Imagine reading multiple peer-reviewed medical journals, seeing clear evidence of a condition, then looking someone dead in the eyes and saying, ‘This isn’t true.’ As if science only counts when it’s convenient and fits your narrative. This is the current healthcare system. #chronicillness #POTS

Chronic illness folk often times hear“I’m tired too” when talking to others about fatigue. Yes, you had a long day and are drained from work, that is completely understandable and we sympathize. The difference is you’ll go to bed and wake up refreshed, We won’t. #chronicillness #POTS

Living with a #chronicillness turns everyday tasks into hurdles. Folding laundry? Exhausted after one load. Making dinner? Pain kicks in halfway through. Chat with a friend? Brain fog steals your words. Grocery shopping? Need a day to recover. Quick shower? Feels like you ran a marathon.

Living with an invisible #disability means fighting battles others can’t see. In relationships, this can lead to misunderstandings that leave us feeling isolated and misunderstood. Let’s talk about why. 👇

I miss the days where fatigue wasn’t kicking my ass 24/7 #POTS #chronicillness #disability

I think most "healthy" people who don't have a chronic illness, think doctors can cure every ailment. That it can't ever be that bad, they can just go to the doctors to get whatever it is fixed. The illusion is definitely shattered when you have an illness that can’t be cured. #POTS

If you’re healthy and you really want to know what it’s like living with chronic illness, try not eating or sleeping for three days. Then go and try to function in the outside world. #chronicillness #disability #POTS #invisibleillness

I’m not ready for snow or winter. Yes I’m happy the worst of the heat from the summer is over but I don’t do well in extreme cold either. Everyone thinks of heat intolerance when it comes to Dysautonomia but cold intolerance is a thing as well. I’m lucky enough to have both. #chronicillness

What are your #chronicillness essentials when leaving the house? For me it’s 1. Water 2. Electrolytes 4. Compression socks

Me everyday with a chronic illness: I don't feel well. Is it my chronic illness? Is it a cold? Is it the weather? Is it because I'm stressed? Is it because I did to much yesterday? Is it because I slept bad? Is it a new illness? Is it a flare? Do I need electrolytes? #POTS #chronicillness

Penalizing patients for not canceling appointments 24+ hours in advance seems a bit unfair to me. Life is unpredictable, especially when you suffer from a chronic illness. We can’t predict how we will feel 24 hours in advance or even an hour in advance. #disability #chronicillness #POTS

Penalizing patients for not canceling appointments 24+ hours in advance seems a bit unfair to me. Life is unpredictable, especially when you suffer from a chronic illness. We can’t predict how we will feel 24 hours in advance or even an hour in advance. #disability #chronicillness #POTS

Does anyone else find themselves caring less about the small stuff after developing a #chronicillness?

What Are Adrenaline Dumps? Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.

Hello all, my name is GC. I am a mailman who suffers from #POTS #hEDS and possibly #sjogrens. This is account is mainly to spread awareness for #chronicillness and to connect with others on a similar journey. Can’t wait to get to know everyone!

It still amazes me that one of my chronic illnesses is triggered simply by standing. And we live In a world where 90% of daily tasks revolve around that exact trigger. #POTS #chronicillness #disability #dysautonomia

Still trying to find everyone over here from X

It still amazes me that one of my chronic illnesses is triggered simply by standing. And we live In a world where 90% of daily tasks revolve around that exact trigger. #POTS #chronicillness #disability #dysautonomia

What Are Adrenaline Dumps? Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.

Overstimulation hits hard for those with POTS because our autonomic nervous system is out of sync. Loud sounds, bright lights, and busy environments kick our “fight-or-flight” into overdrive, spiking symptoms like dizziness, heart rate, and fatigue. But why? Let’s break it down.

Before I became sick my phone was always blowing up with friends texting me. Now, I can count on my hands the number of friends I have that actually text me to check in on me. You really find out who your true friends are when you become sick. #chronicillness #disbaility #POTS #invisibleillness

I hate that when I don’t sleep well, my chronic illness flares dramatically.

POTS/dysautonomia symptoms that rarely get spoken about: Sensory overload Night sweats Adrenaline dumps Tremors Delayed or rapid gastric emptying Mood swings Urinary urgency #POTS #chronicillness

No one is really prepared for chronic illness. They are raised to believe that illness is temporary, something that can be fixed with the right treatment. Unfortunately for many, they don’t find out how wrong this is until they themselves become #chronicallyill. #POTS #Disability

Friendly reminder that #POTS is so much more than just a high heart rate. #chronicillness #disability

Overstimulation hits hard for those with POTS because our autonomic nervous system is out of sync. Loud sounds, bright lights, and busy environments kick our “fight-or-flight” into overdrive, spiking symptoms like dizziness, heart rate, and fatigue. But why? Let’s break it down.

If you’re a doctor, somewhere there’s a patient who will remember you forever simply because you listened to them. The compassionate doctor listens, empathizes, and earns trust. These doctors make all the difference, keeping us strong. #disability #chronicillness #pots

Before I became sick my phone was always blowing up with friends texting me. Now, I can count on my hands the number of friends I have that actually text me to check in on me. You really find out who your true friends are when you become sick. #chronicillness #disability #POTS

It’s crazy to think that most healthy people would probably go straight to the hospital if they experienced the daily symptoms of someone with chronic illness. Yet we learn to operate and function on a daily basis. #chronicillness #POTS #chronincallyill

Please check on your chronically ill/ disabled friends today.

That chronically ill person you know has probably never answered a "how are you" honestly. Instead, they likely shrug it off with a casual 'it is what it is,' maybe even laugh, because the truth is heavy, complicated, and they don't want to burden you with it. #chronicillness

No one is really prepared for chronic illness. They are raised to believe that illness is temporary, something that can be fixed with the right treatment. Unfortunately for many, they don’t find out how wrong this is until they themselves become chronically ill.

This is #POTS 195 HR when I was unmedicated. All I did was walk up the stairs, meanwhile my body was fighting a battle. #chronicillness

I think it's important to note that POTS/ chronic illness is a spectrum. Patients can range from mild to severe and bed bound. It's not one size fits all. So don't assume two people with the same illness are the dealing with the same level of symptoms. #chronicillness #POTS

Time to see if any of my friends from X are over here. Just your friendly neighborhood mailman who suffers from POTS and hEDS. Here to connect and learn with other chronic illness sufferers.