My grandson drew this. It’s me giving side eye up to no good.

Being chronically ill isn’t easy but monthly chemo keeps me healthy “enough” to be engaged. #ChronicIllness #Advocacy #RareDisease

I mean 🤷‍♀️🤷‍♀️🤷‍♀️. C’mon HCPF. THANK YOU JBC for voting down these caps!

So peeved at @unitedhealtcare.bsky.social for not telling me that my infusion center of 3 years stopped being in network until 5 days before my next treatment. #PBMreformNOW @degette.house.gov You are on the committee that could fix this.

#Colorado allows in person, remote, and written testimony. Here’s how to sign up. #Coleg #copolitics @cohousedem.bsky.social

Join us for a lobby Day! February 27th at the Colorado State Capitol! #ChronicDiseaseAwareness #RareDiseaseAwareness

How is everyone today? We had a front move through and it’s got me feeling like a drunk Miley Cyrus on a wrecking ball. #Autoimmune #EhlersDanlos #ChronicDisease #RareDisease

Recorded a segment on #PDAB and how a #UPL can impact access to medicine for Patients Rising! Can’t wait to see how it turned out!

Today is one of those days where I wish they’d put coke back in coke. Making my dental appointment for 4 more teeth to be pulled. Because who needs teeth? #SjogrensSyndrome #ChronicIllness #RareDisease #ChronicDisease

#Snur brings a bunch of symptoms for anyone with #ChronicIllness. These are the ones I’ve collected! How are you feeling? #Maladiemon #TradingCardGame

Mine generally take 3 months as the doctors and insurance fight over who sent what paperwork.

Don’t forget boundaries are okay and saying no is necessary at times. It’s okay if we don’t “do all the things”.

Yup. It’s my actual xray. Craniocervical instability. It’s a potential issue with #EDS, #RheumatoidArthritis, and #TBI. I’ve got all 3 of those so #Cervislinky is my chosen #Maladiemon. @ehlersdanlos.bsky.social @rheumatoidart.bsky.social

#Autoimmune reaction to taking a shower caused me to collect #Immuncoon today. These diseases are dynamic and that means I don’t know how I’m going to feel minute to minute. #chronicillness #raredisease #MCAS #maladiemon #tradingcard #WorstTradingCardGame

If you are coming to Lobby Day on February 27, I’ll have these printed cards on me - so find me if you want to collect some! I’ll be the one in the wheelchair with the yard flamingo. RSVP HERE: docs.google.com/forms/d/e/1F...

Fatiguely #Fatigue is a symptom associated with conditions like #MultipleSclerosis, #RheumatoidArthritis, and #cancer. It can also occur on its own and is called #MyalgicEncephalomyelitis. Meet #Fatiguely. It’s feeling like your body is filled with heavy metal. #RareDisease #ChronicIllness

It’s #Maladiemon, the #ChronicIllness #TradingCardGame #RareDisease #ChronicDiseaseAwareness

Highlighting #MedicalGaslighting and why it’s so important we learn to advocate for ourselves. #ChronicIllness #RareDisease

Those who don’t study history are doomed to repeat it. youtu.be/EH_Izul6J5M?...

Behind the acronym is a formula that reduces your lived experience to a score. It compares your life to a narrow idea of “perfect health” and subtracts points until the treatment you need is no longer “worth the cost.” #QALYban

Oh look. I’m in the news. 🤣 All kidding aside, big hospitals need to stop abusing the #340B charity care program. www.denver7.com/news/politic...

PART 1/2– 🚨 A sitting U.S. president caught on a hot mic suggesting we deport American citizens—calling them “home-growns”—to El Salvador. Meanwhile, Bukele refuses to return Kilmar Abrego Garcia, despite a Supreme Court order. Trump stays silent.

I have no words about today’s press conference. So disheartening to see active defiance of the SCOTUS decision.

#PDAB isn’t the way to lower drug costs. It doesn’t address the problem and only disincentivizes insurance coverage. Can’t access medicines that aren’t covered.

#KittyCone is one of my heroes.

Apparently @govofco.bsky.social wants to veto HB25-1017. What the hell? Have we forgotten #Willowbrook? Send him an email and tell him to sign! [email protected]

Wow! Updated estimates now put turnout at 2.3 million — and we’re still waiting on reports from coalition members in other areas, with some events yet to begin! If you’re free, come out and join us. Over 1,400 events are planned across the country.

Final push! Get loud and active! Let’s help save small business pharmacies and not make the #PharmacyDesert bigger.

Upper payment limits (UPLs) are simply insurance reimbursement caps. One study by Partnership to Fight Chronic Disease shows a majority of payers feel a UPL would disrupt patient access to medicine through things like formulary changes, higher out of pocket costs, and supply chain disruption.

Today we released a response to the #Colorado Division of Insurance’s bullshit cost benefit analysis about the #PDAB. We specifically asked for a comparison of how much this program will actually save vs how much the state is spending. Especially since the Feds already did this work.

Wisconsin Supreme Court 65.1% of votes in, AP has now called it. SUSAN CRAWFORD HAS WON! ✳️ Susan Crawford (D) 825,480 55.9% ✳️ Brad Schimel (R) 651,487 44.1% WE DID IT!!!! YAY!!!!

Off America soil!!!! 😡😡😡 #BlueCrew #BlueCircleFamily🌈🦋 #BluePetPatrol💙💛🐾 #ProudBlue #Resist #Resistance #TruthWarriors #antitrump #antimaga #ImpeachTrumpNOW

Hell yeah!

It’s time to hold #CorporateHospitals accountable. Send a letter to the #Colorado legislature today! www.save340-b.com?fbclid=IwY2x... #Save340B

Excited about my #340B op-ed in @pikespeakbulletin.bsky.social find it here: pikespeakbulletin.org/digital-edit...

Action Alert: Get your state AG to submit an #AmicusBrief to urge courts to reject the airline lawsuit to roll back protections. @philweiser.bsky.social please help us!

More #eugenics policy coming our way. Watch your elected officials as we descend back into madness. Eugenics was a popular policy in the 1920’s and influenced Hitler.

THIS isn’t going to end well for the #Disabled and #Seniors.

Sometimes we get so wrapped up in things we forget #selfcare. Today I scored 2 free raspberry stocks and got to see a lovely view. #PikesPeak

This legislation would help protect us if Section 504 is declared unconstitutional by the #TexasVsBeccera lawsuit.

#Colorado is planning a #RareDisease resource fair. What would you like to see?

Quite a lovely day for a Roll to my infusion center.

This is part of why I’m very concerned about the future of healthcare in the U.S. Our system is horrid as it is but involvement from eugenics slinging billionaires is going to make it way worse. #PDAB #CoLeg #CoPolitics

Unfortunately my #PDAB question couldn’t be answered because none of the legislators knew what that or a #PBM was. However our Governor has a deal with #ArnoldVentures which means we will continue throwing $ at the unsuccessful PDAB.

Love seeing friends at townhalls engaged with legislators.

Me: Engage with policy. Them: Become a precinct captain instead. Me: That’s not going to help get needed bills passed. We need citizen engagement. Them: No. Run for office. This country is doomed. CITIZENS 👏 NEED 👏 TO 👏 ENGAGE 👏 WITH 👏 POLICY.

This is WHY we have to #GetTheFuckInvolved #PBM reform NOW!

#Coleg Colorado - Here is an actual bill fighting actual oligarchs. It’s in the Senate HHS committee. Don’t *just* show up for rallies. ENGAGE. Emails in thread #FightingOligarchs

Hell yeah!!!