I'm broken to hear today's news! I will always remember Tinu as one of our most kind, an incredible advocate, & a community foundation. Tragically, her journey personifies the 100% letdown this world is, and the unrelenting harm it has wrought on our community. There's no word for this emotion.

Learning of Tinu’s passing brought me back to socials for a minute. Every person refusing to mask is responsible for the worsening health & isolation of disabled people. Unmasked healthcare workers caused Tinu to have Long Covid on top of cancer. They killed her.

We are laughing hard. Feel free to join late!

Join the free screening this afternoon at 2pm EST

SGN are giving free heated throw blankets to disabled people living in their area. More info by emailing [email protected] #MECFS #ChronicIllness

Does anyone know the UK benefits system well enough to be able to tell me how much money I can "earn" if I'm in the ESA support group on the highest rate, plus I have a direct payments care package...? I say "earn" since it's not actual employment, legally speaking. #NEISvoid

People who want to talk about politicians in cognitive decline best also concern themselves with preventing the spread of Covid.

First screening of the day is in about an hour Champions at 2pm EST Playing on Hyperbeam: hyperbeam.com/v/dis-movie-... Followed by a replay with audio description at 5pm EST.

Today we have a free online screening of Champions Playing on Hyperbeam: hyperbeam.com/v/dis-movie-... 2pm EST, followed by a second viewing, this one with audio descriptions, at 5pm EST.

I await the imminent disbanding of the entire US government, police force, and prison system, for starters, then...

You think you’ve seen it all, but then a new study comes along and totally blows the lid off 🤯♻️ #microplastics #PlasticPollution #agriculture #FertilizerPellets www.rothamsted.ac.uk/news/agricul...

You know why Finland housed their homeless? Because it's cheaper - saving Finland about $14K per person per year in crime, addiction, mental health, and emergency housing services. In Canada/UK/US, we mostly rely on raising police budgets instead & still watch those problems rising exponentially.

For a bit more about the movie, check out my review from my first watch of Poppy boxd.it/4aDaA9

Anyone wanna join us for a movie in 50 mins? Free to join on hyperbeam!

Ow!

Hope you’ll drop in for a group watch of Poppy on Sunday on Hyperbeam: hyperbeam.com/v/dis-movie-...

A protestor just held up a sign saying "MASKS SAVE LIVES" in front of unmasked Senators at today's Long COVID hearing! #HELPLongCovid

Honestly just utter and total despair. We don't deserve this planet!

wishing disability justice is centered and climate crisis acknowledged and reckoned with in this new year, rather than abandonment and neglect.

Can we retire the word handicapped? Are you fucking 80 years old? No?! Then stop saying it. That word has gone out of favor and has been out of favor for at least a few decades.

Happy new year! May 2024 finally be the year we eat the goddamn useless rich (and powerful)! 🎇

Because after MAID, the eugenics implicit in how the UkGov handled covid & their constant demonising of disabled people, especially those of us claiming benefits, we can totally trust them to put an assisted dying law in place in a non-ableist, non eugenical way?! www.theguardian.com/society/2023...

Folks idk how to say this delicately so I'll just be blunt as usual: I don't care if you "tested negative," I still don't want whatever the fuck it is you're coughing and sniffling up all over the place. How dare you think you have the right to give it to me?! Grow up. Care about other people.

REMINDER: Sex workers aren't allowed on substack, but Nazis are.

We are in the midst of a big COVID surge, caused by a new variant. This is a helpful chart on holiday COVID risk put together by Dr. Michael Hoerger, based on current COVID wastewater levels & modeling. For a Christmas gathering of 10 people, there's a 30% chance at least one person is infectious.

The UK Gov have been snooping on disabled ppl's/benefit claimants socials for yrs! They have the public spying on us. Now they've moved into our bank acc's & are set to grasp yet more of our privacy. You may think, "Eh, doesn't affect me" but who do you think the power-obsessed are coming for next?

Irony upon irony at criminal thugs burning down asylum-seeker accommodation a week before they sit down to celebrate a beloved religious festival that revolves around a family of asylum-seekers #Ireland #Galway www.rte.ie/news/ireland...

They should be forced to give this money to charities set up for elderly and disabled people! Really just levels of abhorrent I cannot even IMAGINE sinking to! www.theguardian.com/uk-news/2023...

The Tory government has fully tipped over into a dictatorship at this point. It CAN'T be allowed to continue. This is a clear and frightening breach of human rights. The horrifying irony whilst the Tories cause trauma & deaths left, right & centre, is sobering! www.theguardian.com/environment/...

So many of you who read this have ACTIVELY made the world more dangerous & more hostile to disabled & chronically ill people. You helped usher in & support new Ugly Laws by acting in ways that make it dangerous for high risk people to participate in society. Shame on you.

These types of kindnesses mean so very much when struggling to navigate an inaccessibly designed world! 🧡 This is a thing true allies can do to make our days just that little bit easier!

Anyone wanna join us for a movie tonight? We'll be watching The Last Unicorn together on Hyperbeam! 9pm EST! Link in thread! 👇 All welcome! 🧡

Anyone wanna join us for a movie tonight? We'll be watching The Last Unicorn together on Hyperbeam! 9pm EST! Link in thread! 👇 All welcome! 🧡

From the start I was delighted that this movie actually uses the word autistic! It’s not coy about his diagnosis. Nathan (age 9, played by Edward Baker-Close) is mostly non-speaking. He’s afraid to talk much because he thinks mathematically and knows he’s weird. boxd.it/3T1Of7

It’s dicey to have cast a non-disabled actor in this role. Ernie Hudson delivers a subtler performance of disability than most. boxd.it/3Fap5t

BREAKING: #Wisconsin governor vetoes ban on gender-affirming care for trans youth #NOH8

In arguably their most dehumanising move yet, my home care Co. has decided to "streamline the service timings & give continuity" - by setting our calls at specific times - times that work for THEM, not us. My new time from January will shave an entire hour off my sleep. Every. Single. Day.

I got my compression gloves today and they are amazing. Very cool looking and after 6 hours of typing in them, my hands don't hurt! (My hands always hurt, so this is lovely and new.)

Went to the Modern Meiji exhibition at The Asia Society in NYC a few weeks back and this embroidered (EMBROIDERED!!!) screen haunts me. It's about 6' tall and it's silk embroidery (over 250 shades of thread!!) on undyed silk. I thought it was a painting until I was close enough to se the threads.

The oil companies invented the idea of "individual responsibility" - a system of propaganda so successful that it was embraced by the entire US government on a whole slew of propaganda campaigns for things they didn't want to address (like covid!).

Gail’s (Meryl Streep) dad is deaf and she signs with her parents as well as teaching at a school for deaf people. It comes in handy later in the film. boxd.it/3EsN5f

PSA: Being alarmed about climate change does not equal being an "alarmist." The state of our climate right now is *objectively* alarming. If you are *not* alarmed by it, you are not engaging with reality

If you haven't been wearing a mask I am personally blaming you for making the lives of chronically ill and disabled ppl harder. It will be difficult to find adequate masks and we have to deal with you spewing pathogens even as we seek healthcare.

Genuinely terrifying that this is happening around the world.

This is such a huge fail. We need to make high quality masks more accessible to everyone long-term to protect people from the ongoing threats of COVID, respiratory viruses, and climate change. Shame on the government for not doing more to support the critical efforts of groups like Project N95!

Doc’s prescription is for Bob to take a vacation. You know, as one takes time away from mental illness 🙄 boxd.it/3s0rSZ

Ohhhh, it's even more terrifying than that!! “This measure is drafted broadly . . . to enable DWP to apply this measure to non-financial organisations in future if it is deemed appropriate and proportionate" www.benefitsandwork.co.uk/news/almost-...

The DWP are apparently set to be given powers next year to be able to access our BANK ACCOUNTS! They'll be able to see not just money going in, but what we're choosing to spend our money on!!! 🤯 🤮 As far as I can tell, it also affects disabled claimants. An utterly *obscene* invasion of privacy!

The DWP are apparently set to be given powers next year to be able to access our BANK ACCOUNTS! They'll be able to see not just money going in, but what we're choosing to spend our money on!!! 🤯 🤮 As far as I can tell, it also affects disabled claimants. An utterly *obscene* invasion of privacy!