New episode alert! In episode 10 of our PA & Employer Journey bitesize video series, Janet Hoskin and Saul Catlin discuss the importance of memory memory and cognitive challenges for people with Duchenne Muscular Dystrophy. Watch now on YouTube! 👉 https://youtu.be/s1eviGqzjpo

New episode alert! In episode 9 of our PA & Employer Journey bitesize video series, Charley Walker, Helen Povey, and Jon Hastie discuss how to plan outings and the ways their PAs support them. Watch now on YouTube! 👉 https://youtu.be/DqAq3dFJR3I #MuscularDystrophy #PAJourney

Social Committee Meeting – Have Your Say! We’re holding our Social Committee meeting on Wednesday 19 March at 12:00pm, and we’d love for you to get involved. Sign up via the link in the bio or search Pathfinders on Eventbrite #SocialCommittee #AccessibleEvents

New episode alert! In episode 8 of our PA & Employer Journey bitesize video series, Sarah Rose and Phillipa Groves discuss how they collaborate to manage appointments, emphasising the importance of flexibility and communication. Watch now on YouTube! 👉 https://youtu.be/fD3ocl-meAk

New episode alert! In episode 7 of our PA & Employer Journey bitesize video series, Jon Hastie shares the impact of Duchenne Muscular Dystrophy, while emphasising that he lives an independent, fulfilling life with support from PAs. Watch now on YouTube 👉 https://youtu.be/rj9pZsMoZ48

Our new bite-sized video series, "PA and Employer Journey," are now live, covering 10 topics important to PAs and PA employers. Watch now, share your thoughts in the comments, and help us spread the word by sharing with your network! #PAJourney #EmployerJourney #SkillsforCare

New episode alert! In episode 5 of our PA & Employer Journey bitesize video series, Charley Walker dives into the importance of communication and apps and "Working Together" with your PA. Watch now on YouTube and follow us for more! 👉 https://youtu.be/phBhi-d5sCU

Episode 4 of our PA & Employer Journey series has Sarah, Phillipa, and Benjamin discussing the topic of “Training a Routine". Watch the video here https://youtu.be/IpEHWCSqPzA, and check out the other videos in this series! #PAJourney #EmployerTips #TrainingRoutine #skillsforcare

New episode alert! In episode 6 of our PA & Employer Journey bitesize video series, Charley Walker and Mia Sparkes dive into what 'Being a PA' is Watch now on our YouTube channel and follow us for more empowering episodes! 👉 https://youtu.be/kNfwJ7YjqvM

New episode alert! In episode 3 of our PA & Employer Journey bitesize video series, Benjamin James dives into the essentials of 'Supervision and Appraisals.' Watch now on our YouTube channel and follow us for more empowering episodes! 👉 https://youtu.be/ZhtgDC4KXxU

🚨 TODAY’S THE DAY! EMPOWER Yourself in 2026 🦸 – with Sam & Alex https://tinyurl.com/EmpowerTw See you later!

Episode 2 in the PA and Employer Journey series on Getting the Right Start. Jamie Hale discusses the importance of a job descriptions and adverts when it comes to recruiting your own PAs, the best place to start and ideal practises Out now on YouTube: https://youtu.be/XnC5vSp_yJ0

Episode 1 in the PA and Employer Journey series on Being Assertive. Charley Walker and Jon Hastie gives tips about the importance of Being Assertive with your PA and how it enables them as employers to be clear about their needs. Out now on YouTube: https://youtu.be/wvp_e9bFsiA

Sam & Alex Bolton are twins from Derby living with Type 2 SMA. 📅 11 Feb | 2–3:30pm | Online 🔗 https://tinyurl.com/EmpowerTw Ages 18–30 with a muscle-weakening condition — don’t miss it!

EMPOWER Yourself in 2026 🦸 18–30 with a muscle-weakening condition? Join our 6th EMPOWER session on Wed! Guests: Sam & Alex, twins from Derby 🎬 📅 Wed 11 Feb | ⏰ 2–3:30pm 💻 Online 🔗 https://tinyurl.com/EmpowerTw

Our next Drop In session is taking place on Tuesday 11 February, 6:00–7:00pm. Join us for an informal, welcoming space to chat, share experiences, and connect with others living with muscle weakening conditions. Sign up via Eventbrite

Our 6th & final uplifting session — EMPOWER Yourself in 2026 🦸 📅 11 Feb ⏰ 2:00–3:30pm 📍 Online 🔗 https://tinyurl.com/EmpowerTw

EMPOWER Yourself in 2026 🦸 Join our last session in our EMPOWER programme 📅 Wed 11th Feb ⏰ 2:00pm–3:30pm 💻 Online 🔗 Sign up: https://tinyurl.com/EmpowerTw

🚨 TODAY’S THE DAY! EMPOWER: Taking Care of Yourself ❤️‍🩹 – with Oliver from HEAR4U Counselling. https://tinyurl.com/EmpowerTw

Oliver Pool is a UK based psychotherapist and full time wheelchair user. 📅 4 Feb | 2–3:30pm | Online 🔗 https://tinyurl.com/EmpowerTw Ages 18–30 with a muscle-weakening condition — don’t miss it!

EMPOWER Taking Care of Yourself ❤️‍🩹 18–30 with a muscle-weakening condition? Join our 5th EMPOWER session next Wed! Guest: Oliver — psychotherapist & wheelchair user ✨ 📅 Wed 4 Feb | ⏰ 2–3:30pm 💻 Online 🔗 https://tinyurl.com/EmpowerTw

Our 5th uplifting session — EMPOWER Taking care of Yourself ❤️‍🩹 📅 4 Feb ⏰ 2:00–3:30pm 📍 Online 🔗 https://tinyurl.com/EmpowerTw

EMPOWER Taking Care of Yourself ❤️‍🩹 Join our weekly online EMPOWER programme 📅 Wed 4th Feb ⏰ 2:00pm–3:30pm 💻 Online 🔗 Sign up: https://tinyurl.com/EmpowerTw

🚨 TODAY’S THE DAY! Join us at 2pm for EMPOWER Change - with Shelby — content creator, model & disabled activist. https://tinyurl.com/EmpowerTw

Shelby is a content creator, model, and disabled activist. 📅 28 Jan | 2–3:30pm | Online 🔗 https://tinyurl.com/EmpowerTw Ages 18–30 with a muscle-weakening condition — don’t miss it!

EMPOWER Change 📱 Are you 18–30 with a muscle-weakening condition? Join our 4th EMPOWER session next Wed! Guest: Shelby (28) — content creator, model & disabled activist ✨ 📅 Wed 28 Jan | ⏰ 2–3:30pm 💻 Online 🔗 https://tinyurl.com/EmpowerTw

We’re starting a brand new Social Committee! No experience needed, just bring your ideas, enthusiasm, and a desire to connect with others in the community. Interested? Find out more email [email protected] for more info #PathfindersCommunity #GetInvolved #SocialCommittee

Ready to make a change? 📱 Our 4th uplifting session — EMPOWER Change 📅 28 Jan ⏰ 2:00–3:30pm 📍 Online 🔗 https://tinyurl.com/EmpowerTw

EMPOWER Change 📱 Join our weekly online EMPOWER programme 📅 Wed 28th Jan ⏰ 2:00pm–3:30pm 💻 Online 🔗 Sign up: https://tinyurl.com/EmpowerTw

⚽ UpLift CONNECT IRL: Powerchair Football You asked, we delivered! A day dedicated to Powerchair Football with UpLift & the WFA. 📆 Sun 8 Feb 2026 | 📍 Nottingham | 10:00 - 15:00 💷 FREE (Lunch included) 📝 Sign up: https://forms.gle/DpMiHZFEEZ6bMdFs6 #PowerchairFootball #InclusiveSport

⚽ CONNECT IRL Powerchair Football For people with a muscle-weakening condition. Beginners and experienced players welcome! 📍 David Ross Sports Village 📅 Sun 8 Feb | ⌚ 10–3 🍽️ FREE lunch | 🤝 WFA supported 📝 Sign up: https://forms.gle/DpMiHZFEEZ6bMdFs6 #PowerchairFootball

Sarah Rose is the Chair of Trustees at Pathfinders 📅 21 Jan | 2–3:30pm | Online 🔗 https://tinyurl.com/EmpowerTw Ages 18–30 with a muscle-weakening condition — don’t miss it!

⚽ CONNECT IRL Powerchair Football For people with muscle-weakening conditions. Beginners and experienced players welcome! 📍 David Ross Sports Village 📅 Sun 8 Feb | ⌚ 10:00 - 15:00 🍽️ FREE lunch | 🤝 WFA supported 📝 Sign up: https://forms.gle/DpMiHZFEEZ6bMdFs6 #PowerchairFootball

🚨 TODAY’S THE DAY! Join us at 2pm for EMPOWER: Be Heard - with Holly Robertson; Pathfinders’ Advocacy and Campaigns Officer https://tinyurl.com/EmpowerTw

⚽ CONNECT IRL Powerchair Football – Nottingham Muscle-weakening condition Age 18-30 Love Powerchair Football 📍 David Ross Sports Village 📅 Sun 8 Feb | ⌚ 10:00 - 15:00 🍽️ FREE lunch | 🤝 WFA supported 📝 Sign up: https://forms.gle/DpMiHZFEEZ6bMdFs6 #PowerchairFootball

Holly Robertson is the Advocacy and Campaigns Officer at Pathfinders 📅 14 Jan | 2–3:30pm | Online 🔗 https://tinyurl.com/EmpowerTw Ages 18–30 with a muscle-weakening condition — don’t miss it!

⚽ UpLift CONNECT IRL Powerchair Football 📆 Sun 8 Feb 2026 | ⌚ 10:00–15:00 📍 David Ross Sports Village, Nottingham 💷 FREE (lunch included) A day of powerchair football with Pathfinder’s UpLift team & the WFA. 📝 Sign up: https://forms.gle/DpMiHZFEEZ6bMdFs6 #PowerchairFootball

🚨 TODAY’S THE DAY! Join us at 2pm for EMPOWER: Celebrating Success with England Powerchair Football GK & entrepreneur Chris Gordon ⚽✨ https://tinyurl.com/EmpowerTw

Lauren has SMA type 2 and lives in London with her husband. She has worked in policy and campaigns for the last ten years. UpLift 𝐀𝐂𝐓𝐈𝐎𝐍 𝖧𝗈𝗂𝗌𝗍𝗌 𝗂𝗇 𝖧𝗈𝗍𝖾𝗅𝗌!🗣️📝 📝 𝐒𝐢𝐠𝐧 𝐔𝐩: https://forms.gle/N4zMuXCmdenUJHKG6

The Pathfinders social survey has gone live. Please take a moment to share your experiences of the care packages you receive so that we can shape our campaigning efforts for the upcoming year. https://forms.gle/uN3T9P1TkyVnKrJC9 or click the link in the bio. #SocialCare #CareSurvey #HaveYourSay

Check out our latest updates in our October 2025 newsletter! https://mailchi.mp/pathfindersalliance/pathfinders-october-2025-update

This month, we're shining a spotlight on Charcot-Marie-Tooth (CMT) disease - one of the most common inherited neurological conditions, yet surprisingly unknown to many. Throughout October, we'll be sharing informative posts, stories, and resources to raise awareness about CMT.

Sarah Skyrme is a researcher directing an animated film and is looking for brief feedback on it. It is a 2-minute animation based on interviews Sarah did with boys with Duchenne muscular dystrophy, it depicts a mother and son having a conversation. You will receive a £25 voucher for taking part.

Please take a look and share! 🙌🏽 @pathfindersnma.bsky.social @asthmaandlung.org.uk @mdukcharity.bsky.social @sophphillips32.bsky.social @profkrc.bsky.social @wellcometrust.bsky.social @sfdirewolf.bsky.social @naomijacobs.bsky.social @longcovidadvoc.com

JOIN OUR TEAM! We're looking for a skilled communications and engagement professional to enhance our communications, expand our audience, and deepen user interactions across all platforms. Apply here: www.charityjob.co.uk/jobs/pathfin... LAST CHANCE! Deadline Wednesday 21st May at 11am

Tomorrow is World HMV Day, which supports ventilated people, patients & their families. This year's theme is #HMVCareIsKey We have a very special blog post out tomorrow troubling the current context of care in relation to HMV written by one of our community researchers👍 @pathfindersnma.bsky.social

WE'RE HIRING We're looking for an experienced communications and engagement professional to improve our content, reach and user engagement. Apply here: www.charityjob.co.uk/jobs/pathfin... #disability #musculardystrophy