IPOPI was delighted to visit the hospital. We were able to witness the dedication of healthcare professionals. Congratulations on your hard work in serving patients and your willingness to address the challenges related to access to diagnosis and treatment. We stand by you!

When a consensus emerges, we can only be pleased: patients must be considered full partners in research projects. This PID Forum is an important first step towards making this conviction a reality. Thank you to MEP @Romana Jerković and MEP Nicolás González Casares for co-hosting the IPOPI PIDForum

10-year anniversary for SEAPID, a nice and highly Interesting event on Car T-cells development. Under the impulsion of Thailand, where Malaysia, The Philippines, Indonesia, Vietnam, Cambodia, Myanmar are participating. IPOPI is happy to witness the development of medical science in South-East Asia.

IPOPI was so pleased to participate in this very fruitful stakeholders’ meeting in Novi Sad (Serbia) where patients, doctors, health decision makers shared their perspectives. A very important step to envisage further joined action to improve patients’ journey.

I’ll be posting this today

The #AIPI Meeting is ending in NYC - two days of excellent discussions! Now time for implementation to ensure we can achieve our ultimately common goal through patient centred AI - access to diagnosis and optimal care for all #PID patients! @ipopi.bsky.social

So nice to meet in presence with our brand new board members. So proud of IPOPI’s board!

Journée de mobilisation pour la science : des événements partout en France aujourd'hui 7 mars dans le cadre du mouvement #standupforscience2025 Aux US la science est mise à mal par le DOGE et les premiers décrets de Trump, en particulier la climatologie. Les événements sur : standupforscience.fr

Neonatal screening for rare treatable conditions like SCID are life saving and cost effective. 2 major reasons for implementing this process widely. IPOPI will celebrate INSD with its partners from @S4R and its national members throughout the world.

What a great meeting! And what a pleasure to meet patients and to reconnect with doctors in Cairo! In addition to this, I had the pleasure of visiting Grifols plasma collection centers as part of a public-private project with the Egyptian government to ensure better access to immunoglobulin therapy

Indeed, it's so good to meet! Thanks to all the family members for being there and participating so actively 😅. We reached a record of participation 🥰. Thanks Otilia Stanga and Miriam Ferreira for preparing so well and of course hats off to our expert and friend Prof Nahla Erwa for her talk. 🤩

Don’t miss your chance to secure early bird rates for #IPIC2025! Learn from the world-renowned experts as they present the latest advances in primary immunodeficiency care. 🎟️ Secure your ticket here: ipic2025.com/register-now/ #IPOPI #EarlyBirdRates #PrimaryImmunodeficiency

Le dépistage néonatal des DICS (maladie asymptomatique à la naissance, mortelle à - de 1 an) devait être lancé en juin 2025. C’est repoussé. Parce que le budget de la sécurité sociale n’est pas voté. Ceux qui bloquent jouent aussi avec la vie de bébés qui pourraient être sauvés.

Belle et heureuse année. Bonne santé. Plein de projets de succès. Beaucoup de doux moments en famille et entre amis. Bienvenue 2025 !

Pour ceux qui ne le connaissent pas encore, cet excellent outil mis en place par la chercheuse Elizabeth Kozlowski du CERCEC / EHESS : la frise chronologique de la guerre de la Russie contre l'Ukraine, accompagnée de la traduction des principaux textes et discours. chrono.cercec.fr

DANS LE 7-10, MISÉRABILISME, DÉSINFORMATION ET PROPAGANDE - Une ITW véhémente et tapageuse de la ministre Catherine Vautrin à 7h50, un Mathieu Noël qui bastonne sur la France qui va mal, un journal de 08h00 au soutien de la Coordination Rurale (proche de l'extrême droite) d'Agen...

Multidrug resistance to antimicrobials is a real global threat. Only by using antimicrobials such as antibiotics based on proven need will we save the lives of those who need them constantly or regularly because of their immune system dysfunction.