Exciting news! 💗 Our Executive Director met with Dr. Jonathan Santoro at Children's Hospital Los Angeles to launch the first global survey focused on the experiences of children and young people living with MOGAD—and to explore additional pediatric initiatives for 2027.

Promising news for the MOGAD community! A new international study found that IL-6 receptor blockers (primarily tocilizumab) were associated with lower relapse rates and a favorable safety profile in people living with MOGAD. https://jamanetwork.com/journals/jamaneurology/article-abstract/2851426

We are so proud to celebrate one of The MOG Project's Children Ambassadors, Brody! ✨ 🩷 We hope you'll take a few minutes to read Brody's journey & celebrate his family with us! https://newsnetwork.mayoclinic.org/discussion/following-years-of-relapses-family-turns-to-mayo-clinic-for-mogad-expertise/

🩷 Big news! Registration for The MOG Project's 2026 U.S. Patient Summit is officially CLOSED—and we had to close early because we have already reached capacity! Livestream registration details coming soon. And thank you to UCB, Roche, and Genentech!

"If I could go back to when I was first diagnosed with MOGAD six years ago, here's what I'd do differently..." In this clip, Scott shares one of the biggest lessons he's learned along the way: make self-care a priority. 🎥 Watch the full video here: https://www.youtube.com/watch?v=5FoT1hMzgpM

💗 Meet Kady, one of our amazing Children's Ambassadors! Kady created this video to share what it's like to receive her monthly SCIG treatment while living with MOGAD. We're so proud of her advocacy and courage. Learn more: mogproject.org/childrens-ambassadors #MOGAD

Our partners at SRNA asked us to share this opportunity with our community. SRNA and Can Do MS are offering a free, four-week coaching series for people living with rare neuroimmune disorders, including MOGAD. Learn more: srna.ngo/coaching

Today's MOGnificent Monday message is simple, yet powerful: "We are working for you to improve your life." Share this message with someone in the MOGAD community who could use a reminder that a global team of experts is working every day to help build a brighter future. ✨

🎓 Congrats to our longtime volunteer, Becca Salky, on graduating from Harvard Medical School with a Master of Science in Bioethics! As a MOGAD patient, RN, clinical research professional, and rare disease advocate, Becca brings a deeply personal and professional perspective to her advocacy. 💗

We’re incredibly grateful to Langley Wellington for choosing to support The MOG Project through their fundraising efforts in the UK! If you’d like to support their efforts, consider helping them reach their goal: https://www.justgiving.com/crowdfunding/langleywellington

Shoutout to Coco, one of The MOG Project's Children's Ambassadors! At just 10 years old, Coco raised nearly $3,000 for The MOG Project's Research for Rare Grants Program. Become a Charitable Ambassador today: https://mogproject.org/community/contribute/donate/

Please join us in welcoming **Leslie Hanrahan** to The MOG Project team as our Director of Programs! We're so glad to have Leslie on board and can't wait for our community to get to know her. Learn more about Leslie and our leadership team: 🌐 mogproject.org/about/#hanrahan

📣 Australian Support Group Update! Please note that our June Australian Support Group meeting with Kathy Feralla has been rescheduled. ❌ Previously scheduled: Tuesday, June 16 ✅ New date: Thursday, June 18 Register here: https://us02web.zoom.us/meeting/register/Yg4eTT1LRxG8UHjZar-I2Q#/registration

Have you heard of Music, Movement & MOGAD? 🎵 Join us on the last Sunday of the month for a special family-friendly Zoom experience designed for children ages 12 and under! ✨ Learn more and register: https://us02web.zoom.us/meeting/register/NEGihO7bQgahccZcIkpvXQ#/registration

Aria is 8, a footballer & Children’s Ambassador for TMP. This May she ran the Great Manchester Run for her twin brother Isaac, who lives with MOGAD. “Advocating means teaching people about MOG and how it affects families.” https://mogproject.org/aria-great-manchester-run-mogad-fundraiser/

Following the International Expert Panel on Research Directions in MOGAD that we hosted a couple of weeks ago, we have a new series called MOGnificent Monday with messages written to people living with MOGAD from our incredible group of doctors! 👨‍⚕️👩‍⚕️ Share this hopeful message others! ✨

As ADEM Awareness Month comes to a close, we're highlighting the ADEM Academy, a podcast series created with the SRNA to educate and raise awareness about ADEM. Watch the full series here: https://mogproject.org/adem-academy/

Registration for the 2026 U.S. MOGAD Patient Summit is OPEN!! ✨ Join us August 29–30, 2026 in Baltimore for a weekend of education, connection, and community. Registration is free, but space is limited. https://mogproject.org/Summit2026/

Last week, international experts in MOGAD research and care gathered in MA for the International Expert Panel on Research Directions in MOGAD. Thank you to UCB and Genentech for supporting this important work. Learn more: https://mogproject.org/international-expert-panel-2026/

Many people living with MOGAD experience permanent optic nerve damage that can lead to low or no vision in one or both eyes. With improved testing and earlier diagnosis, our hope is that no person loses their eyesight to this disease. Find our resources at https://mogproject.org/blind-resources/

Please join us in welcoming Melody Craft to The MOG Project’s Advisory Council! 🩷🩵 Melody is a passionate educator, advocate, and member of the MOGAD community who brings both professional expertise and lived experience to our mission. Read Melody’s full bio at mogproject.org/about/#craft

In partnership with the SRNA, we brought you a special MOGcast at the beginning of April with Dr. Benjamin Greenberg on the state of MOGAD science. Now, we’re continuing that work from MOGAD Awareness Month. Read the blog + explore Dr. Greenberg’s insights: https://mogproject.org/mam2026-mogcast/

Earlier this month, we asked people to send us their hummingbird coloring activity in honor of MOGAD Awareness Month. We are excited to conclude April by sharing this with our community! Check out our hummingbird art page and show these submissions some love: https://mogproject.org/hummingbird-art/

While MOGAD Awareness Month is coming to a close, our work isn't! Like the hummingbird, monthly giving can small, yet impactful. Give $19 a month -- or whatever you're able -- to support the future of MOGAD research: mogproject.org/donate

A diagnosis isn’t the end of the journey — it’s the beginning of long-term navigation. And living with MOGAD means having people who understand. You don’t have to navigate this alone! Learn more about our support groups at mogproject.org/support

Please join us in welcoming Hannah Greer to The MOG Project’s Advisory Board as our new Fundraising Coordinator! We’re honored to have her voice, expertise, and lived experience guiding our mission forward! Read Hannah’s full story: https://mogproject.org/about/#greer

Research doesn’t just happen in laboratories. We're excited to offer you two new resources for questions to ask your doctor that members of our community helped us create! Download them here: https://mogproject.org/mogad-learning-center/questions-for-your-doctor/

We’re excited to welcome Daniel Hallwood as our Regional Delegate for Saudi Arabia! After his MOGAD diagnosis, Daniel found community, and now he’s helping build it through advocacy and storytelling. 👉 Read his full bio: mogproject.org/about/#hallwood

Big advocacy win! 👏 Advisory Board member John Filchak took initiative and successfully requested an official MOGAD proclamation from Ned Lamont, marking an important step forward in state-level recognition of MOGAD!

At just nine years old, Sonia was diagnosed with MOGAD, and since then, her journey has been anything but easy. Today, at 15, Sonia continues to shine. She’s a straight-A student, an avid reader, and a fierce competitor on the track. Race to watch her story!

We’re sharing a special teaser this MOGAD Awareness Month… 💌 Because MOGAD impacts the whole family, we’ve been working behind the scenes on something just for you: our very first Family Newsletter! Sign up here: https://mogproject.org/community/mogad-family-newsletter/

🩵🩷 MOGAD Voices (in collaboration with SRNA) Angela is a regional delegate for The MOG Project in Brazil and a dedicated advocate for individuals and families affected by MOGAD. Access our MOGAD Learning Center for information about this disease: https://mogproject.org/mogad-learning-center/

Missed our MOGcast for MOGAD Awareness Month? You can now watch the full conversation! 🎥 Watch now on our YouTube channel: https://youtu.be/9gZpOjdvsDw?si=vA7Q7hPQ9pGiG-1-

We are stronger together, especially during #MOGADAwarenessMonth! Watch this brief, yet inspirational video of Melissa, one of our children's ambassadors. 🩷🩵 And learn more about our Children's Ambassadors Program at mogproject.org/childrens-ambassadors

Today we stand together for everyone impacted by Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD). Rare does not mean invisible and today’s actions matter! 1️⃣ Share this post 2️⃣ Tag 2 friends 3️⃣ Make a donation at mogproject.org/donate — even $10 moves research forward

Behind every diagnosis is a story: Delayed answers. Misdiagnosis. Resilience. Strength. Your voice could help someone else feel less alone. The first Saturday of April is World MOGAD Day. Tag us your in photo and/or short story tomorrow, April 4, and we'll reshare it on our social channels!

It’s officially MOGAD Awareness Month — and we’re just getting started! ✨ This year’s theme is MOGADvocacy®. We have so much in store this month, and you won’t want to miss it! Stay tuned for events, stories, and ways to take action. And learn how to can get involved at mogproject.org/mam2026

We've created a shareable toolkit to make spreading the word about MOGAD easy, with downloadable graphics and sample social media posts that you can share to any of your personal social channels! Check out our MOGAD Awareness Month webpage at with these and much more at mogproject.org/mam2026.

Please join us in welcoming Luz Adriana Hernandez as The MOG Project’s new Regional Delegate for Sweden & Mexico! Luz will lead our new Spanish-language support group with the first meeting taking place on 04/19 at 7PM EDT. https://us02web.zoom.us/meeting/register/WNZ7fGx_QnKKsy4ZX8wyWg

Kick off #MOGADAwarenessMonth with us! Join our MOGcast with the SRNA featuring Dr. Ben Greenberg on the latest in MOGAD science & research. April 2, 2026 at 2 PM EDT | Open to all! Register: https://us02web.zoom.us/webinar/register/WN_vLtVlFlkQbitrwmVL51QSw#/registration

Em reconhecimento ao Abril Turquesa, convidamos você para uma conversa especial reunindo especialistas e a comunidade para falar sobre MOGAD, diagnóstico, cuidados e a experiência dos pacientes. https://us02web.zoom.us/meeting/register/zdWlmaOoT9WzC7lVjKI79Q

SAVE THE DATE! We are THRILLED to announce that the next US MOGAD Patient Summit will be held in Baltimore, Maryland at the beautiful Inner Harbor! Don’t miss out on this two-day event, loaded with learning, community connections and fun for all! 📍 Baltimore, Maryland 📅 August 29–30, 2026

Join us for MOGAD Community Meditation, a guided virtual session for people living with MOGAD and their caregivers, led by the incredible Kathy Ferella. April 19 🕓 4 PM EDT 🕙 10 PM CET April 20 🌅 6 AM AEST Register: https://us02web.zoom.us/meeting/register/BEuPGssPSrm6l35eeXIuQw#/registration

Light up for MAM! ✔ Contact a local building, city hall, bridge authority, hospital, school, or business ✔ Request lighting for April 4 (or any day in April) ✔ Send us photos so we can feature your city Comment below if you’re willing to contact a building in your area!

MOGAD diagnoses aren’t always linear. What symptoms first alerted your healthcare team to your MOGAD diagnosis? 🎥 Video by John Hong Kim

This International Women’s Day, we’re celebrating the women who help lead and support the MOGAD community. Read advice from several of our support group leaders and learn more about our groups: mogproject.org/support #InternationalWomensDay #MOGAD

Why does MOGAD Awareness Month matter? Because rare doesn’t mean invisible. MOGAD is often misunderstood, misdiagnosed, or delayed in diagnosis. During the month of April we’re advocating for change! Stay tuned each week for new resources and how you can participate.

DST is almost here. Losing an hour of sleep can feel like an inconvenience for some. But when living with MOGAD, changes to sleep routines can have a bigger impact on energy levels, symptoms, and overall well-being. Be gentle with yourself and know that your community is here with you.

🐾 Today we pay tribute to Newcastle, the sweetest, most loving dog, the first MOGDog, and the first guide dog of our Director of Blind Advocacy and patient ambassador, Andrea Mitchell. Please show some love for Newcastle in the comments!

April is almost here… and that means #MOGADAwarenessMonth is coming with World MOGAD Day on April 4, 2026! This year’s theme is MOGADvocacy® with weekly topics on: Advocate through awareness. Advocate for yourself. Advocate through community. Advocate through research. More details coming soon!