Our Family Retreat 2025 was full of joy, learning & connection. As we celebrate Black History Month, we also celebrate the unity this event fosters. A big thank you to @miffy_uk for bringing smiles to the children! ❤️🐰 #FamilyRetreat #SickleCellSociety #BlackHistoryMonth #Miffy

🏃🏿 Last reminder! Join Team Sickle Cell for the 2026 TCS London Marathon and help raise vital funds for people living with sickle cell. 🗓️ Applications close 31 Oct — don’t miss out! 🔗 www.sicklecellsociety.org/london-marat... #LondonMarathon #TeamSickleCell #RunForACause

⏰ Final days to sign up! North-East London sickle cell patients aged 14–21 — join our emotional wellbeing group session on 10 Oct, 5–6:30pm. Share your experiences & help shape transition support.🔗 bit.ly/groupscyp #SickleCell #YouthVoice #NELondon

A huge thank you to Amaka & Amina from Deutsche Bank for hosting our CEO John James and NCL Lead Mentor Temitope for a brilliant Sickle Cell Awareness event & panel discussion. We appreciate Deutsche Bank’s continued support! #SickleCellAwareness #SickleCellSociety

Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters. 🗓️ Complete the survey by 31 Oct: 🔗 tinyurl.com/bdhzdmfz #SickleCell #PIP #PatientVoices #SickleCellSociety

We’re delighted to welcome Dr Matthew Sowemimo as the new Chair of our Board of Trustees. With decades of experience in health & social justice, his leadership will help shape the next chapter for the Society. Excited for what 2026 will bring! #SickleCellSociety

🩸 Last call to have your say! Help shape the Top 10 research priorities for sickle cell & genomics in our shortlisting survey. ⏳ Closes 14 Oct 📩 Link: www.surveymonkey.com/r/YVHCF5Q #SickleCell #Genomics #HaveYourSay

Happy Black History Month! This October we’re celebrating the many forms of support that strengthen the sickle cell community — and thanking everyone who makes our work possible. We’ll also be spotlighting events & programmes across the month. #BlackHistoryMonth #SickleCellAwareness

📚✨ BOOK GIVEAWAY ✨📚 We’re giving away a copy of The Secret Diary of Joynina K. Jones by Antoinette Brooks for you and a friend 🎉 Perfect for 8–11 year olds. 🎉 Perfect for 8–11 year olds. 👉 Head to our Instagram @SickleCellUK to enter! Closes 10 Oct. #BookGiveaway #JoyninaKJones

✏️ Author Antoinette Brooks has shared 10 top tips for teachers supporting children returning to school — especially those navigating health challenges. Read her advice in the article linked here: buff.ly/GB4wCt0 📖✨ #JoyninaKJones #TeacherTips #BackToSchool #SickleCellSociety #EmotionalGrowth

🎓✨ North East London sickle cell patients (15–18): Join our online Transition Workshop! 📅 Thu 25 Sep, 5–6:30PM Topics: rights, uni/career next steps, patient stories & managing anxieties. 👉 Sign up: bit.ly/sicklefuture #SickleCellSociety

✨ Get to Know the Author ✨ We spoke with Antoinette Brooks about her life and the journey of writing The Secret Diary of Joynina K. Jones—from inspiration to the importance of talking about sickle cell. 📖❤️ #JoyninaKJones #AuthorSpotlight

📢 Last chance to apply! We’re hiring a Mentoring Programme Coordinator to support mentors & young people living with sickle cell. 🗓 Applications close 29 Sept 🔗 Apply via link in bio #Hiring #JobOpportunity #SickleCell #CharityJobs #Mentoring

🩸 Martha’s Rule lets patients & families request an urgent review if concerns aren’t being heard. A short survey has been developed to capture awareness among people with sickle cell. 📩 Take part: forms.cloud.microsoft/r/NTpySfPxVN #SickleCell #MarthasRule

On 4 Sept, we held a parliamentary meeting with patients & medical professionals to discuss updates in sickle cell care. Thank you to Bell Ribeiro-Addy MP & all who joined. We aim to host these more regularly. #SickleCell #HealthEquity #Parliament

🩸 Have your say! Help shape the Top 10 research priorities for sickle cell & genomics in our new Shortlisting Survey. 📩 Take part: www.surveymonkey.com/r/YVHCF5Q ⏳ Closes: 14 Oct 2025 #SickleCell #Genomics #ResearchPriorities #PatientVoices

🩸 Join us on 17 Sept, 11:45am–12:45pm for a Sickle Cell Awareness Month webinar hosted by LGT MIN. Speakers include John James OBE (@SickleCellUK), LGT clinicians & mental health staff.📍 Online (Teams) buff.ly/EWxg5h1 #SickleCellAwareness #SickleCell

🩸 Last call! We’re looking for two Barts NHS patients with sickle cell to join a Patient Committee for Our Journey, Our Story, soon at Royal London Hospital. 📩 Apply by 11 Sept: [email protected] (Please note: Barts patients only) #SickleCell #BartsNHS

🚨 Group blood donation bookings are now nationwide! 🩸 Black donors are urgently needed to support people with sickle cell. Join friends, colleagues or community groups at upcoming sessions. 🔗 Book: www.blood.co.uk #GiveBloodSpreadLove #SickleCell

📢 We’re hiring! Join us as Mentoring Programme Coordinator and help support young people living with sickle cell. Apply today 👉 www.sicklecellsociety.org/paid-vacancy... #Hiring #CharityJobs #SickleCell

🏃🏿The countdown is on! Join Team Sickle Cell at the 2026 TCS London Marathon and make every mile matter. Run for a cause. Run for sickle cell. 👉🏿 Register today: www.sicklecellsociety.org/london-marat... #LondonMarathon #TeamSickleCell #CharityRun #RunForACause #SickleCellAwareness

🩸 Help Shape an Exhibition About Sickle Cell! We’re inviting @NHSBarts patients with sickle cell to join a Patient Committee for Our Journey, Our Story, soon to be displayed at Royal London Hospital.📩 Apply by 11 Sept: [email protected] #SickleCell

📣 Join us on Tue 26 Aug at Manor Park Methodist Church Herbert Rd, E12 6AY for our NEL Sickle Cell Transition Co-creation Day! Patients (12–24) & parents — share your voices, help shape resources & hear from experts.🔗 Sign up: bit.ly/level-up-day #SickleCell #TransitionCare

Help shape sickle cell & infections research! 🧪We’re looking for people 18+ living with or caring for someone with sickle cell to join our patient & public involvement group. 🔍 Scan the QR code or visit: bit.ly/3JeARkF 📧 [email protected] #SickleCell #Research

On 17 Aug, our CEO John James & volunteers Brenda & Sophie joined Emancipated Run Crew for their annual Pre-Carnival 5K in Notting Hill 🎉 Huge thanks to ERC for supporting the Sickle Cell Society & our Give Blood, Spread Love campaign ❤️🩸 #ERC #PreCarnivalRun #GiveBloodSpreadLove #SickleCellSociety

A huge thank you to Charles Sam for organising the Windrush Trophy golf competition (@windrushtrophy) and raising an amazing £2,500 for us! ⛳💙 Your support makes a real difference to the Sickle Cell community. 🙌🏾 #WindrushTrophy #SickleCellSociety #Fundraising

Aged 10–24 & living with Sickle Cell in NW England or South Yorkshire? Join our Peer Mentoring Programme for support, guidance & 1-2-1/group activities. 📧 [email protected] #SickleCell #PeerMentoring #YouthSupport

Our Comms team joined @BAMREF’s 4th Annual Conference at Notts County FC on 20 July. A powerful day of food, workshops & EDI discussions in football. Thanks to Darren, sponsors & all involved! #BAMREF2025 #EDIinSport #RefereeDiversity #SickleCellSociety

📢 Helpline Closure. Please note that our helpline will be closed on Monday 28 July and Tuesday 29 July 2025. For any urgent enquiries during this time, please email [email protected]. Our helpline team will return on Wednesday 30 July 2025. Thank you for your patience.

Huge thanks to the African Caribbean Business Alliance for hosting a fantastic quiz night on 16 July, raising over £6K for the Sickle Cell Society! Our CEO John James was honoured to attend. Your support helps us make a real difference. #SickleCell #ACBA #Fundraising

Parliamentary Update.On 22 July, Kate Osamor MP raised a question on funding for sickle cell research & workforce. The Minister reaffirmed NIHR welcomes funding bids for all health areas incl Sickle Cell.Contains Parliamentary info licensed under the Open Parliament Licence v3.0

We're supporting a paid opportunity for people with lived experience of sickle cell or thalassaemia to join a working group to improve school support. Sessions run online from Sept 2025 to Jan 2026. Deadline to register is 8 August. Sign up: shorturl.at/SVMki

Join Team Sickle Cell at Tough Mudder 2025 💪 Choose a 5K or 15K obstacle course at one of 14 events and raise awareness for those living with sickle cell. Medal, T-shirt, headband, drink & parking included. 🔗 Sign up: www.sicklecellsociety.org/tough-mudder #ToughMudder #SickleCell

A month on from #WorldSickleCellDay, we’re reflecting on some incredible events: from Royal London & Central Middlesex to Sheffield with SYSCO. Thank you to all who helped raise awareness. #SickleCellAwareness #ACTNOW #SickleCellSociety

As we gear up for more races, we're celebrating our amazing London Marathon runners from April! 🏁 Thank you for your strength, support, and dedication to the Sickle Cell Society. London 2026 spaces pending… stay tuned! #SickleCell #TeamSickleCell #LondonMarathon

📢 Join us as a Community Support Worker Lead in North East London for the Sickle Cell Society's Home from Hospital project. Apply by 4 August 2025. 🔗 More info & application: buff.ly/ezpj7Cm #SickleCell #NowHiring #NEL #SupportWorker #CommunityHealth #SickleCellSociety

🧘🏾 Join us for a FREE North East London Wellness Event for sickle cell patients! 🗓️ July 11 | 🕕 6–7:30PM 📍 Stratford Hub, E15 2LS 💆🏾Focus: Sleep Better w/ Aromatherapy 🔗 More info & eligibility buff.ly/bjSefxE Please read the form before registering 💛 #SickleCell #NELondon #WellnessEvent

The UK can lead in rare disease innovation—with long-term investment and a united approach. ⏳ Our CEO John James contributed to @lifearc & @GeneticAll_UK’s new report on how we can #ChangeTheRareFuture. Read more: www.lifearc.org/rd-report?ut...

🏃🏿 Huge shoutout to Tyler, who ran the Finsbury Park Half Marathon on 15 June 2025 and raised £650 for the Sickle Cell Society! ✊🏿🩸 Want to keep supporting or read his story? 🔗 buff.ly/vGQ0GcJ #SickleCell #Fundraising #ThankYouTyler #SupportSickleCell

🩸 Make Work Fair for People with Sickle Cell. Meet Benji, sharing why the new Early Day Motion matters. Too many face unfair treatment at work. ✅ Recognise sickle cell as a disability ✅ Train employers ✅ Improve support 📝 Write to your MP: www.sicklecellsociety.org/wscd25/ #SickleCell

📢 We’re hiring a Lead Mentor & Community Projects Coordinator in North East London. Work with families, NHS support groups & mentoring teams to improve care for those with sickle cell. In partnership with Barts Health NHS Trust.🔗 Apply: sicklecellsociety.org #SickleCell #NEL

📣 Calling all 12–24 y/o sickle cell patients in NE London (+ parents)! Join us Sat 19 July for a fun, interactive day of workshops, learning & co-production 🧠🎮🗣️ Help shape transition care! 🔗 Sign up: bit.ly/levelup-day #SickleCell #LevelUp #YouthVoice #CoProduction #NHSVoices

🗣️ Living with sickle cell? Aged 10–24 in Sheffield, Manchester or Liverpool? Join our peer mentoring programme and connect with someone who truly gets it 💬🩸 No shame. No judgment. Just support.🔗 Email us at : [email protected] for more information #SickleCell

🗣️ Your voice matters in hospital care. Our NW & South Yorkshire mentors are empowering young people with sickle cell to speak up, stay safe & push for better treatment 🏥🩸 Let’s advocate for change where it’s needed most. #SickleCell #SpeakUpStaySafe #NHSVoices #YouthVoice

World Sickle Cell Day may be over, but the work continues. Our North West & South Yorkshire mentoring teams are busting myths and sharing the facts 💭 Myth or Truth? Let’s fact check! #SickleCellAwareness #MythVsFact #TellItLoud #SickleCellSociety #BloodMatters

On #WindrushDay, we honour the legacy of the Windrush Generation 🇯🇲🇬🇧 For many with sickle cell, the day holds deep meaning — a reminder of both heritage and the ongoing fight against stigma, inequality & poor care. 🩸 Let’s keep amplifying these voices. #SickleCell

On June 20, our CEO John James joined emancipated run crew at the Jamaican High Commission to receive £5,910.37 for the Sickle Cell Society. Massive thanks for your years of support — your impact is real! 🙌🏾🩸#SickleCell #RunForACause #ERC #BlackRunners #HealthEquity #ThankYou

🩸 This #WorldSickleCellDay we’re highlighting the importance of screening. The NHS offers antenatal & newborn screening for sickle cell via a simple blood test. Early testing = informed choices & better care. #SickleCellAwareness #KnowYourStatus

Konnor Ewudzi joined us on the iconic Supacell estate to share how sickle cell has impacted his family — with 8 relatives affected. “Testing is so key — and blood donation even more so.” Thank you, Konnor, for helping raise awareness. #WorldSickleCellDay #SickleCellAwareness

🩸 SHOUT: Tell It Loud This #WorldSickleCellDay we’re amplifying voices too often ignored. The pain is real. The silence is loud. Let’s listen. Let’s care. Let’s act. #SickleCellAwareness #ShoutTellItLoud #InvisibleNoMore #WSCD2025 #ArtWithPurpose