@renusyndrome.bsky.social is joining Citizen Health to help advance research for families affected by #ReNUsyndrome —making it easier to contribute data and move discovery forward from home: www.citizen.health/ai-advocate/... #RareDisease #PatientAdvocacy #CitizenHealth #AccelerateCures #ReNUhope

Welcoming #CASKWarriorsFoundation to Citizen Health! Together we’re supporting families while accelerating progress toward care and cures for boys with #CASK: citizen.health/cask-warriors #CureCASK #CASKGeneDisorder #RareDisease #PatientAdvocacy #CitizenHealth

Elli leads the clinical strategy behind our MECP2 work at #AES2025. DM or email [email protected]. #EpilepsyResearch #MECP2 #RealWorldEvidence

Elizabeth applies neurology expertise to MECP2 RWE at #AES2025. DM or email [email protected]. #EpilepsyResearch #MECP2 #RealWorldEvidence

Mariah strengthens MECP2 research with clinical insight at #AES2025. DM or email [email protected]. #EpilepsyResearch #MECP2 #RealWorldEvidence

Kelsey, RN & AES award honoree, presents MECP2 findings at #AES2025. DM or email [email protected]. #EpilepsyResearch #MECP2 #RealWorldEvidence

Steph turns complex MECP2 data into insight at #AES2025. DM or email [email protected] to learn more. #EpilepsyResearch #MECP2 #RealWorldEvidence @stepheaneff.bsky.social

Ashley brings clinical expertise into MECP2 research at #AES2025. DM or email [email protected]. #EpilepsyResearch #MECP2 #RealWorldEvidence

Emily shares MECP2 real-world evidence at #AES2025. DM us or email [email protected] to connect. #EpilepsyResearch #MECP2 #RealWorldEvidence

A new Citizen Health × UCB partnership is opening clearer paths for families to take part in epilepsy and rare-disease research across the full journey. #AES2025 #Epilepsy #RareDisease #CitizenHealth #PatientDriven

Final day: join Citizen Health by 11:59 PM and be entered into the $5,000 Caregiver Recharge Giveaway. 👉 Join here: www.citizen.health/unlock #ShareForRare #RareDiseaseCommunity #CaregiverSupport #Neurodevelopmental #Neuromuscular #AccelerateCures

Join Citizen Health by Nov 30 + be entered into the $5,000 giveaway. Centralize your medical records + get clearer answers in seconds. 👉 [www.citizen.health/unlock] #ShareForRare #TheGreatUnlock #RareDisease #RareCommunity #AccelerateCures #Neurodev #Neuromuscular #BlackFriday

Grateful for the families + caregivers at the heart of this work: for the love, the unpredictability, and the honesty you bring. 💛🦃💜 #NationalFamilyCaregiversMonth #Gratitude #RareDisease #Thanksgiving

TODAY, 7pm ET / 4pm PT: Learn how families use AI Advocate for reports, IEP prep & provider notes. Sign up: ciitizen.zoom.us/webinar/regi... #RareDisease #RareParents #Caregiver #Genetics101 #IEP #SchoolSupport #PatientEmpowerment #HealthLiteracy #AIforGood #AccelerateCures

Heading to #NSGC25 in Seattle? Visit Booth 523 to meet Geo + Todd from Citizen Health + learn about our new #GeneticCounselor Ambassador Program 💜 #RareDisease #AccelerateCures

Penelope is using Citizen Health's AI Advocate to generate IEP goals, summarize a hospital stay for a new PCP, and pull lists of past medications they’ve tried. It makes caring for her son with #OCNDS easier. “You’ve Got to Check It Out!” #CSNK2A1 #TheGreatUnlock #RareDisease #AccelerateCures

OMG this makes parenting so much easier! 💜🦊 -Nicole, #raredisease mom. Answers. Organization. Peace of mind. 👉 Try it yourself at www.citizen.health/unlock #ShareForRare #Caregivers #AccelerateCures #Neurodev #specialneeds #FOXG1 #ParentingWins

HIPAA. State laws. AI. Trust. Deven McGraw, Tina Grande (Healthcare Trust Institute), Lucia Savage (Omada Health), and Robin Strongin (Health Dame) break down what protecting health data looks like + how AI is redefining control and consent: healthdame.com/shaping-the-... @healthprivacy.bsky.social

Families power research! New #SYNGAP1 surgical study shows how your medical journeys can drive discovery 🧬💙 @curesyngap1.bsky.social #DEE #Epilepsy #Neurodevelopment #Seizures #RareDisease #AccelerateCures www.sciencedirect.com/science/arti...

For #Leukodystrophy Awareness Month: Grateful for #AicardiGoutieresSyndrome families who show what love in action looks like 💙 No one has to make this journey alone #AGS #Rare #AGSAA

#InteropChat Ep 2 🎥 @healthprivacy.bsky.social + experts on CMS’s new framework, 2026 deadlines & ending “portalitis.” Watch: youtu.be/yf4Ou0uVgw8?... #Interoperability #PatientAccess #DataPrivacy #CMS

We've secured $30M in funding from 8VC, Transformation Capital, & Headline to use AI to transform consumer healthcare, starting in rare disease. www.citizen.health/citizen-heal... 📊 Centralized records 🧠 Personalized AI Advocate 🔬 Research participation Build with us: www.citizen.health/careers