“After my dad’s cholangiocarcinoma diagnosis, I turned to CCF searching for answers and found something I hadn’t felt in days: hope. This season, your support ensures no patient or caregiver walks this path alone.” -Rob Howard 🕯️ Light a Candle of Hope: curecca.link/candles25

📅 Save the Date! Join us for the 2026 Birmingham Cholangiocarcinoma Symposium on Feb 20, 2026, in Birmingham, AL. Connect with experts, researchers, patients, and advocates. Snacks, beverages, and lunch provided. Register today to reserve your spot: https://curecca.link/birmingham.

🧬 Today is Cancer Biomarker Awareness Day! Cancer #biomarkertesting helps doctors match patients to best treatment based on the cancer’s unique biology. Ask your doctor about biomarker testing today!  Learn more at biomarkersmatter.org. #CancerBiomarkers | #CancerBiomarkerDay

💚 Upcoming Webinar: A Guide to Immunotherapy Join us Nov 13 @ 4:00 p.m. (EDT) with Jenna O’Rourke, MSN, FNP-BC from Beth Israel Deaconess Medical Center to learn about immunotherapy, side effects, and how doctors decide if it’s right for someone with cholangiocarcinoma. https://curecca.link/nov13

Looking for a gentle, gut-friendly meal during treatment? 🎃 Try pumpkin oatmeal! It’s packed with easy-to-tolerate fiber, vitamins, and minerals—low in fat and FODMAPs to help ease GI symptoms. 💚 Get more evidence-based nutrition tips with free Ina®: https://adchol.savorhealth.com/portal/

💚 This November, join our support groups to find connection, comfort, and understanding for anyone affected by cholangiocarcinoma. ✨ Register for any group here: curecca.link/supportgroups

🏃‍♂️💚 We’re grateful to Anton Semelroth Jr. for running the Marine Corps Marathon in honor of his grandpa, Dick, raising $3,490 for the Cholangiocarcinoma Foundation. Thank you, Anton, for your generosity and dedication! https://give.cholangiocarcinoma.org/fundraiser/6489752

🕸️ 🎃 Wishing you a Happy Halloween! We’re batty about this community! 🦇

📱 Sign up for free expert grief support — delivered via text. Help Texts provides personalized tips, resources, and gentle guidance to support you as you grieve. Getting support is as easy as getting a text. 👉 Sign up today at helptexts.com/CCFgrief.

Join the CCF Webinar Weaponizing White Blood Cells to Fight Cholangiocarcinoma with Dr. Gregory Lesinski (Emory University) on Oct 30, 4 PM EDT. Learn about CAR T cells, tumor-infiltrating lymphocytes, and emerging immunotherapy research. Sponsored by the Bloom Family. 🔗 curecca.link/oct30.

💚 Honoring Jim’s memory, Susan Camberis hosted her first annual “Smoke Out Cholangiocarcinoma” at Mission BBQ. Friends and family came together to celebrate his life, enjoy his favorite food, and raise $1,525 to support others impacted by cholangiocarcinoma. 💚 Thank you!

✨ CARE Events are happening across the country! ✨ 📍 New England Get-Together  🗓️ Oct. 28 | 💻 Virtual 📍 Houston Memorial Park Meet Up 🗓️ Nov. 8 | 🤝 In-person  📍 Washington, DC/Baltimore Inaugural CARE Event 🗓️ Nov. 15 | 💚 In-person Register at curecca.link/25careevents.

“My mentor has been such a blessing to me. Always there at just the right times.” CholangioConnect connects patients, caregivers, and bereaved mentors with someone who understands their journey.  🔗 Request a mentor today: curecca.link/cc.

Meet Dorian and Jade from The Woodlands, TX, two legacy caregivers, ministers, and mentors who are lifting others in the cholangiocarcinoma community. Become a mentor and support someone navigating their journey: curecca.link/cc.

💚 Grief looks different for everyone — and that’s okay. The Grief Care Kit Project offers resources to help children and young adults navigate loss with compassion. Thanks to AstraZeneca, kits are free for families in need. Request one here: https://curecca.link/GriefToolKit.

Join Team CCF's Choose Your Challenge this November by signing up for a local Turkey Trot or organizing one yourself! You can create a fundraising page and receive fundraising support. Visit https://curecca.link/cyc to get started. The first 5 participants will receive a pair of Turkey Trot socks.

Happy Diwali from the Cholangiocarcinoma Foundation! 🌟 May this season of light inspire hope, brighten every path, and remind us that together, our community shines stronger. 💛🪔💚 #Diwali #LightThePath #CureCCA #strengthincommunity

💚 October is Liver Cancer Awareness Month. Cholangiocarcinoma (bile duct cancer) is rare, but awareness saves lives. Learn the risk factors, symptoms, and how the Cholangiocarcinoma Foundation supports patients, advances research, and brings hope worldwide. 🌍 #LiverCancerAwareness #OctoberIs4Livers

The October CCF Update is here! Join On Your Mark to carry forward Mark’s legacy, sign up for upcoming webinars, and take part in the Turkey Trot with Team CCF! 💚 Don’t miss the Legacy Caregiver Gathering Nov. 6 and stay tuned for Awareness Month updates. 🔗

💻 Join Dr. Lipika Goyal from Stanford for the CCF webinar on Managing Side Effects of FGFR Inhibitors. Learn strategies to improve comfort, monitor side effects, and support treatment outcomes. 🗓 Oct 21, 3:30 PM EDT | Sponsored by Taiho Oncology

Katie & her son Asher honor Bobby’s legacy through Bobby’s Ducks, spreading hope one green duck at a time. 🦆 Join the Oct 18 Memorial Ride & follow their Jeep adventures: https://quackshack.net/shop/ols/products/bobbys-duck.

Honor your loved one’s legacy through giving. 💚 Create a memorial or In Lieu of Flowers page to celebrate their life and support patients and families affected by cholangiocarcinoma. Start here: https://give.cholangiocarcinoma.org/campaign/cholangiocarcinoma-foundation-memorial-fundraising/c684057

Please join us for our Houston CARE event — a chance for patients, caregivers, family, and community supporters to connect, share, and support in person. 📅 November 8, 2025 🕙 10:00 a.m. 📍 Memorial Park — Golf Clubhouse 📍 1001 E. Memorial Loop Dr., Houston, TX 77007 curecca.link/HoustonCareEvent

💚 Thank you, Kenton & Preston! In memory of their grandpa, Dr. James K. Welling, they hosted their 5th annual Apple Cider Stand — raising $1,154 this year and $8,606 total! 🍎 Their “go green” theme symbolized hope and progress toward a cure for bile duct cancer. 💚

💚 Save the Date! The 2025 Houston Cholangiocarcinoma Symposium will be held Dec. 12 at the Houston Methodist Research Institute. Join experts, patients & advocates for a full day of learning, connection, and collaboration. More info coming soon! 🔗: curecca.link/houstonsymposium

🎖️ CCF Webinar: Understanding Your Options After an Adverse VA Decision 🎖️ Join Katrina Eagle, Esq., to demystify the VA claims & appeals process and learn how to navigate denied disability claims. 📅 Oct 9 | 🕓 4 PM EDT | 💻 curecca.link/Oct9

💚 Join us for the first Legacy Caregiver Virtual Gathering 💚 A space for the CCA community to honor loved ones and reflect on how love continues. 📅 Nov 6 | 🕖 7–8 PM EST | 💻 Virtual. All are welcome. 👉 Register: curecca.link/LegacyCaregivers

💬 “I hope to continue being a mentor to many others for as long as I can.” – Lori Smith At the Cholangiocarcinoma Foundation, mentors like Lori walk alongside patients and caregivers, offering guidance, comfort, and hope.  👉 Request or become a mentor here: curecca.link/cc.

October is Liver Cancer Awareness Month. All month, we’ll share resources, stories, and education on cholangiocarcinoma—the 2nd most common liver cancer worldwide. Join us to spread awareness and support. 💚 curecca.org #Octoberis4Livers #livercancerawarenessmonth #livercancerrightsnow”

📣 New resource available in Spanish! NORD’s free training, “From Records to Research: Making Sense of Health Data for Rare Diseases,” helps the rare disease community better understand and use health data. 👉

💚 Rare, but not forgotten. 💚 Today on Rare Cancer Day, we honor those affected by cholangiocarcinoma. The Cholangiocarcinoma Foundation supports patients and families, advances research, and works to improve quality of life and find a cure. #RareCancerDay #CCAhope

This Tuesday, 9/30, enjoy Panda Express and support the Cholangiocarcinoma Foundation! 💚 Thanks to Elizabeth, 28% of online orders using code 9007733 will help patients & families impacted by CCA. For online orders only, use the code at checkout to make a difference!

💚 We Are Stronger Together. Through Cholangioconnect, patients and caregivers can find one-on-one support from someone who has walked a similar path. This peer-to-peer program creates personalized connections at any stage of the journey. Request or become a mentor today at curecca.link/cc.

Changing things up on your plate or in your cup can help boost your appetite. 🥑 Try a fruit milkshake with chewable bits or turn avocado into guacamole! Creativity can make mealtime more encouraging. Find more recipes on Ina®, free & available 24/7: https://adchol.savorhealth.com/portal/

🔬 On #WorldCancerResearchDay, we’re proud to spotlight our Fellowship Program—supporting innovative research that advances progress in bile duct cancer. Every discovery fuels hope for patients and families and brings us closer to a cure. 💚 #CancerResearch #HopeInResearch #CureCCA

Wishing all who celebrate a sweet and healthy New Year. 🍎🍯 Shanah Tovah from all of us at the Cholangiocarcinoma Foundation.

💻✨ CCF Webinar Series ✨💻 “Targeting Tomorrow: Next-gen immunotherapy (rilvegostomig) + T-DXd for advanced HER2-expressing BTC.” Learn about the DESTINY-BTC01 trial and new research in BTC care. 📅 Sept 25, 2025 | 🕓 4 p.m. ET 👨‍⚕️ Dr. Milind Javle 🔗 curecca.link/sep25

🌟 Young adults facing cholangiocarcinoma don’t have to navigate this journey alone. 🌟 CCF has a Young Adult Patient Support Group — a safe, supportive space for patients in their 20s & 30s to connect, share, and find community. 💚 📅 September 23, 2025 🕖 7:00 p.m. (ET) 🔗 curecca.link/youngadults

ICYMI: Enjoy this week's webinar recording: Advancements in CCA Management – What’s New?  @Maen Abdelrahim, MD, PhD, Pharm. B shared the latest breakthroughs in cholangiocarcinoma treatment and management. 📽️ View it here: https://youtu.be/gG-h8a42x8A.

💚 Join us for the New England Virtual CARE Meetup: Nutrition Does Not Have to Be Scary 💚 📅 Oct 28, 2025 | 🕕 6 PM ET | 💻 Online Learn from Mass General’s Clinical Nutrition Manager, explore seasonal recipes & join a live Q&A! Register 👉 https://curecca.link/newengland

📢 Please join us on Thursday, September 25, at 1 p.m. EST for a NCI CCR Liver Cancer Program seminar by Dr. Daniela Sia: “Discovery of Novel Therapeutic Vulnerabilities in Cholangiocarcinoma.” 🔗 Join by WebEx Meeting ID: 2301 482 7161 Passcode: 3vMg8XZig@7 #LiverCancer #Cholangiocarcinoma #NCICCR

📣 Healthcare professionals — don’t miss #ISGIO2025! Register FREE with code CCF 🎟️ Sept 12–13 | Austin, TX 👉 http://gotoper.com/isgioccf. Join Drs. Bekaii-Saab & O’Reilly for 2 days of GI cancer insights: trials, biomarkers, treatment strategies & more. #Oncology #CME

💚 Survivor Story Q&A Deborah, a retired RN, full-time caregiver, and now a cholangiocarcinoma survivor, shares her remarkable journey to encourage and inspire others facing a similar diagnosis. 👉 Read her story: https://curecca.link/deborah

💚 Thank you to Team Rooted in Faith – Cholangio Fighters! At the Shelby County Relay for Life, this amazing team raised $1,000 to support the Cholangiocarcinoma Foundation and help fund a cure. 🙌

Happy Labor Day from the Cholangiocarcinoma Foundation! 🎉 Today, we celebrate the hard work, dedication, and resilience of everyone, especially those in the cholangiocarcinoma community. Enjoy the day, and take a moment to relax and recharge! 💪💚

🧭 You're their guide. We're your partner. Healthcare Providers: CCF can help you explore treatment options, connect to research, and offer trusted patient resources. Start here 👉 https://www.cholangiocarcinoma.org/physicians/ #Cholangiocarcinoma #RareCancer #ClinicalTrials #GIPractitioners

Stay current in BTC & GEA cancers! We’ve partnered with PER to create a resource center featuring articles, 3 CME courses, and videos from experts like the @oncbros. Explore this all-in-one hub designed to keep you current in cancer care here: https://tinyurl.com/5h5b6849

Caring for someone with cholangiocarcinoma is hard. 💚 CCF, with support from AstraZeneca, offers HelpTexts—a free service with personalized tips and support for caregivers and bereaved caregivers. Sign up in minutes: helptexts.com/ccf | helptexts.com/ccfgrief #CCAhope

🌴🏖️ Ready to run LA? Join Team CCF for the LA Marathon on March 8, 2026! 🏃‍♀️ We’ll cover your race entry in exchange for your commitment to raise $1,750+ for the Cholangiocarcinoma Foundation. Let’s make miles matter!  curecca.link/LAmarathon

Missed the 2025 Portland Cholangiocarcinoma Symposium? 🎥 Watch the full recording to hear from leading experts, researchers, patients, and advocates as they share the latest advances in treatment and research. 📍 Recorded June 27, 2025 — now available on YouTube: