Moved into a new apartment closer to our family, friends, and my doctors yesterday! 😄🙌🏻🙌🏻🙌🏻🎉🎉🎉❤️ #Apartment #NewApartment #Moved #MovedToANewApartment #MovedIntoANewApartment #CloserToMyFamily #CloserToMyFriends #CloserToMyDoctors #MovedToANewApartmentCloserToMyFamilyFriendsAndDoctors

Had a scare yesterday and had to go to the ER. Was having chest pain, a fever, and lots of excess saliva in my throat. And they took a chest x-ray, drew some blood, and gave me some IV fluids. And everything came back normal except for a couple of my blood draws. But I didn’t have to stay… (1/2)

LOL This is so weird. There I Ruined It just created Creed singing Rudolph the Red-Nosed Reindeer. And I’m not sure if I find it funny, or creepy in a weird, icky way. 😂

Happy Thanksgiving everyone! I am so thankful for a lot of things this year. For God and Jesus and everyone else up in heaven, for the fact that I’m alive here on earth, for the fact that I am able to still do what I can do despite my syndrome, for my immunoglobulin infusions and infusion… (1/?)

Wearing bras and trying to find bras that fit really stinks. #Bras #WearingBras #IHateBras #FindingBrasThatFitIsHard

Had a nice visit with my former PT this morning. I loved her so much, she helped me so much, she was so nice and kind and caring and actually took the time to understand my syndrome and how it affects me. And because of that, she was such an angel and a blessing to me that we’re staying in… (1/3)

Gettin’ ready to go to sleep now. Nite everyone! Love you! Sleep well and have peaceful, lovely, happy, dreams! 😴💤🛌🌃🌙✨

#JoshGroban #LittleDrummerBoy #FirstJoshGrobanSongIEverHeard #JoshGrobansLittleDrummerBoyIsWhatHelpedMeBecomeAGrobanite #Grobanite #JoshGrobanFan #FanOfJoshGroban

Winding down to get ready to go to sleep now. Sweet, peaceful, happy dreams everyone! Love you guys! 😴🛌🌃🌙✨

Today is Transgender Day of Remembrance, an annual observance on November 20 to mourn and honor the lives of transgender and gender-diverse individuals who have been lost to anti-transgender violence and hatred. So let’s all take a moment to remember and honor all the transgender and gender- (1/?)

Getting ready to go to sleep now. So goodnight everyone! Love you guys! Sleep well and have sweet, peaceful, happy dreams! 😴💤🛌🌃🌙✨

I love this so much. 🥰 www.facebook.com/share/p/1CL8...

Winding down to get ready to go to sleep. So goodnight everyone! Love you guys! Sleep well and have peaceful, lovely, happy dreams! 😴💤🛌🌃🌙✨

Winding down to get ready to go to sleep. So goodnight everyone! Love you guys! Sleep well and have sweet, peaceful, happy, loving, dreams! 😴🛌🌙✨

This is so true. www.instagram.com/p/DQuYEfKEsh...

Happy happy HAPPY birthday to Tariqh Akoni, a really cool music director, guitarist, and songwriter who has been working for my absolute favorite singer, Josh Groban, for about 20 years. 🥳🎂🎈🎁🎉 I hope you had an awesome day! You rock, Tariqh! 🎶🎼🎧🎸🤘🏻❤️ And here’s to another 55 more years on… (1/2)

This is amazing. A big win for same-sex marriage. I love it so much! Because love is love! 🏳️‍🌈🩷❤️🧡💛💚🩵💙💜🖤🩶🤍🤎 #LGBTQ #SameSexMarriage #LoveIsLove

Today’s Veteran’s Day, a day to honor all who have served in the U.S. Armed Forces, both living and deceased, for their patriotism, service, and sacrifice for the country. 🇺🇸❤️🫡 So let’s all take a moment to thank all the brave men and women of the U.S. who have served in our military. Thank… (1/2)

Happy happy HAPPY 56th birthday to Sesame Street, one of the greatest shows on TV. It’s fun, entertaining, cute, AND educational, which is awesome. AND it was created by one of my favorite people, Jim Henson. 🥳🎂🎈🎁🥰 And here’s to 56 more years of fun, entertainment, cuteness, and education… (1/2)

Getting ready to go to sleep soon. So goodnight everyone. Love you guys. Sleep well and have sweet, happy, lovely, dreams! 😴💤🛌🌃🌙✨

Winding down to get ready to go to sleep now. Goodnight everyone! Love you guys! Sleep well and have sweet, happy, peaceful dreams! 😴💤🛌🌃🌙✨

Ok guys, I should let you know this. We had to put my cat to sleep because she was doing horrible. It was so sad. She had been eating and drinking somewhat, which was good, but on Sunday it got to the point where she wouldn’t eat at all anymore, was basically skin and bones, didn’t even… (1/?)

Guys, today is my birthday! Woohoo!!! 🥳🎂🎈🎁🎉🙌🙌🙌 #Birthday #MyBirthday #TodayIsMyBirthday #HappyBirthdayToMe

Congratulations to the Los Angeles Dodgers for winning the World Series for the second year in a row! 🙌🏻🙌🏻🙌🏻🏆⚾️ www.facebook.com/share/p/1BVS...

Happy Halloween to all my friends on here who celebrate it. Hope you have a fun, spooky day! 🎃👻🧟‍♀️💀🕸️🕷️🧟‍♂️👹 #Halloween #Halloween2025 #HappyHalloween

Winding down to get ready to go to sleep now. So goodnight everyone! Love you guys! Sleep well and have sweet, peaceful, happy dreams! 😴💤🛌🌃🌙✨

Guys, if you can donate to my fundraiser, please do. Because I, and many other people have Stiff-Person Syndrome, and it’s an absolutely horrible syndrome. And we desperately need a cure for it. So any amount of money donated to my fundraiser will contribute… (1/2) www.facebook.com/donate/81674...

Today is National First Responders Day, a day on October 28th to honor the brave men and women who are the first to arrive at the scene of an emergency. The day recognizes police officers, firefighters, EMTs, paramedics, dispatchers, and other public safety and public works professionals for… (1/3)

Winding down to get ready to go to sleep now. So goodnight guys! Love you! Sleep well and have sweet, happy dreams! 😴💤🛌🌃🌙✨

Hey guys, I have a favor to ask. For anyone who prays, can you please pray for my cat Bluebell? She is not doing well. She’s barely eating, is getting skinny, and isn’t cleaning herself like she used to. #Pray #Prayer #Prayers #AskingForPrayers #AskingForPrayersForMyCat… (1/2)

Today is Intersex Awareness Day, and this week is Intersex Awareness Week, a day and week to raise awareness of the issues faced by intersex people, including discrimination and unwanted medical interventions. And it aims to end the stigma, secrecy, and shame surrounding intersex variations… (1/3)

Getting ready to go to sleep now. So goodnight everyone! Love you all! Sleep well and have sweet dreams! 😴🛌🌃🌙✨

I love Jeff Dunham and Peanut so much. ☺️💖

Fun fact about the 70’s TV show Emergency!: The first episode of it aired on January 22nd, 1972, and its final episode first aired on May 28th, 1977. And it aired on NBC every Saturday night from 8-9pm. And there was a total of 123 episodes of it. #Fact #FunFact #FactAboutEmergency (1/2)

Had a great day today! Got dressed earlier than usual, got into my wheelchair, and went outside! And we maneuvered my headrest and I used a different neck pillow which helped better, I had Biofreeze on my bottom which helped even more, and I took extra strength Tylenol which most likely… (1/2)

Had a great day today! Got into my wheelchair and went outside and drove around for a little while! And even though it hurt, I still did it! ☺️ #StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #HadAGreatDayToday #GotIntoMyWheelchair #WentOutside #DroveAroundOutsideForALittleWhile

Guys! There’s only 2 weeks left until my birthday! I’m so excited! 🥳🎂🎈🎁🎉💖 #Birthday #MyBirthday #TwoMoreWeeksUntiMyBirthday #MyBirthdayIsNovember4th #ImSoExcited

Great words and a great symbol that the world needs to hear and see right now. ☮️🩷❤️🧡💛💚🩵💙💜🖤🩶🤍🤎💖💗💕💓💞💟♥️🚫 🪖 🔫⚔️ #Peace #PeaceSign #MakeLoveNotWar

Happy happy HAPPY birthday Abby! Hope you have an awesome, magical, sparkly day with all your family and friends! 🥳🎂🎈🎁🎉✨ www.instagram.com/p/DQErDNLDei...

Ok, going to start getting ready to go to sleep now. So goodnight everyone. Sleep well and have sweet dreams. 😴💤🌃🛌🌙✨

My birthday is coming up, so I’m asking for donations to The Stiff Person Syndrome Research Foundation for my birthday since I have Stiff-Person syndrome. www.facebook.com/share/p/1AjD...