Lauren has SMA type 2 and lives in London with her husband. She has worked in policy and campaigns for the last ten years. UpLift 𝐀𝐂𝐓𝐈𝐎𝐍 𝖧𝗈𝗂𝗌𝗍𝗌 𝗂𝗇 𝖧𝗈𝗍𝖾𝗅𝗌!🗣️📝 📝 𝐒𝐢𝐠𝐧 𝐔𝐩: https://forms.gle/N4zMuXCmdenUJHKG6

The Pathfinders social survey has gone live. Please take a moment to share your experiences of the care packages you receive so that we can shape our campaigning efforts for the upcoming year. https://forms.gle/uN3T9P1TkyVnKrJC9 or click the link in the bio. #SocialCare #CareSurvey #HaveYourSay

Check out our latest updates in our October 2025 newsletter! https://mailchi.mp/pathfindersalliance/pathfinders-october-2025-update

This month, we're shining a spotlight on Charcot-Marie-Tooth (CMT) disease - one of the most common inherited neurological conditions, yet surprisingly unknown to many. Throughout October, we'll be sharing informative posts, stories, and resources to raise awareness about CMT.

Sarah Skyrme is a researcher directing an animated film and is looking for brief feedback on it. It is a 2-minute animation based on interviews Sarah did with boys with Duchenne muscular dystrophy, it depicts a mother and son having a conversation. You will receive a £25 voucher for taking part.

Please take a look and share! 🙌🏽 @pathfindersnma.bsky.social @asthmaandlung.org.uk @mdukcharity.bsky.social @sophphillips32.bsky.social @profkrc.bsky.social @wellcometrust.bsky.social @sfdirewolf.bsky.social @naomijacobs.bsky.social @longcovidadvoc.com

JOIN OUR TEAM! We're looking for a skilled communications and engagement professional to enhance our communications, expand our audience, and deepen user interactions across all platforms. Apply here: www.charityjob.co.uk/jobs/pathfin... LAST CHANCE! Deadline Wednesday 21st May at 11am

Tomorrow is World HMV Day, which supports ventilated people, patients & their families. This year's theme is #HMVCareIsKey We have a very special blog post out tomorrow troubling the current context of care in relation to HMV written by one of our community researchers👍 @pathfindersnma.bsky.social

WE'RE HIRING We're looking for an experienced communications and engagement professional to improve our content, reach and user engagement. Apply here: www.charityjob.co.uk/jobs/pathfin... #disability #musculardystrophy