Setting new standards in MPN clinical trials will move faster if we learn from what’s already working. At the 2026 MPN Roundtable™, we brought the #MPN community together to learn from progress in other malignancies and turn insight into action. #MPNResearch

Scientific presentations don’t have to feel inaccessible.  Join us for MPN Pathways: Empowered Voices in Research: Patients' & Caregivers’ Guide to Scientific Presentations. Register today: https://f.mtr.cool/ynqailytir #MPNPathways #MPNVoices #PatientEducation #RareDisease

Why do some people develop #MPNs, while others never do? What we know so far comes from years of research.  Progress depends on funding science.  Your support makes research possible.  Invest in research: https://f.mtr.cool/bilbrgbjdf

What defines meaningful progress in MPN research? Clinical endpoints and perspectives that shape them. At #MPNRoundtable, researchers, clinicians, industry partners, and patients convened to align on how progress is measured. Patient-informed science moves the field forward.

Basic or pre-clinical research is the science that maps disease biology, tests ideas early, and identifies possible treatment targets. MPN Research Foundation is committed to this fundamental work.  Invest in research: https://f.mtr.cool/nhbbexsxgw #MPN #CancerResearch

People living with #polycythemia vera are invited to share their experiences in a brief, confidential survey conducted with The Harris Poll. Your input helps guide future research and support. Survey: https://f.mtr.cool/tksisypaxv #PV #MPNresearch

Introducing our brand‑new publication: MPN Global Clinical Trial Insights. This digest offers accessible insights into MPN clinical research — including new studies, expanding trial sites, and an educational spotlight. Join our community to learn more: https://f.mtr.cool/jqpiatpwzc

Research linking #MPNs, treatment, and skin cancer risk is helping doctors improve screening and prevention. Support the science protecting patients today and improving care tomorrow. 👉 Invest in research: https://f.mtr.cool/ddydwhgvxe #BloodCancer #SkinCancerAwareness

MPN clinicians in the US: Have you requested your free Outreach Materials + Swag Kit for MPN PROGRESSion Registry® yet? Send us an email and we’ll ship one out -  [email protected].

For our founder Bob Rosen, MPN progression wasn’t abstract — it was personal. He didn’t live to see the Registry® launch, but it carries his vision forward. Invest in research: https://f.mtr.cool/iawtodjtxd #MPN #BloodCancer #CancerResearch

The FDA has approved ruxolitinib extended‑release (Jakafi XR™), a once‑daily tablet for adults with #myelofibrosis and #polycythemiavera. Ongoing research helps clarify how new formulations may fit into MPN care. #MPNs #MPNresearch

Milestone reached! 500+ patients enrolled in MPN PROGRESSion Registry®! During Founder’s Week, no less. The achievement belongs to our entire community. Thank you for your trust, time, and dedication. Stay tuned! It’s only the start of our work toward PROGRESS over Progression.

Legacy isn’t just what you leave behind — it’s what continues to grow.  Today we honor our founder, Bob Rosen, and the mission he built.  Invest in research: https://f.mtr.cool/ojhsteodjt #MPN #CancerResearch

We are led by those we’ve lost and by what they inspire us to build next. Tribute gifts honor loved ones while fueling research that moves the MPN field forward.  Invest in research: https://f.mtr.cool/xedbgilpcr  #MPN #CancerResearch

Governance and transparency are core to MPN PROGRESSion Registry®. Independent IRB oversight, HIPAA‑compliant data protections, scientific & patient committee guidance, and careful data‑use review keep research ethical, secure, and patient‑focused. https://f.mtr.cool/wiwzvrxvlf

“They tried to support grants which were risky — work that probably wouldn’t be funded elsewhere.”  – Josef T. Prchal, MD  That courage built MPN Research Foundation.  👉 Invest in research: https://f.mtr.cool/akotfrwhrc #MPN #CancerResearch

New MF education module now live!  Animations, expert videos, patient stories, and shareable visuals make MF easier to understand for the MPN community.  Explore the module → https://f.mtr.cool/ekzfpmopkw #MF #myelofibrosis #MPN

We remember Dr. Richard T. Silver, MD, a foundational leader in the myeloproliferative neoplasm (MPN) field. @CRTFund @weillcornell.bsky.social  Read our full tribute here: https://f.mtr.cool/hpxpiqnmcs

New PV education module now live!  Animations, expert videos, patient stories, and shareable visuals make PV easier to understand for the MPN community.  Explore the module → https://f.mtr.cool/mfydvdfmhc #PV#polycythemiavera #MPN

Dr. Janeana White is a physician, parent, and Patient Engagement Advisory Council member. She helps keep the MPN PROGRESSion Registry® focused on patients.  Take part in progress and enroll with Janeana. “You’ll be helping at the cutting edge.” Link:

New ET education module now live!  Animations, expert videos, patient stories, and shareable visuals make ET easier to understand for the MPN community.  Explore the module → https://f.mtr.cool/hkzrbiqkgt #ET #EssentialThrombocythemia #MPN

Fascinating research out of Italy by Biagioli et al.: Self-care in MPNs depends on more than engagement. The research shows improved outcomes when resources build self-efficacy — a patient’s confidence that they can manage their care. Learn more here: https://f.mtr.cool/ieylqlxvji #MPN #MPNResearch

The March edition of ‘“Under the Microscope’” will hit your inboxes at 5PM CT today! Join our community to receive these stories and so much more with this link:

NEW! We’ve expanded You and MPN, our animated education program, with full modules on ET, PV, and MF. Each module includes short videos, expert FAQs, and patient stories to help you navigate your diagnosis confidently.   Explore: https://f.mtr.cool/juwcftdeat #MPN #PatientEducation

🌟 A heartfelt thank you to @pharmaessentia.bsky.social  our newest industry sponsor of the MPN PROGRESSion Registry™. Your support helps make this long-term, observational research possible, and we are very appreciative! 🌟 👉 Enroll today: https://f.mtr.cool/paojnxxahc

Congratulations to @mullallylab.bsky.social and colleagues on a new study clarifying risk in TP53-mutated #MPNs. By defining key factors that shape disease course, this work supports more informed monitoring. Learn more here: https://f.mtr.cool/stzyrutxoc #MPNresearch #bloodcancer

One week left! Join us March 19, 4pm CT for “Informed Consent”. This MPN pathways webinar explores the meaning of informed consent for patients in clinical trials, featuring Emily Largent, JD, PhD, RN. Register: https://f.mtr.cool/ulvqvdidpa

Final reminder for MPN patients: The 2026 MPN Patient Unmet Needs Assessment closes March 18. If you haven’t yet shared your experience, your voice can still make an impact. 🕒 About 25 minutes 👉 Participate here: https://f.mtr.cool/zqdouovnhb

#MPNnurses: Your expertise helps MPN patients feel in control, even when questions and worries about disease progression create uncertainty. Help share an opportunity with your patients that empowers them to contribute directly to future MPN research:  https://f.mtr.cool/drovejabfs

Living with an #MPN?  Your experience can help shape future research, education & advocacy around the world.  The 2026 MPN Patient Unmet Needs Assessment is open worldwide until March 18, 2026.  🕒 ~25 min  👉 Take the survey: https://f.mtr.cool/iwedwepxjw

Today is #RareDiseaseDay! Together, we’ve raised over $77,000 to advance MPN research but there’s still time to make an impact.  Join us and donate today: https://f.mtr.cool/zhzplxvjry #MPN #SupportResearch #Donate

You’ve been thinking about enrolling in the MPN PROGRESSion Registry™ and want to know: Can it be trusted? Will my data be safe?   We are committed to protecting your privacy and ensuring your data is secure.   LEARN MORE: https://f.mtr.cool/pnnpuxqrln

95% of rare diseases lack FDA-approved treatments. Clinical trials are key — but most patients never hear about them.  This #RareDiseaseDay, help close the gap.   Donate today: https://f.mtr.cool/veomroddqs #MPN #SupportResearch #Donate

Ever wondered what “informed consent” really means? Join us March 19, 4–5pm CT for an MPN Pathways session on how consent works in clinical trials and how patients can help improve the process. Register: https://f.mtr.cool/ulvqvdidpa

Heart issues can signal undiagnosed blood cancer.  John thought stress caused his heart attack — until a biopsy revealed ET, a rare blood disease.  This #AmericanHeartMonth, help us fund research so patients get answers sooner.  👉 Donate today: https://f.mtr.cool/kmpmtxnvuc

The 2026 #MPNChallenge™ is here! We’ve already invested over $20M in high-risk, high-reward research to accelerate breakthroughs in ET, PV & MF and we’re not done yet.  Join our community & stay informed.  👉 Subscribe here: https://f.mtr.cool/etmbcodmjc

Fewer patients. More questions. For #MPNs, gaps in data mean delayed answers and care.  This #RareDiseaseMonth, help move science forward. Donate today: https://f.mtr.cool/pmvtnkoejx

Med students learn: “When you hear hoofbeats, think horses, not zebras.” For rare disease patients, that mindset can delay diagnosis.  This #RareDiseaseMonth, show your stripes and support #MPNresearch.  #Donate 👉 https://goto.mpnresearchfoundation.org/3Nj1xmb

MPN Research Foundation invites #MPNpatients to take the 2026 Global #MPN Patient Unmet Needs Assessment, open now through March 18, 2026.   https://f.mtr.cool/vscmdfvwbn prelim results in Summer 2026   Please share widely to help identify unmet needs worldwide.

2026 NCCN guidelines now list ropeginterferon alfa 2b njft (besremi®) as a category 1 preferred option for certain high-risk essential thrombocythemia (ET) patients! While use in ET remains investigational and under FDA review, more options are important for people with #MPNs.

Rare Disease Month’s theme this year is Equity. What do you think equity means in the MPN space? Comment here.

Learn about ongoing efforts in #MPNresearch and real-world data at our Feb. 10, 2026, webinar: The Importance of an MPN PROGRESSion Registry™ for Research Progress: Key ASH 2025 Takeaways. Register for this panel discussion today: https://f.mtr.cool/xeeuxnaixn

Stephanie was just 16 when she was diagnosed with ET, a rare blood cancer. Today, she’s championing MPN research and patient education.  Join her mission this #RareDiseaseMonth.  👉 Donate today: https://goto.mpnresearchfoundation.org/3Nj1xmb #MPN #PatientVoice #SupportResearch #Donate

This observational research study will follow myeloproliferative neoplasm (MPN) patients for 5-10 years. It combines electronic medical records and patient reported outcomes to help researchers better understand MPNs. https://f.mtr.cool/gmrfryflty

The January edition of ‘“Under the Microscope’” hit your inboxes at 5PM CT today! Join our community to receive these stories and so much more with this link: https://goto.mpnresearchfoundation.org/4pFAFKC

Global insights matter. Encourage MPN patients to join the 2026 Unmet Needs Assessment and shape future research priorities.  Assessment link: https://www.tfaforms.com/5184100  #MPN #PatientEngagement #RareDisease

Progress in MPN Therapies!   The FDA has received a New Drug Application (NDA) for rusfertide, an investigational therapy for polycythemia vera that aims to reduce phlebotomies and improve hematocrit control. Stay tuned for updates!   #MPNResearch #PV #ClinicalTrials

New year. New opportunity to contribute to future #MPNresearch outcomes.  If you’ve been thinking about ways you can participate this year, be a catalyst for change. Join the MPN PROGRESSion Registry™. A future without MPN progression starts with you. https://goto.mpnresearchfoundation.org/3VSmaqq

The 2026 Global MPN Patient Unmet Needs Assessment is open. Help us capture patient voices worldwide. Your network can make a difference. Share widely! Take the survey: https://goto.mpnresearchfoundation.org/4bv9XAR #MPN #PatientVoice #GlobalHealth #RareDisease

MPN Research Foundation invites #MPNpatients to participate in the 2026 Global #MPN Patient Unmet Needs Assessment, open now. https://www.tfaforms.com/5184100 prelim results in Summer 2026  Please share widely with international communities to help identify unmet needs worldwide.