@geneticsandsociety.bsky.social
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New Jerseyâs Department of Health is considering new regulations for egg and embryo storage facilities. The rules would require biobanks to be licensed and to comply with standards for recordkeeping, adverse event reporting, and quality management.
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NJ to regulate facilities that store frozen embryos and eggs ⢠New Jersey Monitor
New Jersey health officials have proposed rules to license and regulate facilities that store frozen embryos and eggs.
https://newjerseymonitor.com/2025/09/19/nj-to-regulate-facilities-that-store-frozen-embryos-and-eggs/
1 day ago
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Genomics companies selling polygenic prediction of childrenâs futures would almost certainly disavow eugenic commitments to ârace bettermentâ and racial hierarchies. 1/2
2 days ago
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Monash IVF has suspended treatment for patients using donor gametes in New South Wales after receiving clarification that donor sperm or eggs can be used by a maximum of five families globally rather than in the state. 1/2
3 days ago
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Trumpâs obsession with eugenics and his history of ableist statements set the tone for his press conference on autism. Trump, RFK Jr., and their allies framed autism as something to eliminate, rejected autistic self-advocacy, and excluded the voices of autistic people.
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Disgust, horror, and "elimination": Trump and RFK Jr.'s eugenicist autism conference
The most striking omission from Monday's White House pageant: autistic people.
https://www.motherjones.com/politics/2025/09/trump-rfk-autism-conference-hhs-tylenol/
3 days ago
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Surrogacy is growing in popularity in Silicon Valley (and elsewhere), but remains largely unregulated. A recent viral story shows how the lack of regulation of surrogacy arrangements can leave surrogates vulnerable when complications arise.
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What protections are in place during surrogacy?
A lack of regulation around surrogacy means people are often unprepared for when things go wrong.
https://www.wbur.org/hereandnow/2025/09/17/surrogacy-regulation
4 days ago
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CBP agents took DNA samples from about 2,000 US citizens and shared them with the FBI for storage in a database used for criminal investigations, according to a new report from Georgetown. The report calls the practice a âflagrant abuse of powerâ with no legal justification.
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US border patrol collected DNA from thousands of US citizens for years, data shows
CBP officers took DNA samples from about 2,000 citizens, some as young as 14 and many who never faced criminal charges, new analysis shows
https://www.theguardian.com/technology/2025/sep/23/us-border-patrol-dna-data
4 days ago
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Drug companies often discard gene therapies for rare diseases even after successful clinical trials because of the high costs of developing treatments and getting regulatory approval. 1/2
5 days ago
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From He Jiankuiâs recently announced return to gene editing to Julian Savulescuâs vocal support for âpolygenic editing,â some researchers and philosophers seem intent on trying to push heritable genome editing forward despite global consensus against it.
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'The potential to save trillions': The controversial future of gene editing
The race to advance gene editing tech continues, spurred on by starry-eyed Silicon Valley investors, entrepreneurs and even pronatalists. But it is still deeply controversial.
https://www.abc.net.au/news/2025-09-22/ethics-of-gene-editing-designer-babies/105496228
5 days ago
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Surrogacy is growing in popularity in Silicon Valley (and elsewhere), but remains largely unregulated. A recent viral story shows how the lack of regulation of surrogacy arrangements can leave surrogates vulnerable when complications arise.
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What protections are in place during surrogacy?
A lack of regulation around surrogacy means people are often unprepared for when things go wrong.
https://www.wbur.org/hereandnow/2025/09/17/surrogacy-regulation
9 days ago
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From He Jiankuiâs recently announced return to gene editing to Julian Savulescuâs vocal support for âpolygenic editing,â some researchers and philosophers seem intent on trying to push heritable genome editing forward despite global consensus against it.
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'The potential to save trillions': The controversial future of gene editing
The race to advance gene editing tech continues, spurred on by starry-eyed Silicon Valley investors, entrepreneurs and even pronatalists. But it is still deeply controversial.
https://www.abc.net.au/news/2025-09-22/ethics-of-gene-editing-designer-babies/105496228
10 days ago
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Drug companies often discard gene therapies for rare diseases even after successful clinical trials because of the high costs of developing treatments and getting regulatory approval. 1/2
10 days ago
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In a proposed update to its guidelines, the UKâs National Institute for Health and Care Excellence retains its recommendation of three NHS-funded IVF cycles for those eligible under 40 and critiques unproven IVF add-ons. The draft is open for consultation until October 21.
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NICE publishes draft update to Fertility Guideline | PET
Updated NICE draft guidance recommends three NHS-funded IVF cycles for eligible under 40s and recommends against IVF add-ons.
https://www.progress.org.uk/nice-publishes-draft-update-to-fertility-guideline/
13 days ago
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In the past 6 years, several gene-edited animals have been approved for consumption in Japan, the US and several S. American countries. Similar meat products could be sold in Australia without thorough regulatory testing or labels indicating what DNA changes have been made.
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How gene-edited fish and meat are entering our food chains
Disease-resistant pigs, faster-growing fish and heat-tolerant cows are among a new class of animals that are being genetically engineered for the dining table. Similar meat products could soon be sold in Australia without lengthy regulatory testing.
https://www.abc.net.au/news/science/2025-09-17/gene-editing-food-fish-beef-pork-regulations-genetic-engineering/105767960
13 days ago
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By excluding potential gamete donors who are neurodivergent or have a family history of neurodivergence, fertility clinics and gamete banks reinforce societal assumptions that neurodivergence is a deficiency rather than a difference.
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Neurodivergent gamete donors should not be automatically excluded | PET
Categorical exclusion of candidate donors based on neurodivergence by clinics and gamete banks is 'unfounded for value-based and practical reasons', argues Dorian Accoe...
https://www.progress.org.uk/neurodivergent-gamete-donors-should-not-be-automatically-excluded/
16 days ago
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The fertility company Kindbodyâs tech startup approach led to millions in VC and private equity funding, but it came at the cost of good patient care. A new investigative series digs into the unregulated fertility industry and shows what went wrong in Kindbody clinics.
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The human cost of disrupting Americaâs fertility industry.
An investigation into clinical mistakes, staffing crises, and financial pressures at one of Americaâs fastest-growing IVF chains.
https://www.bloomberg.com/features/2025-ivf-disrupted/
16 days ago
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New gene therapies clash with old models of insurance and reimbursementâand patients are paying the price. The US healthcare financial infrastructure can catch up to new gene therapies by treating (and funding) them as essential, lifesaving treatments, not luxuries.
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Opinion: Gene Therapy Should Not Be a Luxury
It can cure deadly diseases, save long-term healthcare costs and transform lives. But the U.S. insurance system still isnât ready to pay for it.
https://www.biospace.com/drug-development/opinion-gene-therapy-should-not-be-a-luxury
17 days ago
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Eliezer Yudkowsky, a Silicon Valley techno-rationalist and âAI doomer,â has been warning of AI âdoomsdayâ scenarios for decades. His new book predicts the death of humanity due to AI, which he hopes can be prevented w/ an âeffective international treaty shutting AI down.â 1/2
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A.I.âs Prophet of Doom Wants to Shut It All Down
Eliezer Yudkowsky has spent the past 20 years warning A.I. insiders of danger. Now, heâs making his case to the public.
https://www.nytimes.com/2025/09/12/technology/ai-eliezer-yudkowsky-book.html
17 days ago
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Jesse Gelsingerâs death from an experimental gene therapy 26 years ago revealed serious misconduct in gene therapy experiments, leading to lawsuits, reviews, and significant changes in how gene therapy trials are conducted. 1/3
www.livescience.com/health/genet...
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Science history: A tragic gene therapy death that stalled the field for a decade â Sept. 17, 1999
Sept. 17, 1999: Jesse Gelsinger died after receiving a gene therapy treatment to treat a liver disease. The death sparked an investigation and caution around gene therapy, which ultimately stalled the...
https://www.livescience.com/health/genetics/science-history-a-tragic-gene-therapy-death-that-stalled-the-field-for-a-decade-sept-17-1999
18 days ago
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The conservative group behind Project 2025 has a new plan for âsaving the American family.â The Heritage Foundation is urging Trump to issue executive orders to institute pronatalist policies that encourage married heterosexual couples to have more children. 1/2
19 days ago
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Chinese scientists transplanted a gene-edited pig lung into a brain-dead man, but the experiment didn't show whether the lung could sustain life on its own. Researchers emphasize how gene edits and animal organs only intensify challenges of already-tricky lung transplants.
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Scientists Perform First Pig-to-Human Lung Transplant
Researchers in China placed a lung from a genetically modified pig into a brain-dead man, with mixed results.
https://www.nytimes.com/2025/08/25/health/lung-transplant-pig-human.html
20 days ago
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Top Republicans, rightwing organizations and even White House officials have recently begun to rally behind ârestorative reproductive medicine,â an alternative to IVF that purports to treat the âroot causesâ of infertility without IVF. 1/2
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Maha is backing this ânaturalâ infertility treatment. Is it the rightâs path to limiting IVF?
Conservatives are promoting ârestorative reproductive medicineâ instead of Trumpâs promise to support IVF. Doctors are worried
https://www.theguardian.com/society/ng-interactive/2025/aug/23/restorative-reproductive-medicine-ivf
20 days ago
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A secret audit of the Queensland Fertility Group, a major fertility clinic in Australia, revealed that 99% of its donor sperm frozen before 2020 was at âhigh riskâ of not being from the person on the label.
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IVF giant ignored warnings it was at 'high risk' of sperm donor mix-ups
For couples undergoing IVF, there is a need to know where the donor sperm came from, but at this fertility giant, there was a 99 per cent chance the sperm was labelled incorrectly.
https://www.abc.net.au/news/2025-09-02/99-percent-donor-sperm-high-risk-queensland-fertility-group/105720904
23 days ago
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Simone Collins, a prominent pronatalist with ties to tech elites and the far right, drafted (with the help of AI) the executive order that pitched pronatalist policies, including the much-discussed âmotherhood medalsâ to the Trump administration.
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Meet the strangest members of Trumpâs inner circle
They have deep connections with secret societies. His brother is in DOGE. And they may or may not be personal friends of Elon Musk. Holly Baxter spends the day with Simone and Malcolm Collins, who believe they can culturally reprogram America â and whose vision seems to be coming true
https://www.independent.co.uk/news/world/americas/trump-musk-ai-pronatalists-collins-b2777577.html
23 days ago
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South Africaâs National Health Research Ethics Council has removed a controversial section on heritable human genome editing from their new research ethics guidelines. 1/2
24 days ago
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An Australian IVF clinicâs sperm bank partner did not perform crucial checks to match the sperm donor with their sample, which led to a couple having a child from an embryo made with the wrong donorâs sperm. 1/2
24 days ago
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Denmarkâs prime minister apologized for the first time for the forced contraception scandal in which thousands of Greenlandic girls and women were fitted with contraceptive coils without their permission or knowledge from the 1960s up to 1992.
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Denmark issues first apology over forced contraception of Greenlandic women
Prime minister admits âsystemic discriminationâ after thousands of girls and women fitted with IUDs without consent
https://www.theguardian.com/world/2025/aug/27/denmark-pm-apologises-over-physical-and-psychological-harm-caused-by-iud-scandal
25 days ago
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The latest review from GMWatch scrutinizes new biotech developments including gene drives, CRISPR babies, lab-grown sperm, and immortality projects. 1/2
about 1 month ago
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A recent grad from George Church's lab has co-founded a startup, which has raised over $2M, to continue attempts at in vitro gametogenesis. They claim they'll "get to an egg in two years," but other researchers foresee complex problems ahead ââ or a potential "dead end."
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George Churchâs lab gets closer to creating human eggs in a dish, and a new startup plans to finish the job
Harvard's George Church lab advances toward creating eggs from adult stem cells, with Merrick Pierson Smela leading research now at Ovelle Bio startup. CEO Travis Potter aims for viable eggs by 2027.
https://endpoints.news/george-churchs-lab-gets-closer-to-creating-human-eggs-in-a-dish-and-a-new-startup-plans-to-finish-the-job/
about 1 month ago
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From designer babies to designer(-ish) jeans, it seems weâre now on the verge of a eugenics gold rush. 1/2
about 1 month ago
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A recent podcast episode demonstrates how high healthcare costs in some countries influence womenâs choices to travel to other countries to freeze their eggs. It also raises questions about the fate of far-away frozen eggs in the future, as most frozen eggs go unused.
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Podcast Review: Why British women are freezing their eggs abroad | PET
Through the personal account of a journalist who froze her eggs abroad, this Guardian podcast explores egg freezing and fertility tourism.
https://www.progress.org.uk/podcast-review-science-weekly-why-british-women-are-freezing-their-eggs-abroad/
about 1 month ago
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As job applicants and employers use AI in the hopes of speeding up job search and hiring processes, many are concluding that it is actually in-person human interaction that leads to better outcomes.
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Can't get hired for a job? It's time to apply like it's 1999.
In a hiring process exhausted by AI, it's time to apply to jobs like it's 1999. Old-school paper resumes and in-person interviews are back.
https://www.businessinsider.com/hiring-process-ai-paper-resumes-in-person-job-interviews-2025-8
about 1 month ago
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Professor of health policy and bioethicist Leigh Turner explains how professional athletesâ use and promotion of experimental stem cell treatments lend credibility to unproven, often risky procedures â a concerning trend in a political climate encouraging deregulation.
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Stem Cells, the NFL, and RFK Jr. -- What Doctors Need to Know | MedPage Today
Leigh Turner, PhD, explains the evidence gap and how athletes fuel risky markets
https://www.medpagetoday.com/publichealthpolicy/stemcellresearch/116894
about 1 month ago
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Media coverage of pronuclear genome transfer (sometimes called âmitochondrial donationâ) celebrated that the children were born âhealthy,â overlooking both present unknowns about mitochondria in their organs and future risks that they may develop mitochondrial disease.
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We Donât Know if the Babies Born From Mitochondrial Replacement Therapy Will Still Develop Mitochondrial Disease - Journal of Medical Ethics blog
By Katherine Drabiak Recently, media outlets around the world have been reporting on children born from pronuclear genome transfer (sometimes called â3-parent IVF,â âmitochondrial donationâ or âmitochondrial replacement therapyâ) at Newcastle Fertility Center in the United Kingdom. Twenty-two women underwent the procedure, which resulted in eight children, who now range in age from six months to over two [...]Read More...
https://blogs.bmj.com/medical-ethics/2025/08/07/we-dont-know-if-the-babies-born-from-mitochondrial-replacement-therapy-will-still-develop-mitochondrial-disease/
about 1 month ago
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The Nuffield Council on Bioethics is conducting a major public dialogue to explore public views and priorities on potential changes to the 14-day rule on human embryo research.
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If itâs time to revisit the 14-day rule, itâs also time to engage the public - Nuffield Council on Bioethics
Molly Gray, Public Engagement Manager at the Nuffield Council on Bioethics, introduces our upcoming public dialogue and discusses the importance of engaging the public in conversations around the 14-day rule for human embryo research.
https://www.nuffieldbioethics.org/news-blog/if-its-time-to-revisit-the-14-day-rule-its-also-time-to-engage-the-public/
about 1 month ago
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With the federal governmentâs recently announced decision to terminate grants funding mRNA vaccine research, the implications of RFK Jr.âs dangerous and unfounded vaccine skepticism have become global and long-term.
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Cancelling mRNA studies is the highest irresponsibility
Nature - The rest of the world is not following the US governmentâs dangerous path, and will stick with the technology that helped the world out of the COVID-19 pandemic.
https://www.nature.com/articles/d41586-025-02612-9
about 1 month ago
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A new report published by the National Womenâs Law Center explores âthe pronatalist movement, their history of eugenics and racism, the Trump administrationâs concerning ties to the movement, and what we should be doing instead to support women and families.â
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Baby Bonuses and Motherhood Medals: Why We Shouldnât Trust the Pronatalist Movement - National Women's Law Center
To download the full issue brief, click here. INTRODUCTION Baby bonuses. Motherhood medals. Fertility tracking. You may have heard of these policy proposals as solutions from the Trump administration to help encourage women to have more children. Besides falling short of ensuring that people have what they need to raise a family, these ideas have [âŚ]
https://nwlc.org/resource/baby-bonuses-and-motherhood-medals-why-we-shouldnt-trust-the-pronatalist-movement/
about 1 month ago
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Some Silicon Valley parents are increasingly enamored with technology that purports, without convincing evidence, to give them âsmarter babies.â Some are willing to pay upwards of $50,000 for technologies that claim to screen embryos for IQ.
www.wsj.com/us-news/...
about 1 month ago
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Silicon Valleyâs âRationalists,â w/ links to effective altruism and AI gambits, operate as a fundamentalist techno-religion, convincing adherents to âignore their common sense about problems in the here and now in order to focus their attention on some fantastical future.â
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The Rise of Silicon Valleyâs Techno-Religion
The Rationalists, a community focused on the risks of artificial intelligence, regularly gather with tech figures and other like-minded people in a complex that covers much of a city block.
https://www.nytimes.com/2025/08/04/technology/rationalists-ai-lighthaven.html
about 1 month ago
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The birth of the âworldâs oldest babyâ from a 30-year-old frozen embryo shows how reproductive technologies are changing how society understands identity, genetics, family, and time â and the need for regulations to help manage these significant shifts.
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Worldâs âoldest babyâ: what a 30-year-old embryo tells us about the future of fertility
A baby was born from a 30-year-old frozen embryo, raising questions about fertility, family and the future of donor conception.
https://theconversation.com/worlds-oldest-baby-what-a-30-year-old-embryo-tells-us-about-the-future-of-fertility-262754
about 1 month ago
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The biotech company Gameto has raised millions in venture capital funding to test its technique for maturing eggs outside the body, using stem cells that have been engineered into ovarian support cells. 1/2
about 1 month ago
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GMWatch has published a series of interviews conducted in March 2002 with the late scientist Dr. Arpad Pusztai. He describes the results of â and the political fallout from â his landmark 1999 study that found GM insecticidal potatoes had toxic effects on rats.
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GMWatch publishes historic recordings of scientist Arpad Pusztai
Dr Pusztai describes the results of â and the political fallout from â his landmark 1999Â study that found GM insecticidal potatoes had toxic effects on rats
https://gmwatch.org/en/106-news/latest-news/20584
about 1 month ago
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Ethics committees in Denmark allowed genetic data collected at birth from 150,000 Danish people born b/w 1981-2008 to be used in research studies on psychiatric disorders without those individualsâ knowledge or consent. 1/2
about 1 month ago
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Despite objections from parents and advocacy groups and the varied outcomes children with trisomy 13 and 18 experience, healthcare providers are frequently trained to think of these conditions as âuniformly lethalâ and to withhold care. 1/6
about 1 month ago
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The UK Parliamentary Office of Science and Technology announced plans to publish a POSTnote â a briefing document for members of Parliament â based in part on stakeholder submissions on surrogacy law in the UK and internationally. 1/2
about 2 months ago
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A proposed update to embryo model research guidelines would advise scientists not to use human embryo models for ectogenesis â the development of an embryo outside the human body via the use of artificial wombs. Are voluntary guidelines sufficient?
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Could stem cells be used to create life without sperm or egg? Not yet, but hereâs why scientists are concerned | CNN
Lab grown models of embryos, made from clusters of stem cells, are getting increasingly complex. Ethicists, regulators and legal specialists are scrambling to keep up with the pace of research.
https://www.cnn.com/2025/07/30/science/human-embryo-models-stem-cells-ethics
about 2 months ago
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American Eagleâs ad campaign attempts to boost their flagging sales by appealing to a dangerous and popular âall-Americanâ ideology: eugenics.
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Sydney Sweeney knows what she's doing
American eugenics has always been a marketing campaign in search of an audience
https://www.salon.com/2025/07/31/sydney-sweeney-knows-exactly-what-shes-doing/
about 2 months ago
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Trumpâs attempts to end birthright citizenship seem unlikely to survive legal challenges, but UK intended parents w/ ongoing surrogacy arrangements in the U.S. are preparing for possible legal issues that would result for their U.S.-born children if Trump were to succeed.
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Bid to end US birthright citizenship impacts UK parents through surrogacy
President Trump has signed an Executive Order to end birthright citizenship for babies born in the USA to foreign-citizen parents...
https://www.progress.org.uk/trumps-bid-to-end-birthright-citizenship-the-effect-on-uk-parents-through-surrogacy/
about 2 months ago
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Ads donât just sell products; they sell values. American Eagleâs ad campaign isnât just selling jeans, itâs also selling eugenics, race, and genetic determinism.
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Diagnosing Bias: Eugenics and the American Eagle Jeans Campaign | MedPage Today
How the Sydney Sweeney controversy relates to medicine
https://www.medpagetoday.com/Apopmedicine/popmedicine/116839
about 2 months ago
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With Trumpâs support for IVF fizzling, conservative anti-abortion groups and MAHA fans hope heâll fund ârestorative reproductive medicineâ instead. 1/2
about 2 months ago
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Researchers and conservationists have made their skepticism â or outright rejection â of Colossal Biosciencesâ de-extinction claims clear. Colossal's combative responses to critiques undermine their repeated reassurances of their respect for scientific research and scrutiny.
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This company claimed to âde-extinctâ dire wolves. Then the fighting started
Nature - Colossalâs bold announcements have drawn criticism from many scientists, but the billion-dollar firm is not backing down.
https://www.nature.com/articles/d41586-025-02456-3
about 2 months ago
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