Telegraph article about hyper mobility and associated conditions.

Honoured to have been included in this article by Jeremy Jeffs on his photography project. wellcomecollection.org/stories/livi... #MyalgicE

Well, this has new meaning to me today, as I just got results showing positive immune activity towards 3 different membrane structures for Borrelia burgdorferi. I was bitten by an adult tick from a known hot spot aged 10. And I have been chronically ill with post viral #MEcfs since age 14.

Fantastic that this photography project by Jeremy Jeffs about ME is on display @wellcomecollection.bsky.social Hope lots of people see it. (Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME #MEcfs wellcomecollection.org/stories/livi...

Chuckled when I heard the news this morning. Trump is so put out that Biden has got the headlines with a ceasefire that he’s fabricated his own immigration deal with Mexico. Mexico haven’t got a clue what he’s on about. 😂😂😂

I sent something using Royal Mail Tracked 48 on 22 November. It still hasn’t been delivered yet, it’s 27th today. wtf?

Make sure you’re following #ThereForME on our new social media accounts! You can find links here: linktr.ee/ThereForME#ThereForME #ComingSoon

This is great. They debunk PACE trials in it too.

Hannah is here! @fryrsquared.bsky.social

Going to regret this later but it’s been years since I had a Lidl donut.

My buddy is keeping a close eye on me today.

Wordle 1,253 5/6 🟨⬛⬛⬛🟨 ⬛⬛⬛⬛⬛ ⬛🟨⬛⬛⬛ ⬛🟩🟩🟩🟩 🟩🟩🟩🟩🟩

Nice

@naomidharvey.bsky.social what was the Lyme test you just did? Was it Viramed virachip? Just been putting my results through chat gpt and the outcome was interesting.

Even though pyoderma gangrenosum has currently taken over my world, Lyme hasn't let me forget that it's there. This article is about a groundbreaking discovery that reveals how Borrelia burgdorferi evades the immune system. www.lymedisease.org/dont-eat-me-... #lymedisease #chronicillness

If you’re thinking of swapping energy suppliers, you could use this code and we’ll each get £50 credit! Win-win. 👍😊 Use this link to sign up to Octopus - share.octopus.energy/peach-boar-422

I got a free Cadbury’s milkshake in my Ocado order. It’s gorgeous. Was a struggle to keep half left for son. 😬

Guess what they don’t mention? www.telegraph.co.uk/health-fitne...

The state of this. Imagine the backlash a woman would get conducting herself this way. Alex Burghart apparently. Never heard of him.

Double portions for being a good boy. #TonyPigeon

#courage #ME

OH and I have been conversing by email (with screenshots) about what turkey to get for Christmas dinner. When he ordered one I replied gobble gobble. After that every email we have sent or forwarded to each other has been titled Gobble gobble. 😂

It’s time to start Easter shopping apparently. From my FB feed 🤦‍♀️

I am staggered that 1000 days have passed since Russia invaded Ukraine. We all thought it would be over in days. We laughed when a comedian was elected as President. What a leader he has turned out to be. Inspired a nation to fight back against all the odds.

It sounds like snow. I’ve yet to get up and peek. ❄️❄️❄️

Get a load of this! A snow tracker! veryweather.co.uk/liveSnowTrac...

Researchers at Tulane University have found certain combinations of antibiotics to be more effective in treating #LymeDisease than the standard prescribed course of single antibiotics. READ MORE: www.lymedisease.org/combo-abx-em...

Oh god. Everyone back to X, quick.

I can’t book a food shop delivery after 22 December. Nothing for the inbetween Christmas and new year period. Nor New Year. Assuming I have missed the boat now?

Connections Puzzle #525 🟩🟩🟩🟩 🟨🟨🟨🟨 🟪🟪🟪🟪 🟦🟦🟦🟦

Slim is looking mighty fine this morning. His new feathers are very sleek and shiny.

Along with another #pwME I have requested the MEAssociation adopt charity guidelines and cap trustee tenureship at 9 years maximum. Please read and share. AGM is on 9 Dec. docs.google.com/document/d/1...

I *think* my week-long PEM may be starting to tail off. Big relief. Brother has postponed his weekend stay bc of the forecast too so I may actually get over this before my parents visit 🤞

Having another go on here. Keyboard v small so it’s going to take a while to adjust. Not very iPad friendly. Assuming I have to get to grips with some settings. Meh.

Advice needed please. Daughter has newly pierced lobes, one was very crooked so has been removed after just six days and they suggest re-doing it in 2 weeks. Seems a bit fast for it to have healed up properly? Anyone know if I am being overly cautious? #earpiercing #piercing

Fabulous piece about #ME on #BBCBreakfast this morning with #ThereForME and #DrBinitaKane. Around 7.10am on IPlayer.

Knitting with lace weight mohair… does anything go? I can’t wear wool so was wondering what is ok to pair it with? #yarn #knitting

Worth a look. I was diagnosed with POTS didn’t know I also had OI until very recently. Just stated fludrocortisone and it has helped.

Had an ECG on Tuesday and blood tests today. Prior to that hadn’t left the house since 17 May! GP unable to arrange district nurse or for both to be done at the same time until end September. Hoping PEM manageable after this 🤞

Libraries are dynamic institutions. A library without staff is not a library, but a building with some static collections in it. Library workers make libraries! They do all of the work to manage & build resources, provide services to connect people to what they seek, maintain infrastructures! 📚📜