I hate being chronically ill, the exhaustion from just dealing with the pain, always tired, struggling to breathe if I walk too fast, even getting up from my chair too quick can set it off.

@vivziepop.bsky.social Thank you for being a bright light in the dark. I love your shows and the absolutely epic music. Please keep happy and spreading the good feelings.

My hourglass is cracked, My sands are running free, But if I share some grains with you, You mean a lot to me. The hourglass has shattered, The sands have blown away, I hope the memories made of me, Are always there to stay.

I don't want to die. But the choice isn't mine.

Finding someone I can stay with to look after me after a Double Lung Transplant in sydney is almost impossible. St Vincents Hospital won't even start testing me to go on the list until I have a Carer locked in. They'd rather let me die than look after me themselves

Two Special hand made cards to show how much meeting You @manningofficial.bsky.social and Carole Ann Ford means to me. Can't wait to meet you both.

Yeah, lost interest in the new Superman when Krypto was being suffocated. Thank gods I didn't see it in the cinema

Diagnosis just keeps getting better. Went in for an MRI due to my headaches, turns out there is an abnormality in the White Matter in my brain. Could be a Demyelinating Disease, such as MS. So off to a Neurologist to get more opinions.

Can't believe I'll be in the same room as @manningofficial.bsky.social and Carole Ann Ford in October thanks to @audiosirens.bsky.social . Two Beautiful ladies, am even more excited to go now.

Last part of the circuit is done, now just to build the enclosure for the control board and it's all done #doctorwho #dalek

Basic lighting circuit soldered and working, just waiting on the right Picaxe chip to arrive so I can program it and test the second part of the circuit :) #doctorwho #dalek

"Don't put me on a ship full of Daleks when I'm holding a broken bit of Dalek" My part in a restoration of a Dalek a friend got given. #doctorwho #dalek

LED test wiring all done and working, switching through colors and to flashing using a rotary switch. just need to complete the programming of the PICAXE chip for final soldering and installation into DALEK Eye #doctorwho #electronics

Some Blackmore's Night and The Coors to calm my mind for the night. www.youtube.com/watch?v=KMg-...

Wish World was a wild ride, but again I reiterate, if you hate any part of this show to the point of spewing bile towards anyone involved, you're a troll, not a fan, stop watching. You can be a fan and dislike portions of the show, but hate has no place in the world. #doctorwho

My $30 book haul from the book fair today #doctorwho #startrek

Wow, found the Heart/Lung Transplant Standards on the American Thoracic Society Website. Standards ratified by H&L societies around the world including Aus/NZ. And guess what, not a SINGLE MENTION of needing a Carer. Surprising huh. www.atsjournals.org/doi/full/10....

I think #DoctorWho: THE ROBOT REVOLUTION was a Fantastic start to the new season. Well done Russel T

Finally sent emails to St Vincents and Alfred Hospitals withdrawing my referrals for Transplant, since both made it clear they weren't going to put me in consideration to go forward. (1/3)

Thank you @matthewwaterhouse.bsky.social and @audiosirens.bsky.social for another brilliant day. You were a very gracious man Matthew, it was a genuine pleasure to meet you.

Finally laid my hands on this set at the Matthew Waterhouse event today. #Doctorwho

Really feeling this song today. www.youtube.com/watch?v=gJMN...

Definitely going to turn out to be a long blanket. Still, Slowly materializing. #DoctorWho #Crochet #Craft

Two Australian hospitals will deny me a Lung Transplant, that thankfully has been able to be put off thanks to medication working, due to the needing of a carer to be by my side 24/7 for 2 and a half months, in accommodation nearby the hospital instead of keeping me in hospital for 3 months.

The Effort you've put into making a costume, will always shine brighter than how much you spent on it. Don't let ANYONE tell you your effort isn't good enough, it's not for them to judge. #Doctorwho #Cosplay

Spent the day with this absolute joy of a lady today. Thank you so much Janet @janetfielding.bsky.social and @audiosirens.bsky.social . Thank you again accepting my card, it means a lot to me.

When I watch Dr Who I watch Dr Who, I don't call it New Who or Classic Who or anything else, it's all just Doctor Who to me. He evolves over the years, that's the whole point, just like the other long running things like Coronation Street or Eastenders. #doctorwho

Ever so slowly materializing. #DoctorWho #crochet #craft

Got my ticket ready from the fantastic @audiosirens.bsky.social to see the wonderful @janetfielding.bsky.social on 1st of March in Canberra. Next ticket to acquire is for @matthewwaterhouse.bsky.social at the end of March. Check out and get yours at www.sirensofaudio.com/p/live-event...

As I don't know when my clock will stop, which could be from tomorrow to years away, due to my condition. I'm going to try to see every Actor/Actress that has been in Dr Who that comes down to Australia. Time to stop thinking "Should I" and just think "Lets GO." #DoctorWho #PulmonaryFibrosis

Another project beginning to Materialize #DoctorWho #Crochet