@kaleidoscope-lupus.bsky.social
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This is the perfect time of year to focus on the #caregivers of those living with #lupus! In this encore video, two experts provide important perspectives and practical advice for the care partners that mean so much!! Link:
https://youtu.be/3igplcx04PM
about 18 hours ago
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3 days ago
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4 days ago
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Vasculitis is estimated to affect from 30% to 50% of those with lupus. Check out the KFL article, "Vasculitis and Lupus," to find out more! Here's the link: https://ow.ly/Q95A50Qn8HR
5 days ago
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#Lupus
and in Vitro
#fertility
6 days ago
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Lupus in the News: A new type of “enhanced” CAR T cell therapy called FT819, developed by Fate Therapeutics, is opening clinical trials with the potential to work without having to genetically engineer the patient’s own T cells. Link:
https://ow.ly/Agrz50XzQGT
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UCI Health launches clinical trial to test investigational cell therapy for lupus
UCI Health has opened a clinical trial to test an investigational cell therapy for lupus with the potential to give patients long-term remission of symptoms.
https://ow.ly/Agrz50XzQGT
7 days ago
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We invite you to watch one of KFL's most viewed popular, “Lupus: What Happens to Your Body During a Flare?” This video can be viewed on our YouTube channel by following this link:
https://youtu.be/i4OPznWi1v0
We thank our Presenting Sponsor, GSK, for their generous support!
9 days ago
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#Lupus
#Inspirations
10 days ago
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#Lupus
in
#Men
11 days ago
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#Lupus
and
#Thanksgiving
!
11 days ago
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If you are an individual with lupus, why is falling into a deep slumber so difficult when you feel so exhausted? For answers, check out the KFL article, "Lupus and the Importance of Sleep," with this link: https://ow.ly/7kBR50Qn8Ux
12 days ago
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12 days ago
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Lupus in the News: If you have lupus nephritis, you might be interested in how different physicians treat it differently around the United States. A recent study did just that by surveying medications and their use! See how your compare! Link:
https://ow.ly/Gcv750XwyUA
14 days ago
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#Lupus
Inspirations
17 days ago
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#Lupus
Facts about
#flares
!
18 days ago
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Don’t let colder temperatures catch you off guard. Find out how winter affects #lupus, what causes flares, and simple strategies to keep symptoms in check with KFL’s newest blog article, “Lupus and the Winter.” Here's the link:
https://kaleidoscopefightinglupus.org/lupus-and-the-winter/
19 days ago
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20 days ago
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Breaking Lupus in the News: The Epstein-Barr Virus (EBV) and Lupus! A new study finally found a possible mechanism for how EBV may actually “cause” lupus for so many - leading to possible new therapies! Let us hope so! Link:
https://med.stanford.edu/news/all-news/2025/11/lupus-epstein-barr.html
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Stanford Medicine scientists tie lupus to a virus nearly all of us carry
The Epstein-Barr virus can convert B cells it’s infected into diabolical overlords that reprogram myriad other immune cells to attack our tissues, Stanford Medicine scientists have found.
https://med.stanford.edu/news/all-news/2025/11/lupus-epstein-barr.html
21 days ago
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#Lupus
Facts about
#thyroid
disease and
#SLE
!
25 days ago
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Peripheral neuropathy is nerve damage that can affect up to 6% of those living with lupus. How is lupus involved, and what can you do? Follow the link below to the KFL article, "Peripheral Neuropathy and Lupus," and find out more!
https://ow.ly/gf7Z50Qn94S
25 days ago
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about 1 month ago
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At least half of those living with #lupus will experience the malar – or butterfly – rash. To learn about this most recognizable sign of #SLE, check out this week's KFL article, "The Lupus Butterfly Rash: Information You Need to Know!" Here's the link:
https://ow.ly/McVK50Xm7UJ
about 1 month ago
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#Lupus
#Inspirations
about 1 month ago
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Lupus in the News: The American College of Rheumatology (ACR) has updated its basic guidelines for the treatment and management of lupus/SLE – the first since 1991! Link to complete recommendations:
ow.ly/KTO250XlxF6
about 1 month ago
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Imagine a
#lupus
treatment that could actually reset your
#immune
system and give you drug-free remission! CAR T cell
#therapy
may hold that promise! To learn more, check out KFL's latest blog article, "Lupus and CAR T cell Therapies" using this link:
ow.ly/lXMV50XjuCw
about 1 month ago
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#Lupus
Facts about
#cardiovascular
disease.
about 1 month ago
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Thanks to our supporters for the opportunity for KFL to attend this year's amazing
#ACR
Convergence! We will bring you the best information regarding the latest
#lupus
research, treatments and clinical trials in the next few weeks. There is plenty of reasons for hope!
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about 1 month ago
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#Lupus
Inspirations!
about 1 month ago
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#Lupus
Fact!
about 1 month ago
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Those with lupus / SLE have a 25-50% chance of developing abnormal liver values in their lifetime. Find out more about the liver and how it can be affected by lupus with KFL's article, "Lupus and the Liver" here:
ow.ly/v9oZ50XgGyx
about 1 month ago
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about 1 month ago
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Breaking News: The FDA has approved Gazyva, a biologic produced by Genentech, for treating lupus nephritis!! Kidney damage can happen in about 50% of those with SLE, so this is a VERY BIG DEAL! Link:
ow.ly/p69S50XfckY
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about 1 month ago
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about 1 month ago
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about 1 month ago
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Lupus News: Iscalimab, an experimental biologic drug by Novartis, significantly reduced protein in the urine of patients with lupus nephritis (LN) in a recent phase 2 study! Aany advances to reduce idamage to the kidneys is always welcome news! Link:
ow.ly/uQ3150XeJSq
about 1 month ago
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about 2 months ago
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Nonsteroidal
#anti-inflammatory
drugs (NSAIDs) are the most widely used
#drugs
for treating the most common symptoms of
#lupus
–
#pain
and
#inflammation
. Yet, what do we really know about them? Check out KFL's blog, "Lupus and NSAIDs" here:
kaleidoscopefightinglupus.org/lupus-and-ns...
about 2 months ago
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KFL Lupus Fact!
#Lupus
,
#photosensitivity
and UV lights!
about 2 months ago
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A good
#diet
should be a priority for anyone's health. To learn the basics about how diet can influence your
#lupus
, check out this week's KFL article, "Lupus and
#Nutrition
," with this link:
ow.ly/PV3n50X8eS2
about 2 months ago
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#Lupus
Fact regarding
#sleep
and
#insomnia
.
about 2 months ago
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#Lupus
News: A new study has found that not only were
#GLP-1
agonists safe for
#SLE
patients with type 2
#diabetes
, but also reduced cardiovascular and kidney disease quite significantly. Link to study:
ow.ly/QpZQ50X6Ppj
about 2 months ago
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#lupus
#Inspiration
about 2 months ago
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Today's
#Lupus
Fact: Lupus and in vitro fertilization.
#reproductivehealth
2 months ago
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Check out this week's
#KFL
blog-article, “#Lupus and Human Touch:
#Massage
Therapy for Symptom Management,” to discover the science behind this
#holistic
treatment option and whether it might be right for you! Here’s the link:
ow.ly/ugRU50X4Z4Z
2 months ago
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In solidarity with our global partners outside the U.S., KFL celebrates Global
#Lupus
Awareness Month!
2 months ago
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#Lupus
in the News: The Phase III trials of self-administered
#Saphnelo
(anifrolumab by AstraZeneca) showed significant reduction in disease activity for patients with lupus – who are also on standard
#medications
as well. Link to announcement:
ow.ly/gyV050X3obz
2 months ago
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#Lupus
Facts about the complexity of
#diagnosis
.
2 months ago
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#Lupus
has a way of showing up in unexpected places, and that includes the protective linings around the lungs, heart, or abdomen - a condition, called
#serositis
. Check out KFL’s latest blog article, “Lupus and Serositis” to learn more. Link:
ow.ly/HtwJ50X1h2A
2 months ago
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#Lupus
Fact regarding refined
#sugar
and
#inflammation
.
#KFL
2 months ago
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#Lupus
News: A recent study looked at what is called, Right Heart Disease, which is the side of the
#heart
that pumps blood to the lungs – and the risks for lupus
#patients
. Get your heart checked regularly!! Link to study:
ow.ly/kf3950WZUIM
2 months ago
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