When the words come at 4am, I write. Because my mind doesn’t follow clocks— it follows grace, rhythm, and the quiet clarity of night. This is autistic prayer. This is holy noticing. #ActuallyAutistic #WritingAsPrayer

Heading in for a vascular scan today to find a new AV fistula site. Navigating autism-related sensory challenges with hope and advocacy 💙 Read more: hivblogger.com/2025/08/21/t... #DialysisJourney #AutismAwareness #InclusiveHealthcare #AVFistula #SensorySensitivity

Fantastic to see a new office being created in #PortLaoise love to see the #GovIE branding.

Dialysis today was chaotic—alarms, a switch from HDF to HD, and an early wrap-up. Still, clearance beat the target. A tough moment reminded me: resilience matters more than perfection. #DialysisJourney #ProgressNotPerfection hivblogger.com/2025/07/21/%...

Three days a week I sit for dialysis. One pill keeps HIV undetectable. A new inhaler, easier breath. Ten years since I last saw a respiratory specialist—and it’s time. Chronic illness doesn’t define me, but it shapes my rhythm. #HealthJourney #LivingWell hivblogger.com/2025/07/08/u...

Mid & East Antrim will hold their first ever Pride parade this year in Ballymena on 28 June. M&EA are going to need a lot of us to show up for reasons that should be obvious given what's happening in the town atm. Numerous counter-protests have already been registered. This is what Pride is about

Another day another medical appointment. This time in Dublin at Beaumont Hospital. For my #HIV checkup.

Happy St Patrick’s Day ☘️

Niamh has found a new hiding place. One reason for keeping the laundry under control. #cats

Well, played for Mass this morning. Now in cafe for breakfast. Feeling a bit better. Though still feel like my haemoglobin is too low. FBC was taken on Friday at #dialysis results tomorrow I hope.

A lovely image showing our cat Scholastica († 2025-02-05) holding her arms sitting on my arms impaling Andrew’s.

The veneration of Charles I as a martyr ⚓️ skcm.org/about-s-char...

Our eldest cat Scholastica of course in this family has to have arms. Much love shown by Sivane in illustrating them. I love the crest with the cat supporting my arms. A lovely touch. Scholastica is still with us, not in any pain, but oh so very, very old.

In ED. Influenza. Prayers for healing please.

Today’s dialysis complication was the extra layers worn due to the low temperature! 8.4kg extra weight on. So only 77.4kg in reality. Weight on arrival 85.8! DMBoots were 1.6kg of that! So set to take 1.5litre Bp 160/109 HR 87 Hb 11.9

Results from 2024-07-18 CD4=290. VL<40. So finish Dapsone. Back to clinic in 6 months. #HIV #healthresults

Merry Christmas

Back to dialysis today. Up 1.5kg. Goal 2.2litres. BP 181/123 HR 85. Ens of therapy 17:16.

www.belfasttelegraph.co.uk/news/norther... Windows smashed and anti Sinn Fein graffiti daubed on community building amid village row. People complaining about SF doing this make themselves the thugs. It was the Deputy Mayor who was in attendance. I condemn the violence.

Sitting on dialysis this afternoon. No weight gain because of lack of food in hospital yesterday! So, taking 800 ml off to cover the tea I got today here. Going well today. Happy today.

Just blogged: hivblogger.com/2024/11/22/n... #asthma #EmergencyCare #Gratitude

Still in A&E. About to be hooked up to continuous heart monitoring. Yay. Told that it will help with knowing what has been going on.

@lichmikey.bsky.social cheers for following.

Still awake in A&E. Repeat cardiac bloods done m and repeat ECG. An hour to wait for the results of the bloods.

Top 5 tracks for 2024! #YouTube #Music

At General Audience, Pope Francis announced he will canonize Blessed Carlo Acutis on April 27 during Jubilee for Adolescents, and Blessed Pier Giorgio Frassati during Jubilee for Youth on August 3.

Wonder if anyone else has a #UCRYSJ rugby jersey still in use from 1996!

First #dialysis of the week. Up 2.2kg that explains the breathing difficulties during the night. First BP 144/79 HR 80. 🍯🦡 10.4. #HDF

What a night! Not been able to sleep lying down. So sitting up again.

Taken a couple of years ago. Wish I could visit #ElyCathedral again. #iPhone #Photgraphy

@ibruvver.bsky.social welcome to bsky.

Remembering all my friends from #RiponCollege on the feast of St Margaret of Scotland #UCRSYJ

Just blogged: hivblogger.com/2024/10/29/a...

I am very proud and honoured to have been appointed a Member of the Most Venerable Order of the Hospital of St John of Jerusalem by HM King Charles III, #ForTheFaith #InTheServiceOfHumanity #ProFide #ProUtilitateHominum thegazette.co.uk/notice/4723445

Just blogged: Why a kidney transplant matters: my journey with dialysis and the hope for living donation #dialysis #transplant hivblogger.com/2024/10/08/w...

End of an era. Notebook since January 2024 comes to an end on Monday. Time for the next notebook. #dialysis #records #selfcare

Well that is my starting today’s dialysis session. Good to have my #autismsupportbear Otto with me.

Bluesky now has over 10 million users, and I was #6,166,052!

Early morning today. Off to Dublin and beyond for a repeat Cardiac MRI. Thanks to Andrew and Otto for coming with me. Hope we can find something fun to do after it.

A lovely gift from an #heraldic friend.

And my BP is trying to win awards again. 225/200. But my pulse is 81. #dialysis

Remembering all who died, were injured, or in any other way affected by the events in Mullaghmore, Co Sligo, 45 years ago. #InHonourBound #OnThisDay

New profile pic

Loving my new #owl belt buckle from #Mishnoc in #Galway.

That’s me ready for my first #dialysis session of the week. Any other dialysis patients make notes during their sessions?

news.sky.com/story/clappi... “No organisation can be a national religion” says Health Ombudsman What about the Church of England?

Initial #dialysis blood pressure 139/88. Heart rate 80. 2.5 kg over dry weight so aiming to take off 3000ml in 3.5 hours.

Heading off to #dialysis today. Will be getting treatment this afternoon for about three and a half hours. Happy to chat.

www.belfasttelegraph.co.uk/news/republi... Teenager arrested after army chaplain stabbed outside barracks

Remove Stoats?!?! 😵 Orkney project granted extra £4m to remove stoats www.bbc.com/news/article...