuals. Generate your badge here: www.als.net/als-looks-li...

This ALS Awareness Month, the ALS Therapy Development Institute (ALS TDI), in partnership with Her ALS Story and hosted by Sunny Brous of SunnyStrong, invites you to participate in the 4th Annual Fight ALS Film Fest. www.als.net/news/fight-a...