Our community insights are a terrific snapshot

We asked our community "Do you understand what is meant by co-design in the context of advocacy and industry partnerships?". insights brings you the latest views from your global RARE community. To access insights click below. rarerevolutionmagazine.com/rare-insider...

Discover how Prof. Gareth Baynam's 'Lyfe Languages' project bridges healthcare and Indigenous culture by translating medical terms! #IndigenousHealth #HealthcareInnovation #LyfeLanguages #RareDisease rarerevolutionmagazine.com/rare-insider...

🚀 Houston, we have a problem: NASA-inspired strategies for rare diseases! 🌌 Let's unite to advocate for the rare disease community! rarerevolutionmagazine.com/rare-insider... #RareDisease #Innovation #Research #PublicHealth #NASA #Healthcare

Exciting news! The Undiagnosed Hackathon is revolutionising rare disease diagnosis with global experts. Join us at Mayo Clinic in Sept 2025! Let's celebrate! rarerevolutionmagazine.com/rare-insider... #MedicalInnovation #UndiagnosedHackathon #RareDiseases

Exciting advancements in tissue engineering! Cytochroma is developing animal-free mini organs from stem cells. Watch Kate's interview: rarerevolutionmagazine.com/rare-insider... #TissueEngineering #StemCells #Innovation #RareDiseases #Cytochroma

A digital health entrepreneur launched an AI venture after her daughter's rare diagnosis to empower those with chronic conditions. 🌍💡 #HealthcareLeadership #AI #RareDiseases #EmpathyDrivenTech rarerevolutionmagazine.com/rare-insider...

Exciting news! The Undiagnosed Hackathon is transforming rare disease diagnosis. Watch a sneak peek at Helen Cederroth's interview: rarerevolutionmagazine.com/rare-insider... #RareDiseases #MedicalInnovation #UndiagnosedHackathon #GlobalCollaboration #Hope

If you haven’t come across the new title RARE Revolution insider it’s a great time to subscribe with 25% off.

Championing equity in rare disease advocacy! Jenifer Ngo Waldrop of the RDDC is driving change to reduce health disparities. Read her inspiring journey here: rarerevolutionmagazine.com/rare-insider... #RareDisease #HealthEquity #RDDC

The future of organ transplants is here! Scientists aim to bioprint a functional kidney in just 24 hours. Could this transform healthcare? Read more: rarerevolutionmagazine.com/our-goal-is-... #Bioprinting #MedicalInnovation #FutureOfHealthcare

Real-world data is revolutionizing healthcare! Capturing the right data can drive better outcomes and accelerate breakthroughs. Learn more here: rarerevolutionmagazine.com/capturing-re... #RealWorldData #HealthcareInnovation #DataDrivenCare

Dr. Sara ten Have discusses the environmental impact of peptides in drug development. Origin Peptides aims to revolutionise the market with a "greener, cheaper, and faster" approach. Read her full article here: rarerevolutionmagazine.com/a-new-method...

Our #RareDiseaseDay edition is now live. Gearing up for another rare disease day that elevates this incredible community editions.rarerevolutionmagazine.com/html5/reader...

Excited to share this article about the work the wonderful Wayne Danter has been doing for us at Action for XP. Calling out for partners to join us in the next phase of this important research project. Get in touch if you would like to find out more. www.actionforxp.org/news/the-inf...