I’m once again weighing the poor options on Georgia’s healthcare website. Only HMOs. There’s one with “$0 insulin options” in the name of the plan. I looked at the formulary…. there are no $0 insulins listed. 🤔

I need to shower. So far all I’ve done is take off my pants and lay on my bed while staring at the ceiling for an hour.

I’m the first patient at my endo clinic to use the twiist. I had an appointment today and my endo was so impressed with my results. I am too! Average glucose is 123. It’s only been about a month, and I keep getting good results. 90% TIR!

I have an appointment today at 3:40. At 3:10 they sent me a text to ask if I’m in the waiting area yet. Seems a little aggressive. I mean, I WAS there but only because I budgeted more time for traffic than I needed.

If anyone is looking for diabetes Barbie, target has them in stock online for $5.

Idk what it is, but something is making me vomit. And I’m itchy. Last time I puked this hard I ended up in the hospital with an intractable headache. I went to the ER then bc my head hurt so bad *something* had to be wrong. Neurologist is pretty sure I’m leaking CSF, and I’m scared to make it worse.

I don’t get hungry often. I’m usually pretty nauseated at this time of day. I’m confused. What is my body doing? Do I feed it? I’m so bad at being a functional human.

I’m not sure how the combination of videos I’ve been watching has generated the ads, but the only ones I see are “fuck the democrats” or ads for children’s toys. Occasionally one for the FNAF 2 movie. And when it thinks I’m not paying attention it’ll give me 2 hour televangelist sermons.

Fucking hell. I go to reorder my pump supplies for the first time and I’m told I need a PA. They’re gave me one in September. “Sorry, the insurance isn’t letting it go through. It needs a PA.” Fuckhead on the phone won’t even try to do anything.

Someone needs to make a case or clip for the twiist that makes it look like a pocket watch. I think it would look pretty neat.

How do I know my depression is coming back for real, for real? I’m craving spicy food. I hate spicy food. I don’t think my food should hurt, and I’m very sensitive to spice. Until I just bought hot sauce there was none in the house at all.

I didn’t want to change my pump site tonight but my damn cat chewed my tubing.

I had a myelogram yesterday. They stuck a 4” needle into my spine. They said I’d have some “mild discomfort” today and just take some Tylenol. Y’all, it hurts a LOT. I’m remembering, about 24 hours late, that injected lidocaine takes forever to kick in for me. I should’ve mentioned it. I forgot.

Today at work the techs were talking about how none of us have gotten any emails about open enrollment to our company’s insurance. Turns out HR didn’t send it because none of us can afford it. $900/month.

Atlanta weather is so not for real. What do you mean the high tomorrow is 39, but we’ll be back to 70 by the weekend? Be serious.

Literally nothing that helps diabetes has ever helped me as miraculously as others. I’m on a high-dose glp-1 but have the same insulin needs. It just works more reliably. Basal IQ and Control IQ both sucked for me. It’s early days still, but I have 91%TIR with twiist so far. I could cry.

I never talk about my insulin usage, but I feel like I have to. My TDD while on MDI was around 200u. Sometimes more. Letting this pump call the shots (!) today I used 120u and keep going low.

I ate half a tub of cake frosting last night.

I started my twiist pump today! How long until my brain stops telling me to take my basal shot every night?

My biggest concern with going back to work after weeks off for my headache (still without answers or treatment) is people expressing their concern for me. I hate being perceived at all and concern makes me uncomfortable.

I found the diabetes Barbie today. With deals it came to a little over $8. I have zero kids in my life, so as toys go on sale this season I plan to donate as many as I reasonably can. I’m not a JDRF fan but I am a fan of representation.

OH MY GOODNESS I COMPLAINED AND NOW I FOUND IT!!!

I hardly ever eat out, except for the same 4 places I trust. I met a cousin for lunch 45 minutes from home, away from my usual places. The waitress seemed really knowledgeable about their gluten situation. I had to stop 8 times to throw up on the side of the road going home. 😩

I’ve been feeling awful. I hurt. I’m tired. I’m dizzy. I don’t want to eat and I’m always nauseated. I’ve lost about 5%of my body weight in a week. I hate everything.

Here it is.

In no order, a list of beverages I get nostalgic for: Hi-C Ecto Cooler Diet Coke with Splenda Diet Lime Coke Pepsi One Diet Grapico (no longer sold near me) Surge Every variant of zero sugar Mountain Dew I’ve had exactly once and never again.

@shnoune.bsky.social your team is being mean to my team.

I’m not saying that complaining on the internet is always the right choice. I am saying that under *some coincidence* after posting a scathing review of the twiist insulin pump rollout under their ads, mine is being shipped tomorrow.

Me: awesome! Novofine needles don’t give me welts like the stupid BD needles! Novofine: well now I’m not going to make them anymore. 😑

Out of the hospital, back on insulin!

I’m just complaining. Monday night got admitted to the hospital from the ER. I’m still here. They haven’t given me any long acting insulin. They won’t give me insulin for carbs. Only blood sugar. I can’t speak with the ordering physician. Since Monday morning I have eaten 1 apple and 1 orange.

Can I please have a body that isn’t CONSTANTLY doing stupid shit? I really don’t know how I’m supposed to keep functioning for another month with this headache, from a suspected csf leak. Everything hurts and I want to throw up.

I don’t go to work today. I slept through my alarms, plural. I slept until 2PM when I went low. My dog hates the Libre alarms so I got up. Ate, back to sleep. My whole body still hurts. The only things getting me through are puppy dog cuddles and kitty purrs.

2 days ago I was vomiting harder than I ever have in my life. My whole body still hurts. I just traveled by plane from Pittsburgh to Atlanta and my head is threatening to implode. And spine. If I DO have a csf leak I probably made that worse. I’m feeling ragey that I have to show up to work tomorrow

I think there was gluten in my gluten free dinner last night. I started throwing up violently after eating it. My blood sugar decided to plummet to 44 and I thought that was going to be it for me. I’d swallow a Smarties candy and it would come back up. Thankfully I’m alive, but quite unhappy.

I was at a football game today and there was a boy about 2 years old sitting behind me. He kept asking his dad what my Libre was, but dad didn’t know. Eventually I turned around and told him I have diabetes and the thing on my arm helps me stay healthy. His mother looked mortified.

I’ve always had a pretty good sense of smell, but I’ve hit a new thing: I can smell when my mother has an upset stomach. I can smell the extra stomach acid/gasses when she has indigestion. What in the actual heck is that about?

I did a half day at work and then went to a neurologist for my constant headache. He’s pretty sure it’s a csf leak. Fantastic. This still isn’t the worst birthday I’ve had, but people keep saying “and on your birthday?!?” like my body cares.

I gave 63 vaccines today. I’m so grateful my past self decided to buy a ring splint for my index finger. The first joint tends to bend back too far, and doing that many shots without the splint hurts. It was mostly nice old folks today. Kindness makes a difference. 🙂

I’m fine, I was just a little distracted by the group of senior citizens gathered around a piano singing “Puff the Magic Dragon.”

I’ve had a few MRIs at the “creepy” satellite Emory location. I believe it used to be a full hospital, but everything is closed except the MRI, which is in the back of the building. All the furniture is still in the offices, but the lights are off and everything is locked. 1/3

For the past 2 days or so my dog has been doing this thing where if I lay down, she’ll put her paws on my chest with weight. Then if I try to move her or myself she’ll lay her face across my throat. I have no idea what this is about. Related (?) I’ve been feeling extra POTSy this week.

I did about 40 flu shots today. I’d forgotten how much I actually like interacting with (select) elderly folks. One woman patted my hand and told me I was doing such a good job after I did her shot. 🥹

I’m conflicted. I’m supposed to go to a flu clinic at an assisted living facility on Monday. I like going. I even like poking old people, even though I hate touching. But my head has been hurting so, so bad. Thursday I drove to Atlanta and back, plus went to 2 stores, and Friday it hurt so bad…

My insurance got its act together and will now cover both the starter pack AND the refills for the Twiist. Just in time for my endo appointment on Thursday!

Me (to my mother): oh my god, am I turning into you? Well, I guess there are worse things. I could be turning into a republican.

Waiting for test results sucks.

I have an mri scheduled for tomorrow. Insurance approved and everything! I’m a little worried about how my head will feel after being stuck in a clanking metal tube.

This is the 3 week mark of having the same headache. I saw a PCP Friday and I’m supposed to get an MRI. Right now everything just sucks. I feel like my blood sugar is low, but it isn’t. My legs are sweating under a blanket but feel cold (not to touch, just sensation). I want my body to work, pls!

After my last relationship I took time to figure out what I actually like, to get comfortable with myself before trying to add someone else into the mix. It was uncomfortable at first. I took myself to dinner. No phone, no other person. I went shopping alone. Made my own decisions about everything.