Discover how you can help us expand our reach and educate communities about patient experiences, like financial hardship and the need for Needs Navigation. October 1st | 3-4 pm ET Register here: www.npaf.org/events/

Join @NA4Caregiving & @CancerCare for an interactive listening session exploring the financial challenges faced by cancer caregivers, from out-of-pocket costs to lost wages. Hear from experts, speak with other caregivers, and share your own story. Sept 29, 1-2:30PM ET bit.ly/4oG6mEl

Join us for Building Community in the Digital Space Learn how social media can spotlight financial hardship, connect advocates, and provide real tools for action. Register: www.npaf.org/events/ #NPAF #Webinar #PatientAdvocacy #FinancialHealth #SocialMedia #Community #Voices4Change

LinkedIn We’re proud to spotlight our latest blog post, Through Adversity, Advocacy Called My Name Read Julia’s story: www.npaf.org/blogs/throug...

Join us for Building Community in the Digital Space Learn how social media can spotlight financial hardship, connect advocates, and provide real tools for action. Register: www.npaf.org/events/ #NPAF #Webinar #PatientAdvocacy #FinancialHealth #SocialMedia #Community #Voices4Change

47 leading patient orgs are calling on House appropriators to protect robust federal funding for medical research in FY26, because cures can’t wait. Read the coalition letter + details: unitedforcures.org/47-leading-p... #MedicalResearch #Cures #Appropriations

Medicare beneficiaries spent 11% of their total per capita income on out-of-pocket health care costs, on average, but 1 in 4 beneficiaries spent at least 21% and 1 in 10 beneficiaries spent 39% or more. https://on.kff.org/4lL3R0S

Today we’re debuting the Needs Navigation Toolkit — a new resource designed to help advocates, patients, caregivers, and communities understand and act on the importance of Needs Navigation. Download the Toolkit here: www.npaf.org/resources/ne...

Starting Now!

Join us TODAY, at 3 PM ET, for a free webinar about Needs Navigation — hands-on support that helps people manage costs concerns by connecting them to the right resources. There’s still time to join us: www.npaf.org/events/ #NeedsNavigation #Voices4Change #CommunityHealth

Care isn’t just about doctors and medicine... Needs Navigation connects patients to the resources they need right in their own communities. Join us tomorrow to learn how to talk about this important support: 🗓 August 21 | 3–4 PM ET | Free Webinar (Zoom) Register now:https://www.npaf.org/events/

Karla Alvarado of BSWH Community Care Clinics reminded us: “Whether someone is called an advocate, a navigator, or a community health worker, the goal is the same. People need someone by their side who understands both the medical system and their personal reality.” Read More: ow.ly/YuEO50WHRk1

Right now, Medicaid is at risk. We need your help protect it. Check out: Medicaid 101: What You Need to Know Learn the facts. Share it with your networks Watch now: youtu.be/yRgxXzmXsjg #MedicaidDayOfAction #ProtectMedicaid #NPAF

How to Talk About Needs Navigation and Why It Matters August 21 3–4 PM ET Free Webinar ow.ly/Po7K50Wu83E #NeedsNavigation #Voices4Change #Healthcare

Ky wrote about what it means to make healthcare work for all of us at a time where it doesn't feel like it's working at all. Read the full post here: www.npaf.org/blogs/all-of... #Medsky #Voices4Change #Protectmedicaid #NPAF

At NPAF, we believe no one should face the cost of care alone. Needs Navigation eases cost concerns to make healthcare work for all of us. We stand with people managing chronic conditions and fight for care that supports real life, not just medical charts. #ChronicDiseaseDay #ChronicIllness

The Scott Amendment which would bring the ACA's Medicaid expansion federal match from a 90% federal share to a much lower match that differs by state (generally between 50% and 75%)- winding down the ACA's expansion, leading to loss of access to care. Please take action here: ow.ly/cVH050WiBrh

View out summaries of today's #NPAF #PolCon in our #IssueBrief here: www.npaf.org/resources/ne... #MedSky #ChronicIllness

"the constellation for healthcare costs showed that people are making the choice between paying for food, rent, and utilities and their #healthcare costs" #NeedsNavigation secures access to safety net services that people need. #PolCon #NPAF #ProtectMedicaid #Finance #HealthcareCosts

95% of patients values #NeedsNavigation services (of those who have experienced needs navigation services) #NPAF #PolCon

" Patients are more concerned about financial impacts than dying". "The number one thing that matters the most during a diagnosis is overall financial concern; 95% of patients said the financial impact caused serious concern." - Patient Insight Institute #NPAF #PolCon

Findings from Patient Insight Institute, via Rebekah Angove, PhD most recent study. "all research and data is just a thousand stories": 82% experienced financial difficulty in the past 12 months. #NPAf #PolCon

"The cost of healthcare is from premiums to parking... #NeedsNavigation turns a health system into a #Healthcare System" - Bri Davis #NPAF #PolCon

"It brings anxiety knowing that even if I'm going for a routine visit.... if something is wrong... am I going to be able to afford medication and follow up visits?" - Bri Davis #NPAF #PolCon

From Policy Advocate, Sa'Brina Davis "There are moments when I'm making a decision between essentials and medication" Bri had to make the choice of paying for car insurance or paying for her children's health premiums. #AfforableCare #HealthCare #ProtectMedicaid #NPAF #PolCon

Volunteer, and patient speaker, Stephen Christoph shares his sorry navigating the cost concerns associated with blood cancer. Stephen reports that affording food, rent, and utilities is challenging. He finds that the has no help navigating these financial concerns. #Cancer #ChronicIllness #NPAF

The focus of all #NPAF #PolCon events is to make all policy practices more responsive to patients and caregivers, by hearing from patients and caregivers directly. Thank you our Sponsors: Pfizer, Vertex and @elilillyandcompany.bsky.social !

The single biggest unresolved health policy issue this year warranting policymaker, analytic, and news media attention? Whether ACA enhanced tax credits will be extended, writes KFF’s @drewaltman.bsky.social. Read more in his latest: on.kff.org/3HNyYdG

Follow us LIVE, as we report new findings in #NPAF #PolCon Financial Hardship Hurts Health, starting in just 10 minutes! #MedSky #PatientAdvocate

Connie knows cuts to Medicaid and safety net care will hurt. Emergency rooms will overflow. Preventable conditions will become crises. The burden will fall hardest on those already struggling. Connie’s story: youtu.be/LiYUfsLO2d0 Share your story: ow.ly/LyYP50Vk2Za #ProtectMedicaid

Financial hardship isn’t just a side effect of illness: It’s a barrier to care and a threat to health. June 11, 3–4 PM ET for Financial Hardship Hurts Health Featuring new research + real stories from patients + advocates. Don’t miss it 👉 ow.ly/2MUl50VXQNr #Voices4Change #NPAF #Advocate #MedSky ⸻

We're live on Instagram! Be sure to give us a follow. If you haven't already check out our list of platforms here: linktr.ee/NPAF Every follow, like, and share is an act of advocacy in itself. #PatientAdvocate #NPAF #Instagram #Followus #Advocacy #Action

If you or someone you love has been impacted by Medicaid, your story matters. Help protect access to care by sharing your experience: 👉 ow.ly/LyYP50Vk2Za

"Kids who did not choose to have a disability deserve access to health care. Their parents deserve some help when this is not what we choose.” If you’ve been impacted by Medicaid, your story can help protect access to care for millions. Share your story here: ow.ly/LyYP50Vk2Za

At NPAF, we believe in making care work for people, not the other way around. “Medical, Mental, and Financial well-being... all together. That’s what we’re working on at NPAF” Let’s work together to advance solutions like Needs Navigation that prioritize people, reduce stress, and improve lives.

April is Financial Literacy Month, and at NPAF we’re focused on one of the most overlooked aspects: the cost of care. We define Needs Navigation as: Easing cost concerns to make healthcare work for all of us.

🌟 Happy National Volunteer Week! 🌟 At NPAF, we know one thing for sure: nothing we do is possible without our incredible volunteers. Their time, passion, and voices drive real change—and we’re endlessly grateful. Join us and use your voice to make a difference: www.npaf.org/get-involved/

What’s Medicaid called in your state? 🤔 (Clue: it might not be called “Medicaid” at all.) We’ve made a handy guide listing the names of general Medicaid programs in all 50 states. Check it out here: ow.ly/Ajf450VEaKx (And while you’re there, give us a follow on LinkedIn!) #Disability #ChronicIllness

Register today for our next webinar: Medicaid 101! 📅 Date: April 16, 2025 🕒 Time: 12:30-1:30 pm ET 🔗 Link to Register: ow.ly/3XYJ50VpN0G

A new proposed rule from the Centers for Medicare & Medicaid Services (CMS) would: 1) Terminate existing ACA coverage for DACA recipients and block future enrollment. 2) Undermine access to gender-affirming care and potentially lead some insurers to drop coverage entirely.

Robert's story serves as a reminder that no one should have to navigate the daunting healthcare landscape alone. Needs Navigators are here to help, providing guidance, support, and advocacy for individuals facing similar challenges. Listen to Robert's Story below.

Register today for our next webinar: Medicaid 101! 📅 Date: April 16, 2025 🕒 Time: 12:30-1:30 pm ET 🔗 Link to Register: ow.ly/3XYJ50VpN0G

We are honored to lift up Ms. Debbie's Story. Has medicaid saved you or someone you love? Sharing your story helps to fight to protect access to healthcare! Share your story with leaders in congress here: ow.ly/LyYP50Vk2Za #MedSky #ChronicIllness #ProtectMedicaid #Healthcare

"National Patient Advocate Foundation is deeply concerned by recent reporting that sizeable job cuts are being planned at the Department of Health and Human Services.

It's #MedicaidDayofAction. Leaders in Congress have asked us for real stories about Medicaid’s impact. They want to hear directly from you—patients, caregivers, and advocates—about how Medicaid has shaped your life. Share your story here: ow.ly/LyYP50Vk2Za #MedSky #ChronicIllness #ProtectMedicaid

Health Industry Professionals, have you sought Needs Navigation assistance? Let us know in the comments! #MedSky #Healthcare #ChronicIllness #ProtectMedicaid

Needs Navigation is a cornerstone for making healthcare work for all of us. At #NPAFPolCon Navigators’ Roundtable on March 12, 2pm ET to hear community perspectives and practical solutions for easing cost concerns and improving healthcare access. www.npaf.org/events/polic... #Disability #MedSky

Take action to #ProtectMedicaid. Three clicks to make your voice heard. #MedSky #Healthcare #US

NPAF is joining forces joining forces to educate Congressional members about how important Medicaid programs are. We need to share peoples' stories about Medicaid's value to them stave off cuts to federal funding. Get action updates and share your stories here: ow.ly/39XK50V0jYV #ProtectMedicaid

Join us for NPAF's Needs Navigators' Round Table! www.npaf.org/events/polic... #Healthcare #NPAF #HealthcarePolicy #HealthAdvocacy #HealthPolicy #NPAFCommunity #PatientAdvocacy #HealthcareInnovation #PublicHealth #CommunityHealth #NPAFPolCon