Getting better never coming only getting worse. I don’t know how to cope for 15 more years, I swore to myself I would.

Yesterday really ate at me and I ate at my self. Today is another day, the rainbow reminds me so. Though waking up tired and sore, I try to see the positives and find joy everyday. #rainbowoutmywindow #chronicpain #anewday #disability #mobilityimpaired

I don’t know why I let it get to me but it sure does irritate me profusely when someone acts as if they know my condition and compare it to someone they knew 60years ago and I how I look great by comparison and I “should be happy”.

The morning has crept up on me quick. My gumption is running out and the whole day is ahead of me. #itneverstops #negativespoons #chronicpain #congentialdeformity #clubbedfootwarrior #homeschool #15moreyears

I host a seniors strength & balance exercise group. Some days their abilities outshine mine and my mind sounds off, loudly. True, it’s part of understanding the needs of modification of exercises but gosh… my head tells me they deserve better. #impostersyndrome #chronicpain #mobilityimpared

Today has been relatively good. We were very busy but got plenty done with our day and still had some fun. I’m spent and have sat, now it’s setting in. 😮‍💨 #chronicpain #mobilityimpaired #homeschool #homemade #15moreyears

I have used the spoon analogy for a while but didn’t realise it made me a #Spoonie. I am behind the times I suppose. Learning to work with my disability and to be kind to myself in the process. #deterioratingcondition #mobilityimpared #chronicpain

My mind berates me to do more and more and my feet scream no every excruciating step. I started this page to be semi anonymous and complain without as much guilt. I honestly just can’t wait to be done with existing, hard to want to keep going at times. #chronicpain #mobilityimpaired