❄️ Winter Resource Day 2: The Winter Fuel Payment provides £100–£300 to help with heating costs, but is only available to people born before 25 Sept 1959. Sharing to help keep our community informed. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #CostOfLivingSupport

❄️ Winter Resource: Day One – Flu Vaccination. We’re sharing info to help individuals with Sickle Cell make informed decisions about the flu vaccine this winter. For more details, visit our Winter page buff.ly/q5Y0H0m or see NHS guidance: buff.ly/pyWMEfW#Wint...

❄️ Winter Support Series ❄️This week we’re sharing 7 winter resources to help individuals and families living with sickle cell stay informed about the support available during the colder months. Anything you’d like us to cover? comment and let us know. 💛#WinterResources

Thanks to NTCG Brixton for hosting us on November 23rd to share the Sickle Cell Society's work and raise SCD awareness. Grateful to Bishop Mullings, Doreen Dias, Rev Sheila Bernard, and NHSBT for running the blood drive. ❤️🩸 #SickleCellSociety #NHSBT #NTCG #BloodDonation

✨ New resource: We’ve launched a series of nutritional advice videos to support recovery, wellbeing and staying well with sickle cell. Created with the North East & Yorkshire Haemoglobinopathy Network & Claudine Matthews.🔗 www.sicklecellsociety.org/resource/foo... #SickleCellSociety #FoodForMedicine

Thank you to Titi and the Hope for Sickle Cell team for hosting our Family Retreat Coordinator, Samantha, at your Autumn Gala. We’re grateful for the networking, the warm welcome, and the fundraising in support of our work. ❤️🩸 #SickleCellSociety #HopeForSickleCell

Our CEO John James will speak at the @Public Policy Projects Genomics Conference.The 4th Annual PPP Genomics conference will explore using genomics research to drive economic growth and achieve equity in healthcare. Join in-person or online. Register now👉 buff.ly/furyPXG

Last chance! Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters. 🗓️ Closes 28 Nov 🔗 buff.ly/dKvHzGz #SickleCell #PIP #PatientVoices

Join our supportive online session for parents & carers of children with sickle cell. Learn tips, ask questions & connect with other families. 🗓️ 29 Nov | 10:30–12:00 | Zoom Scan the QR code to register. #SickleCellSociety #SickleCell #ParentSupport

Our CEO, John James OBE, joined Baker McKenzie's Black History Month event to support the Sickle Cell Society. The event aimed to raise awareness about Sickle Cell Disorder and Trait under the theme “Standing Firm in Power and Pride.” #SickleCellSociety

Young people with Sickle Cell in North-East London are invited to join a group to create resources for transitioning from children's to adult services. The first meeting is on 22nd November1-3pm at Stratford Library, with online follow-ups. Sign up at buff.ly/0OSmFn1

📢 Deadline Extended! Join the Sickle Cell Society as our new Assistant Finance Officer (Part-Time). Support our finance team & help make a difference for people living with sickle cell.📅 Apply by 12 Dec 2025 📧 [email protected] #SickleCellSociety #FinanceJobs

🧬 The Top 10 research priorities for sickle cell & genomics are now live — shaped by patients, carers and clinicians to guide future research and treatment. 🔗 www.sicklecellsociety.org/sickle-cell-... #SickleCell #Genomics

🩸 Extended deadline! Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters. 🗓️ Closes 28 Nov 🔗 buff.ly/dKvHzGz #SickleCell #PIP #PatientVoices

✨ Trustees’ Week ✨ A huge thank you to our incredible Board of Trustees. Their backgrounds span healthcare, finance and more, and they volunteer their time and expertise to help drive real change for the sickle cell community. We appreciate you! #TrusteesWeek #SickleCellSociety

✨ Meet Your Mentors ✨ Next up, meet three of our #Manchester team! This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone. Find out more by scanning the QR code.#SickleCellSociety #BlackHistoryMonth #Mentoring

Our thoughts & prayers are with the people of Jamaica after Hurricane Melissa, and with Cuba as the storm continues. Many in the Jamaican diaspora within our sickle cell community & team are hoping all islanders are safe. Find ways to help via @jhclondon. #Jamaica

✨ Meet Your Mentors ✨ First up, meet two of our London team! This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone. Find out more by scanning the QR code. #SickleCellSociety #BlackHistoryMonth #Mentoring

📢 We’re hiring! Join the Sickle Cell Society as our new Assistant Finance Officer (part-time, 14 hrs/week). 📅 Closing date: 14 Nov 2025 🗓️ Interviews: 28 Nov (in person) Apply now: www.sicklecellsociety.org/paid-vacanci... #SickleCellSociety #CharityJobs #FinanceJobs

🩸 Join the NHS England Virtual Sickle Cell & Thalassaemia Patient Event on 30 Oct, 10am–1pm (via Teams). Share your experiences, hear from others & help shape future care. 🔗 Register now by scanning the QR Code #SickleCell #Thalassaemia #NHSEngland #PatientVoices

Does your child have sickle cell disorder? 💬 UCL’s Institute of Child Health is running 45-min focus groups this October to understand family experiences. 📧 [email protected] 🔗 buff.ly/OgiEGSe #SickleCell #Research #SickleCellAwareness

On 25 Sept, we visited Gainsborough Primary School with The Secret Diary of Joynina K. Jones author Antoinette Brooks. Year 5 & 6 loved hearing Joynina’s story and learning about sickle cell. Thank you to Miss Lewis & Miss Clark for having us!#SickleCellSociety #EducationMatters

On 10 Oct, we facilitated a visit to Hammersmith Hospital’s Renal & Haematology Triage Unit for Ben Coleman MP & Andy Slaughter MP, joined by our Chair Dr Matthew Sowemimo, to see the vital work supporting patients with sickle cell. #SickleCellSociety #SickleCellAwareness

We’re recruiting! 💻 Join the Sickle Cell Society as our new GBSL Project Support Lead — helping deliver the national Give Blood, Spread Love campaign. Passionate about community engagement & public health? Apply by 24th Oct 2025 🔗https://buff.ly/LeNkrgO .#SickleCellSociety #GBSL #Recruitment

Screening, testing & talking openly about sickle cell + thalassaemia matters. 🩸We’re asking healthcare professionals your questions — anonymously. Submit yours below and help us break stigma & share real answers.🔗 buff.ly/3XFbpUq #SickleCellSociety #ScreeningMatters

We were delighted to attend the 20th Annual Sickle Cell & Thalassaemia Conference (ASCAT 2025) — a great opportunity to connect with colleagues and start Black History Month with community, support & care. #ASCAT2025 #SickleCellAwareness #BlackHistoryMonth

Our Family Retreat 2025 was full of joy, learning & connection. As we celebrate Black History Month, we also celebrate the unity this event fosters. A big thank you to @miffy_uk for bringing smiles to the children! ❤️🐰 #FamilyRetreat #SickleCellSociety #BlackHistoryMonth #Miffy

🏃🏿 Last reminder! Join Team Sickle Cell for the 2026 TCS London Marathon and help raise vital funds for people living with sickle cell. 🗓️ Applications close 31 Oct — don’t miss out! 🔗 www.sicklecellsociety.org/london-marat... #LondonMarathon #TeamSickleCell #RunForACause

⏰ Final days to sign up! North-East London sickle cell patients aged 14–21 — join our emotional wellbeing group session on 10 Oct, 5–6:30pm. Share your experiences & help shape transition support.🔗 bit.ly/groupscyp #SickleCell #YouthVoice #NELondon

A huge thank you to Amaka & Amina from Deutsche Bank for hosting our CEO John James and NCL Lead Mentor Temitope for a brilliant Sickle Cell Awareness event & panel discussion. We appreciate Deutsche Bank’s continued support! #SickleCellAwareness #SickleCellSociety

Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters. 🗓️ Complete the survey by 31 Oct: 🔗 tinyurl.com/bdhzdmfz #SickleCell #PIP #PatientVoices #SickleCellSociety

We’re delighted to welcome Dr Matthew Sowemimo as the new Chair of our Board of Trustees. With decades of experience in health & social justice, his leadership will help shape the next chapter for the Society. Excited for what 2026 will bring! #SickleCellSociety

🩸 Last call to have your say! Help shape the Top 10 research priorities for sickle cell & genomics in our shortlisting survey. ⏳ Closes 14 Oct 📩 Link: www.surveymonkey.com/r/YVHCF5Q #SickleCell #Genomics #HaveYourSay

Happy Black History Month! This October we’re celebrating the many forms of support that strengthen the sickle cell community — and thanking everyone who makes our work possible. We’ll also be spotlighting events & programmes across the month. #BlackHistoryMonth #SickleCellAwareness

📚✨ BOOK GIVEAWAY ✨📚 We’re giving away a copy of The Secret Diary of Joynina K. Jones by Antoinette Brooks for you and a friend 🎉 Perfect for 8–11 year olds. 🎉 Perfect for 8–11 year olds. 👉 Head to our Instagram @SickleCellUK to enter! Closes 10 Oct. #BookGiveaway #JoyninaKJones

✏️ Author Antoinette Brooks has shared 10 top tips for teachers supporting children returning to school — especially those navigating health challenges. Read her advice in the article linked here: buff.ly/GB4wCt0 📖✨ #JoyninaKJones #TeacherTips #BackToSchool #SickleCellSociety #EmotionalGrowth

🎓✨ North East London sickle cell patients (15–18): Join our online Transition Workshop! 📅 Thu 25 Sep, 5–6:30PM Topics: rights, uni/career next steps, patient stories & managing anxieties. 👉 Sign up: bit.ly/sicklefuture #SickleCellSociety

✨ Get to Know the Author ✨ We spoke with Antoinette Brooks about her life and the journey of writing The Secret Diary of Joynina K. Jones—from inspiration to the importance of talking about sickle cell. 📖❤️ #JoyninaKJones #AuthorSpotlight

📢 Last chance to apply! We’re hiring a Mentoring Programme Coordinator to support mentors & young people living with sickle cell. 🗓 Applications close 29 Sept 🔗 Apply via link in bio #Hiring #JobOpportunity #SickleCell #CharityJobs #Mentoring

🩸 Martha’s Rule lets patients & families request an urgent review if concerns aren’t being heard. A short survey has been developed to capture awareness among people with sickle cell. 📩 Take part: forms.cloud.microsoft/r/NTpySfPxVN #SickleCell #MarthasRule

On 4 Sept, we held a parliamentary meeting with patients & medical professionals to discuss updates in sickle cell care. Thank you to Bell Ribeiro-Addy MP & all who joined. We aim to host these more regularly. #SickleCell #HealthEquity #Parliament

🩸 Have your say! Help shape the Top 10 research priorities for sickle cell & genomics in our new Shortlisting Survey. 📩 Take part: www.surveymonkey.com/r/YVHCF5Q ⏳ Closes: 14 Oct 2025 #SickleCell #Genomics #ResearchPriorities #PatientVoices

🩸 Join us on 17 Sept, 11:45am–12:45pm for a Sickle Cell Awareness Month webinar hosted by LGT MIN. Speakers include John James OBE (@SickleCellUK), LGT clinicians & mental health staff.📍 Online (Teams) buff.ly/EWxg5h1 #SickleCellAwareness #SickleCell

🩸 Last call! We’re looking for two Barts NHS patients with sickle cell to join a Patient Committee for Our Journey, Our Story, soon at Royal London Hospital. 📩 Apply by 11 Sept: [email protected] (Please note: Barts patients only) #SickleCell #BartsNHS

🚨 Group blood donation bookings are now nationwide! 🩸 Black donors are urgently needed to support people with sickle cell. Join friends, colleagues or community groups at upcoming sessions. 🔗 Book: www.blood.co.uk #GiveBloodSpreadLove #SickleCell

📢 We’re hiring! Join us as Mentoring Programme Coordinator and help support young people living with sickle cell. Apply today 👉 www.sicklecellsociety.org/paid-vacancy... #Hiring #CharityJobs #SickleCell

🏃🏿The countdown is on! Join Team Sickle Cell at the 2026 TCS London Marathon and make every mile matter. Run for a cause. Run for sickle cell. 👉🏿 Register today: www.sicklecellsociety.org/london-marat... #LondonMarathon #TeamSickleCell #CharityRun #RunForACause #SickleCellAwareness

🩸 Help Shape an Exhibition About Sickle Cell! We’re inviting @NHSBarts patients with sickle cell to join a Patient Committee for Our Journey, Our Story, soon to be displayed at Royal London Hospital.📩 Apply by 11 Sept: [email protected] #SickleCell

📣 Join us on Tue 26 Aug at Manor Park Methodist Church Herbert Rd, E12 6AY for our NEL Sickle Cell Transition Co-creation Day! Patients (12–24) & parents — share your voices, help shape resources & hear from experts.🔗 Sign up: bit.ly/level-up-day #SickleCell #TransitionCare

Help shape sickle cell & infections research! 🧪We’re looking for people 18+ living with or caring for someone with sickle cell to join our patient & public involvement group. 🔍 Scan the QR code or visit: bit.ly/3JeARkF 📧 [email protected] #SickleCell #Research