Three years ago Jonny's PSC was making him desperately ill and he was added to the transplant list. 🟣7 mos later he received a life-saving liver 🟢10 days later he was home 🟠12 wks later he was back at work 🟡Today he’s running @great_run Scottish Half 💪 🔗 pscsupport.org.uk/psc-and-me/j...

The big day is nearly here! Katie's taking part in the @great_run Scottish Half Marathon, raising funds for #PSCSupport. 'This rare autoimmune condition has no cure or treatment as very little is known about it. PSC has had a massive impact on Ella.' ➡️ buff.ly/4fMsH51

Having PSC and dealing with mortgages, insurance and financial planning can be confusing. Pam Brown and her family work as mortgage, insurance and finance specialists and Joe, Pam's son, also has PSC. Register today to learn more & ask your questions ➡️ us06web.zoom.us/webinar/regi...

Next week we’re heading to Belfast for the @basl_events Annual Conference. We’ll represent patient voices, build partnerships & share insights to shape future research. Updates to follow! #BASL2025 #PSCsupport #LiverDisease @mirumpharma @LiverTrust 📸 #TBT Last year in Harrogate

October is #LiverCancerAwarenessMonth, focusing on early detection, support for those with liver cancer, and remembering loved ones. People with #PSC face higher cancer risks and should discuss screening with their doctors. Learn more about risks and screening ℹ️ buff.ly/bw0lyva #LetsBeatPSC

What are PSC Variants? Dr Roger Chapman joined us earlier this month to shed some light on this topic and answer your questions. You can watch (or re-watch) this session now on our YouTube channel. youtu.be/dAqnVSXDYmA #LetsBeatPSC #SmallDuctPSC #PSCUC #PSCIBD #LargeDuctPSC

The microbes inside your gut keep everything in balance. But if the balance tips the wrong way, problems can arise. The FARGO trial is asking: what happens when we change the PSC microbiome using Faecal Microbiota Transplants (FMT)? Want to know more? buff.ly/DH7MDl2 #LetsBeatPSC #FARGOTrial #FMT

Tom’s 2021 liver transplant for PSC gave him back energy & normality. 💗 As #OrganDonationWeek ends, have you registered your wishes? 👉 buff.ly/XfSzxPg #ODW25 #LetsBeatPSC

Andy and his donor liver have spent over 20 years together. Twenty years with his wife, family, friends & community. Reaching milestones he never thought he would. This #OrganDonationWeek register your wishes with @NHSOrganDonor & talk to your loved ones. www.organdonation.nhs.uk/register-you...

25 years ago, Liz’s husband Rick became an #organdonor after his sudden death at 38. His gift brings comfort to the family, and hope to others. “We’re so proud of the gift he gave. A little bit of him lives on.” Confirm your decision ⬇️ www.organdonation.nhs.uk/register-you... #ODW25 #DonorFamily

Last month we shared Tom’s wait for a 3rd liver transplant for PSC. GOOD NEWS: he’s had it and recovery is going well! Thanks to 3 generous donors, Tom gets another chance at life, family & memories. Read his story 👉 pscsupport.org.uk/tom/ #OrganDonationWeek #LetsBeatPSC #LiverRecipient

At 23, Gemma’s PSC diagnosis forced her to leave Australia as her health rapidly declined. After 2yrs on the transplant list, she got the call. Thanks to her donor, she can now chase her dream of nursing 💗 A single donor can save up to 9 lives. ➡️ www.organdonation.nhs.uk/register-you... #ODW25

@NHSBT has reviewed how donor livers are offered and draft recommendations are ready. You’re invited to give feedback at online webinars: 📅 23 Sept 2025 🕑 2-3pm (charities/groups) 🕔 5-6.30pm (patients/families/public) ➡️https://buff.ly/iRY108N #OrganDonation

Right now, over 8,000 people across the UK – including many living with PSC – are waiting for a lifesaving transplant. This #OrganDonationWeek we’re encouraging everyone to register their decision and talk to their loved ones. ➡️https://buff.ly/XfSzxPg #LetsBeatPSC #OrganDonation

Olly lives with PSC & Ulcerative Colitis but tomorrow he’s taking on 13.1 miles to raise awareness & vital funds. “PSC Support has become very close to mine and my family’s heart.” Support Olly & his family by donating or sharing his story! buff.ly/CfPLWjS #LetsBeatPSC

@pscsupport.bsky.social representing #PSC patient voices in Poland today #LetsBeatPSC

Join us for our our first ever Information Day in Belfast on Fri 10 Oct: 🗨️ Hear talks from PSC experts and patients ❓ Take part in Q&A sessions 🧑‍🤝‍🧑 Connect with others affected by PSC, including friends and family Register now ➡️ buff.ly/0X4NiRI @basl_events #LetsBeatPSC

UPDATE 📢 Following our previous post about the national shortage of Rifampicin in the UK, PSC Support and @PBCFoundation have released a joint statement. Also available to read on our website. ➡️ buff.ly/f4VFqpj #LetsBeatPSC #PBC #PrimaryBiliaryCholangitis #Liver #PSCItch #PBCItch

For people with PSC, patient safety means being heard, advocating for their health, and having tools to support urgent decision-making. Our free PSC Alert Card helps patients & clinicians act fast when acute cholangitis is suspected. 👉 pscsupport.org.uk/bacterial-ch... #worldpatientsafetyday

What is small-duct #PSC and how does it differ from 'just PSC'? What about PSC/AIH Overlap? And what is IgG4-related PSC? Dr Chapman talks us through these variations and answers your Q's tonight (Tue 16 Sep 7pm). Register now for joining details: us06web.zoom.us/webinar/regi... #LetsBeatPSC

A glimpse of our #PSCSupport #InformationDay in Leeds. These free events are held throughout the year to bring together patients, families, and hcps. They're a space to share experiences and learn from leading voices in PSC care and research. Up next...Belfast! buff.ly/XHovfcH #LetsBeatPSC #PSCInfo

This #PBCAwarenessDay we’re shining a light on the differences between PBC and PSC and available support. Both affect the liver but they are distinct diseases. In the UK @PBCFoundation and @PSCSupport are here to help. You're not alone. ➡️ pscsupport.org.uk/psc-and-othe... #PBCAwareness #PSCAwareness

Best of luck Dave! We know how hard you've been training for this amazing event while also managing your health journey. One stroke, one step, one pedal at a time. You got this! 🏃 🏊‍♂️ 🚴‍♂️ #LetsBeatPSC #PSCSupport #PSCFundraiser #FundraisingChamp @ironmantri

PSC can affect anyone, at any age, and no two experiences are the same. Some people don’t have any symptoms, while others live with challenges like fatigue, brain fog, jaundice and itch. Read Nick's Story and consider sharing yours pscsupport.org.uk/psc-and-me/ #PSCStory #PSCandMe #LetsBeatPSC

𝗢𝗻𝗲 𝗶𝗻 𝘀𝗶𝘅 people wait 𝗺𝗼𝗿𝗲 𝘁𝗵𝗮𝗻 𝘁𝘄𝗼 𝘆𝗲𝗮𝗿𝘀 for a PSC diagnosis. There’s no single blood test for PSC, which can mean years of uncertainty, anxiety & stress. We've awarded Dr Rushbrook £40k to continue his work developing a blood test to diagnose PSC. (1 of 3)

We’ll all be remembered for something...dance moves, brilliant bakes, dad jokes. This #RememberACharityWeek, you could also be remembered for making a difference by leaving a gift to PSC Support in your Will. Find out more👉https://pscsupport.org.uk/wills/ #LetsBeatPSC #RareDisease #LegacyGiving

Just 1 week to go! Ever wondered about the different types of PSC? What is small-duct PSC and how is it different? There’s still time to register join us for our next live Ask the Expert session ⬇️ us06web.zoom.us/webinar/regi... #LetsBeatPSC #LiverHealth #PSCSupport #AskTheExpert

Applications are OPEN for the ERN #RareLiver ACADEMY 2026 at UMCG, Groningen 🇳🇱 📅 1–2 April 2026 🧒 Focus: Paediatric Liver Diseases & Transplantation ✅ Accommodation/meals provided + travel reimbursement Apply by 7 Nov 2025 👉 rare-liver.eu/ern-rare-liv... #Hepatology #LetsBeatPSC #RareDisease #MedEd

Wishing Charlotte and Erena the very best of luck at today’s Great North Run! 🌉🎉Join us in (virtually) cheering them on by adding a comment below. #TeamPSCSupport #GreatNorthRun #RunForCharity #LetsBeatPSC

Ever been to Paris in the spring? 🥐🌸 We can help make this dream a reality… all you have to do is train, fundraise, and run 26.2 miles! ➡️ runforcharity.com/psc-support/... #LetsBeatPSC @ParisMarathon

We’re heading to Leeds! Join us for a day of expert talks, cutting-edge research updates, & personal stories about life with PSC. Connect with others affected by PSC and enjoy lunch & refreshments. Register now to secure a place! buff.ly/qwrxPFT #LetsBeatPSC #PSCExperts

We've become aware that of a national shortage of #Rifampicin. If you take Rifampicin for #PSCitch, contact your liver specialist to discuss options. 👉 buff.ly/Lya4eGR #PSCSupport #MedicationUpdate #LetsBeatPSC

Who can donate? 🤔 #OrganDonationWeek (22–28 Sept) is coming soon! We'll be turning pink and sharing your PSC or transplant story to highlight the impact of organ donation. See how you can help and consider sharing your story. ➡️ pscsupport.org.uk/organ-donati... #PSCSupport #LetsBeatPSC #DonateLife

Summer is almost over and before we know it, the leaves will be crunching beneath our feet! Ready for chilly weather, cosy jumpers, and pumpkin spice everything?☕🍁Thinking about autumn or winter activities to raise awareness and funds for #PSCSupport, get in touch! [email protected]

We’ve heard it all…even comments like “At least you have two livers” 😮 We only have one liver, and it’s a vital organ. Together we can raise awareness about this rare disease to build understanding and support the PSC community. #LetsBeatPSC #LiverHealth #RareDisease

Swing into action… in a kilt! 🕸️ Sign up for the Edinburgh KiltWalk and help us get closer to finding effective treatments, and a cure, for PSC by raising vital funds for #PSCSupport. ➡️ www.thekiltwalk.co.uk/events/edinb... #LetsBeatPSC #TeamPSCSupport #KiltUpForCharity #WalkLikeAHero

Gary had a liver transplant for PSC nearly 30 years ago, is living life to the full and his liver is still going strong! None of this would have been possible without his organ donor, expertise of clinical teams & support from family. pscsupport.org.uk/psc-and-me/o... #LetsBeatPSC

Know the signs of #acutecholangitis: 😮‍💨 Feeling unusually run down ⚡ New or worsening pain under right ribs 🚫 Loss of appetite 🫳 New or worsening itch (hands/feet) If you experience these symptoms, seek medical advice. Get your free #PSC Alert Card 👉 pscsupport.org.uk/product/psc-...

Ever wondered about the different types of PSC? What is small-duct PSC and how is it different from “just” PSC? What about PSC/AIH Overlap or IgG4-related PSC? Dr Chapman explains these variations and answers your questions. Register 👉 us06web.zoom.us/webinar/regi... #LetsBeatPSC

Running for her Grandad. Running for a cure. "My Grandad. My Hero. My Grandfather Clock. My weatherman. My best friend." Erena prepares to take on her 4th @great_run, raising vital awareness, funds and hope for the PSC community. ➡️ ajbellgreatnorthrun2025.enthuse.com/pf/erena-tun... #LetsBeatPSC

We're here to help. Quality fact checked information on our website, dedicated PSC Support Helpline Nurse, private admin facebook page, monthly live webinars, and regular in person information days. www.pscsupport.org.uk #LetsBeatPSC

PSC is a rare, life-changing liver disease, but stories like Leanne’s show the strength and resilience behind the diagnosis. Read her PSC journey ➡️ buff.ly/tdOt89p and share this post to raise awareness. #LetsBeatPSC #PSCSupport #InvisibleIllness #RareDisease #PSC

Did you know today is International #StrangeMusicDay? A celebration of discovering & sharing new sounds! Music lifts us, calms us, energises us - whether training, resting, or cooking dinner. Share your favourite tracks in comments & help build a #PSCSupport playlist. #LetsBeatPSC

PSC is a rare liver disease that affects the bile ducts and liver. In #PSC, bile can’t flow properly due to blockages (strictures) in the bile ducts. There’s a lot happening inside our bodies that isn’t visible on the outside. ℹ️ buff.ly/J3dNcBM #LetsBeatPSC

📢 Milestone Moment! 7️⃣0️⃣ patients are enrolled in the Asp-PSC cancer prevention trial! Hospitals all over the UK are looking for hundreds more volunteers to take part now. Find out if you can take part 👉 pscsupport.org.uk/find-psc-res... #AskAboutAsp

We’re celebrating 30 years as a charity with three PSC Information Days! Next stop: Leeds, Sat 13 Sept ✅ Expert talks & Q&As ✅ Patient stories ✅ Connect with the PSC community Free & open to all affected by PSC. 👉 buff.ly/B7exojL #LetsBeatPSC #PSCSupport

By giving in memory you remember & celebrate the life of someone special whilst changing the lives of others affected by PSC. Whether you want to take part in an organised run, create your own event, or write your will for free, we can help. ℹ️ pscsupport.org.uk/fundraise/fu... #LetsBeatPSC

Easier said than done, but worth saying anyway: it’s important to keep an eye on your internal battery and take a meaningful break to recharge when you need it. Full video buff.ly/WyQIlDp #PSCFatigue #Fatigue #LetsBeatPSC #PSC #PSCExpert #PSCResearch

Living with PSC can be complicated. The last thing you need is confusing or unreliable info. Everything we share is checked by #PSC experts, backed by evidence, and completely free to access. Just trusted information you can count on. 👉 buff.ly/mAGqIiA #LetsBeatPSC

When you’re living with an invisible illness, sometimes silence can feel heavier than the illness itself. You don’t need the perfect words, just any words that show you care. Lead with kindness. Be present. Your support matters more than you know. #InvisibleIllness #LetsBeatPSC #PSC