Survived the forced merriment. It wasn’t terrible. Thankfully, no dumbass games. We all just sat and talked with one another. Like I said, it wasn’t terrible, but the food was really meh. I ordered bread pudding and was served a small donut soaked in sugar syrup. 🤢 Survey says? ❌❌❌ I’m exhausted.

Today I have to attend a forced merriment event for work. It’s at 12:30pm. I have ADHD. This means I can’t do anything before then because I Am Waiting. Ugh. I guess it could be worse. They could have picked 3pm. #spoonie #chronicpain #chronicillness #adhd

Okay. This feels like it can’t be real except it is? A litter-robot that you can buy with FSA/HSA funds if you can get a Letter of Medical Necessity (LMN) from your doctor? Anyone out there actually try doing that?!? #spoonie #chronicpain #chronicillness

Anyone out there pimp out their mobility aids for the holidays? I low key want to put antlers on my Rollator for Friday’s enforced work merriment event. #spoonie #chronicpain #chronicillness #spooniehumor

#spoonie #chronicpain #chronicillness #spooniehumor

Apparently, I was supposed to get a brace something like this instead of what I got. This looks much more manageable! #spoonie #chronicpain #chronicillness

Happy holidays! #spoonie #chronicpain #chronicillness #spooniehumor

#spoonie #chronicpain #chronicillness #spooniehumor #anxiety #depression #seasonalaffectivedisorder

I don’t know if I could be that cruel to another human being. I’d prefer that they be afflicted and have to appeal to their peers for help/answers so they could really understand how dehumanizing it is to be chronically ill or in endless pain. #spoonie #chronicpain #chronicillness

We laugh so we don’t cry! #spoonie #chronicpain #chronicillness #spooniehumor

The new leg brace they want me to wear due to my achilles tendon avulsion. I don’t think it’s gonna happen. The sensation of wearing it makes me want to claw my way out of my body. The ortho said he intended something simpler. 🤷🏻‍♀️ #spoonie #chronicpain #chronicillness

Six doctor’s appointments this week. Six. SIX. I feel like I ran a god damned marathon. 😣 Spoonie life, amirite? #spoonie #chronicpain #chronicillness

I’ve heard this before, that the “normal” amount of pain is ZERO. My brain just can’t grok that. I can’t recall a single day of my life without pain. 🙁 I hope in my next life I get to be on the side of the zeroes. #spoonie #chronicpain #chronicillness

And this is why I will spend Thanksgiving alone, giving thanks that I am alone rather than tolerating the toxic slop I grew up in.

Thanks, Body.

So demure. So modest.

So the Pain Clinic rejected my doctor’s referral because I’m seeing someone in PM&R. Can someone explain to me why those two things are mutually exclusive? I just feel so…defeated…and tired. #spoonie #chronicpain #chronicillness

#spoonie #chronicpain #chronicillness #spooniehumor

Started PT (again) for my hip and t’s legit destroying me. 😭 I’m not suicidal, I just don’t know how much longer I can do this. I have an appointment with a surgeon in a different health system on December 5th. I’m **really** hoping he’ll do the surgery. 🤞🏻 #spoonie #chronicpain #chronicillness

I feel this in my bones. #spoonie #chronicpain #chronicillness https://www.threads.com/@iaskedtomytherapist/post/DRJV6Z7CKJS?xmt=AQF0XBfY96JCZVqc7ssCGcHNn599pb2YVunoTCNjpz6Ru6juf9l4iy1EXY9xwqYEe5WvSE82&slof=1

Radiologist thinks I might have an infection in my hip joint. Super. The perfect thing to kickoff my week. 🙄 #spoonie #chronicpain #chronicillness

Well, the ER trip wasn’t a total waste. I learned that Robaxin — with a Norco chaser — actually gives me some pain relief. Whew. I also got a greater trochanteric bursa injection this week. Fingers crossed, it will help, too. #spoonie #chronicpain

Currently ISO an orthopedic (hip) surgeon is SE Michigan who doesn’t use BMI as their sole disqualifier for surgery. Any leads would be appreciated. Mine just told me to lose 100-150 lbs, which is patently ridiculous and highly unlikely to ever happen. Thanks. #spoonie #chronicpain

Tee hee! 🏳️‍⚧️🏳️‍⚧️🏳️‍⚧️

Went to the ER and, as predicted, sat for hours, cried during the x-rays, and ultimately got no relief. No pain meds to help with the increased pain, just muscle relaxers to hopefully stop the spasms. My body sucks. Oh. And the pharmacy doesn’t open for 4 more hours. 🤬 #spoonie #chronicpain

Exciting development with my hip. Now I’m getting muscle spasms that are worse than the “normal” pain. I’ve been debating going to the ER, but know they’ll just leave me sitting for hours because no one takes pain seriously. I hate my life. #spoonie #chronicpain #chronicillness

Word. #spoonie #chronicpain #chronicillness

Yet ANOTHER bad #Dexcom G6 sensor giving me garbage readings. WTF, Dexcom? If I gave myself as much insulin as the readings you’re giving would demand, I’d be in a god damned COMA! #spoonie #chronicpain #chronicillness

The opioid crisis is definitely real, but that doesn’t mean opioids and other pain control medications don’t have a legitimate role to play in patient care. Without my pain meds my quality of life is ZERO. Even with pain meds I have days where it feels like I can’t go on. #spoonie #chronicpain

In 2024, I went from making $170K/year to needing SNAP and Medicare in a mind-bogglingly short amount of time. Trust me, it can happen to you, too. #StartWithFood #SNAP #SNAPbenefits #SNAPSOS #FeedTheHungry #FoodIsABasicHumanRight #healthcareisahumanright #universalhealthcareforall

I’ve noticed a lot more strands of hair on my clothes and whatnot. I attributed it to it falling out due to stress. I was wrong. I just caught myself pulling on a handful of my hair as a pain distraction. Just what I need, one more problem. 🙄 #spoonie #chronicpain #chronicillness

A week in the life of a spoonie, amirite? #spoonie #chronicpain #chronicillness

More gyms like this, please. #transrights #transrightsarehumanrights #translivesmatter #protecttransyouth #lgbtqia+

This is bad. Very, very bad. https://www.advocate.com/politics/dhs-allows-surveillance-sexual-orientation #transrights #transrightsarehumanrights #translivesmatter #protecttransyouth #lgbtqia+ #trumpregime #fascism #AmericanFascism #authoritarianism #GangsterRegime #RESIST

Found n image online that shows what’s going on in my hip in addition to the OA. No wonder it fucking hurts! #spoonie #chronicpain #GTPS #GreaterTrochantericPainSyndrome

Reason #528,640 why this new PCP isn't going to work out? She felt it necessary to note in my chart that I "...used the 'F' word." Oh honey. Strap in because things are going to get a lot fucking worse if we don't do something about my god damned pain! #spoonie #chronicpain #chronicillness

PM&R doc says it’s greater trochanteric pain syndrome (GTPS). He thinks the hip injection didn’t work — or feels like it didn’t — because the pain is coming from a different place. He’s going to give me an injection is a different spot, but can’t do it until November because of the other shot. 😭

A last minute cancellation means I scored an appointment with PM&R for THIS MORNING!!! That’s freakin’ record time for this health system. I’m trying really hard to stay positive about this, that this new doc will help me with my pain. Fingers crossed! #spoonie #chronicpain #chronicillness

Dinner, because today was a shitty, shitty day and it’s all I can manage. I feel like I’m symbolically eating off my last Spoon. #spoonie #chronicpain #chronicillness

Had an impossibly useless pain management appointment with my PCP. I’m gonna go have a good cry about it now. #spoonie #chronicpain #chronicillness

Wow. The White House and Federal Bureaus must be freaking out. My feed today is crammed full of their Fascists, racist bullshit posts. #NOKINGS #NoKingsDay #trumpregime #fascism #AmericanFascism #authoritarianism #GangsterRegime #Kakistocracy #AmericanFascistParty #MAGA #ResistFascism

#spoonie #chronicpain #chronicillness #NoKingsDay #RESIST #trumpregime #fascism #AmericanFascism #oligarchy #authoritarianism #GangsterRegime #Kakistocracy #AmericanFascistParty #MAGA #ResistFascism #AbolishICE

#spoonie #chronicpain #chronicillness #spooniehumor

Welcome to our world. We have to fight for everything we ever get. That’s what happens when you have an under-insured populace and for-profit insurance companies. #spoonie #chronicpain #chronicillness

I joined our weekly PMO huddle and was chatting with people because we were all a little early. One of the PMs commented, “I love it when Ella joins a meeting. She just brings energy and joyful radiance with her and it’s infectious!” I think it might be because I love my job. 😊

Worst part of a mammogram for me isn’t the squish. It’s the tearing of the under-boob skin from my chest wall as they manhandle my tits to get them on the plate. Fucking masochists, I swear. I didn’t even get a sticker or sucker! #spoonie #chronicpain #chronicillness #bigboobproblems #mammogram

Pan. SoPo. Aro. *Et tu?* #nationalcomingoutday

Police car in Palm Springs. I’ve also seen pix from Orlando. As you can imagine, MAGA is BIG MAD about it, which delights me to no end. 🥳 Suck it, MAGA. #transrights #transrightsarehumanrights #translivesmatter #protecttransyouth #lgbtia #justsaygay

My nose is telling me that something surprised or scared Yard Skunk. 🦨

Successfully got my mammogram today. It took a lot longer seated but we got it done. That device was most definitely designed by a man. My real question though is why the fuck hasn’t someone invented a better alternative? There must be other options out there! #spoonie #chronicpain #chronicillness