We have selected 5 organizations to collaborate with for the next round of Rare Epilepsy Partnership Awards! We'll be partnering with Channeling Hope Foundation, The Rory Belle Foundation, YWHAG Foundation, and ZTTK SON-Shine Foundation. We can't wait to see what exciting projects follow!

CDEs standardize ways of describing and collecting data, harmonizing biomedical research. Learn how we fueled the creation, review, and dissemination of CDEs for epilepsy, most recently for preclinical SUDEP research: https://bit.ly/4b8z6Rd

The best seizure action plan is one that fits your real life. Your plan should reflect where you go and who is around you, especially because you may not be able to explain what you need. A plan makes sure the right steps are in place. ➡️ Learn more: https://bit.ly/4c7PfaA

Rescue meds can stop certain seizures, but only if others know when and how to use them. A seizure action plan spells this out clearly, so that teachers and colleagues can act quickly and confidently. Learn more here: https://bit.ly/4c7PfaA #SAPAW2026 #SeizureActionPlans

Welcome Drew, 2026 Community Enrichment Program intern! Drew has lived with epilepsy since age 12. This internship will help him reach his goal of making a difference for others in the epilepsy community. Thank you to SK Life Science, Inc. for their generous support of this program!

Is your seizure action plan up-to-date? Seizure Action Plan Awareness Week is a great time to check! And if you don't have a plan, consider this your sign to consider making one. Learn more about seizure action plans here: https://bit.ly/4c7PfaA #SAPAW2026 #SeizureActionPlans

Join us at CURE Epilepsy Takes Manhattan, an evening of music, laughter, and stories with Miguel Cervantes and his Broadway friends! Past performers include Tamar Greene (Hamilton), Ginna Claire Masón (Wicked), David Josefsberg (Waitress), and more. Get your tickets here: https://bit.ly/4rsNDwp

What's changed in the field of #epilepsy #genetics and precision medicine over the past 10 years? Dr. Ingo Helbig reflects on that exact question in a recent blog post. Check it out here: https://epilepsygenetics.blog/2026/01/27/ten-years-of-accumulation-snow-day-thoughts-between-jonas-and-fern/

Use of the AES Behavioral Health Toolkit will help clinicians identify symptoms of #anxiety, #depression, or suicide risk in people with #epilepsy or seizures. buff.ly/BCCS3mP

Join us in congratulating our latest grantees! Dr. Christos Lisgaras, Nathan Kline Institute Drs. Sonja Bröer, Florian Heyd, Rossella Di Sapia, Free University of Berlin Dr. Mahboubeh Ahmadi, University of California, Riverside Dr. Aswathy AmmothumKandy, @usc.edu Dr. Alex Felix, @upenn.edu

Congrats to Dr. Gordon Buchanan! A study supported by a CURE Epilepsy Award, in partnership with the Joanna Sophia Foundation, was listed as a 2025 Editor's Choice at Journal of Physiology (June): https://physoc.onlinelibrary.wiley.com/doi/toc/10.1111/(ISSN)1469-7793.Ed-Choice-2025?page=1

In this month's Epilepsy Research News: 🧠 Reducing Seizures and Restoring Memory ❤️‍🩹 Depression Increases Epilepsy Risk, Makes it Harder to Treat 🧈 Linking Metabolic Defects to Dravet 👵 Late-Onset Epilepsy a Distinct Neurodegenerative Subtype? https://www.cureepilepsy.org/news/

Dr. Gerard joined @neurology_live to give insights on a new consortium, GEAN, aiming to expand genetic testing and define adult phenotypes for rare genetic epilepsies. Check it out: https://www.neurologylive.com/view/genetic-testing-adult-epilepsy-gean-plan-standardize-practice-study-adult-outcomes

A wonderful result from the lab of our good friend, Dr. Baraban! Here's to many more sea-zure free years.

If you're a new parent, read this to understand more about febrile seizures.

8-year-old Maxwell, with a disease so rare it didn’t even have a name, just became the first to receive a breakthrough gene therapy thanks to relentless research and breakthrough gene therapy. Hope in action. 💙 #raredisease #epilepsy #gentics Full story: https://bit.ly/4oRXtWV

Our febrile #seizures overview provides a clear summary of febrile seizure types, causes, risk profiles, diagnostic considerations, and current understanding of recurrence and future epilepsy risk. Learn more: https://bit.ly/4pZozN2 #epilepsyresearch #neurology #pediatrics

A UK #epilepsy trial using a #brain implant is uncovering #seizures doctors couldn’t detect before—including during sleep. Families say the research is giving them “a little bit of hope.” 🧠 #Epilepsy #Neurotech #Hope Learn more: https://bbc.in/44wsZmn

IS can look like reflux or a startle reflex. When in doubt—record, refer, and get an EEG. Every day of delay increases the risk of permanent damage. Learn more at infantilespasms.org. #ISAW2025 #TimeIsBrain #PediatricCare

Risks can be minimized by avoiding bright flashing lights, covering one eye, wearing dark glasses, and staying far back from screens. doi.org/10.1111/epi.... #epilepsy #ILAE #epilepsia #guidelines #patternsensitiveseizures #photoparoxysmalresponse #photosensitiveseizures #reflexepilepsy

Every moment matters. Infantile spasms require rapid recognition and referral. Treatment within the first week can change a child’s life. Learn more at infantilespasms.org #ISAW2025 #Pediatrics #TimeIsBrain

🚨 It’s Infantile Spasms Awareness Week. IS can look like quick head drops or small jerks, but they’re a medical emergency that can cause brain damage. Early action can change a child’s future. When it comes to IS, Time is Brain. Learn more at infantilespasms.org. #ISAW2025

Childhood absence epilepsy (CAE) often appears as brief staring spells that can be easy to miss. In our new Epilepsy Explained episode, we breaks down what CAE looks like, how it’s diagnosed, and what treatments can help: https://bit.ly/4oUNKjK

Executive Director Michelle Heritage contributed an opinion piece in today’s edition of @usatoday.com in support of #MedicalResearch funding. Scientists are on the verge of breakthroughs; the government should value and continue to fund research. #ResearchFunding 🔬🧠 Read the essay ➡️ buff.ly/Tc4CiJ4

Very pleased to share our latest paper published in Cell: BRAIN-MAGNET: A functional genomics atlas for interpretation of non-coding variants: Cell www.cell.com/cell/fulltex... @cellpress.bsky.social, @cp-cell.bsky.social, @ruizhideng.bsky.social #enhancer here is a thread about our findings:

Highlights from epilepsy research this month: 🧬Fixing a Genetic Brain-Disorder Defect in Mice: https://bit.ly/4pkYA2j 🧠Personalizing Electrical Stimulation for Focal Epilepsy: https://bit.ly/3K07Qd5 🧪Creating CBD-Like Seizure Treatments Without Cannabis: https://bit.ly/4i6pXKM

🚨 Take a look at the practical guide to #seizure rescue #medications, what they are, when to use them & what to ask your #neurologist. Dive in: https://bit.ly/4qWJAZO. Made possible by support from Neurelis. #rescuemedication #epilepsy #epilepsytreatment

Research from the Human Epilepsy Project offers hope for people newly diagnosed with focal epilepsy, showing that seizure control takes time, teamwork, and personalized care. Early specialist support and precision medicine are key to better outcomes. 🔗 https://bit.ly/46sZsuV

Happy Epilepsy Awareness Month! Join us celebrating the breakthroughs that help people live better—and reminding everyone why supporting research matters. 💜 #EpilepsyAwareness #CUREepilepsy https://bit.ly/436dtgg

When a genetic test in epilepsy returns a VUS, what’s next? 🧬 Dr. Gemma Carvill and the #ILAE team explain how clinical context + data sharing + the right tools can narrow the uncertainty. #Epilepsy #Genetics #VUS Learn more: https://bit.ly/47uFyiI

📅 Mark your calendars! Join leading voices in patient #advocacy, #epilepsy research, and #SUDEP prevention at the 2025 #PAME Conference December 4, 2025, in #Atlanta. Registration is now open! https://bit.ly/3WQB4he

It's not too late to register for #AES2025! #epilepsy #neurology 📍 Atlanta | Dec 5–9 ✅ Register now: buff.ly/LfiKcir

📢 News on the National Plan for Epilepsy! The draft document outlining the goals is here for your feedback. Review the draft plan and provide feedback via online form by Friday, 11/31/2025: https://www.epilepsy-national-plan.org/submit-feedback/meeting/register/tZcrc-qgpzIpGNBbqqO0X0ocIzhzl99Sgv2H

📣 This month on Epilepsy Explained, Dr. Kelly Knupp explains Juvenile Myoclonic Epilepsy (JME), one of the most common epilepsy syndromes in teens and young adults. 📽️ Tune in now and learn more about JME: https://bit.ly/4hfY1Uw

Windy City, you blew us away! 👟🏅 Over 30 runners ran right past our goal, raising a fantastic $90,000 for epilepsy research! 💪 Thank you! And a big thanks to @sklifescience.bsky.social for powering Team CURE Epilepsy this year and to Method Printing for providing the shirts.

Becca Seigel lives with daily seizures, but her resilience shines through. ❤️ Her family’s love fuels hope and action. Now they’re helping CURE Epilepsy fund research for a cure. 📖 Read more: https://bit.ly/4nIXhtf #EpilepsyAwareness #EpilepsyResearch #MedicalResearch

Mark your calendar! On 9/30, meet Dr. Rachel June Smith and the budding scientists working in her lab for UNITE to CURE Epilepsy. Get the ball rolling by making a gift today: https://bit.ly/46nhYFf

Thank you so much for supporting Night of Discovery and making it an evening we'll never forget!

🧬 The NIH awards $8.6M to renew the Rare Diseases Clinical Research Network for neurodevelopmental studies, led by OHSU. The project will study more than 15 different rare genetic brain disorders to improve diagnosis and care. #RareDisease #NIH #Neurogenetics 🔗 Read more: https://bit.ly/4nGMJur

This Epilepsy Explained answers questions about PTE, like: 🧠 Treatments and how effective they are 🧠 If a person suffers head trauma, are they at risk for the rest of their lives? 🧠 Are some meds better at treating depression in people with PTE? Watch: https://bit.ly/3I0O6VS

📢 Cautious optimism for #NIH: A House subcommittee advanced a FY26 bill with $46.9B for NIH, slightly above current levels and far better than the 40% cut proposed earlier. The full #House and #Senate must still agree, and a CR may be needed to avoid a shutdown on Sept. 30. #epilepsyresearch

Infections at birth like neonatal sepsis or meningitis may up the odds of childhood epilepsy. Stronger effects seen in focal vs generalized epilepsy. Early prevention & treatment of newborn infections could help reduce this risk. 🔍 🔗 More details: https://bit.ly/3Vi5RTu

You made a big impact! 💜 $5.2M+ in research 🔬 30 active grants 📚 2 staff publications 🏃 28 Champion events nationwide Together, we're driving change in epilepsy research. THANK YOU for standing with us! 🙌 More: https://www.cureepilepsy.org/our-research/impact-reports/researching-for-a-cure-2025/

UCLA researchers used stem cell‑derived assembloids to show how SCN8A variants trigger cortical hyperactivity (seizures) and impair hippocampal rhythms (memory). This new model may explain cognitive challenges beyond seizures and open avenues for better treatments. Read more: https://bit.ly/41O86BE

🔬 Epilepsy Research News: Hippocampal low-frequency stimulation (LFS) in a mouse model of drug-resistant focal epilepsy (MTLE) led to: 🔻 Reduced seizures 🧬 Reversed memory deficits 🧠 Better synaptic health 🔗 Read more: https://bit.ly/4pekViu

This weekend at #IEC2025, our CSO Dr. Laura Lubbers joined Dr. Dan Lowenstein for the Presidential Symposium on inclusive, patient-centered epilepsy care. She also shared updates on SUDEP Common Data Elements led by CURE Epilepsy. #ILAE #SUDEP #epilepsyresearch

Brain #insulin resistance may link #Alzheimer’s and #epilepsy — new research supports the "type 3 diabetes" hypothesis and its role in both memory loss and #seizures. A promising step toward better understanding and #treatment. 🧠✨ Learn more: https://bit.ly/44I1ypW

Join PAME and Association of Neuroscience Nurses Sept 26 @ 1PM ET for a powerful webinar on suicide prevention, screening, and #mentalhealth in #epilepsy. Hear from expert clinicians + a mother’s story of loss and advocacy through Widdy’s Work. 📅 Register: https://bit.ly/4mLG16t

New research links high blood pressure during #pregnancy to an increased risk of #seizures in children. Maternal health may play a critical role in long-term #neurological outcomes. 🔗 Read more: https://bit.ly/4kF0yHT #EpilepsyResearch #MaternalHealth #SeizurePrevention

New research links high blood pressure during #pregnancy to an increased risk of #seizures in children. Maternal health may play a critical role in long-term #neurological outcomes. 🔗 Read more: https://bit.ly/4kF0yHT #EpilepsyResearch #MaternalHealth #SeizurePrevention