Does anyone else with #hEDS get really bad foot pain? Like sometime I feel like I can't even put my feet on the floor when I'm sitting down bc they hurt too much. Its one of the main reason I can't walk very much. #disabled #chronicpain #spoonie #disability #chronicillness

Flying is always hard. No matter what I do, I always have a headache and vertigo afterwards. #hEDS #disabled #chronicpain #spoonie #flying #travel

My life became a lot easier after I accepted that I'm disabled. #hEDS #disability #chronicpain #spoonie

I want to try a low histamine diet for #mcas but I have no idea where to start. I already don't eat a lot of foods like nuts, cured meat, fermented food, or alcohol. But soy sauce, citrus and yogurt are staples for me #mcad #chronicillness #spoonie #eds #disabled

It sucks being a chronically ill college student because I'll never be able to participate in club activities or go to parties because keeping up with the work takes all my energy. #disabled #chronicillness #hEDS #disabledinstem #disability #spoonie #chronicfatigue #student

Am I having the worst mcas flair I've ever had? Yes. Has my entire body been covered with hives for weeks and I can't find the trigger? Also yes. #chronicillness #mcas #hEDS #spoonie #disabled #disability

Well I went to the ER because urgent care is not open and it's not life threatening but I now have painkillers and muscle relaxers 🫠 #chronicpain #hEDS #chronicillness #disability #disabled

I don't know what happened but suddenly I can't lift my arm without pain and there's stabbing pain in my back 😭 #chronicpain #disabled #disability #hEDS #spoonie

I only have a certain amount of vertical time per day. Then it's horizontal time. #spoonie #chronicfatigue #chronicpain #hEDS #cci #disability

I don't meet the definition of disabled that allows me to get government assistance, but I can't imagine what my life would be like having to support myself without help from my family. #disability #disabled #disabledInSTEM #EDS #hEDS #chronicillness #spoonie #chronicpain

Venting post: My partner has nerve damage and can't use their hands very much. They're having so much trouble with classes and getting adequate accommodations that they might have to drop out. #disability #disabledInSTEM #chemstudent #university #RSI

Centrists: the crackhead said I should try meth but my doctor said drugs are bad for me. Those are both equally valid and I need to take both arguments into consideration 🤔 #centrism #politics #political #criticalthinking

Sucks to think that this semester is going to be my easiest semester until I graduate and I'm already overworked. 🥲 #disability #EDS #spoonie #chronicillness #college #STEM #engineeringstudent

Fideo:another easy disability friendly meal 1.Stir fry onions, bell peppers(buy precut) and garlic 2.Fry fideo noodles until brownish 3.Cover noodles with broth and cook until the broth is gone 4.Add veggies, diced tomato, canned green chile, cumin, salt&pepper #disabled #EDS #cooking #spoonie

Every time I get sick I get uncontrollable bloody noses. Sucks fr. #EDS #spoonie #commoncold #sick

Working out reminded me I need to work out more. Unfortunately it's really hard to work out with EDS #EDS #exercise #disability #disabled #mcas #spoonie

The last bit of dinner today. Cooking with minimal dishes is an art. This one was free also because the ingredients were from a food pantry. #spoonie #EDS #disabled #chronicpain #foodpantry #cooking #disability

Been getting headaches everyday. You know what that means? One of my neck vertebrae is out of place again 😮‍💨 #EDS #cervicalinstability #hypermobile #chronicpain #chronicillness #spoonie

#HSD or #EDS? Are they the same condition that present differently, or do they have different underlying causes? There really should be more research into something we've known exists since like 400bc #spoonie #disabled #disability #chronicillness #chronicpain

My hip joint is stiff and painful apparently because I walk up to many stairs with too heavy a backpack. What am I going to do? Not bring anything too class? Not go to class? #disabled #EDS #disability #spoonie #chronicpain

We need a catchy saying because "No being a fascist dictator when our representatives are infighting." Really doesn't go as hard as "No taxation without representation" #fascism #FDT #transrights #LGBTQ #politics #tarrifs

I spend so much time on #accessable transportation. It takes me longer to wait for the elevator than to take the stairs. Longer to wait for the bus than to walk 15min back home. But I can't walk for 15min. It takes time and effort to exist as a #disabled person. #EDS #spoonie #chronicillness

I think that #gender is very connected to sexuality. It's something that the #lgbtq community does not want to accept rn. Think about he/him lesbians or the fact that #queer is both a gender and sexuality. We already know that sexuality affects gender presentation. #trans #transgender #nonbinary

I'm curious what other #disabled or chronicly ill people think. I just think that there's no way I'd get anything done anyway so there's no harm to scrolling my phone. #disability #chronicillness #spoonie #EDS

When people offer to faith heal me I just ask them to say a prayer for me on their own time instead. Faith healing is not going to cure a genetic condition. #EDS #disabled #disability #faithhealing #chronicpain

Out of all the people I know with #EDS or suspected EDS all but one of them are trans. And the majority are also autistic. Make of that what you will. #spoonie #disabled #disability #chronicpain #autism #trans #trangender

Tips on shot anxiety? I just hit a wall yesterday and had a complete breakdown over my t shot 😭. #ftm #testosterone #hrt #hormones #trans #transmasc

Apparently I can't eat poppy seeds because that bagel just went straight through me 🥲. #IBS #IBD #chronicillness #spoonie #EDS

To continue to exist in a world that doesn’t want you there is an act of bravery

Trying to get parking services to drive me to my classes because-disabled. Parking says talk to disability resources. Disability resources says talk to parking. Me:

Thinking I might have hypersomnia along with everything else. I keep blacking out during lectures. If I'm taking notes you can see that I'm still writing but just completely incoherent. I can only wake up by changing my environment. #chronicillness #disabled #disability #sleepdisorders #EDS

Is there anyone who has a career in the hard sciences who made it through university with a hand/arm disability? I'm hoping to help someone see that it is actually possible. #disability #disabledinSTEM #STEM #disabled #accessibility

I think I just subluxed my kneecap. All I'm doing is laying in bed and it suddenly really really hurts. WTH #EDS #ehlerdanlos #chronicpain #disability #disabled #hEDS

Quick sketch from a live model for class #disabledartist #portraiture #art #charcoal

Not my doctor being 25 min late to a 30min telahealth appointment. They were like 'dont worry she'll still see you'. Actually she won't see me because I'm also a busy person who has other things to do today. Shocker #disability #healthcare #chronicillness #disabled #EDS

When you're actually 21 but the cashier doesn't card you

Nancy Mace's face is in the dictionary under TERF right next to JK Rowling. #congress #transrights #feminism #trans #queer

Taking the bus on weekends in my small town is hellish. It never comes at a convenient time and I end up getting stuck for an extra hour. #publictransit #bus #disability #EDS #spoonie #disabled

#Awareness #MyPainMatters #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraines #TMJD #Osteoarthritis #DiabeticNeuropathy #Depression #IBS #HeartDisease #Type2Diabetes #ButYouDontLookSick #InvisibleIllness #PainChangesPeople #ChronicPainChangesEverything #ImFine #ImNotOk #SaveMe

The stress induced #IBS going crazy, I've destroyed the toilet like 4 times today. #college #mold #EDS #disability #disabled

I'm working with some faculty on campus to catalog inaccessible paths, doorways, etc on campus. Out of around 50 areas that events or activities are held, only about 10 are fully accessible. Let's do better #disability #college #accessable #universaldesign

Elon musk can't be both the naive autistic man who doesn't know how to gesture and the genius CEO who built himself an empire. So which is it? #news #inauguration #nazi #autism

My dorm building is being evacuated due to mold. It just so happens to also be the weekend I ran out of meds. #disabled #college #EDS #chronicpain #spoonie

I went on a long walk Monday while catching up with a friend. I'm paying for it now, I could barely walk up the stairs to my apartment. #EDS #chronicpain #spoonie #disabled #disability

Many people don't consider what sex is like while disabled. It's the same but with the added consideration of what each body is capable of. 'How can my partner choke me *ergonomically*' 'x position hurts my hip, let's use some pillows to fix that's #EDS #chronicpain #chronicillness #spoonie

Peeling the Diagnostic Onion - is your doctor falling for too many red herrings and missing your #hypermobility? buff.ly/2QA8nRe #HSD #EDS #hEDS #EhlersDanlos #pain #MedEd #MedSky #Fibromyalgia #fibro #zebras #NEISvoid #autistic #ADHD

Professor just posted their canvas and apparently I need all my art supplies by Thursday. Yeah that's not happening #classes #university

Just got a free upgrade on my flight. Now I have extra leg room and in-seat chargers. All it takes is asking nicely and the flight not being full. #airplane #travel

Transgender people are often the most at risk in bathrooms, and are at much higher risk of sexual assault and violence in bathrooms that do not match their gender identity. There have been more elected Republicans convicted of bathroom assaults' than trans people. www.complex.com/life/a/amand...

I made boba tea from scratch and it was the best I've ever tasted. Now my back hurts so bad I can't stand up. #EDS #spoonie #chronicpain #disabilitysky #disabled