🎯 REGISTRATION OPEN: #EMSP2026 Annual Conference📍April 24-25 | Berlin 🧠MS • NMOSD • MOGAD Day 1: McDonald 2024 criteria, diagnostic biomarkers, clinical trial equity Day 2: CAR-T therapy, stem cell research, menopause & MS, policy action Register- bit.ly/4a7jGMK

🎙️New Let's Talk MS: Moving abroad with MS, NMOSD & MOGAD Navigating healthcare systems, personal experiences, and real talk about the challenges and rewards of relocating internationally with a neurological condition. 🔗https://bit.ly/3MiAbMG

How are treatment decisions made in Europe? And how can YOUR voice shape them? Understanding #HTA gives patients real power in shaping treatment access. Join this @ec.europa.eu webinar to learn how YOU can participate in consultations. 🔗http://bit.ly/3MoMV4z

🎉 We're thrilled to welcome Nele Vanbilsen as our new Project Coordinator at EMSP! With a PhD in auditory-motor coupling in progressive MS and expertise in neurological research, Nele brings valuable skills to support our MS, NMO & MOGAD communities across Europe. Welcome to the team, Nele! 👋

How can MS nurses transform daily symptom management? Join our free webinar 🗓️ Jan 27, 16:00 CET to discover evidence-based care approaches: Must attend for Researchers, MS nurses & patients Register- bit.ly/4qaranF

1/3: EMSP President Herbert Temmes presented #IMSS findings from Germany at the DACH Neurorehabilitation conference—bringing patient voices to clinical practice. This matters.

#LetsTalkMS New Episode Drop Only 48% of people with MS are employed. We are changing that conversation. Tune in to learn about: Employability, disclosure & workplace strategies for young people with #MS #NMOSD #MOGAD Listen now: bit.ly/4pCQBh3

Most debilitating MS symptoms are often invisible. Join our webinar exploring #IMSS survey findings & discuss how to better address these hidden challenges. Featuring Prof. Peter Feys, Prof. Daphne Kos & EMSP Community Manager Anna Revilla. Register: bit.ly/3XbbJyZ

The past 2 weeks reinforced why collaboration matters. EMSP participated in EBV-MS and Behind-MS consortium meetings in Norway and Heidelberg respectively—two major EU projects exploring how Epstein-Barr virus triggers multiple sclerosis. 🧬

📬 EMSP Newsletter: Latest updates in European MS Community 🔹Advocacy for equitable access & care across Europe 🔹Breakthrough research on walking fatigability & personalised rehabilitation 🔹 Award-winning patient programs & MS nurse insights Read the full newsletter bit.ly/4pB5TDd

🧠 70% of people with MS experience walking fatigability—where walking becomes harder over time. Felipe Santinelli, PhD candidate at University of Hasselt, is using brain imaging & motion sensors to develop personalised MS rehabilitation programs. Read more 👇 bit.ly/49OxzQ8

⏰EU budget consultation closes TODAY (Nov 12) COVID-19 showed us: without health, everything fails. Yet health risks being sidelined again in the next EU budget. We're demanding a dedicated EU health budget that puts patients first. 📄Speak up NOW: bit.ly/49glsLs

🏃♀️ 2 DAYS TO GO! This Sunday, Nov 2nd, runners worldwide are taking on the EMSP MS Awareness Run at the Brussels Airport Marathon. 💙 Support them by contributing to their fundraisers 📣 Come cheer them on in Brussels 🌍 Help spread the word Learn more: bit.ly/4hzcStq See you there! #MSRun

EMSP mourns the passing of Klaus Knops, our former Treasurer and Executive Committee member. His wise leadership and dedication left a lasting legacy for the European MS community. Our deepest condolences to his family, friends and loved ones. bit.ly/4p2ACsz

MS diagnosis changes entire families—not just patient's. Yet across Europe, caregivers remain unseen & unsupported. Only 15 countries consult MS communities on policy. Just 16/35 support child MS caregivers. It's time to close the gaps. #EurocarersDay

🌟 Major news for the #MS community! The EU is committing to 500 MORE clinical trials annually + faster trial starts through ACT EU initiative. What this means: More treatment options, better access, less waiting for MS patients across Europe. Learn more: www.ema.europa.eu/en/news/new-...

Incredible session with Dr. Stephanie Woschek & Guillaume Lodini on staying active with #MultipleSclerosis Missed our "Movement with MS" webinar? Watch the recording now: bit.ly/47L7y3f

FINAL REMINDER: Movement with MS starts in 6 HOURS! 🕐 17:00-18:15 CEST Join our experts to learn: ✅Safe movement strategies for MS ✅ Exercise tips from specialists ✅ Real success stories Register- bit.ly/4moU297

Webinar- Movement with MS: Strategies for Staying Active 📅 Registration closes Friday! Whether you live with MS or just love fitness, this webinar is packed with tips to keep you moving. 🎟️ Limited spots—register now: bit.ly/4mdXHqi #MSAwareness #FitnessForAll

🎙️New on Let’s Talk MS: Meet Aida Fuentes Picazo—a young mother navigating life with Neuromyelitis Optica (NMO). Diagnosed after giving birth, her story is one of resilience, adaptation, and invisible strength. 🎧Listen now: bit.ly/3HNCFkg #RareDisease #PatientVoices

💙 September is Pain Awareness Month Did you know? 73% of people with #MS experience pain, yet only 5% have access to pain specialists. Pain is real, overlooked, and deserves better care! #PainAwarenessMonth

Living with MS doesn't mean slowing down Join our FREE webinar: Movement with MS: Strategies for Staying Active and discover how to make movement your powerful ally. 📅 Sept 16, 5-6:15 PM 🎯 For everyone - MS warriors, supporters & healthcare pros 🔗 Register: bit.ly/4os3daV @braincouncil.eu @efna.net

45% of Europeans worry about health data privacy, yet only 8% understand how their data is used. Take the More Europa training 📚 7 bite-sized modules on how your real-world data improves treatments. Because Knowledge = Power 💪 🔗 bit.ly/4mcolR3

Living with #MS? Your active lifestyle doesn't have to stop! Join our webinar "Movement with MS: Strategies for Staying Active". Learn: ✅ Exercise tips for every fitness level ✅ Safe training for sporting events ✅ Expert guidance from fitness coaches Register- bit.ly/4os3daV

Join us at the @ECTRIMS Patient Community Day Sept 26, 2025 | Barcelona + Online Designed for people with MS, related neurological diseases & caregivers. #ECTRIMS4me ✅ Get latest treatment breakthroughs ✅ Connect with community ✅ Expert knowledge from leading researchers

Still figuring summer plans? Make it matter! 🏃‍♀️ Join inspiring MS warriors like Eline-Sofie at EMSP's MS Awareness Run - November 2nd. Push your limits while fundraising for MS Register: emsp.org/events/msrun... #MSRun #RunForACause #MSAwareness #EMSP #FitnessGoals

NMO and MOGAD are rare conditions, often misdiagnosed as MS, leading to wrong treatments and delayed care. Our latest #LetsTalkMS episode dives into: What NMOSD & MOGAD really are Why is it misdiagnosised How patient communities drive change Tune in now: bit.ly/4eI8HtS

Invisible ≠ insignificant MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence & quality of life. Brain fog, pain, depression... all real, all unseen. We must recognise #InvisibleSymptoms & support ALL aspects of #MS How has invisible illness impacted you? #IMSS

Our JUNE newsletter is HERE! ✨ EMSP 2025 Conference highlights 🎙️New podcast episodes on mental health & stigma 🏃‍♀️MS Awareness Run registration open 🌍 World MS Day celebrations worldwide Plus new courses, research updates Read: bit.ly/46ihro9

Family Planning & Pregnancy webinar for MS healthcare professionals! Join us: 🗓️July 4th 🕑 15:00 CEST Learn: ✅Evidence-based strategies ✅Care coordination tips ✅Person-centered approaches Speaker: Laetitia della Faille, NMSC Melbroek Register: bit.ly/3FZTbwz #MSCare

65% of people with #MS experience bladder control issues—ranking among the top 5 most debilitating symptoms. For 23%, these invisible symptoms cause severe daily limitations. Time to break the silence. Invisible ≠ insignificant. #WorldContinenceWeek #MultipleSclerosis @MS International Federation

📍 @ECTRIMS 2025, Barcelona 🗓️ 24 September Session on cutting-edge research on EBV & #MS development + therapeutic interventions 🔗 Register: bit.ly/4kIda1U Visit EMSP booth #11 at #ECTRIMS2025 to learn more about our projects.

The 11th Congress of the EANeurology is coming to Helsinki 📅 June 21-24, 2025 📍 Helsinki, Finland + Online Theme: "Neurology within Society" Latest advances in neurological care & research—including key developments for the #MS community. Register: bit.ly/4mZmSyj

🚨 Only 52% of people with #MultipleSclerosis are satisfied with symptom management despite using 6+ treatments. 99% experience symptoms (avg. 14 at once!). We can do better. Learn more🔽 emsp.org/projects/imp... #MSAwareness #Healthcare

3 years! That's how long people wait on an average for a #MultipleSclerosis diagnosis. 3 years of uncertainty without the right treatment. On #WorldMSDay, we are focusing on Navigating Diagnosis. Early diagnosis = better outcomes. Learn more about #IMSS Findings 🔗 bit.ly/3HbJawy

3 years. That's how long people wait on average for a #MultipleSclerosis diagnosis. 3 years of uncertainty without the right treatment. On #WorldMSDay, we're focusing on Navigating Diagnosis. Early diagnosis = better outcomes. #IMSS

JUST 2 DAYS TO GO! #EMSP2025 kicks off THIS FRIDAY in Prague This year's focus: prevention with people living with MS at the center of every discussion. Can't attend? Join our LIVESTREAM: bit.ly/4gXrVLL Read our "Nothing About Us Without Us" blog: bit.ly/3EQLcRZ

Living with Multiple Sclerosis doesn't mean giving up motherhood dreams ✅MS doesn't affect fertility ✅Most MS medications have pregnancy planning protocols Planning a family with MS? Talk to your healthcare team. Check our Essential Guide on Pregnancy with MS👇 #MothersDay

Our Programme Coordinator, presented our #IMSS Survey findings at the Neurological Congress, Belgium. Key findings: Major gaps in service access across Europe Alignment with WHO health initiatives needed MS Nurses crucial as care coordinators & advocates Learn more- emsp.org/projects/imp...

Just 2 weeks until #EMSP2025 📅 16-17 May in Prague & Online Join us for expert sessions on #MultipleSclerosis prevention, networking & fun activities! Can't attend in person? Join online: bit.ly/4gXrVLL Read our newsletter for all details: bit.ly/44TYUhe

We've launched our Scientific Advisory Committee, bringing together Europe's top MS experts to strengthen the scientific foundation of our advocacy work. This accomplished team will ensure our initiatives are evidence-based and truly reflect the needs of people living with #MS

Join our first Best Practice Series on- Tackling Fatigue in MS 🗓️ Tuesday, April 22 🕝14:30 CEST This session BY nurses, FOR nurses - features creative approaches, remote follow-up strategies & self-monitoring tools to help your MS patients Register now: bit.ly/4lCWTfg

📰 EMSP's April Newsletter is here! This month: 🎫2025 Conference updates 🔬Innovative MS initiatives across Europe 🤝Key MS community developments 🦸‍♀️Inspiring patient stories ▶️Read now: bit.ly/42GNH17 Subscribe for monthly updates straight to your inbox! #MultipleSclerosis

This week we welcomed, Lydia Makaroff, CEO of MS International Federation, to EMSP. We discussed aligning global & European MS initiatives, the evolving role of patient orgs, and addressing critical healthcare gaps for the MS community. Together, we're stronger for everyone affected by MS!

Our President, Herbert Temmes, spoke to Touch NEUROLOGY Media ahead of the #EMSP2025 Conference to discuss: ▶️Why prevention matters ▶️ Enhancing patient participation ▶️ Driving policy changes Read the full interview: bit.ly/3XNR98r Register: bit.ly/4gXrVLL

Let's Talk MS Podcast returns with new hosts, fresh perspectives, and conversations you won't want to miss! Guest lineup & release dates coming soon 👀 Know the perfect guest? Drop names below! #LetsTalkMS #MSCommunity #MSPodcast

Could prevention be the future of MS care? The #EMSP2025 Conference in Prague is exploring this game-changing possibility. For 1M+ Europeans with MS, this matters. Read our full blogpost to discover more 👇 bit.ly/4j6cQc2 #MSPrevention #MSConference

Prevention in MS isn't just a dream—it's the next frontier. Watch EMSP VP, Federica Balzani outlining the theme for the upcoming #EMSP2025 conference. Risk factors? Protection? Aging? We're tackling it ALL. Register today👉https://bit.ly/3BmIOAG www.youtube.com/watch?v=q14U... #MSConference

⏰ FINAL CALL: Abstract submissions for #EMSP2025 closing soon! Present your #MSResearch on prevention. Accepted posters gain visibility at our Annual Conference. Submission Deadline-Monday, March 24 bit.ly/41J0iS5 #MultipleSclerosis #MSResearch #MSPrevention

Join us at #EMSP2025 for the launch of the Impact of Multiple Sclerosis Symptoms study - one of the largest patient-reported pan-European MS research initiatives. 📅 May 16 | 13:30-13:55 👤 Speaker: Tommaso Manacorda 📍 Hotel Don Giovanni, Prague Early bird rates ending soon! Register: bit.ly/4gXrVLL