Lupus UK
@lupusuk.bsky.social
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📥 29
📝 319
The national registered charity supporting people with
#lupus
❗UPDATE: Our National Virtual Support Group planned for Tuesday 30th June will now take place on Tuesday 23rd June.
add a skeleton here at some point
3 days ago
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We have 4 spaces available for Vitality London 10k on the 27th September! 🏅🏃 If you would like a space running for Lupus UK, please email
[email protected]
💜
#Vitality10k
#Running
#Fundraising
4 days ago
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Inspired to make a difference in the lupus community this
#VolunteersWeek?
We are seeking compassionate and dedicated individuals to join our team as Home-Based Support and Information Line Volunteers. 📞
5 days ago
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This week is
#VolunteersWeek!
💜 We’d like to say a huge thank you to our fantastic
#Volunteers,
Trustees, Ambassadors, Fundraisers and Supporters who dedicate their time to help our work supporting the
#lupus
community. Your contributions are invaluable. ⭐
#ThankYouVolunteers
6 days ago
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Come along to our Virtual Support Groups in June. 💻📱 Our groups offer a safe space for individuals to learn more about
#lupus
and connect with others who are going through similar experiences.
11 days ago
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Last chance to sign up for the ADAPT study which is looking at how Tai Chi and Pilates classes online (free for 8 weeks if allocated to one of those groups) may improve fatigue and mental health.
11 days ago
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The Scottish Report has been published 📢 Over 1,250 people across Scotland shared their experiences of living with conditions including lupus, highlighting issues such as delays in diagnosis, challenges in managing their condition, and the impact on everyday life.
13 days ago
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Want to get involved with lupus
#research?
🔬 You can find current opportunities over on our website: https://bit.ly/4tUIMFc Taking part in research can help lead to improved care and quality of life for people living with
#lupus.
❔If you have any questions, please contact
[email protected]
14 days ago
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We would like to say a huge THANK YOU and GOOD LUCK to everyone running the Edinburgh Marathon on Sunday and raising funds for Lupus UK! 🏅 We are SO proud of you all!! 💜⭐
#EdinburghMarathon
#Fundraising
#Running
#Marathon
#Lupus
17 days ago
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Good luck to everyone raising funds for Lupus UK this weekend! Whether you are completing a run or hosting your own event, we are so thankful for your support!! 🌟💜
#Lupus
#Fundraising
#LupusSupport
#LupusCommunity
#Marathon
24 days ago
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Our Young People and Family Support Officer, Chelsea can offer 1-1 support calls to Young people aged 18-30 living with lupus or Parent/carers of young people living with
#lupus.
To schedule a call with Chelsea, visit https://bit.ly/43766V9 or scan the QR code to their booking page 💜
#LupusSupport
25 days ago
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Please take one minute to nominate us for a chance to win £5,000 in the
#MovementForGoodAwards
Health and Wellbeing Special Draw. To Nominate Lupus UK (Charity No 1200671), please click the following link: https://bit.ly/4nzeAOw 🔗 The draw is open until Sunday 24th May. Thank you! 💜
#Lupus
#SLE
26 days ago
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Happy
#InternationalNursesDay
to our wonderful
#rheumatology
Nurses across the UK and all
#Nurses
worldwide. Thank you for supporting the
#lupus
community in so many ways, Your contributions make a huge difference in the lives of our community, and we are so grateful.🩺💜
#ThankYouNurses
27 days ago
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This
#WorldLupusDay,
Amber shares her article "The Invisible Reality of
#Lupus",
highlighting the emotional and physical challenges of navigating an
#InvisibleIllness,
from grieving her 'old self' to embracing self-acceptance and compassion. 💜 🔗Read the full article at:
https://bit.ly/4uxM5Tp
29 days ago
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We asked the
#lupus
community, "What helps you feel supported and less alone?" Here’s what our community shared. These responses are a powerful reminder of how important connection and understanding really are. That’s why we offer a range of peer support groups, both online and in person. (1/2)
29 days ago
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#Lupus
is an unpredictable condition that can turn everyday life into a challenge, but together, we can make sure nobody faces it alone. Every donation to Lupus UK helps fund research, provide support, and bring hope to thousands of families. 💜
29 days ago
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Living with
#lupus?
You don’t have to face it alone. 💜 Lupus UK is able to support you, your families and friends through our - Support and Information Helpline - HealthUnlocked community forum - Peer Support Groups 👉 For more information, visit
https://lupusuk.org.uk/need-to-talk/
29 days ago
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This
#WorldLupusDay,
Terri shares her article "Spontaneity and Living with Lupus", highlighting her realities of living with
#lupus
and the emotional toll of constant planning, missed opportunities, and the loss of spontaneity. 🔗Read the full article at https://bit.ly/42WQvrb
#MakeLupusVisible
29 days ago
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Today is
#WorldLupusDay,
an important day for the lupus community to come together, raise awareness, and improve understanding of its impact. 🌍💜
29 days ago
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Today is
#WorldLupusDay!
🌏💜
#Lupus
is a chronic autoimmune condition in which the immune system mistakenly attacks the body, affecting the joints, skin, kidneys and other organs, and impacting around 1 in 1,000 people in the UK.
29 days ago
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3 days to go until
#WorldLupusDay!
🌍💜 Here are 7 ways you can get involved on the day and throughout May! 🔗Visit: https://bit.ly/4whQ0p0 for more
#Lupus
#SLE
#MakeLupusVisible
#InvisibleIllness
about 1 month ago
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18-30 years old, live with lupus, and enjoy
#crafting?
Join us on zoom for our Virtual Young People Lupus Crafting Group! 📅14th May from 6-7pm Bring your own craft and come to a safe space where you can talk to other young people living with
#lupus.
Learn more at:
https://bit.ly/4sUDZDr
about 1 month ago
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🌷A mile a day in May 🌷 Join our Spring Into Action: 35 challenge and walk, run, cycle, wheel, swim or scoot a mile a day in May, then add four bonus miles to reach 35! 👣 Every £1 donated helps the
#lupus
community! 💜 👉 Sign up here:
bit.ly/422uLcX
#SpringIntoAction
#Fundraising
#MakeADifference
about 1 month ago
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Come along to our Virtual Support Groups in May. 💜 Our groups offer a safe space for individuals to learn more about
#lupus
and connect with others who are going through similar experiences. Contact
[email protected]
for more information.
#LupusSupport
#SupportGroup
#LupusCommunity
about 1 month ago
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11 days to go until
#WorldLupusDay!
🌎💜 Have you seen our official poster for 2026? 🔗Order physical copies of our poster or download it here:
https://lupusuk.org.uk/order-awareness-supplies/
💜 (1/3)
about 1 month ago
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12 days to go until
#WorldLupusDay!
🌍💜 World Lupus Day takes place every year on May 10th to raise awareness about
#lupus
and improve understanding of its impact. (1/4)
about 1 month ago
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The 2027 TCS
#LondonMarathon
ballot is OPEN! 🏅 If you secure a place, we’d love for you to run for Lupus UK and help make a real difference to the lives of those living with
#lupus.
💜 Contact
[email protected]
and we’ll support you all the way!!
about 1 month ago
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Watch this space! Applications to join team Lupus UK for the TCS London Marathon 2027 will be open soon! 🏅💜 Keep an eye out on our socials for updates! 🙌
#LondonMarathon
#Running
#Fundraising
#Lupus
#LondonMarathon2027
about 1 month ago
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We would like to say a huge THANK YOU and GOOD LUCK to our incredible team who are running the London Marathon tomorrow! 🏅 We couldn't be more proud of team Lupus UK! 💜⭐
#LondonMarathon
#LondonMarathon2026
#Running
#Marathon
#Lupus
about 1 month ago
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18-30 years old, live with lupus, and enjoy
#crafting?
Join us on zoom for our Virtual Young People Lupus Crafting Group! 📅14th May from 6-7pm Bring your own craft and come to a safe space where you can talk to other young people living with
#lupus.
Learn more at:
https://bit.ly/4sUDZDr
about 2 months ago
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We’re excited to attend the annual British Society for Rheumatology conference in Glasgow from 28th – 30th April. Come and find us at Stand 17 to meet some of the team and speak about all things
#lupus!
Swipe for highlights from previous years! 🙌
#BSR2026
#Rheumatology
#BSR
#MedicalConference
about 2 months ago
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We are recruiting for a Community Services Coordinator based in Northern Ireland! ❗5 days left to apply! 🔗Learn more about the role and apply on
#NIJobs:
https://bit.ly/4v5pTkC
about 2 months ago
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Have you signed up to our Spring Into Action:35 challenge yet? 🌸 Join us in raising awareness and vital funds, and help support everyone affected by lupus 💜 ✨Ready to get started? Sign up today! https://bit.ly/422uLcX
#SpringIntoAction
#LupusUK
#FundraisingChallenge
#MoveForGood
#MakeADifference
about 2 months ago
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Come along to our Virtual Support Groups this April and May. Our groups offer a safe space for individuals to learn more about
#lupus
and connect with others who are going through similar experiences. (1/2)
2 months ago
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Last month, our Health Information, Policy, & Research Manager Debbie attended SLEuro, a conference for researchers and healthcare professionals across Europe to come together and share the latest research, treatment, and support for people with
#lupus.
Read more here:
https://bit.ly/4dxxNNF
2 months ago
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We are recruiting for a Community Services Coordinator based in Northern Ireland! This is an exciting new role which will focus on engaging with communities and recruiting and training volunteers to deliver peer support services for those living with
#lupus.
2 months ago
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Lupus UK Head Office will be closed from 3rd - 6th April for the Easter bank holiday. Head Office, helpline & support services will resume 7th April 2026. Visit our website for information. For urgent support, contact 111 or 999. Sending warm wishes this Easter bank holiday! 💜🌼
2 months ago
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There are less than 15 tickets remaining for our ‘Ask a Rheumatologist’ event with guest speakers Dr Arvind Kaul and Dr Samir Patel, who will be answering your questions about
#lupus.
🔗 Reserve your free spot here:
https://bit.ly/4bQoiXg
2 months ago
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Our Spring Into Action:35 fundraising challenge begins tomorrow! 🌸 This spring, we’re inviting you to move with purpose and make a difference. Swipe to learn more about the challenge and sign up in 2 minutes by visiting:
https://www.justgiving.com/campaign/spring-into-action-2026
2 months ago
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We warmly invite you to our ‘Ask a Rheumatologist’ event with guest speakers Dr Arvind Kaul and Dr Samir Patel, who will be answering your questions about
#lupus.
📅Saturday 18th April, 10:00am - 12:30pm 📍St. George’s Hospital, London, SW17 0QT. Reserve your free spot today:
https://bit.ly/4bQoiXg
2 months ago
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Spring into Action this April & May! 🌸 Join our
#SpringIntoAction:35
Challenge and help support the
#lupus
community! Walk, run, cycle, wheel, swim, or donate £35 throughout April and May - your way, at your pace. 👣 🔗sign up here:
https://bit.ly/4lQ1U4U
3 months ago
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Are you a parent or carer of a young person with
#lupus
who would like to meet others going through a similar experience? Come along to our next Virtual Parents and Carers Group! 📅: Thursday, 26th March 🕕: 7:00pm - 8:00pm 📍: Zoom (1/2)
3 months ago
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Did you know, you can find different
#research
opportunities on our website? 🔗https://bit.ly/4sMaKD0 Taking part in research can help researchers understand day-to-day life with
#lupus,
which can lead to improved care and quality of life. Questions? Contact
[email protected]
3 months ago
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Today is World Young Rheumatic Diseases Day (WORD Day), which raises awareness for the fact that children and young people live with rheumatic diseases like
#lupus
too.
#WORDday
#WORDday2026
3 months ago
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You may have seen or heard about the hugely insensitive reference to lupus during last night’s Academy of Motion Picture Arts and Sciences
#Oscars
show. (1/5)
3 months ago
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We host national virtual support groups twice a month for people living with
#lupus
or approaching a diagnosis. Our groups take place on the: Second Wednesday of every month - Online from 1:00pm to 2:00pm Last Tuesday of every month - Online from 6:00pm to 7:00pm (1/2)
3 months ago
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If you are 18-30 years old, live with lupus, and enjoy crafting, join us online on the 19th March between 6-7pm for our first ever Virtual Young People Lupus Crafting Group! Learn about the crafting group and upcoming events here:
https://lupusuk.org.uk/youth-events/
3 months ago
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The Spring 2026 Lupus UK research grant round is now open! Applications must be received by Lupus UK before 1pm on Thursday 2nd April 2026. For more information and to download the related documents, visit: https://lupusuk.org.uk/grants/
#Lupus
#LupusResearch
#SLE
#ResearchGrant
#Research
3 months ago
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Want to receive our News & Views Magazine? Our Magazine contains: • Health information & research updates • Trustee, Head Office, and Regional Group reports • Fundraising highlights • Articles from the lupus community By signing up, you'll be supporting our work:
https://bit.ly/lupusuk-member
💜
3 months ago
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We’re proud to be a member of The Arthritis and Musculoskeletal Alliance (ARMA) as it launches its bold new strategy. Together, we can put MSK health at the heart of prevention, care & policy to improve independence and quality of life for 20 million people. Read the strategy:
https://arma.uk.net/
3 months ago
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