The PFMD has grown to 62 organizations, 9,200+ contributors & 2,000+ patient groups. building frameworks and initiatives that make patient engagement actionable across diseases, regions, and systems. Know more: patientfocusedmedicine.org/wp-content/u...

As 2025 ends, we’re grateful for a decade of progress & the PFMD community. Our 10-Year Impact Report reflects what we’ve built together: tinyurl.com/366c55d3 Thank you for being part of this. Happy holidays & a great start to 2026. @nbrooke12.bsky.social | @wearesynergist.bsky.social

The last decade of PE wasn’t about individual programs. It was about building shared foundations — spaces, frameworks & tools the community can use, adapt, and improve together. Read the full report  - patientfocusedmedicine.org/wp-content/u...

At PFMD’s PEOF session with the EMA, Nikul Bakshi (Parkinson’s UK) articulated a shift many systems are now grappling with: patient experience data needs to be integrated from the very start of the regulatory journey — not added at the end. #PFMD #PatientExperienceData #EMA

One patient story. One room that listened. One national policy changed. Watch how Robert Joyce helped shift the system — simply by speaking up. #PFMD #MadeWithPatients #PEOF2025

On #IDPD, we’re reminded that access, inclusion, and participation are fundamental rights. In MedTech, real-world experience shapes what truly works. Let’s commit to innovations co-created with patients, not just delivered.  Learn more at pemsuite.org. #DisabilityInclusion #PatientEngagement

Patients at the center = stronger health systems. Evidence, trust & impact improve when participation is structural. The BMJ publication shows us how. tinyurl.com/y2spdfds #WorldAIDSDay #PatientEngagement #PFMD

Preclinical research often lacks patient voices. At the @knaw-nl.bsky.social session “International perspective on patient and citizen participation in financing processes”, PFMD highlighted how funders can embed engagement into grants, shaping patient-centered research from the start. #PE

At #PEOF2025, BMJ’s Emma Doble shared how patients are shaping research. As reviewers, authors & partners, they are redefining what credible science looks like: evidence built with empathy. Watch her speak: #PFMD #MwP

10 years of shared frameworks have turned PE into evidence shaping science, policy & care. As the EMA consultation continues, it marks a collective opportunity to embed lasting change in how patient experience data informs health decisions. Explore more: pemsuite.org #PE #EMA

PFMD's PE Intelligence data shows patient input drives real financial value with 61 days saved per avoided protocol change & 500x ROI from initial PE investment. Patient engagement is now a strategic lever reshaping costs, risk, and speed in clinical development. #PatientEngagement

The latest OECD Health at a Glance report shows progress. The real opportunity now is a deeper partnership with patients — listening, involving & co-creating care that builds trust and strengthens every interaction.   Full report: oe.cd/6gn   #HealthAtAGlance #OECD #PE

One patient story. One room that listened. One national policy changed. Watch how Robert Joyce helped shift the system — simply by speaking up. #PFMD #MadeWithPatients #PEOF2025 #PolicyChange

“Inclusion is a scientific necessity.” Lara Bloom, President & CEO of The Ehlers-Danlos Society & 2025 Made With Patients Champion, shares why lived experience must stay central to human-centered research. - #PEOF #PE

Patient experience data has matured. The question is now is how we embed it into policy, research, and regulation. Read Hayley’s reflection on what this new era of patient-centred evidence means: tinyurl.com/mve829nu #PFMD #PatientEngagement #EMA

Real change in diabetes care begins with the people who live it every day. The Research-to-Action Fellowship is a clear example of patient engagement driving better outcomes. Learn more: tinyurl.com/33j32r8w #WorldDiabetesDay #PE @who.int

Ilona Kickbusch, Founding Director, Global Health Center, urges that patient engagement must move beyond crisis response. It should be part of how we design, govern, and deliver care. Watch her call to rebuild trust and equity in global health: tinyurl.com/yhydfeya #WHS #PE WHS EMA Derick Mitchell

The EMA Reflection Paper marks a key step for patient engagement. PFMD’s Executive Director, Derick Mitchell, shares his perspective on structured collaboration: tinyurl.com/2s4erm7u #PE #EMA @nbrooke12.bsky.social, @milkeninstitute.org, @derickomisteal.bsky.social

What if patient engagement could be measured like ROI? PFMD & Gilde explore how patient-centred metrics could link social impact to sustainable investment. Read more: tinyurl.com/2xkwtt8v #PatientEngagement #ESG #HealthcareInnovation

Turning patient experience into evidence is no longer a vision; it’s happening now! Learn how your organisation can lead this shift with 7 takeaways on advancing Patient Experience Data (PED). Read more: tinyurl.com/mtwsbse5 #PatientEngagement #HealthData #PFMD

The “S” in ESG remains hard to measure. Could patient engagement metrics be the answer? At PFMD & Gilde, we’re exploring how patient-centred performance can define responsible investment in healthcare. Read more: tinyurl.com/2xkwtt8v #Glide #PatientEngagement

Tomorrow’s the day! Join us for #Lunch&Learn: Rules of Engagement – Navigating Codes of Conduct for Patient Engagement (II) to explore how trade associations’ Codes of Conduct shape pharma–patient collaboration. Not registered yet? Do it now 👉 tinyurl.com/ymtvfb6r #PatientEngagement #PEOF2025

Patient Experience Data can transform healthcare decisions. While EMA’s Reflection Paper opens the door, PFMD’s 10 years of co-created tools & guidance provide the blueprint. A PEOF session will soon explore the consultation. Stay tuned! #PFMD #PatientEngagement #EMA #HealthPolicy

Our Lunch & Learn: Rules of Engagement II on Oct 28, 13:30–14:30 CET will explore real examples, key rules, and how PFMD Country Guidelines support your work. Submit your questions in advance to [email protected] Register now! patientengagement.synapseconnect.org/events/lunch... #PEOF #PFMD

A truly insightful session at PEOF! Unlocking Patient Engagement Intelligence highlighted the power of patient voices in shaping healthcare decisions. Grateful to our program director, jury, speakers, and all participants for their contributions. #PatientEngagement #MadeWithPatients #PEOF2025

Over the past decade, the PE community has helped turn patient engagement from isolated pilots into a shared global practice. Now, the EMA’s Reflection Paper marks a defining moment, validating this collective progress. Let’s make this count. tinyurl.com/5n86p3rw #PFMD #EMA #PatientExperienceData

Patient experience data are now stepping into policy. We welcome the EMA’s Reflection Paper on Patient Experience Data and invite the community to contribute & shape how patient insights guide healthcare decisions. Learn more about the paper - tinyurl.com/5n86p3rw #PFMD #PE #HealthPolicy #EMA

The next phase of patient engagement is about evidence, not anecdotes. Explore lessons from the Made With Patients Award winners at Unlocking Patient Engagement Intelligence on October 22nd. Block your calendar - tinyurl.com/yapxpjsh #PatientEngagement #MadeWithPatients #PEOF2025

Clinical research often overlooks Africa’s realities. Our recent webinar showed the path forward: local leadership, community voices & systems change drive impact. The Africa Working Group is uniting voices—join us. Link in the comments. #GlobalHealth #ClinicalResearch#CommunityLeadership

Patients weren’t in the room when research was shaped. So Emma opened the door. Now at BMJ, she’s making patient involvement the rule—not the exception. She’s quietly changing whose voice counts in evidence. Explore more on her work on Synapse. #MadeWithPatients #PatientEngagement

The 2025 #MadeWithPatients Awards offered something rare: a shared pause. A moment to witness the quiet power of patient-led transformation. 🎥 Watch the full ceremony. Link in comments. Follow this space as we share lessons that will guide the next steps. #PatientEngagement#HealthcarethatListens

🤝At the Made With Patients Awards, we celebrated quiet revolutions—work rooted in empathy and shaping care with patients at its heart. From community clinics to global spaces, these stories inspire. ▶️Full recording in comments. More to build, together. #BetterTogether #MadeWithPatients #PFMD