We’re proud to share our official #LupusAwarenessMonth poster for 2025! 🎉 Lupus can affect anyone regardless of age, gender, or ethnicity. However, it disproportionately impacts women and people of African, Caribbean, and Asian heritage. (1/3)

Happy #LupusAwarenessMonth! 💜 October is Lupus Awareness Month in the UK, which aims to raise awareness and understanding of lupus amongst the public and medical profession.  Join us in helping to #MakeLupusVisible! 💜

We are extremely pleased to announce we are PIF TICK re-certified. 😊

🌟 @lupusuk.bsky.social is now PIF TICK re-certified. This means its health information continues to be: - Evidence-based - Up-to-date - Easy to use and understand Get PIF TICK certified: pifonline.org.uk/pif-tick/how... See our full PIF TICK Directory here: piftick.org.uk/members/tick...

Today is #WorldGratitudeDay, which serves as a gentile reminder to pause, reflect, and appreciate the people, moments and experiences that bring light into our lives.  Who or what are you grateful for today? Tell us in the comments below! 💜

Imagine if sharing a meal could change lives... By hosting a Lunch 4 Lupus, you'll be raising awareness, sparking conversations, and helping to fund vital support and research for people living with lupus. 💜 Get involved today at www.lupusuk.org.uk/lunch4lupus/ or by emailing [email protected]

October is Lupus Awareness Month in the UK, which plays a crucial role in increasing knowledge & awareness of lupus.💜 Help us raise awareness by ordering free awareness supplies here: http://bit.ly/4nludI6 🔗 #LupusAwarenessMonth #LupusUK #LupusAwareness #Autoimmune #ChronicIllness

Lupus UK would like to say a huge THANK YOU and GOODLUCK to those running the Great North Run tomorrow! 🏅🏃 We are SO proud of you all!! 💜 #GreatNorthRun #GreatNorthRun2025 #Lupus #SLE #LupusCommunity #Fundraising #MarathonRunners #Running #HalfMarathon

Behind every #lupus diagnosis is a person, a family, and a story. Lupus UK is here for our community offering support, connection, and understanding while funding research that brings hope for a brighter future.   Please consider donating today http://bit.ly/465ICRD 💜 #InternationalDayOfCharity

In celebration of Lupus Awareness Month, we are hosting an Information Day in Belfast on Saturday 11th October!  For more information and to register your free ticket, visit https://www.eventbrite.co.uk/e/lupus-information-day-2025-belfast-tickets-1581665587349

From 1st September 2025, anyone who has a weakened immune system (“immunocompromised”) aged 18 or over can have the #shingles #vaccine. Some people with #lupus will be eligible depending on what treatments you take. For more information, read our article here: http://bit.ly/4n75xTc

As we head back to work after the summer break, its important to remember the importance of taking breaks and moving and stretching to reduce joint stiffness and pain. Try our simple advice to stay active while working from home. www.arthritisaction.org.uk/working-from...

Thinking about joining a Clinical Trial? Hear from Debbie and Sherron who share their motivations behind taking part. 🎥 For more information on clinical trials, how they work, and why they matter, watch the full video on our YouTube channel: bit.ly/LupusUKOfficial #ClinicalTrials #Research

What’s better than a walk with your furry best friend? A walk that makes a difference! 🐕 This #NationalDogDay, sign up to our Virtual Dog Walk, our sponsored dog walk which raises funds to support people living with lupus.  Sign up here: lupusuk.org.uk/virtual-dog-walk/ 🐶

Want to learn more about CAR-T cell therapy? We've released a new article to accompany a 3-part animated video series we have developed.  You can read more at: lupusuk.org.uk/2025/08/15/car-t-therapy-for-lupus/ and watch the 3-part series on our YouTube channel: www.youtube.com/LupusUKofficial

Do you want to help shape research on lupus and pregnancy? Take part in this new survey, funded by Lupus UK alongside the UCLH NIHR Biomedical Research Centre! To complete the survey, click the following link: https://qualtrics.ucl.ac.uk/jfe/form/SV_8CB8mMGxCkazULY Closes: 10th September 2025

Did you know that between 40 - 70% of people with #lupus have symptoms triggered by the sun or UV light? Symptoms can include skin rashes, but also systemic symptoms like fatigue or joint pain. Do you have symptoms triggered by the sun or UV light?

The Autumn 2025 Lupus UK research grant round is now open! Applications must be received by Lupus UK before 5pm on Monday 6th October 2025. For more information, visit: lupusuk.org.uk/grants/ and to apply, email your application form to [email protected].

We now have an additional phone number. For general enquiries and to contact our Head Office, please call us on 02081 830 651. Our current number still remains as our helpline (01708 731 251). Please do not hesitate to reach out if you require support! 💜

Researchers are exploring how to improve support for people living with #lupus who experience #flares.  Participants are invited to take part in a 1-hour virtual focus group (an informal group discussion) run by Dr Koushan Kouranloo and Dr Chris Wincup on Thursday 14th August between 10.30-11.30am.

Did you know, we provide Recite Me accessibility and language support on our website? Access a customisable toolbar to read and understand content in a way that suits your needs.  Open the toolbar by clicking on “Accessibility tools” in the top right corner of our navigation bar.

Sharing your #lupus story can help us raise awareness and understanding of lupus, and also help to remind others that they're not alone.  Whether you chose to write a poem or blog article, film a short video or share some photos, the choice is yours!

Ever wondered how new medicines and treatments are developed? @anisurrahman.bsky.social explains the importance of clinical trials and the vital role they play in bringing safe and effective new treatments to patients. 👉 Watch our full video on #ClinicalTrials here: bit.ly/LupusUKOfficial

⭐️ Happy to share that our article, in collab with CEDAR, is featured in the latest LUPUS UK magazine! 😀 It discusses the refreshed National PREMs 🏴󠁧󠁢󠁷󠁬󠁳󠁿📝 — project winner of the 2024 Health & Care Research Public Involvement Award 🏆 Available to all LUPUS UK subscribers #Lupus #PREM #PPI #Survey #Wales

🔦 UV light doesn't only come from the sun. It can also come from Fluorescent/halogen lights Some phototherapy lamps Nail curing lamps Some medical equipment (dental or dermatology devices) More ℹ️ in @lupusuk.bsky.social Guide to Artificial Lighting: lupusuk.org.uk/a-guide-to-a... #KickLupus

We are recruiting a Team Administrator to play a key role in keeping Lupus UK running smoothly by providing vital support across all teams and functions. If you enjoy working in a collaborative environment and can confidently manage multiple tasks  and priorities, this role may be perfect for you!

Want to learn about Clinical Trials? Hear from Professor Anisur Rahman (@anisurrahman.bsky.social), Ellie Hawkins, Sherron and Debbie in our brand new video: “What are Clinical Trials? How they Work, Why they Matter & Patient Experiences” over on our YouTube channel! 🎥 bit.ly/LupusUKOfficial

Did you know that as a member of Lupus UK, you will receive our News & Views magazine which contains: • Health information and research updates • Reports from Trustees, Head Office, and Regional Groups • Fundraising highlights • Articles from members of the lupus community  and much more!

We have 5 spaces available for Vitality London 10k on the 28th September! 🏃 If you would like a space running for Lupus UK, please get in touch with Lisa, our Fundraising and Marketing Development Manager at [email protected] (Minimum sponsorship to take part in this event is £300).

This #VolunteersWeek Lupus UK would like to say a huge thank you to our fantastic volunteers who dedicate their time to help our work supporting people with #Lupus.

We are still accepting applications to join the 2026 Lupus UK Legends London Marathon Team!👟🥇 Apply here: https://lupusuk.org.uk/tcs-london-marathon-lupus-uk/   Thank you to everyone who has applied so far. Your applications are so inspiring, we will be in touch very soon!! 💜

Happy #InternationalNursesDay 💜 Thank you to all #nurses worldwide for your tireless efforts and hours dedicated to providing excellent health care! #ThankYouNurses #NurseAppreciation #NursesDay

Cardiff Castle shines purple tonight for #WorldLupusDay, and the sky over the city is putting on a show to match! 💜🦋 #Lupus #CardiffCastle @lupusuk.bsky.social

🟣 The purple flowers are out in the garden for #WorldLupusDay! 🌍 🟣 Please follow the amazing @lupusuk.bsky.social to learn more and find out how you can support patients with lupus 🦋

💜 Today is #WorldLupusDay. Lupus is an autoimmune disease that can cause problems in the body, including the #Kidneys. In collab with @lupusuk.bsky.social, we spoke with several people who are all living with #KidneyDisease & #Lupus. Read their stories here 👇 kidneycareuk.org/kidney-disea...

🎉 It’s #WorldLupusDay! 💜 Tonight, Cardiff Castle, witness to nearly 2000 years of history, will shine purple to mark it. Huge thanks to @cardiffcouncil.bsky.social for the support. I can’t wait to see it! 🏰 #Lupus #LupusAwareness #CardiffCastle

Want to learn more about #lupus this #WorldLupusDay? 🌍💜 Here are some of the many symptoms associated with the condition.  For more information and support visit www.lupusuk.org.uk #MakeLupusVisible #LupusAwareness #SLE #CutaneousLupus #HiddenDisability #ChronicIllness #AutoimmuneDisease

Today is #WorldLupusDay 🌏 Lupus is a #chronic #autoimmune condition where the immune system mistakenly attacks healthy tissues causing inflammation to the body. We are the only national registered charity supporting people with #lupus. Visit lupusuk.org.uk for information and support. 💜

A new report has been published evaluating lupus care in Wales, using information from healthcare professionals and people living with lupus. Read more here:  https://lupusuk.org.uk/2025/05/06/new-report-about-lupus-care-in-wales/

One week to go until #WorldLupusDay! 🌏💜 Have you seen our official poster for 2025? You can order physical copies of our poster here: https://lupusuk.org.uk/order-awareness-supplies/ or download a pdf version here: https://lupusuk.org.uk/world-lupus-day-may-10th/

One week to go until #WorldLupusDay! 🌍💜 World Lupus Day takes place every year on May 10th to raise awareness about #lupus and improve understanding of how this chronic autoimmune condition impacts the lives of those who live with it. Here’s how you can get involved! 👇

Later this year, we will be celebrating our 35th Birthday! 🥳 As we celebrate 35 years of supporting the #lupus community, we're proud to reveal our updated, more accessible logo. 1/2

Last day to complete our “living with lupus” survey! 💜 Your answers will help shape the support we provide as the national charity for #lupus. Parents, carers or friends can also complete the survey! 🔗https://www.surveymonkey.com/r/lupusuk-survey-social #SLE #LupusCommunity #PatientSurvey

That’s a wrap on day 2 of #BSR25! Our Health Information, Policy and Research Manager Debbie presented a talk on “Lupus UK: Looking ahead" where she spoke about our strategy work and survey titled “The needs of the lupus community”. Complete the survey here: https://f.mtr.cool/pecvcjaucb

A new report by RAIRDA @rairda.bsky.social reveals that individuals living with rare autoimmune rheumatic diseases (RAIRDs) experience stark variations in their care and treatment.  Read the full report at rairda.org/publication/report2025/

We are at #BSR25 Come along to stand 61, we'd love to have a chat! Come along to our talks today! 💜 - "Lupus UK: Looking ahead" by Debbie Kinsey @ 13:30, Exhibition Stage 1 - "Supporting young people & families impacted by lupus" by Chelsea Wong @ 16:20, Charter 2 Visit lupusuk.org.uk for more!

Today, RAIRDA has released the Rare Care Matters report, which reveals that some individuals with rare autoimmune rheumatic diseases (RAIRDs) in the UK encounter major barriers in accessing care and treatment. Read the full report on our website 👉https://rairda.org/publication/report2025/

Please take one minute to nominate us for a chance to win £5,000 in the #MovementForGoodAwards Health & Wellbeing Special Draw (Charity No 1200671). 💜 🔗https://lnk.bio/s/LUPUSUK/Health-and-wellbeing-draw The draw is open for 5 days and will close at midnight on Sunday 4th May. #LupusCommunity

FINAL CHANCE TO HAVE YOUR SAY! With just one week to go until our #survey closes, complete our “living with lupus” survey today!  Your answers will help shape the support we provide as the national charity for #lupus. Complete the survey here: https://www.surveymonkey.com/r/lupusuk-survey-social.

The wonderful DJ Enyaw is running a 24 hour radio show TOMORROW to raise money for us! Tune in to www.dejavufm.com anytime between 2pm tomorrow until 2pm on Sunday 13th April.  Music includes Soul, RnB, Soulful House, Garage, Hip Hop, Swing and Reggae. ❤️🎵