📢2 days away: On March 5th, 2025, from 16:45 CET, in Krakow, INCA and ENETS @enets.org will discuss a very intriguing topic – the role of AI in NEN research and patient care. ✅Look at the agenda: incalliance.org/inca-enets-s... #LetsTalkAboutNETs

High-grade NETs with a Ki-67 index of more than 20% are classified as grade 3. Poorly differentiated Grade 3 tumors are NECs. These tumors are aggressive and are treated differently than lower-grade NETs. 📌We help HCPs know NENs in 12 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

📌Today is #RareDiseaseDay! NENs are more common than you think. The prevalence is up at around about 30 or 30+ per 100 000 population. In the UK, for example, around 6,000 people are diagnosed with NENs every year. ✅We help HCPs to be aware: incalliance.org/net-info-pac... #LetsTalkAboutNETs

📢COMING SOON: On March 5th, 2025, from 16:45 CET, in Krakow, INCA and ENETS @enets.org will discuss a very intriguing topic – the role of AI in NEN research and patient care. ✅Look at the agenda: incalliance.org/inca-enets-s... #LetsTalkAboutNETs

👏Kudos to AMEND @amenduk.bsky.social for advocacy in action – a big step towards early detection of genetic NETs. 👉AMEND has helped that MEN2B, will be added to the Genomics England’s Generation Study from March 2026. ✅Find out more: incalliance.org/men2b-added-... #LetsTalkAboutNETs

📢Stay ahead in #PrimaryCare: Free CME credit. Try #ThinkNENs – designed for busy GPs. • FREE online learning in just 60 minutes • Available in 7 languages • Endorsed by leading NEN medical societies • 13 videos on specific NENs ✅Start learning today: incalliance.org/think-nens/ #LetsTalkAboutNETs

NEN patient advocates also need to take care of themselves in this challenging work. 📌Find a new insightful video with valuable advice on self-care for patient advocates from Amanda Stork, Specialist NET Counsellor, NeuroEndocrine Cancer Australia: incalliance.org/self-care/ #LetsTalkAboutNETs

Secondary NEN may be present at the time that the primary NEN is discovered – indeed this is quite common and true for more than half of those diagnosed. ✅We need more HCPs to be aware of NENs – download a #NETInfo in your language: incalliance.org/net-info-pac... #LetsTalkAboutNETs

📢Listen to the voices of NEN patients! 📌Annita from the Netherlands was lucky to meet clinicians who got her a quick referral and an early diagnosis of pancreatic NET, which allowed for successful surgery. ✅Read Annita’s story: incalliance.org/stories/anni... #LetsTalkAboutNETs

#RareDiseaseDay is on February 28th! 📌NENs are easily missed due to being often disguised by common symptoms. Globally, it takes 5 years to actual diagnosis. 📌More HCPs being aware of NENs will help. ✅Information on NENs in 12 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

Translational NEN research bridges basic laboratory findings with clinical applications to improve patient outcomes. 📱Watch what Dr. Mauro Cives has to say about the latest innovations in NEN translational research: incalliance.org/dr-mauro-civ... #LetsTalkAboutNETs

📢New INCA President: Stephanie Alband, President from Feb 2024 to Feb 2026, officially passed the baton over to Meredith Cummins, CEO of NeuroEndocrine Cancer Australia. 👏A BIG THANK YOU to Stephanie! 👏Welcome, Meredith! ✅Find out more: incalliance.org/new-inca-pre... #LetsTalkAboutNETs

#RareDiseaseDay is on February 28th! Multidisciplinary medical team care is essential to ensure the best possible outcomes for NEN patients. Less than a third of NEN patients globally use MDT care. ✅Information on NEN care in 12 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

👏Congrats to @neuroendo-can-uk.bsky.social Neuroendocrine Cancer UK for the active participation in multidisciplinary education event for HCPs from all over UK on improving care for patients with broncho-pulmonary carcinoids (BPCs). ✅Read more: incalliance.org/ncuk-broncho... #LetsTalkAboutNETs

📱Discover the video collection of @enets.org ENETS-INCA educational webinars on treatments of NETs, NEC, genetic NEN syndromes: incalliance.org/net-educatio... You can watch the videos at your own pace and get informed. #LetsTalkAboutNETs

Designed for busy primary care physicians. The #ThinkNENs program delivers expert education on neuroendocrine neoplasms in short, practical videos: • Free and CME-accredited • 7 languages ✅Learn more to support earlier diagnosis: incalliance.org/think-nens/ #LetsTalkAboutNETs

There is no cure for secondary neuroendocrine cancer. No cure is NOT the same as ‘terminal’, and many people with secondary NENs are living long and well. 📢Let’s help more HCPs to be aware of NENs. ✅Download a #NETInfo in your language: incalliance.org/net-info-pac... #LetsTalkAboutNETs

NEN patients can be frightened by the unknown risks in clinical trials. Now it is easy to prepare: Check out the questions you should ask while considering a clinical trial: incalliance.org/support-pati... Find a NEN clinical trial: incalliance.org/find-a-trial/ #LetsTalkAboutNETs

#RareDiseaseDay is on February 28th! NEN patients should have equal access to timely diagnosis. NENs are more common that you think: incidence - 6 or 8 per 100 000 population, with prevalence of 30+ per 100 000. ✅Support HCPs to learn about NENs: incalliance.org/net-info-pac... #LetsTalkAboutNETs

👏Kudos to TNETPCA for developing international cooperation: A team visited Korea Institute of Radiological Medical Sciences (KIRAMS) to gain insights on Ac-225 targeted molecular radionuclide therapy. ✅Read more: incalliance.org/tnetpca-stir... #LetsTalkAboutNETs

Secondary neuroendocrine cancer is a term used to describe neuroendocrine cancer cells that have spread, from the place where they started (primary site), to another part of the body (secondary site). ✅Download a #NETInfo in 12 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

PCPs: Boost your clinical confidence in a short time. #ThinkNENs Program helps GPs recognize and diagnose NENs quickly. ✔ Free & CME-accredited ✔ 60 minutes (3 videos) ✔ Available in 7 languages ✔ Endorsed by leading NEN medical societies Start today: incalliance.org/think-nens/ #LetsTalkAboutNETs

📢Today is #WorldCancerDay: Behind a NET diagnosis, there is a unique human story. 📌Sharon from Australia shared: “I learnt to listen to my gut! That trusting yourself and advocating for yourself is important.” ✅Read her story: incalliance.org/stories/shar... #LetsTalkAboutNETs #UnitedByUnique

📢NEW: INCA launched a new web section to help NEN patient advocates by enhancing their advocacy skills. 📱Watch the videos here: incalliance.org/advocacy-ski... #LetsTalkAboutNETs

#WorldCancerDay is on February 4th. There is a unique story behind each NET diagnosis. 📌Ross from South Africa sends a wise message: “I have learned life is unpredictable journey. Make the most of each day!” ✅Watch his story: incalliance.org/stories/ross... #LetsTalkAboutNETs #UnitedByUnique

When NEN experts and NEN patient advocates come together, they provide information strictly from the patient perspective. 📱Watch all the recordings of the @enets.org ENETS-INCA educational webinars on explaining NEN diagnosis and treatments: incalliance.org/net-educatio... #LetsTalkAboutNETs

NENs can be easily missed in primary care. The #ThinkNENs Global Program offers a free, CME-accredited course to help you detect NENs. • 60 minutes of videos • Available in 7 languages • Endorsed by leading NEN medical societies 📌Start now: incalliance.org/think-nens/ #LetsTalkAboutNETs

#WorldCancerDay is on February 4th. #UnitedByUnique reminds: behind a NET diagnosis there is a unique story to learn from. 📌Luigi from Italy sends his message of hope to all who suddenly face a cancer diagnosis. ✅Watch his unique story: incalliance.org/stories/luig... #LetsTalkAboutNETs

📌Have you looked at INCA’s fantastic video collection of NEN researchers’ insights? 📱Watch the updates from prominent international NEN experts on NEN clinical trials and how patients can be involved, at your leisure: incalliance.org/researcher-i... #LetsTalkAboutNETs

January is #AdrenalCancerAwarenessMonth. 📌Let’s talk about #Pheochromocytoma and #AdrenocortiCalcarcinoma (ACC). ✅We help clinicians to get informed at a glance with #NETInfo factsheets in 12 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

📌Don’t miss the first 2026 webinar from @enets.org with an advanced-level update on the evolving landscape of pheochromocytomas and paragangliomas (PPGL) – 28 January 2026, from 6pm CET. ✅Learn more here and register: www.enets.org/webinar/webi... #LetsTalkAboutNETs

👏Congrats to CarciNor for launching a new peer support service at Oslo University Hospital Rikshospitalet! 👉As of Jan 28th, NET patients and caregivers in the South-Eastern Norway Health Region can use it. ✅Find out more: incalliance.org/carcinor-new... #LetsTalkAboutNETs

Para pacientes y cuidadores de tumores neuroendocrinos de habla Hispana: 👉Ahora puede ver grabaciones de vídeo de un evento educativo sobre NET en español: incalliance.org/patient-even... 👏Gracias a los expertos de NET y a NET México por la colaboración y el apoyo. #LetsTalkAboutNETs

When uncommon cancers present in primary care, awareness makes the difference. The #ThinkNENs Global Educational Program supports PCPs in recognizing neuroendocrine cancer earlier. ✔ Free CME ✔ 60 minutes of videos ✔ 7 languages ✅Enroll now: incalliance.org/think-nens/ #LetsTalkAboutNETs

#WorldCancerDay is on February 4th. 📌We highlight that behind a neuroendocrine cancer diagnosis there is a unique personal story. 📌Fang Ting Chou from Taiwan got a timely NEC diagnosis in 2014. ✅Watch her unique story: incalliance.org/stories/fang... #LetsTalkAboutNETs #UnitedbyUnique

NETs can be classified by site into primary and secondary. 👉Primary refers to where the tumor starts and secondary refers to where the cancer has spread to. ✅We support clinicians to be able to suspect NETs with #NETInfo in 12 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

📢NEW: Clinical trials basics in a patient-friendly language. Learn about the processes and practical aspects relevant to patients. ✅Check it out here: incalliance.org/clinical-tri... ✅Find a NEN clinical trial close to your location: incalliance.org/find-a-trial/ #LetsTalkAboutNETs

In January we mark #CervicalCancerAwarenessMonth. 👉Neuroendocrine cancer of the cervix presents with the same symptoms as the more common cervix cancer. ✅We help doctors with a #NETInfo factsheet on gynecological NENs – available in 12 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

👏INCA welcomes the new Pheo Para Alliance Executive Director - Dr. JoBeth McCarthy – with more than 20 years of leadership in healthcare and nonprofit governance! 👏A BIG Thank You to Stephanie Alband for exemplary leadership! ✅Read more: incalliance.org/ppa-new-exec... #LetsTalkAboutNETs

👏Congrats to Victory NET Foundation (VNF) for organizing the very first Swiss NET Day (November 14 2025). ✅Find out more in detail: incalliance.org/first-swiss-... #LetsTalkAboutNETs #NETCancerDay #NeuroendocrineNeoplasms

#NeuroendocrineNeoplasms – explained from the NEN experts with the patient perspective in mind. 📱Now you can watch all the recordings of the ENETS-INCA educational webinars. ✅Watch the videos here: incalliance.org/net-educatio... #LetsTalkAboutNETs

When NENs present in primary care, awareness makes all the difference. The #ThinkNENs program supports PCPs in recognizing neuroendocrine cancer earlier. • Free CME • 60-minute core module • 13 expert videos • 7 languages ✅Start today: incalliance.org/think-nens/ #LetsTalkAboutNETs

👏NETRF’s 2025 Margie and Robert E. Petersen Neuroendocrine Tumor Research Symposium was a powerful reminder of what research and community can accomplish together. 📱Watch the sessions recordings: netrf.org/for-research... #LetsTalkAboutNETs

Considering a NEN clinical trial is a not an easy process for a patient. 📢INCA has an easy guide to prepare you with the right questions to ask when considering a clinical trial. ✅Find it here and download a leaflet: incalliance.org/support-pati... #LetsTalkAboutNETs

Starting radioligand therapy can feel overwhelming. The #RadioligandTherapy NETInfo factsheet answers your questions and helps you get prepared — in your own language. 🌍15 languages supported. ✅Download now: incalliance.org/net-info-pac... #LetsTalkAboutNETs #NeuroendocrineNeoplasms

Neuroendocrine neoplasms (NENs) are often disguised behind common symptoms and can mislead clinicians, which delays diagnosis. ✅We support HCPs to be NEN-aware and make a timely diagnosis with #NETInfo in 12 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

International partnership amongst NEN community is vital for innovations. The 2025 CommNETs Annual Meeting in December 2025 brought together NEN specialists from across Commonwealth countries. ✅Learn from NeuroEndocrine Cancer Australia: incalliance.org/neca-and-com... #LetsTalkAboutNETs

📢NEW: Visit INCA’s new web section with NEN patients sharing their experience from clinical trials. ✅Hear advice from Marie-Therese from the Netherlands, Cecilia from Mexico and Craig from UK: incalliance.org/patient-insi... #LetsTalkAboutNETs

👏Kudos to Netpa for organizing a big NET Cancer Day 2025 event in Denmark. 👏Netpa AGM selected new Netpa President – congrats to Ingeline Bonde. ✅Find out more: incalliance.org/netpa-net-ca... #LetsTalkAboutNETs

👏Kudos to NET Italy and Itanet for organizing a really international NET Cancer Day 2025 event. ✅Find out more and watch the event recording: incalliance.org/net-cancer-d... #LetsTalkAboutNETs