A massive thank you to Aly Walker who joined our last PSAG (Pregnancy, Support and Advocacy Group) last week. It was, as always, an insightful conversation - we learnt a lot! The next PSAG takes place on 18th November 2025 @ 7pm and

Have you a CF experience to share? Join our Ambassador call tonight at 7.30pm and find out how sharing your story can make a difference. 📍 Zoom ⏰ 7.30pm 📅 21st October Register here to join: www.cfireland.ie/get-involved...

Thank you to everyone who joined the online launch of The Cost of Breathing photographic exhibition yesterday. If you missed it, the virtual gallery is now open for viewing here : www.cfireland.ie/support-reso...

Delighted to be taking part in the UN International Day for the Eradication of Poverty today #17October. Join us this lunchtime 1pm for the launch of The Cost of Breathing, a powerful photographic exhibition by Trevor O'Donoghue. Visit www.cfireland.ie/about-cf/lat... to join.

'The Cost of Breathing' is a series of symbolic self-portraits which confront the emotional reality of poverty & Cystic Fibrosis. To mark the UN International Day for the Eradication of Poverty, we invite you to join us and Trevor O'Donoghue Photography to launch this exhibition.

Preparation for the CFI Community Conference is in full swing & we would love you to join! 📆7th February 2025 📍The Strand Hotel Limerick ❓Workshops, dinner, dancing, awards & more! Don't miss your chance to get early bird rates on accommodation - registration open! www.cfireland.ie/support-reso...

We are planning editorial content for 2026 and who better to ask what to include but our members and readers! If you get Spectrum straight to your inbox, hopefully you've had a flick through. But you can still check it out on our website and let us know what you think here: buff.ly/cbggn4o

We are planning editorial content for 2026 and who better to ask what to include but our members and readers! If you get Spectrum straight to your inbox, hopefully you've had a flick through. But you can still check it out on our website and let us know what you think here: buff.ly/cbggn4o

Registration is now open for the CFI Community Conference 2026! Book before Christmas to secure your seat and available of the early bird accommodation discount! Visit www.cfireland.ie to reserve your spot.

Check out this month's Spectrum when Harry Cahill, a 17 year old from Kildare, who is aiming high and giving athletics everything he has got, and the results he has achieved. Visit www.cfireland.ie//support-res... to read Harry's story and to sign up for your copy!

Don't forget we have two amazing support groups for members to join coming up! For more info, visit www.cfireland.ie/support-reso...

Just one week to go until CFI in collaboration with Focus on Happiness and Trevor O'Donoghue photography launch 'The Cost of Living' exhibition to mark UN International Day of Eradication of Poverty. Join us on the 17th October at 1pm. Register here buff.ly/bffe3pr

🎉 Spectrum has landed!!! Our quarterly magazine, Spectrum, should be now safely in your inbox! So grab a cuppa, sit back and take a look! You can also catch a look at the flip book on our website by visiting... www.cfireland.ie//support-res...

The Cost of Breathing is a photography exhibition which confronts the emotional reality of poverty and Cystic Fibrosis. In collaboration with Focus on Happiness & Trevor O'Donoghue Photography, we are proud to launch this powerful exhibition on 17th October at 1pm.

The next morning time Parent Connect meeting is coming up on the 14th October at 11am. If you are a parent of a child with CF and would like to meet others who understand, visit www.cfireland.ie/support-reso... for information. We look forward to meeting you!

We are delighted to share that registration for the 2026 CFI Community Conference, taking place on the 7th Feb, is now open! Visit www.cfireland.ie/support-reso... to reserve your place and to receive your accommodation discount code if staying the night.

We are thrilled to welcome back Aly Walker, Ireland’s only practicing midwife and physiotherapist. Aly is a frequent visitor and friend to the PSAG and we are looking forward to learning and laughing lots!!

Selina Braddish and the team at UL are looking for couples where one partner has CF who have started the parenthood journey in the last three years, from planning to parenting to give one hour of their time to share their experience for research.

Join Cystic Fibrosis Ireland in collaboration with Focus on Happiness and Trevor O'Donoghue Photography, for the launch of 'The Cost of Breathing' a series of symbolic self-portraits which confront the emotional reality of poverty and CF. 📅 17th October ⏰ 1pm ✔️Online

There are three exciting #CF related studies currently looking for input from the #CysticFibrosis #Community in Ireland. Will you give researchers the benefit of your experiences? Visit www.cfireland.ie to get involved.

🎉 The CFI Community Conference is back! 🎉 📢 Save the date and join us on the 📆7th February 2026 for the CF Community Conference at the Limerick Strand Hotel.

Today is the second annual SNA Appreciation Day! 🎉 🙏 Thanks to SNAs for the crucial role they play in supporting children in schools around Ireland! 🙏 #ThankOurSNAs

Are you interested in helping to develop our understanding of CF Liver Disease? Do you think you can use your experience and expertise as a person (or a parent of a child) with CF to strengthen and support a CFI/ HRB funded project in the field?

Are you a member of the CF Community in Ireland, & have a few minutes to share your experience of using electronic tools to support CF Care? @3cf.bsky.social is conducting a study to find out if there are any skills they need to use these tools and would love to hear from you.

Are you interested in helping to develop our understanding of CF Liver Disease? Do you think you can use your experience and expertise as a person (or a parent of a child) with CF to strengthen and support a CFI/ HRB funded project in the field?

🧑‍🎓Starting college?🧑‍🎓 CFI offer exercise grants for students with CF. With support from the Toy Show Appeal, get in touch to apply or find out more! www.cfireland.ie

📢 Calling all members starting third level education at UCD 📢 UCD Cothrom na Féinne Scholarship is Ireland's largest Access scholarship and is now open for application. To find out more, visit www.ucd.ie/all/supports...

Are you interested in helping to develop our understanding of CF Liver Disease? Do you think you can use your experience and expertise as a person (or a parent of a child) with CF to strengthen and support the project? .

Could you give one hour of your time to help a research study? Selina Braddish and the team at @UL are exploring the psychological and emotional experiences of people with Cystic Fibrosis (PwCF) and their partners as they navigate the journey to parenthood.

The 2025 Fuel Allowance lump sums are scheduled for the last week of September 2025 and the first week of January 2026. The 2025/2026 Fuel Allowance season begins on Monday, September 22, 2025, and the allowance is paid for 28 weeks.

Parent Support Groups give parents of children with #CysticFibrosis and opportunity to share stories and experiences with others. Choose from a morning or evening group and register today to join this welcoming bunch. Visit www.cfireland.ie

🔊🔊Calling all #thirdlevel students with CF! CFI grants for exercise and sport are now available. Apply today at www.cfirlend.ie #unilife #sportandfitness #university

@3cf.bsky.social is conducting a study to find out if the CF community are using any electronic tools currently to support their care, and if there are any skills they need to use these tools with confidence. Let the team know your experience by visiting buff.ly/ajQEaqA

Our monthly online support group for parents of children with CF is back on the 10th September at 7.30pm. We also have a brand new time to offer starting the 16th September at 11am. Visit www.cfireland.ie for info or to register your place. #cysticfibrosis #parentsupport

Parent Support Groups give parents of children with #CysticFibrosis and opportunity to share stories and experiences with others. Choose from a morning or evening group and register today to join this welcoming bunch. Visit www.cfireland.ie

Back to school? Back to Afterschool? Exercise grants are now available to support children with CF.. For more information, visit www.cfireland.ie #exercise #cysticfibrosis #backtoschool

Selina Braddish and the team at UL are exploring the psychological and emotional experiences of people with Cystic Fibrosis (PwCF) and their partners as they navigate the journey to parenthood. Selina is looking for people to give one hour of their time for an interview to share their experience.

Emer Fitzpatrick and team are conducting a CF liver disease focused study to develop a model which identifies those at risk of liver disease (CFLD) in Cystic Fibrosis, and understand the role of CFTR modulator therapy in the prevention and management of CFLD.

Cystic Fibrosis Ireland is pleased to share that ALYFTREK® (deutivacaftor/tezacaftor/vanzacaftor) is available for reimbursement from today - 1st September 2025. Read the full statement here: www.cfireland.ie/about-cf/lat...

Parents of children with Cystic Fibrosis are invited to join our online Parent Support Group which aims to foster community among our members. The next event will take place on Wednesday 10th September at 7.30pm via Zoom. Register here buff.ly/VKQL9Ry today.

Cystic Fibrosis Ireland has launched a 'Schools and Cystic Fibrosis Toolkit' to provide parents, carers, pre-schools, schools and individuals with guidance and resources to ensure children living with CF can meaningfully participate in early education. www.cfireland.ie/support-reso...

CFI is delighted to bring the Living Well programme to our members. Living Well is a free group programme for adults living with any long-term or chronic condition o those caring for those with a condition.

People with Cystic Fibrosis, their families & carers are being invited to take part in a research study to be carried out by Dr Tamara Vagg at the @3cf.bsky.social called the "CF Telehealth Toolbox"! To take part in this important study, visit ucc.qualtrics.com/jfe/form/SV_...

Are you a woman with CF on any stage of a fertility journey? The Pregnancy Support and Advocacy Group meets again after the summer break on 2nd September at 8pm. If you would like to know more, visit buff.ly/AhFhxM2

CFI are delighted to add a second Parent Connect support group to the diary of valuable member events! Parents of children with CF can now choose to join either a morning or evening online group. For dates and times, please visit www.cfireland.ie/support-reso...

And just like that, we are back to school 🏫!! If your child has CF and is starting pre-school or school, our new and improved Schools and CF resource pack is available now to guide you through this exciting time. School shoes 👞 ✔️ School bag🎒 ✔️ Lunchbox 🍱 ✔️ Guide to CF & Schools 📖

📢📢 CALLING ALL MEMBERS!!! SAVE THE DATE FOR THE CFI COMMUNITY CONFERENCE 🎉🎉 📅 7th February 2026 📍The Limerick Strand Hotel ℹ️ Watch this space for details and registration

CFI is delighted to welcome Caroline from Better Start to join our members, tomorrow 20th August at 6:30 pm, online, to talk us through the AIM supports available in Early learning and care settings. Don't miss out - register online at www.cfireland.ie to secure your spot. See you there!

Parents of children with Cystic Fibrosis are invited to join our online Parent Support Group which aims to foster community among our members. The next event will take place on Wednesday, 10th September at 7.30pm via Zoom. Register here buff.ly/VKQL9Ry today.

CFI is delighted to bring the Living Well programme to our members. Living Well is a free group programme for adults living with any long-term or chronic condition or those caring for those with a condition.