Thrilled to be part of Digital Medicine Society effort to develop a core set of digital measures across pediatric rare diseases. This work has the potential to accelerate research, improve trial design, and reflect what truly matters to children and families. This Thursday zoom.us/webinar/regi...

URGENT: Congress’s newly released minibus spending bill includes boosts funding for the NIH, NCI CCDI, STAR Act, ARPA-H, and protects long-term research. Contact your Members of Congress and urge them to pass the minibus without delay. We cannot wait curethekids.org/tell-congres...

Hello Bluesky. I’m Neev’s mom. I didn’t choose childhood cancer but it changed the course of my life. I now work as a scientist-advocate alongside families, clinicians, and researchers to push for better science, trials, and more humane systems for kids with cancer.