The Power of Peer Support open.substack.com/pub/mayakuza...

Maya reflects on the distinction between clinical and personal recovery after stroke. She describes how recovery is not about being who you were before but is self-determined and about becoming who you want to be. open.substack.com/pub/mayakuza...

Maya explains her experience of life after stroke and how the European Life After Stroke Conference was a turning point in navigating her life post-stroke. Also what she wished she had been told - stroke professionals please read this!! Becoming Your Own Advocate open.substack.com/pub/mayakuza...

What stroke survivors want you to know, how it helps & the value of lived experience. Excellent descriptions and important reading for professionals and the families of those adjusting to life after stroke. @louiseclark15.bsky.social @willchegwidden.bsky.social open.substack.com/pub/theesk/p...

A stranger’s face, a stranger’s mind open.substack.com/pub/theesk/p...

Looking at my qualitative interviews with young people after minor stroke. 31 yr olds comment on multiple errands test ‘I am very confident I can do that but that does not in anyway mean I am fine’ #lifeafterstroke @f-geranmayeh.bsky.social @imperialbrains.bsky.social @thestrokeassoc.bsky.social

Grateful to be interviewed by Sara Tavares, Heart Failure Specialist Nurse, clinical academic colleague about my path into advocacy for people after stroke #lifeafterstroke @pareshmalhotra.bsky.social @gemmaclunie.bsky.social @ismalias.bsky.social academic.oup.com/eurjcn/advan...

Have a listen to this new podcast started by a member of our Imperial Stroke Public Involvement Group. I think it has the potential to evolve into a useful resource for people with stroke and their families. @imperialbrains.bsky.social @imperialperc.bsky.social shows.acast.com/talking-abou...

Really looking forward to reading this editorial ‘If patients only knew’. Will message you with a few thoughts.

Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social

TIA - Neurological symptoms NOT fully resolved within 24 hours! An interesting prospective cohort study looking at fatigue up to 12 months after #TIA @ismalias.bsky.social @avrildrummond1.bsky.social @pareshmalhotra.bsky.social @imperialbrains.bsky.social pubmed.ncbi.nlm.nih.gov/40367404/

Watched this last night and highly recommend it Bbc.co.uk/programmes/m0029cpt ‘Hope plays a major role in recovery’ #lifeafterstroke

I am lucky enough to Chair this organisation & work with fabulous team bringing these events together where psychological stroke research worldwide is showcased. We are looking for abstract submissions - don’t miss out! It’s THE event for research of psychological aspects of stroke! Join us!

Do our well intentioned research processes exacerbate exclusion? @ismalias.bsky.social @willchegwidden.bsky.social

‘Exodus’ of clinical researchers sparks concern over future of UK healthcare in @financialtimes.com today. Lots of change needed.

Watch this tonight about Clemency Burton-Hill's continuing fight to recover after a #stroke 5 years ago. @clemencybh www.bbc.co.uk/programmes/m...

#lifeafterstroke #elasf2025 excellent session on secondary prevention after stroke. Medical and lifestyle issues covered but also the need to live

#lifeafterstroke #elasf2025 Alexia Kountouri from Cyprus talks in English about her aphasia. Involvement in research has given her a voice.

#lifeafterstroke #elasf2025 Hatice Ozkan - participant " I am more than my stroke"

Well worth a read .

We can always try to improve how we conduct trials and how we ensure that the most important people have a say in how they are designed and run. For the AD-SMART platform and #dementia research, Ben Underwood is doing just that with POPPED. Please take a look at www.popped.org.uk and do share!

Another excellent Imperial Stroke Public involvement group today. We discussed research topics the group felt were important. Also interesting discussions around the Stroke Association PREM question - Did you receive support coming to terms with the effects of your stroke?