Use our link to update your profile picture for the month of May! www.twibbonize.com/hdreach

WINSTON-SALEM: Anyone craving pizza for lunch tomorrow? 🍕 May is HD Awareness month, so wear your blue/purple! 💙💜 Sign up here: www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

Ever wondered about the specific movements of Huntington’s disease (HD) chorea? Understanding its unique characteristics is key to recognizing and addressing this challenging symptom. Get the essential facts on what HD chorea is and how it presents itself: www.honestlyhd.com

Inspired by the advocates, families and community members, five Huntington’s disease organizations came together today to champion the future of rare disease innovation at the FDA. Every day matters for HD families — and we will continue advocating together for a brighter future. 💙

StoryTime Livestreams this week starting at 8pm ET. These individuals will join our HD Reach Game Over Streamers and talk #huntingtonsdisease, their journey, their challenges, and their hopes for the future over rounds of UNO.

V is for Voice 💙💜 Every voice matters. HD Reach is proud to be a place where individuals, caregivers, families, and advocates can share their experiences and feel heard. Your support helps us continue creating space for connection, advocacy, and awareness: www.hdreach.org/support/spri...

Today is International Huntington’s Disease Awareness Day! 💙 Join us as we raise awareness, support families impacted by Huntington’s disease, and help start important conversations in our communities and around the world.

TOMORROW! Join us at the Vanderbilt HD Educational Community Support Group. This group provides an opportunity for people who are living with and impacted by HD to learn from presenters and share experiences together. This support group is virtual only (via Teams). www.hdreach.org/community/ev...

WS: We hope to see you tonight. May is HD Awareness month, so wear your blue/purple! Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Sign up here: www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope

CLT: Tomorrow’s meetup has been rescheduled to May 20th. We hope to see you next week! May is HD Awareness Month, so wear your blue and purple! Walk-ins are welcome; however, please register if you can. If there are no sign-ups, the event will be canceled. www.hdreach.org/community/ev... 💙💜

WILMINGTON: We hope to see you tonight. May is HD Awareness month, so wear your blue/purple! Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd

D is for Determination 💙 💜 Determination keeps our community moving forward. HD Reach remains committed to supporting individuals and families impacted by Huntington's Disease while continuing to encourage hope for the future. Give today: www.hdreach.org/support/spri...

Our first HD Reach Movie Night! Wonderful movie, the best company, and of course…plenty of popcorn and laughs! Now for an early morning at Bloom and Zoom tomorrow in Cary, NC. We will be there with a table chatting with the racers about #huntingtonsdisease Time to fun mile this popcorn off!

A is for Awareness 💙💜 Awareness starts with conversation. Thanks to a generous matching donor, every gift made during our Spring ADVOCACY Appeal will be matched dollar for dollar up to $30,000. Double your impact today: www.hdreach.org/support/spri...

Bridging Connections Education Day by the numbers! Thanks to all who took part in this special day including our co-host HDSA and amazing sponsors, The Griffin Foundation, Novartis, Neurocrine Biosciences, uniQure, Teva, Genentech, Prilenia, Angels of the Abbey, and Wave Life Sciences. 💙💜

Brandalin chats about her experience with her mother's personality changes due to #huntingtonsdisease. She reminisces and acknowledges feelings of guilt. Did you miss the stream? YouTube.com/@hdreachgameoverhd Can you resonate with her words? #storytime #oregontrail #fyp #hdreachgameoverhd

Use our link to update your profile picture for the month of May! www.twibbonize.com/hdreach

We are grateful to announce all of these incredible humans from the #huntingtonsdisease community coming forward to talk about their HD stories in our #StoryTime #Livestream Series! Tune into our HDReachGameOverHD Twitch or Youtube channels to view at linktr.ee/hdreachgameo.... #fyp #awareness

THIS SATURDAY!!!! HD Reach is a featured non-profit for the 2026 Bloom & Zoom Charity Race Festival hosted by Fit & Able Productions on May 9th, 2026 in Cary, NC! 🎉 **You MUST use our unique link to register! PRICE INCREASE TOMORROW May 7th** bit.ly/bzhdreach26

Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. We are here to guide you and support you! 💙 🧬 Doxy.me/HDgenetics #HDreach

Use our link to update your profile picture for the month of May! www.twibbonize.com/hdreach

We are excited to announce our next book, “The Unexpected Journey.” Bruce Willis’ wife Emma has written a supportive guide to navigating the complicated, heartbreaking, and transformative experience of caregiving for your loved one www.hdreach.org/community/ev...

Join us for our in person events and virtual events for the month of May for HD Awareness Month! Our Bloom and Zoom event is right around the corner and registration is STILL OPEN! We can't wait to see you there. 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach

THIS WEEK!!!! HD Reach is a featured non-profit for the 2026 Bloom & Zoom Charity Race Festival hosted by Fit & Able Productions on May 9th, 2026 in Cary, NC! 🎉 **You MUST use our unique link to register! Prices increase May 7th** bit.ly/bzhdreach26 #BloomAndZoom #RunForHope #CharityRace 💙💜

Use our link to update your profile picture for the month of May! www.twibbonize.com/hdreach

May is Huntington’s Disease Awareness Month! Join us as we raise awareness, share stories, and support families affected by Huntington’s disease. Follow along throughout the month for ways to show your support on our official HD Awareness page:https://www.hdreach.org/getinvolved/awareness26.html

We are up bright and early for the NC AHEC Neuroscience Conference in Greenville, NC! Looking forward to connecting and educating on #huntingtonsdisease

We are at the Durham Beer Mile! Come see us! If you haven’t yet, sign up for our 8k/5k/fun mile Bloom and Zoom race on Saturday May 9th in Cary, NC! Make sure to choose HD Reach as your charity of choice and we get $10 per registration! runsignup.com/Race/Registe...

HD Reach is a featured non-profit for the 2026 Bloom & Zoom Charity Race Festival hosted by Fit & Able Productions on May 9th, 2026 in Cary, NC! 🎉 **You MUST use our unique link to register!** bit.ly/bzhdreach26

WINSTON-SALEM: Anyone craving pizza for lunch tomorrow?🍕 Come join this wonderful, community led meetup. 💙💜 Sign up here: www.hdreach.org/community/ev... 💙💜 Walkins are welcome, however please register if you can. For questions, contact Brandi at [email protected].#HDreach #ReachForHope

We’re still smiling thinking about Education Day in Cary and the incredible volunteers who made it all possible.Your time, energy, and dedication do not go unnoticed. We appreciate you this week and all year long! 💙 💙🙏🏼💙

RDU TONIGHT!! Walk-ins are welcome but please register if you can. If there are no signups, the event will be cancelled. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

We are so grateful to Teepa Snow for joining us as our keynote speaker at Education Day 💙 Missed it or want to watch again? Check out her talk on this LIVE! (scroll to minute 40 for Teepa): www.facebook.com/HDReach/vide... #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease

We are LIVE! HD Reach Facebook: www.facebook.com/share/1AYbyL... HD Reach Youtube: www.youtube.com/live/huYijol... Watch the Livestream with our #Gameoverhdstreamers: Twitch (most chat active!) www.twitch.tv/hdreachgameo... Youtube: www.youtube.com/live/pGtH9Sy...

Friday Night Pizza and Games to prepare for tomorrow's Education Day! Remember to tune into our livestreams at 10amET! HD Reach Facebook: www.facebook.com/share/1AYbyL... HD Reach Youtube: www.youtube.com/@hdreach55 Watch the Livestream with our #Gameoverhdstreamers: www.twitch.tv/hdreachgameo...

Education Day is HERE! Who is coming tonight for the Pharma Roundup, Caregiver/Research Support Groups, Games, and PIZZA?? 5:30pm we start! We are LIVE tomorrow at 10am ET! HD Reach Youtube: www.youtube.com/@hdreach55 Watch the Livestream with our #Gameoverhdstreamers: www.twitch.tv/hdreachgameo...

Meetup Reminders for NEXT WEEK. Come build community and make connections with us. Sign up here: www.hdreach.org/community/ev... 💙💜 Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled. #HDreach #ReachForHope #ReachingForHope

Our Education Day is THIS weekend! 💙 ✨ Special opportunity for Friday attendees (April 17): Each attendee will receive one free entry to win a trip to Myrtle Beach! 🌊 This year our beach raffle is only open to in person attendees. www.hdreach.org/conference/2... #HDReach #ReachForHope

Our Education Day Children's Program on April 18th will have a special virtual speaker! Amber Cervantes will attend by Zoom to talk with the children about her book: The Invisible Backpack: A Boy's Story About Huntington's and will read the book to them! Register now! www.hdreach.org/conference/2...

Will we see you at our #huntingtonsdisease #Educationday Bridging Connections? It is THIS Friday and Saturday (April 17th and 18th) in Cary, NC. Register to be in person OR click notify on our virtual options for Saturday streaming: www.hdreach.org/conference/2... linktr.ee/hdreachgameo... #fyp

On April 13, the Huntington’s disease community is coming together to be heard, and we invite you to stand with us. Call, email, write a Letter to the Editor, or share on social media. Every effort makes a difference and helps amplify this message. Take action now: hdsa.org/hddayofaction/

Meetup Reminders for NEXT WEEK. Come build community and make connections with us. Sign up here: www.hdreach.org/community/ev... 💙💜 Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled. #HDreach #ReachForHope #ReachingForHope

Thank you Griffin Foundation for sponsoring Education Day! Join us April 17–18 in Cary, NC for an inspiring time of learning, connection, and hope for the Huntington’s disease community. 💙 Register today: www.hdreach.org/conference/2... #HDReach #ReachForHope #ReachingForHope #curehd #curejhd

Our #Huntingtonsdisease Community Education Day is NEXT WEEK! April 17th and 18th, we will be #BridgingConnections together in Cary, NC. Register TODAY www.hdreach.org/conference/2... We will also be livestreaming on our HD Reach Youtube, Facebook and HD Reach Game Over HD Twitch and Youtube.

HD Reach is a featured non-profit for the 2026 Bloom & Zoom Charity Race Festival hosted by Fit & Able Productions on May 9th, 2026 in Cary, NC! 🎉 **You MUST use our unique link to register!** bit.ly/bzhdreach26

WS & CLT: We hope to see you tonight. Brandi and the WS group are having a theme night- wear your spring colors! Erika will be hosting the CLT crew. Sign up here: www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd

We’re just 10 days away from Education Day! 💙 ✨ Special opportunity for Friday attendees (April 17): Each attendee will receive one free entry to win a trip to Myrtle Beach! 🌊 Secure your spot today: www.hdreach.org/conference/2... #HDReach #ReachForHope #ReachingForHope #curehd #curejhd

We hope you join us TONIGHT as we celebrate and dive into the pages of Nancy Wexler's new book, "My Life, My Science: Pursuing a Cure for Huntington's Disease." Purchase here: www.amazon.com/My-Life-Scie... 📚📚📚 www.hdreach.org/community/ev... #HDReach #ReachForHope #ReachingForHope

Check out our summary of both in person events and virtual events for the month of April, as well as what's to come for 2026! This includes our Education Day event - which you can still register for! We can't wait to see you there. 💙 For more information, checkout www.hdreach.org/community/ev...

Thank you Novartis for sponsoring Education Day! Join us April 17–18 in Cary, NC for an inspiring time of learning, connection, and hope for the Huntington’s disease community. 💙 Register today: www.hdreach.org/conference/2... #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease