Europe can learn from Romania's prioritisation of long-term care for people living with HIV In its response, few people have been as pioneering as 𝗣𝗿𝗼𝗳. 𝗔𝗱𝗿𝗶𝗮𝗻 𝗦𝘁𝗿𝗲𝗶𝗻𝘂-𝗖𝗲𝗿𝗰𝗲𝗹, President of the Romanian Senate Healthcare Committee 🇷🇴 📍10 Dec, 10:00-12:00, Brussels 🔗 Register here: shorturl.at/J1o0Z

From family planning to menopause, living with HIV as a woman comes with significant yet overlooked challenges. Come hear from Nicoletta Policek, a leading voice for women living with HIV. 🗓️ 10 Dec. 2025 📍 European Parliament InfoHub, Brussels 🔗 Register here: shorturl.at/J1o0Z

An academic leader in HIV, comorbidities, NCDs and healthy ageing, our esteemed co-chair Prof. Caroline Sabin (@ucl.ac.uk) will speak to the need for integrated, evidence-based care models at our World AIDS Day event. 📍10 Dec, 10:00-12:00, Brussels 🔗 Register here: shorturl.at/J1o0Z

Bringing a blend of scientific knowledge, community advocacy and policy action, Amanita Calderon-Cifuentes from @tgeuorg.bsky.social will be joining us as moderator for our upcoming World AIDS Day event👋 🗓️ 10 December 2025 📍 European Parliament InfoHub, Brussels 🔗 Register here: shorturl.at/J1o0Z

HIV Outcomes’ in-country initiatives in 🇮🇹, 🇷🇴, and 🇬🇧 continue to champion recognition of the third sector as an essential part of the HIV response. Want to learn more & share your experiences? Join us for the HIV Outcomes Flash Talks! 📍Community Corner, #EACS2025 🗓 17 Oct, 12:05–12:30

🧠 Today, for #WorldMentalHealthDay, we sound the alarm that the mental health of people living with HIV is heavily affected by stigma, often leading to discrimination, abuse, avoidance of healthcare services, and poorer HRQoL. Action is needed; read more in our Good Practices: tinyurl.com/yj9nt383

🔜𝗪𝗼𝗿𝗹𝗱 𝗔𝗜𝗗𝗦 𝗗𝗮𝘆 𝗰𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝗶𝗻 𝘁𝗵𝗲 𝗘𝘂𝗿𝗼𝗽𝗲𝗮𝗻 𝗣𝗮𝗿𝗹𝗶𝗮𝗺𝗲𝗻𝘁 The EU is at a crossroads. It is a time for 𝗮 𝗻𝗲𝘄 𝗛𝗜𝗩 𝗿𝗲𝘀𝗽𝗼𝗻𝘀𝗲, promoting 𝗲𝗾𝘂𝗶𝘁𝘆 𝗯𝗲𝘁𝘄𝗲𝗲𝗻 𝗴𝗲𝗻𝗱𝗲𝗿𝘀 and across the 𝗹𝗶𝗳𝗲𝘀𝗽𝗮𝗻. 📅 Wednesday 10 December 2025 🕙 10:00 –12:00 CET 📍 European Parliament InfoHub, Brussels 🔗 Register here: shorturl.at/J1o0Z

The #UNAIDS #UNGA side-event on people-centred primary care reminded us that vertical care models are not enough: integration is necessary for dignified, accessible, sustainable care. For people living and ageing with HIV, the inclusion of NCDs & MH in their care is crucial.

Proposals to phase out #UNAIDS by 2026 are threatening decades of progress. With 40 million people living with HIV globally and funding certainty eroding, UNAIDS leadership is vital. There is no time for complacency – the EU must step up to ensure a strong HIV/AIDS response and meet the 2030 goal.

People living with HIV are 2x more likely to develop CVDs and have a 50% higher risk of heart attack. 🫀 The upcoming #EUCardiovascularPlan must recognise and address HIV as a risk factor – read more in our response to the call for evidence: shorturl.at/ERHFV. @ec.europa.eu

Our response to the @ec.europa.eu’s consultation on the European Pillar of Social Rights Action Plan calls for action in 6 key areas important for people living with HIV: 🩺 healthcare, 🕰️ long-term care, 🏥 access to services, 🧑‍🧒 social protection, ♀gender equality, and 💼 work conditions.

☀️ Summer is over – what have we got in store? We're prepping for #EACS2025, to host a HRQoL meeting, and to mark #WorldAIDSDay with a @europarl.europa.eu discussion on gender-informed realities of living w/ HIV across the lifespan. And don't forget to submit your good practices! shorturl.at/rHyNo

For some people living with HIV, stigma can negatively impact: 🏥💊seeking treatment & attending health appointments 💕relationships 🧠mental health & seeking support for it This doesn't need to happen. Learn more about what we do to tackle this: nat.org.uk/what-we-d...

BBC News featured HIV Outcomes UK report, ‘HIV Services at the Crossroads.’ Cutting funding for voluntary services impedes our efforts to end the HIV epidemic by 2030. We cannot allow this trend to continue. Full BBC article and clip 👉 shorturl.at/1ysSM Full report 👉 shorturl.at/P85EK @nat.org.uk

📣 Call for Good Practices in HIV Care! Since 2018, our virtual Compendium has showcased practices that make a difference in the lives of people with HIV. Got a standout initiative? Share it & inspire others! 📝 Submit it by 17 September: forms.gle/rbboxnNSQaBd... More info: shorturl.at/7OdKD

1 year since our Call for an EU Action Plan on HIV/AIDS. Since, the global HIV response has been weakened when it needs to be reinforced. People living with HIV cannot be left behind! 🔎 Read more about our priorities and recommendations for EU policymakers: shorturl.at/Xt7Dm #HRQoL #EndHIVStigma

Call for Good Practices in HIV Care! We're expanding our Good Practices Compendium and want input! shorturl.at/7OdKD We're looking for innovative ways to improve the HRQoL of people living with HIV. 💡 Help us highlight what works and inspire change across Europe. 📝 Submit here: shorturl.at/rHyNo

A very touching webinar with EATG spotlighted several initiatives to ensure healthy ageing with HIV. Better communication between patients and clinicians, such as through #PROMs, would help clinicians understand the priorities of people living with HIV, especially the impact of stigma.

Reminder to register to Monday’s webinar! Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities. EATG has put together a really excellent panel, so make sure to tune in at 16:00 CEST. 🔗 Register here: shorturl.at/U0d5P

Great roundtable with EACS at the European Parliament. Europe needs a more unified HIV response, with quality of life, ageing with dignity, mental health and freedom from stigma at its heart. @eacsociety.bsky.social @krzysztofsmiszek.bsky.social @rbiedron.bsky.social @socialistsanddemocrats.eu

Excited to participate in an EATG webinar: Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities. 🗓️ 7 July (4pm CEST) 🔗 shorturl.at/U0d5P People are living longer with HIV. We can empower them to become decision-makers in their own HIV care and ageing journey

We've submitted evidence to @ec.europa.eu's LGBTIQ equality strategy 🏳️‍🌈 shorturl.at/c242S LGBTIQ+ communities are key pillars in the HIV response. We need the Strategy to: 🚫 Address stigma + discrimination 🩺 Promote #HRQoL 🧑‍🧒 Support long-term care 📉 Collect more data 🤝 Involve + sustain communities

Thanks so much for hosting us @nat.org.uk! You and our other in-country initiatives have done some outstanding work in advocating for the health-related quality of life of people living with HIV. Keep up the good work 👏

Exciting day in London, as we hosted our colleagues across Europe, 🇮🇹IT 🇷🇴RO 🇳🇱NL & 🇬🇧UK. We discussed: 👉 the global HIV situation, where funding cuts threaten progress and millions of lives 👉 ongoing voluntary sector research 👉 our upcoming 10th anniversary 👉 Welcomed a new initiative – stay tuned!

Great presentation from James from @nat.org.uk about the findings of the @hivoutcomes.bsky.social research on the financial crisis facing the #HIV voluntary sector, who provide an essential complement to clinical care, particularly in providing #PeerSupport. #NHIVNA2025

𝗣𝗲𝗲𝗿 𝗮𝗻𝗱 𝗰𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 𝘀𝘂𝗽𝗽𝗼𝗿𝘁 𝗰𝗮𝗻 𝗯𝗲 𝗹𝗶𝗳𝗲-𝗰𝗵𝗮𝗻𝗴𝗶𝗻𝗴 – 𝗮𝗻𝗱 𝗶𝘁𝘀 𝗮𝗯𝘀𝗲𝗻𝗰𝗲 𝗱𝗲𝘃𝗮𝘀𝘁𝗮𝘁𝗶𝗻𝗴. In Scotland, as well as across the UK and Europe, life-changing HIV services are under threat. A new report, presented by @nat.org.uk, makes urgent recommendations to protect peer-support provisions. shorturl.at/zyR6u

At #AIDSImpact2025, we hosted a great symposium on how Patient-Reported Outcome Measures (PROMs) drive person-centred HIV care and improve health-related quality of life (HRQoL) Thanks to our superb panellists: Nicoletta Policek, Brian West, Diana Barger, Mario Cascio, Kevin Moody & Richard Harding

Patient-Reported Outcome Measures (PROMs) can substantially improve person-centredness in HIV care by increasing focus on health-related quality of life. At #AIDSImpact TOMORROW, HIV Outcomes and EATG are delivering a symposium in the Grand Auditorium @ 14:30-16:00. Come along! 👉 shorturl.at/C7QFh

🆕 HIV Services at the crossroads: the role of the voluntary sector and needs of communities. A new report, launched at 🇬🇧 UK parliament by @nat.org.uk, sets out urgent recommendations to support the voluntary sector. 💬 "People will only survive and not thrive without them." shorturl.at/NII9T

An excellent Informal HIV Working Group meeting in @europarl.europa.eu. Stigma & discrimination are hindering the global HIV response, esp. in healthcare, where people living with HIV continue to face prejudice. We support @marcangel-mep.bsky.social call for more training and awareness campaigns.

HIV Outcomes had a great focus group discussion with @unaids.org on the 2026-2031 Global AIDS Strategy. 39 million people are living and ageing with HIV. This presents complex 𝗰𝗹𝗶𝗻𝗶𝗰𝗮𝗹, 𝗽𝘀𝘆𝗰𝗵𝗼𝗹𝗼𝗴𝗶𝗰𝗮𝗹 and 𝘀𝗼𝗰𝗶𝗮𝗹 𝗰𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲𝘀 to health and well-being, which health systems must address.

See you soon, Casablanca! ☀️ At AIDS Impact 2025 (26-28 May), we'll be leading a session on '𝘛𝘩𝘦 𝘪𝘮𝘱𝘭𝘦𝘮𝘦𝘯𝘵𝘢𝘵𝘪𝘰𝘯 𝘰𝘧 𝘗𝘢𝘵𝘪𝘦𝘯𝘵 𝘙𝘦𝘱𝘰𝘳𝘵𝘦𝘥 𝘖𝘶𝘵𝘤𝘰𝘮𝘦 𝘔𝘦𝘢𝘴𝘶𝘳𝘦𝘴 (𝘗𝘙𝘖𝘔𝘚) 𝘵𝘰 𝘥𝘳𝘪𝘷𝘦 𝘱𝘦𝘳𝘴𝘰𝘯-𝘤𝘦𝘯𝘵𝘳𝘦𝘥𝘯𝘦𝘴𝘴 𝘢𝘯𝘥 𝘪𝘮𝘱𝘳𝘰𝘷𝘦 𝘩𝘦𝘢𝘭𝘵𝘩-𝘳𝘦𝘭𝘢𝘵𝘦𝘥 𝘲𝘶𝘢𝘭𝘪𝘵𝘺-𝘰𝘧-𝘭𝘪𝘧𝘦.' 🗓️ Tuesday 27 May 🕝 2:30-4:00pm 📍 1 Grand Auditorium

Mariana Mardarescu and Magdalena Ankiersztejn-Bartczak attended a @ecdc.europa.eu and @poland25eu.bsky.social conference on SDG 3.3. A great opportunity to connect with NGOs, clinicians and experts, share best practices and strengthen collaboration. 🔜 An event report will be published soon...

Well done James Cole and Oluwakemi Agunbiade for your prestigious @bhiva.bsky.social awards! Alongside @nationalaidstrust.bsky.social (the 🇬🇧 UK chapter of HIV Outcomes), their community-based research is transforming our understanding of the challenges people living with HIV face on a daily basis.

A privilege to attend a @unaids.org consultation for the Global AIDS Strategy 2026-2031. This week's sessions focused on ensuring community leadership in the HIV response. Community-led organisations play a critical role in HIV care, support, education and advocacy.

⏳ Just 2 days to go! The deadline to shape the next Global AIDS Strategy 2026-2031 through a survey is Friday 18 April. Take the survey now! ➡️ www.surveymonkey.com/r/SJN6RXX @unaids.org @tillymetz.bsky.social @iasociety.bsky.social @marcangel-mep.bsky.social @nationalaidstrust.bsky.social

🎉 Our 2024 Annual Review is out! 👉 (Re)discover our initiative 👉 Find out what we achieved in the past year 👉 See how we are shifting the #HIV focus beyond viral suppression to improve the #HRQoL of every person living with HIV in #Europe! Read more here 👉 shorturl.at/vsw14

@unaids.org needs you‼️ Calling all stakeholders to participate in the development of the next Global AIDS Strategy. Spanning from 2026-2031, this strategy will be crucial to ending AIDS as a global health threat shorturl.at/ATbaz ⏳ The survey deadline is 28 April, and takes just 15mins to complete

We’re calling for a new EU Action Plan on HIV/AIDS. 2030 is approaching but @ecdc.europa.eu reports the EU is behind on its commitment to end the HIV epidemic by then. We urgently need a plan to accelerate action and coordinate policy across the EU. Read our call to action here: shorturl.at/oXzYp

Our initiatives in 🇮🇹 Italy, 🇷🇴 Romania and 🇬🇧 UK work for change in policies and clinical practices through grassroots campaigns At EU level, we work with MEPs, @ec.europa.eu, @unaids.org and many others to make sure people living with #HIV are not being left behind in policy.

❓What is 𝐡𝐞𝐚𝐥𝐭𝐡-𝐫𝐞𝐥𝐚𝐭𝐞𝐝 𝐪𝐮𝐚𝐥𝐢𝐭𝐲 𝐨𝐟 𝐥𝐢𝐟𝐞 (𝐇𝐑𝐐𝐨𝐋) and why is it central to our mission? ↗️ Life expectancy has greatly improved for people living with HIV. With HRQoL we can help 𝐞𝐧𝐬𝐮𝐫𝐞 𝐭𝐡𝐞 𝐇𝐈𝐕 𝐩𝐨𝐩𝐮𝐥𝐚𝐭𝐢𝐨𝐧 𝐧𝐨𝐭 𝐨𝐧𝐥𝐲 𝐥𝐢𝐯𝐞𝐬 𝐥𝐨𝐧𝐠, 𝐛𝐮𝐭 𝐡𝐞𝐚𝐥𝐭𝐡𝐢𝐥𝐲 👉 hivoutcomes.eu/wp-content/u...

We’re also privileged to work with @europarl.europa.eu (incl MEPs @tillymetz.bsky.social and @marcangel-mep.bsky.social), @ec.europa.eu, @ecdc.europa.eu, @unaids.org, @who.int and many others who progress and devise policies that help people living with HIV in Europe and around the world.

Great to see some of our partners here already! We work with academics, clinicians, advocacy groups, companies & NGOs to improve the lives of people living with HIV We’ve got over 60 members but haven’t found them all here [yet!]: shorturl.at/QohfH @nationalaidstrust.bsky.social @tht.org.uk

Hey @bsky.app 👋 Imagine a world where people living with #HIV live long, healthy lives. We're here to tell you more about how to get there and what we're doing to promote Health-Related Quality of Life #HRQoL in Europe. Check our work: hivoutcomes.eu