My daily med schedule: 9 AM — 23 pills 12 PM — 9 pills 1 PM — heart racing from walking to the bathroom 3 PM — 7 pills, then crash 6 PM — 12 pills, dinner in bed 9 PM — 14 pills 65 pills a day. This is not laziness. This is Long COVID. #LongCOVID #LongCovidAwareness

Long COVID by the numbers: 400 million people affected worldwide 200+ documented symptoms 10–26% of COVID survivors develop it 0 FDA-approved treatments 6 years and counting Read that last one again. #LongCOVID #LongCOVIDAwareness #MillionsMissing

People say "you don't look sick." That's because you don't see the 23.5 hours I spend in bed to get those 30 minutes sitting. Long COVID isn't invisible. You're just not looking. #LongCOVID #InvisibleIllness #ChronicIllness

March 15, 2020 → March 15, 2026. 6 years ago today, COVID took my health. I still haven't gotten it back. Today is International Long COVID Awareness Day. 513+ landmarks are lighting up teal tonight worldwide. I'm still here. We're still here. #LongCOVID #LongCOVIDAwareness

How I got out of rolling PEM with severe ME/CFS. It wasn’t one thing. It was a combination of strategies practiced consistently over months to break the crash cycle. Part 2 of 3 breaks down every strategy. 🧵 tickedoffcodess.com/how-i-got-out-of-rolling-pem-part-2/

If you’ve ever been stuck in rolling PEM — crash stacking on crash with no end in sight — I see you. You’re not weak. You’re not lazy. And you’re not alone. I wrote this series for you. tickedoffcodess.com/how-i-escaped-the-horror-of-rolling-pem-part-1/

By the summer of 2021, I was trapped in rolling PEM. Crash after crash with no recovery in between. Long Covid had pushed me into severe ME/CFS. I was desperate. But I wasn’t done. This is Part 1 of 3. 🧵 tickedoffcodess.com/how-i-escaped-the-horror-of-rolling-pem-part-1/