On 6/26 @ Noon ET, Dr. Sascha Tuchman, Director of the Multiple Myeloma & Amyloidosis Program at UNC Chapel Hill will discuss light chain (#AL) #amyloidosis! This #ARCTalks webinar will cover diagnosis, treatment, and where the field is heading next: us02web.zoom.us/webinar/regi...

Webinar | May 19 | 7 PM ET Those impacted by #V122I #hereditary #ATTR #amyloidosis aren't alone. ARC's second #OurStory webinar brings together a gene carrier, caregiver, and a mental health provider to talk honestly about living with V122I. Register: us02web.zoom.us/webinar/regi...

May 20 at Noon ET: In recognition of #MentalHealthAwarenessMonth, join ARC and Clinical Psychologist Rosalind Kalb, PhD, for a discussion on navigating the many emotions that can arise during the #amyloidosis journey. Register for this #ARCTalks Webinar: us02web.zoom.us/webinar/regi...

Tisha Downing pursued genetic testing on her own and discovered she carries #V122I. That moment brought clarity, validation, and a path forward. Join ARC April 23, 7 PM ET for a webinar to learn more about living with #hereditary #ATTR #amyloidosis: us02web.zoom.us/webinar/regi...

This Thursday, April 23 at 7 PM ET: ARC webinar on #V122I #hereditary #ATTR #amyloidosis, a gene variant carried by roughly 1 in 25 Black Americans. Specialists and a genetic counselor cover diagnosis, warning signs, and treatment. Register today: us02web.zoom.us/webinar/regi...

Free virtual 1.5 #CME on April 16 for clinicians involved in #amyloidosis care! This ARC and @bumedicine.bsky.social program covers early recognition & diagnosis of #ATTR, multimodality imaging, and treatments. HFSA endorsed. Open to all specialties. Register here: cme.bu.edu/arc25

Better outcomes start with knowing your risk. Join ARC 4/23 at 7PM ET for a webinar on #V122I hereditary #ATTR #amyloidosis. Specialists, a genetic counselor, and a patient will cover what the disease is, genetic testing, treatment, & more. Register at: us02web.zoom.us/webinar/regi...

#ARCTalks Webinar | April 14 | Noon ET Learn what’s new in #AL (light chain) #amyloidosis clinical trials and what those updates mean for patients and families during this webinar from Kristen Hsu, ARC’s Executive Director of Research. Register today: us02web.zoom.us/webinar/regi...

There’s still time to register for this important talk tomorrow and it is something we highly recommend doing whether you’re a patient, carer or healthcare professional dealing with #amyloidosis.

#ARCTALKS Tomorrow! Join ARC and Dr. Melissa Hershman from Oregon Health & Science University at Noon ET to learn how #amyloidosis may be affecting your gut and what you can do about it! Register Today: us02web.zoom.us/webinar/regi...

The #AmyloidosisForum Prognostic Factors working group just published a new review in Blood on prognostic factors and progression biomarkers in #AL #amyloidosis, as well as the critical need for updated validation studies. Read the review: doi.org/10.1182/bloo...

Wondering how #amyloidosis may be affecting your gut and what you can do about it? Join ARC and Dr. Melissa Hershman from Oregon Health & Science University on March 18 at Noon ET for our next #ARCTalks Webinar! Register Today: us02web.zoom.us/webinar/regi...

Dr. Ahmad Masri invites you to join us on February 25 at Noon ET for an informative #ARCTALKS #webinar about the role of imaging in #amyloidosis diagnosis and management. Register Today: us02web.zoom.us/webinar/regi...

Where should I go? Who truly understands this disease? Are there clinical trials for someone like me? For too many patients and caregivers, these questions can feel overwhelming, and the path forward can seem unclear. Read how ARC is clearing the path: arci.org/a-smarter-wa...

Clinical #amyloidosis update: US FDA has lifted the clinical hold on Intellia Therapeutics' MAGNITUDE-2 Phase 3 trial of nex-z in ATTRv-PN. The global study will resume with enhanced liver safety monitoring. The ATTR-CM study remains on hold. Learn more: ir.intelliatx.com/news-release...

An #amyloidosis diagnosis brings a rush of questions. Where should I go? Who understands this disease? Are there trials for me? For too many patients and caregivers, these questions can feel overwhelming, and the path forward can seem unclear. Meet MAP: arci.org/a-smarter-wa...

Are you looking to know more about the #ATTR #amyloidosis clinical trial landscape? ARC's Executive Director of Research, Kristen Hsu, will share the latest updates in the next #ARCTalks webinar on January 22 at Noon ET. Register Today: us02web.zoom.us/webinar/regi...

Rare Disease Week on Capitol Hill is a great chance to advocate to US Members of Congress and their offices about the needs of #amyloidosis patients and families! Learn more at: everylifefoundation.org/rare.../rare... Interested? Email us at: [email protected]. #RareDC2026

Progress in rare disease doesn’t happen by accident. It takes vision, persistence, and your support. ARC works every day to accelerate research, improve care, and support those living with #amyloidosis. Help us continue improving the lives of patients: arci.org/givenow

This year ARC launched our inaugural class of Clinical Fellowship participants. This ARC fellowship invests in the next generation of #amyloidosis specialists by providing expert training, mentorship, and research opportunities.

This holiday season, we here at ARC want to take a moment to thank our incredible community. Your dedication and compassion help us shine a light of hope for all those affected by #amyloidosis. We wish you and your loved ones a wonderful holiday season and a hopeful new year.

#ARCTALKS Webinar | Dec 18 | 12 PM ET This "Coffee Chat" webinar is your chance to connect with ARC staff & hear about the work we’ve done in 2025. If you're new to ARC or a long-time supporter, we invite you to join and learn more: us02web.zoom.us/webinar/regi...

By breaking down barriers that slow down research, ARC helps advance diagnosis, treatment, & care for people living with #amyloidosis through innovative research and strategic collaborations. Help support our work to get more treatments to more patients: arci.org/givenow

Thirty years ago ARC founder Isabelle Lousada's life was transformed. In 1995 she earned her master’s in architecture, married her husband, and days later was diagnosed with a life-threatening illness: #amyloidosis. Read her story: arci.org/isabellestory/

The Amyloidosis Research Consortium (ARC) is Shining a Light on #amyloidosis — driving discovery, supporting patients and their families, and investing in the future of expert care. With your support we can do even more: arci.org/givenow

10 years ago, ARC was founded to improve and extend the lives of people living with #amyloidosis. Thank you to everyone whose support sustains our work and helps drive progress in care and research. See your impact at work: arci.org/ImpactAtWork2025

The 2025 annual #AmyloidosisForum was the most well attended meeting yet. Discussions covered: • Current Challenges & Innovative Solutions • Imaging Standardization • Prognostic Factors • Endpoint Development Watch the recordings here: amyloidosisforum.org/2025-meeting...

The #ATTR #amyloidosis MAGNITUDE clinical trials have been temporarily put on hold by @intelliatx and the @US_FDA. Learn more: arci.org/magnitudehold/

Good morning! Are you ready to hear from clinicians, drug developers, and regulatory members discuss the most important topics facing #amyloidosis? Tune in to the #AmyloidosisForum online any time between 8-4 today for some important conversations! amyloidosisforum.org/2025-meeting/

Don't miss a special ARC Talks webinar for #Caregivers & #CarePartners, Oct 15 at Noon ET! Hear practical advice, self-care tips, and real-life strategies to help make daily life a little easier for both you and the person you care about. Register today: us02web.zoom.us/webinar/regi...

Know an #amyloidosis patient who could benefit from connecting with those who know what they're going through? Our PEER Link program connects people with trained peer mentors for 1:1 guidance and encouragement. Connect your patients to a PEER Today: arci.org/peer-link

Over the past decade ARC has driven bold science, sparked critical breakthroughs, and brought new hope to people living with #amyloidosis. Donate today to support the next 10 years of progress: donate.arci.org/campaign/701...

Alison was a nurse before becoming an #AL #amyloidosis patient. ARC gave her clarity, support, and hope. Now her legacy gift ensures others get the same. This #MakeAWillMonth, consider the impact your gift can have. Learn more of Alison's story: arci.org/a-legacy-of-...

🎉 ARC is 10! We’ve helped support thousands of #amyloidosis patients, educated HCPs, and helped spur progress in drug development. Thanks to everyone we’ve partnered with over our first 10 years! See our impact & support the next decade: arci.org/anniversary/ #ARC10Years

Join ARC + the American Association for Hand Surgery for a CME webinar Aug 5 at 8PM ET. Hear from Dr. Schulman, diagnosed after a carpal tunnel biopsy, plus experts on when to biopsy & what to watch for. 👉 us06web.zoom.us/meeting/regi... #CME #RareDisease

📢 Don't miss our #ARCTALKS webinar next week! ARC’s Kristen Hsu will share the latest updates on the #ATTR #amyloidosis clinical trial landscape, plus what’s ahead for research in the area. 🗓️ Register now: us02web.zoom.us/webinar/regi... #ClinicalTrials #RareDisease

🎉 Congrats to the first ARC #ClinicalFellowship awardees! Thank you for helping shape the next generation of #amyloidosis experts. Together, we're building a brighter future for patients. 💙 Learn more: arci.org/fellowship/

BREAKING NEWS: Phase 3 CARES clinical trial did not meet its primary endpoint. Alexion, AstraZeneca Rare Disease, announces no significant improvement in overall survival, but see signs the drug may help a specific subgroup of #AL #amyloidosis patients. Learn More: arci.org/negative-ans...

Can #AI help uncover #CardiacAmyloidosis earlier? A new white paper is out now featuring insights from experts across medicine, AI, & advocacy. Download Here: arci.org/aipapermay2025 #AI #Amyloidosis #RareDisease

Thanks to everyone who visited ARC's exhibit booth during the AAHFN 21st Annual Meeting last week! Spreading awareness of #amyloidosis and ARC's programs and resources is a critical piece of improving the lives of those affected by amyloidosis. #AAHFN2025

New in JAHA: ASPIRE + expert collaborators outline how #AI could help detect #CardiacAmyloidosis earlier. Strong science. Real-world urgency. Read more: www.ahajournals.org/doi/10.1161/... #Amyloidosis #RareDisease #JAHA_AHA

📆 📷 June 10 | 12PM ET | #ARCTalks Webinar: #ATTR Cardiac Treatments Hear Jan Griffin, #amyloidosis cardiologist at the Medical University of South Carolina, discuss how ATTR affects the heart and explore the evolution of treatments for ATTR-CM. Register Today: us02web.zoom.us/webinar/regi...

Would you like support from someone who understands? ARC’s Patient Education & Empowerment Resource (PEER) Link is a one-to-one program connecting #amyloidosis patients and caregivers with a trained peer mentor around shared experiences. Apply today: arci.org/peer-link/

Breaking News: Prothena Corporation has announced that the Phase 3 AFFIRM-AL clinical trial evaluating birtamimab in patients with Mayo Stage IV AL #amyloidosis failed to meet its primary endpoint. Learn more: arci.org/negative-aff...

📆 📷 Starting Now! #ARCTalks Webinar: Understanding Living with Amyloidosis ARC Senior Research Manager, Sabrina Rebello, presents an in-depth overview of key insights from our Annual Community Survey. Join Us: arci.org/event/arc-ta...

📢 For many living with #amyloidosis, Medicaid is the only way they can access treatment, specialists, and hope. Your help is needed to tell Members of Congress to vote NO on cutting Medicaid coverage for those living with a #RareDisease and their families. rarediseases.org/driving-poli...

In the first few months of 2025 a series of federal policy changes to the NIH, FDA, and other key agencies have significantly shifted the landscape of biomedical research funding in the U.S. Stay informed about what’s happening and how we're responding: arci.org/uspolicy/

📢 [New Publication] Evaluating the validity, reliability, and structure of our #ATTR #QOL patient-reported outcome measure! With strong psychometric support, the ATTR-QOL helps capture the real-life impact of this complex disease. 📄 Read More: jpro.springeropen.com/articles/10....

At the #ASSH2024 conference, we found hand surgeons very interested in understanding the connection between #amyloidosis and #CarpalTunnel. If you're a hand surgeon looking to know more, ARC is here to support you: arci.org/carpaltunnel/

In Case You Missed It: ARC Executive Director of Research, Kristen Hsu, shared current updates for #AL #amyloidosis clinical trials, and the direction of future research in last week's #ARCTalks Webinar: arci.org/resource/cli...