Going to restart using Nebido (testosterone undecanoate) Going to take it every 8 weeks. Hopefully it should give a slightly higher and more stable testosterone level. #kallmann #hypogonadism #hypogonadotropic #testosterone #hormonereplacementtherapy #nebido #undecanoate #puberty #latebloomer

We are creating a channel on You Tube where I will be asking a Kallmann medical expert some frequently asked questions on #Kallmann syndrome and #Hypogonadotropic Hypogonadism. We aim to produce a series of 3 - 5 minute videos to help raise awareness of the condition. youtu.be/QDfpA8NsoFY?...

We have patient groups on Reddit and Facebook where you can talk to other patients with #Kallmann syndrome and #Hypogonadotropic hypogonadism. www.reddit.com/r/kallmann_s...

Kallmann syndrome is a rare genetic hormonal condition that affects puberty & fertility. Associated with a lack of sense of smell. www.tiktok.com/@neilsmith38... #rarediseaseday #rarediseaseday2025 #kallmann #puberty #hypogonadism #hypogonadotropic #hormone #infertility #anosmia #endocrinology

Behind every face is a unique and powerful story. This #RareDiseaseDay, read the stories behind the faces on our #FacesOfRare wall and add your own photo celebrating yourself or a loved one, living or in memory, here: bit.ly/4g6TEJa #ShowYourStripes #RareDisease

Endocrinology appointment today. I am going to switch treatment from testosterone gel back the Nebido injection (testosterone undecanoate). Starting with a 8 week injection interval. #kallmannsyndrome #kallmann #puberty #infertility #anosmia #latebloomer #hormonereplacementtherapy #testosterone

Kallmann syndrome - not a late bloomer. #rarediseaseday2025 #rarediseaseday #rarediseaseawareness #kallmannsyndrome #kallmann #hypogonadotropichypogonadism #hypogonadism #puberty #infertility #anosmia #latebloomer #hormonereplacementtherapy #endocrinology #hypothalamus #testosterone #oestrogen

#rarediseaseday2025 #raredisease #kallmann #hypogonadotropic #hypogonadism #puberty #infertility #anosmia #gonadotropin

There are patient groups for Kallmann syndrome / CHH on Reddit and Facebook. Message from team of researchers from the University of Cambridge. A 15 min study on diversity and mental health in people with Kallmann syndrome #kallmann #puberty #raredisease www.reddit.com/r/kallmann_s...

Kallmann syndrome - a form of hypogonadotropic hypogonadism. Rare hormone condition that prevents normal puberty and fertility. #rarediseaseday #rarediseaseday2025 #kallmannsyndrome #kallmann #hypogonadism #hypogonadotropichypogonadism #puberty #anosmia #hormonereplacementtherapy #endocrinology

nyaspubs.onlinelibrary.wiley.com/share/H6CMMN... Kallmann syndrome / hypogonadotropic hypogonadism affects normal puberty and fertility in both males & females. Fertility treatments are available in the form of gonadotropin therapy. #kallmann #hypogonadotropic #infertility #puberty #gonadotropin

www.ncbi.nlm.nih.gov/books/NBK1334/ I have always found this to be a very helpful review on Kallmann syndrome / hypogonadotropic hypogonadism. GnRH deficiency is probably a more accurate description of the condition that affects puberty and fertility. #kallmannsyndrome #puberty #anosmia

www.tiktok.com/@neilsmith38... #kallmann #hypogonadotropic #puberty #latebloomer #rarediseaseday #raredisease #testosterone #anosmia #infertility

#kallmannsyndrome #rarediseaseday #puberty #infertility #anosmia

I was diagnosed with #kallmannsyndrome when I was 23 years old, after being misdiagnosed as being a "late bloomer". This is one of the first You Tube videos I created, 15 years ago. youtu.be/NdugznakBGo?... #puberty #kallmann #hypogonadotropic #infertility #anosmia

#RareDiseaseDay2025 is on 28th Feb. A video made 8 years ago for Genetic Alliance UK. #Kallmannsyndrome is a rare genetic endocrine condition that affects puberty and fertility. Patients are often mis diagnosed as "late bloomers". youtu.be/K3hSC6t2T1U?...

#GnRH deficiency is perhaps a better term to describe both #Kallmann syndrome & #hypogonadotropic #hypogonadism. Kallmann syndrome / HH is a secondary hypogonadism condition due to a disruption in GnRH production preventing correct gonadotropin release. www.ncbi.nlm.nih.gov/books/NBK1334/

Patients with #Kallmann syndrome / #hypogonadotropic hypogonadism do not experience #mini-puberty, the post natel hormone surge around 3 to 6 months of age. Testing at this stage can offer a chance of early diagnosis and treatment for male patients. pmc.ncbi.nlm.nih.gov/articles/PMC...

Contributions of common genetic variants to constitutional delay of #puberty and idiopathic hypogonadotropic #hypogonadism. doi.org/10.1210/clin... Featured study in #JCEM. #FreeToView #genetics #KallmanSyndrome @endocrinesociety.bsky.social

youtube.com/shorts/9Po8L... #Kallmann syndrome is a rare genetic hormone condition that affects puberty and fertility. Patients are often misdiagnosed as "late bloomers" or "late developers". It is not the same condition as late puberty. #rarediseaseday #patientadvocacy #puberty #kallmann

Switching to Bluesky I think. I am patient advocate for #Kallmann syndrome. I post information about my rare endocrine condition in the hope to raise awareness and share information. It is a condition that affects puberty and fertility. It is not the same condition as delayed puberty.

The condition is not the same as being a "late bloomer" or a "late developer". Patients with this condition would require life long hormone replacement therapy to replace the hormones normally produced after #puberty and specialised treatment known as #gonadotropin therapy if fertility is desired.

#Kallmann syndrome is a rare hormonal condition affecting #puberty and fertility. It affects both males and females but is more often diagnosed in males. Kallmann syndrome is specifically associated with having no sense of smell from birth - #anosmia

#Kallmann syndrome is a form of a condition called #hypogonadotropic hypogonadism (HH). There is a failure in the production of hormones that control puberty and fertility. It is not the same condition as delayed puberty or being a "late bloomer".

I have #Kallmann syndrome. I post on social media about my condition to help to try raise awareness for this rare endocrine condition that affects #puberty and #fertility. Kallmann syndrome has the additional symptom of a lack of sense of smell - #anosmia.