🌟 A heartfelt thank you to @pharmaessentia.bsky.social  our newest industry sponsor of the MPN PROGRESSion Registry™. Your support helps make this long-term, observational research possible, and we are very appreciative! 🌟 👉 Enroll today: https://f.mtr.cool/paojnxxahc

Congratulations to @mullallylab.bsky.social and colleagues on a new study clarifying risk in TP53-mutated #MPNs. By defining key factors that shape disease course, this work supports more informed monitoring. Learn more here: https://f.mtr.cool/stzyrutxoc #MPNresearch #bloodcancer

One week left! Join us March 19, 4pm CT for “Informed Consent”. This MPN pathways webinar explores the meaning of informed consent for patients in clinical trials, featuring Emily Largent, JD, PhD, RN. Register: https://f.mtr.cool/ulvqvdidpa

Final reminder for MPN patients: The 2026 MPN Patient Unmet Needs Assessment closes March 18. If you haven’t yet shared your experience, your voice can still make an impact. 🕒 About 25 minutes 👉 Participate here: https://f.mtr.cool/zqdouovnhb

#MPNnurses: Your expertise helps MPN patients feel in control, even when questions and worries about disease progression create uncertainty. Help share an opportunity with your patients that empowers them to contribute directly to future MPN research:  https://f.mtr.cool/drovejabfs

Living with an #MPN?  Your experience can help shape future research, education & advocacy around the world.  The 2026 MPN Patient Unmet Needs Assessment is open worldwide until March 18, 2026.  🕒 ~25 min  👉 Take the survey: https://f.mtr.cool/iwedwepxjw

Today is #RareDiseaseDay! Together, we’ve raised over $77,000 to advance MPN research but there’s still time to make an impact.  Join us and donate today: https://f.mtr.cool/zhzplxvjry #MPN #SupportResearch #Donate

You’ve been thinking about enrolling in the MPN PROGRESSion Registry™ and want to know: Can it be trusted? Will my data be safe?   We are committed to protecting your privacy and ensuring your data is secure.   LEARN MORE: https://f.mtr.cool/pnnpuxqrln

95% of rare diseases lack FDA-approved treatments. Clinical trials are key — but most patients never hear about them.  This #RareDiseaseDay, help close the gap.   Donate today: https://f.mtr.cool/veomroddqs #MPN #SupportResearch #Donate

Ever wondered what “informed consent” really means? Join us March 19, 4–5pm CT for an MPN Pathways session on how consent works in clinical trials and how patients can help improve the process. Register: https://f.mtr.cool/ulvqvdidpa

Heart issues can signal undiagnosed blood cancer.  John thought stress caused his heart attack — until a biopsy revealed ET, a rare blood disease.  This #AmericanHeartMonth, help us fund research so patients get answers sooner.  👉 Donate today: https://f.mtr.cool/kmpmtxnvuc

The 2026 #MPNChallenge™ is here! We’ve already invested over $20M in high-risk, high-reward research to accelerate breakthroughs in ET, PV & MF and we’re not done yet.  Join our community & stay informed.  👉 Subscribe here: https://f.mtr.cool/etmbcodmjc

Fewer patients. More questions. For #MPNs, gaps in data mean delayed answers and care.  This #RareDiseaseMonth, help move science forward. Donate today: https://f.mtr.cool/pmvtnkoejx

Med students learn: “When you hear hoofbeats, think horses, not zebras.” For rare disease patients, that mindset can delay diagnosis.  This #RareDiseaseMonth, show your stripes and support #MPNresearch.  #Donate 👉 https://goto.mpnresearchfoundation.org/3Nj1xmb

MPN Research Foundation invites #MPNpatients to take the 2026 Global #MPN Patient Unmet Needs Assessment, open now through March 18, 2026.   https://f.mtr.cool/vscmdfvwbn prelim results in Summer 2026   Please share widely to help identify unmet needs worldwide.

2026 NCCN guidelines now list ropeginterferon alfa 2b njft (besremi®) as a category 1 preferred option for certain high-risk essential thrombocythemia (ET) patients! While use in ET remains investigational and under FDA review, more options are important for people with #MPNs.

Rare Disease Month’s theme this year is Equity. What do you think equity means in the MPN space? Comment here.

Learn about ongoing efforts in #MPNresearch and real-world data at our Feb. 10, 2026, webinar: The Importance of an MPN PROGRESSion Registry™ for Research Progress: Key ASH 2025 Takeaways. Register for this panel discussion today: https://f.mtr.cool/xeeuxnaixn

Stephanie was just 16 when she was diagnosed with ET, a rare blood cancer. Today, she’s championing MPN research and patient education.  Join her mission this #RareDiseaseMonth.  👉 Donate today: https://goto.mpnresearchfoundation.org/3Nj1xmb #MPN #PatientVoice #SupportResearch #Donate

This observational research study will follow myeloproliferative neoplasm (MPN) patients for 5-10 years. It combines electronic medical records and patient reported outcomes to help researchers better understand MPNs. https://f.mtr.cool/gmrfryflty

The January edition of ‘“Under the Microscope’” hit your inboxes at 5PM CT today! Join our community to receive these stories and so much more with this link: https://goto.mpnresearchfoundation.org/4pFAFKC

Global insights matter. Encourage MPN patients to join the 2026 Unmet Needs Assessment and shape future research priorities.  Assessment link: https://www.tfaforms.com/5184100  #MPN #PatientEngagement #RareDisease

Progress in MPN Therapies!   The FDA has received a New Drug Application (NDA) for rusfertide, an investigational therapy for polycythemia vera that aims to reduce phlebotomies and improve hematocrit control. Stay tuned for updates!   #MPNResearch #PV #ClinicalTrials

New year. New opportunity to contribute to future #MPNresearch outcomes.  If you’ve been thinking about ways you can participate this year, be a catalyst for change. Join the MPN PROGRESSion Registry™. A future without MPN progression starts with you. https://goto.mpnresearchfoundation.org/3VSmaqq

The 2026 Global MPN Patient Unmet Needs Assessment is open. Help us capture patient voices worldwide. Your network can make a difference. Share widely! Take the survey: https://goto.mpnresearchfoundation.org/4bv9XAR #MPN #PatientVoice #GlobalHealth #RareDisease

MPN Research Foundation invites #MPNpatients to participate in the 2026 Global #MPN Patient Unmet Needs Assessment, open now. https://www.tfaforms.com/5184100 prelim results in Summer 2026  Please share widely with international communities to help identify unmet needs worldwide.

The MPN Challenge™ funding cycle is now open. Find further details on eligibility, proposal guidelines, and deadlines. https://goto.mpnresearchfoundation.org/49ixqCH. Proposals are due by March 23, 2026 at 11:59PM CT. #2026MPNChallenge #MPNChallenge #RFA #MPNFundingOpportunity #MPNRF

Our newest Good Marrow feature shines a light on their resilience and the support systems that can make the journey a little lighter. Because caregivers deserve care, too. Learn more, feel seen, and find support. https://goto.mpnresearchfoundation.org/4pzuxV1

With your help, we can reach our goal of $2 million.   Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/

A bold step toward curative MPN treatments. MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones.  Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/

Big news! We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect. Read online or enjoy the print edition by subscribing to our mailing list. Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1

The countdown is on! The 2026 MPN Challenge™ opens on January 6, 2026. Two special focus areas: AI/ML-driven discovery and MPL-centered research. Early-career investigators are encouraged to apply!  More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch

Jeremy Smith, a lifelong entrepreneur, approached his #MPN diagnosis as a business challenge. “Failure is not an option.” Your donation helps give patients like Jeremy real options. Donate now: https://goto.mpnresearchfoundation.org/48Xj643

72% of respondents say #MPNs affect their quality of life, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment from the #MPNResearchFoundation. These voices are at the heart of our MPN research and advocacy. Learn more about Abstract: abs25-3936 at #ASH25

#MPNResearchFoundation presents abstract:abs25-3936 at #ASH25: Patients & caregivers with MPNs still face significant gaps in communication, symptom monitoring, clinical trial awareness, and individualized care, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment

At #ASH25, patients and clinicians called for aligning patient-care goals and improving patient-physician communication for polycythemia vera treatment, according to research results from Haymarket Medical Education & #MPNResearchFoundation. See abs25-11724

At #ASH25, review results from parallel surveys on gaps in patient-centered care for polycythemia vera from patient and clinician respondents. Learn more about this joint research effort from the #MPNResearchFoundation and Haymarket Medical Education via abs25-11724

The #ASH25 Annual Meeting is where major insights in #MPNs, clinical trials, and future treatment strategies emerge.  We’re proud to see board members, advisors, and grant awardees on this year’s list of #ASH25 presenters! Safe travel and best of luck!

We’re stronger together. Your story and data could help us better understand MPNs and change someone’s future. Join the MPN PROGRESSion Registry™ and give back to the MPN community. Enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq #PatientRegistries #MPNprogression #ClinicalResearch

Dr. @BrandiReeves1 #MPNChallenge ™ study is uncovering how MPNs damage the kidneys and if interferon-alpha might protect them. Donate today to help make more research like Dr. Reeves' a reality: https://goto.mpnresearchfoundation.org/48Xj643 #MPNResearch #RareDisease #Interferon

Maddie’s fight with a rare blood cancer inspired her to study molecular biology and join efforts to improve MPN care. This Giving Tuesday, fund  #MPNresearch that turns patient stories into breakthroughs. Every discovery starts with hope. Donate now: https://goto.mpnresearchfoundation.org/48Xj643

Save the Date! The 2026 MPN Challenge™ opens January 6, 2026. This year’s RFA highlights: 👉AI/ML-driven innovation 👉MPL-focused breakthroughs  Junior investigators encouraged to apply!  Stay tuned for details | #2026MPNChallenge #MPNRF

Wondering where your donation goes? It powers bold ideas — like CRISPR to eliminate MPN cells.  🎥 Join us Dec 2 to hear from @TheElfLab, MPNRF CEO Kapila Viges & MPN patients. 🔗 Register: https://goto.mpnresearchfoundation.org/49ng5u2 #GivingTuesday #CRISPR #MPNResearch

Kyle became a caregiver at 27.  Ten years later, her family is still celebrating milestones together.   💬 What’s one thing you’ve learned from #caregiving? Reply below to honor the caregivers who make progress possible.  Donate today: https://goto.mpnresearchfoundation.org/48Xj643

CRISPR could change the future of #MPNtreatment.  🎥 Join our #GivingTuesday, Dec 2, #webinar to see how your #donation powers real breakthroughs.  Can you help us raise $2M for research by year’s end? Register now: https://goto.mpnresearchfoundation.org/49ng5u2

Today is the day! Join us at 5 PM CT for Clinical Trial Protocol 101. Learn how YOU can influence clinical trial design. 🎤 Jane Perlmutter, Ph.D., MBA 📅 TODAY Nov. 20 | 5–6 PM CT 🔗 Register now: https://goto.mpnresearchfoundation.org/48KyxMQ #MPNPathways #ClinicalTrials #PatientAdvocacy

“Excitement.” That’s what Dr. Robert Kralovics feels when new data arrives. His team is reporting that anti-mutCALR antibodies don’t slow MPN cell growth as expected, reshaping how we approach immune-based therapies. Each step forward matters. https://goto.mpnresearchfoundation.org/48Xj643

We’re proud to represent ET, PV & MF patients on the global stage — from MPN Congress to #ASH’s Annual Meeting.  We’re on a mission to raise $2 million for MPN research. Help us finish the year strong.  Donate today: https://goto.mpnresearchfoundation.org/48Xj643

MPN PROGRESSion Registry™ is OPEN for enrollment! Join the patient-focused research initiative and share your health journey over time. We’re stronger together — individual drops of data can make an ocean of change for MPN research. https://goto.mpnresearchfoundation.org/3VSmaqq

How does informed consent work for the MPN PROGRESSion Registry™? We provide complete, transparent information on the research risks, benefits, and details, so you can decide what's right for you. Watch the video & enroll today! https://goto.mpnresearchfoundation.org/4hA6OAE